Care Coordination Impacts on Access to Care for Children with Special Health Care Needs Enrolled in Medicaid and CHIP
Abstract
Children with special health care needs (CSHCN) often require services from multiple health care providers. This study's objective is to evaluate whether CSHCN, enrolled in Medicaid or the Children's Health Insurance Program (CHIP) and receiving care coordination services, experience improved access to mental and specialty health care services. Using data from the 2009-2010 National Survey of Children with Special Health Care Needs, two separate outcomes are used to evaluate children's access to care: receipt of needed mental and specialty care and timely access to services. Using propensity score matching, CSHCN propensity for receiving care coordination services is derived and an assessment is made of care coordination's impact on the receipt of health care and whether care is delayed. Results demonstrate that care coordination is positively associated with whether a child receives the mental and specialty care that they need, regardless of whether or not that coordination is perceived to be adequate by parents. However, receiving care coordination services that parents perceive to be adequate has a larger impact on the timeliness in which care is received. This study indicates that care coordination is associated with an increased ability for CSHCN to access needed mental and specialty care. States should consider offering care coordination services that support provider communication and fulfill families' coordination needs to the CSHCN enrolled in their Medicaid and CHIP…
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Families who receive professional assistance coordinating care across providers are more likely to access needed specialist care than those who do not.
“Families who receive professional assistance coordinating care across providers are more likely to access needed specialist care”
From Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children (2026) · cites this paper as Miller, 2014
Receipt of adequate care coordination is associated with increased access to specialized medical care.
“increased access to specialized medical care (Graaf & Gigli, 2022; Miller, 2014)”
From Adequate Care Coordination is Associated with Reduced Unmet Mental Health Needs for Children (2026) · cites this paper as Miller, 2014
Cites
The central role of the propensity score in observational studies for causal effects
ROSENBAUM, P. R., & RUBIN, D. B. (1983) · Biometrika · doi:10.1093/biomet/70.1.41 · Cited by 31,241 · see citing works
Revisiting the Behavioral Model and Access to Medical Care: Does it Matter?
Andersen, R. M. (1995) · Journal of Health and Social Behavior · doi:10.2307/2137284 · Cited by 9,831 · see citing works
Estimating Causal Effects from Large Data Sets Using Propensity Scores
Rubin, D. V. (1997) · Annals of Internal Medicine · doi:10.7326/0003-4819-127-8_part_2-199710151-00064 · Cited by 3,104 · see citing works
Children's Mental Health Service Use Across Service Sectors
Burns, B. J., Costello, E. J., Angold, A. C., Tweed, D. L., Stangl, D. K., Farmer, E. M. Z., & Erkanli, A. (1995) · Health Affairs · doi:10.1377/hlthaff.14.3.147 · Cited by 1,145 · see citing works
Leutz, W. N. (1999) · Milbank Quarterly · doi:10.1111/1468-0009.00125 · Cited by 832 · see citing works
Children With Complex Chronic Conditions in Inpatient Hospital Settings in the United States
Simon, T. D., Berry, J. G., Feudtner, C., Stone, B. L., Sheng, X., Bratton, S. L., Dean, J. M., & Srivastava, R. (2010) · PEDIATRICS · doi:10.1542/peds.2009-3266 · Cited by 736 · see citing works
Mental Health Service Use in the Community and Schools: Results from the Four-Community MECA Study
Leaf, P. J., Alegria, M. M., Cohen, P. R., Goodman, S. H., Horwitz, S. M., Hoven, C. W., Narrow, W. E., Vaden-Kiernan, M., & Regier, D. A. (1996) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/00004583-199607000-00014 · Cited by 608 · see citing works
Newacheck, P. W., & Kim, S. E. (2005) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.159.1.10 · Cited by 456 · see citing works
Chatfield, M. (1980) · Health Care Management Review · doi:10.1097/00004010-198000530-00016 · Cited by 426 · see citing works
Increasing Prevalence of Medically Complex Children in US Hospitals
Burns, K. H., Casey, P. H., Lyle, R. E., Bird, T. M., Fussell, J. J., & Robbins, J. M. (2010) · PEDIATRICS · doi:10.1542/peds.2009-1658 · Cited by 421 · see citing works
Luellen, J., Shadish, W., & Clark, M. H. (2005) · Evaluation review · doi:10.1177/0193841x05275596 · Cited by 340 · see citing works
Health Services Use and Health Care Expenditures for Children With Disabilities
Newacheck, P. W., Inkelas, M., & Kim, S. E. (2004) · PEDIATRICS · doi:10.1542/peds.114.1.79 · Cited by 299 · see citing works
Referral and Consultation Communication Between Primary Care and Specialist Physicians
O’Malley, A. S., & Reschovsky, J. D. (2011) · Archives of Internal Medicine · doi:10.1001/archinternmed.2010.480 · Cited by 292 · see citing works
Woolf, S. H. (2004) · The Annals of Family Medicine · doi:10.1370/afm.126 · Cited by 225 · see citing works
Gordon, J. B., Colby, H., Bartelt, T., Jablonski, D., Krauthoefer, M. L., & Havens, P. L. (2007) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.161.10.937 · Cited by 215 · see citing works
(1995) · Journal of General Internal Medicine · doi:10.1007/bf02599863 · Cited by 214 · see citing works
Bramlett, M. D., Read, D., Bethell, C. D., & Blumberg, S. J. (2008) · Maternal and Child Health Journal · doi:10.1007/s10995-008-0339-z · Cited by 151 · see citing works
Care Coordination for CSHCN: Associations With Family-Provider Relations and Family/Child Outcomes
Turchi, R. M., Berhane, Z., Bethell, C. D., Pomponio, A. D., Antonelli, R. C., & Minkovitz, C. S. (2009) · PEDIATRICS · doi:10.1542/peds.2009-1255o · Cited by 147 · see citing works
Kuo, D. Z., Bird, T. M., & Tilford, J. M. (2011) · Maternal and Child Health Journal · doi:10.1007/s10995-010-0648-x · Cited by 139 · see citing works
A Primer on Propensity Score Analysis
Shadish, W. R., & Steiner, P. M. (2010) · Newborn and Infant Nursing Reviews · doi:10.1053/j.nainr.2009.12.010 · Cited by 114 · see citing works
Determinants of ambulatory mental health services use for school-age children and adolescents.
