The DOI matches its Crossref record; 45 of the 45 references it cites were found in a registry or an index.
Associations of Family-Centered Care with Health Care Outcomes for Children with Special Health Care Needs
Abstract
The objective of this study is to examine the association of family-centered care (FCC) with specific health care service outcomes for children with special health care needs (CSHCN). The study is a secondary analysis of the 2005-2006 National Survey of Children with Special Health Care Needs. Receipt of FCC was determined by five questions regarding how well health care providers addressed family concerns in the prior 12 months. We measured family burden by reports of delayed health care, unmet need, financial costs, and time devoted to care; health status, by stability of health care needs; and emergency department and outpatient service use. All statistical analyses used propensity score-based matching models to address selection bias. FCC was reported by 65.6% of respondents (N = 38,915). FCC was associated with less delayed health care (AOR: 0.56; 95% CI: 0.48, 0.66), fewer unmet service needs (AOR: 0.53; 95% CI: 0.47, 0.60), reduced odds of ≥1 h/week coordinating care (AOR: 0.83; 95% CI: 0.74, 0.93) and reductions in out of pocket costs (AOR: 0.88; 95% CI: 0.80, 0.96). FCC was associated with more stable health care needs (AOR: 1.11; 95% CI: 1.01, 1.21), reduced odds of emergency room visits (AOR: 0.90; 95% CI: 0.82, 0.99) and increased odds of doctor visits (AOR: 1.25; 95% CI: 1.14, 1.37). Our study demonstrates associations of positive health and family outcomes with FCC. Realizing the health care delivery benefits of FCC may require additional encounters to build key…
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“Considerable time and repeated visits with providers may be needed to build family support and partnering [68, 80, 81].”
From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [68]
In the citing paper
“Studies examining family roles and levels of involvement within health care found that the strongest evidence for efficacy of FCC is in efficient use of resources and supporting health/mental health/well-being, and to a lesser extent in transition and cost containment [67, 68].”
From Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care (2012) · cites this paper as [68]
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Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care
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Metadata
- Authors
- Kuo, D. Z., Bird, T. M., & Tilford, J. M.
- Affiliations
- University of Arkansas for Medical Sciences (US)
- Corresponding author
- Kuo, Dennis Z.
- Venue
- Maternal and Child Health Journal
- Published
- 2010-07-17
- Volume
- 15
- Issue
- 6
- Pages
- 794-805
- ISSN
- 1092-7875 (ISSN-L)
- 1573-6628
- OpenAlex
- W1979704291
- Cited by
- 139
- References
- 45
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 8 · 2023: 5 · 2022: 12 · 2021: 6 · 2020: 13 · 2019: 10 · 2018: 13 · 2017: 13 · 2016: 11 · 2015: 12 · 2014: 10 · 2013: 8 · 2012: 4
- FWCI
- 15.02
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Maternal and Child Health Journal (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- family-centered care, children with special health care needs, family burden, unmet service needs, out-of-pocket costs, care coordination, emergency department visits
- MeSH terms
- Adolescent, Child, Child Health Services, Child, Preschool, Health Services Needs and Demand, Humans, Infant, Infant, Newborn, Physician-Patient Relations, United States, Treatment Outcome, Children with Disabilities, Family Nursing
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