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Associations of Family-Centered Care with Health Care Outcomes for Children with Special Health Care Needs

Kuo, Dennis Z., Bird, T. Mac, Tilford, J. Mick·2011·Maternal and Child Health Journal

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Abstract

The objective of this study is to examine the association of family-centered care (FCC) with specific health care service outcomes for children with special health care needs (CSHCN). The study is a secondary analysis of the 2005-2006 National Survey of Children with Special Health Care Needs. Receipt of FCC was determined by five questions regarding how well health care providers addressed family concerns in the prior 12 months. We measured family burden by reports of delayed health care, unmet need, financial costs, and time devoted to care; health status, by stability of health care needs; and emergency department and outpatient service use. All statistical analyses used propensity score-based matching models to address selection bias. FCC was reported by 65.6% of respondents (N = 38,915). FCC was associated with less delayed health care (AOR: 0.56; 95% CI: 0.48, 0.66), fewer unmet service needs (AOR: 0.53; 95% CI: 0.47, 0.60), reduced odds of ≥1 h/week coordinating care (AOR: 0.83; 95% CI: 0.74, 0.93) and reductions in out of pocket costs (AOR: 0.88; 95% CI: 0.80, 0.96). FCC was associated with more stable health care needs (AOR: 1.11; 95% CI: 1.01, 1.21), reduced odds of emergency room visits (AOR: 0.90; 95% CI: 0.82, 0.99) and increased odds of doctor visits (AOR: 1.25; 95% CI: 1.14, 1.37). Our study demonstrates associations of positive health and family outcomes with FCC. Realizing the health care delivery benefits of FCC may require additional encounters to build key…

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Authors: Kuo, D. Z., Bird, T. M., & Tilford, J. M.
Affiliations: University of Arkansas for Medical Sciences (US)
Corresponding author: Kuo, Dennis Z.
ORCID: Kuo, Dennis Z.
Bird, T. Mac
Tilford, J. Mick
Venue: Maternal and Child Health Journal
Publisher: Springer Science and Business Media LLC
Published: 2010-07-17
Volume: 15
Issue: 6
Pages: 794-805
ISSN: 1092-7875 (ISSN-L)
1573-6628
DOI: 10.1007/s10995-010-0648-x
OpenAlex: W1979704291
Cited by: 139
References: 45
Citations by year: 2026: 3 · 2025: 6 · 2024: 8 · 2023: 5 · 2022: 12 · 2021: 6 · 2020: 13 · 2019: 10 · 2018: 13 · 2017: 13 · 2016: 11 · 2015: 12 · 2014: 10 · 2013: 8 · 2012: 4
FWCI: 15.02
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (tdm)
Locations: Maternal and Child Health Journal (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords: family-centered care, children with special health care needs, family burden, unmet service needs, out-of-pocket costs, care coordination, emergency department visits
MeSH terms: Adolescent, Child, Child Health Services, Child, Preschool, Health Services Needs and Demand, Humans, Infant, Infant, Newborn, Physician-Patient Relations, United States, Treatment Outcome, Children with Disabilities, Family Nursing

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Associations of Family-Centered Care with Health Care Outcomes for Children with Special Health Care Needs

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