Cunningham, P. J., & Freiman, M. P. (1996) · PubMed · Cited by 110 · see citing works
STRESS IN FAMILIES WITH MEDICALLY FRAGILE CHILDREN
Ratliffe, C. E., Harrigan, R., Haley, J. M., Tse, A. M., & Olson, T. (2002) · Issues in Comprehensive Pediatric Nursing · doi:10.1080/01460860290042558 · Cited by 93 · see citing works
Consultative Care Coordination Through the Medical Home for CSHCN: A Randomized Controlled Trial
Farmer, J. E., Clark, M. J., Drewel, E. H., Swenson, T. M., & Ge, B. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-010-0658-8 · Cited by 88 · see citing works
Access to care for children with autism in the context of state Medicaid reimbursement
Thomas, K. C., Parish, S. L., Rose, R. A., & Kilany, M. (2011) · Maternal and Child Health Journal · doi:10.1007/s10995-011-0862-1 · Cited by 57 · see citing works
Ganz, M. L., & Tendulkar, S. A. (2006) · PEDIATRICS · doi:10.1542/peds.2005-1531 · Cited by 55 · see citing works
Care coordination for children with complex care needs significantly reduces hospital utilization
Peter, S., Chaney, G., Zappia, T., Veldhuisen, C. V., Pereira, S., & Santamaria, N. (2011) · Journal for Specialists in Pediatric Nursing · doi:10.1111/j.1744-6155.2011.00303.x · Cited by 49 · see citing works
Patient-Centered Care and Emergency Department Utilization
Hearld, L. R., & Alexander, J. A. (2012) · Medical Care Research and Review · doi:10.1177/1077558712453618 · Cited by 45 · see citing works
Williams, T. V., Schone, E. M., Archibald, N. D., & Thompson, J. W. (2004) · PEDIATRICS · doi:10.1542/peds.114.2.384 · Cited by 42 · see citing works
Association Between Child Behavior Problems and Frequent Physician Visits
ZUCKERMAN, B. S. (1996) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.1996.02170270028004 · Cited by 36 · see citing works
Care coordination services for children with special health care needs: Are we family-centered yet?
Nolan, K. W., Orlando, M., & Liptak, G. S. (2007) · Families Systems & Health · doi:10.1037/1091-7527.25.3.293 · Cited by 34 · see citing works
Care Coordination for Children with Special Health Care Needs: Evaluation of a State Experiment
Lawson, K., Bloom, S. R., Sadof, M. D., Stille, C. J., & Perrin, J. M. (2010) · Maternal and Child Health Journal · doi:10.1007/s10995-010-0660-1 · Cited by 28 · see citing works
Access to Care and Children's Primary Care Experiences: Results from a Prospective Cohort Study
Seid, M., & Stevens, G. D. (2005) · Health Services Research · doi:10.1111/j.1475-6773.2005.00435.x · Cited by 23 · see citing works
Delayed and Forgone Care for Children with Special Health Care Needs in New York State
Smaldone, A. M., Honig, J., & Byrne, M. W. (2005) · Maternal and Child Health Journal · doi:10.1007/s10995-005-3859-9 · Cited by 23 · see citing works
Unmet Need among Children with Special Health Care Needs in Massachusetts
Hill, K. S., Freeman, L., Yucel, R. M., & Kuhlthau, K. A. (2007) · Maternal and Child Health Journal · doi:10.1007/s10995-007-0283-3 · Cited by 22 · see citing works
Public insurance eligibility and enrollment for special health care needs children.
Davidoff, A. J., Yemane, A., & Hill, I. T. (2004) · PubMed Central · Cited by 21 · see citing works
Behavioral and mental health problems in low-income children with special health care needs
Canty‐Mitchell, J., AUSTIN, J. K., Jaffee, K. D., Qi, R. A., & Swigonski, N. L. (2004) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2004.03.003 · Cited by 17 · see citing works
Houtrow, A. J., Kim, S. E., & Newacheck, P. W. (2008) · Infants & Young Children · doi:10.1097/01.iyc.0000314486.92699.88 · Cited by 17 · see citing works
State Policy Environment and Delayed or Forgone Care Among Children with Special Health Care Needs
Gnanasekaran, S. K., Boudreau, A. A., Soobader, M.-J., Yucel, R. M., Hill, K., & Kuhlthau, K. A. (2007) · Maternal and Child Health Journal · doi:10.1007/s10995-007-0296-y · Cited by 16 · see citing works
State Health Care Financing Strategies for Children with Intellectual and Developmental Disabilities
Bachman, S. S., Comeau, M., Tobias, C., Allen, D., Epstein, S., Jantz, K., & Honberg, L. (2012) · Intellectual and Developmental Disabilities · doi:10.1352/1934-9556-50.3.181 · Cited by 12 · see citing works
Parish, S. L., Rose, R. A., Andrews, M. E., & Shattuck, P. T. (2008) · Children and Youth Services Review · doi:10.1016/j.childyouth.2008.05.010 · Cited by 7 · see citing works
Improving children's healthcare through state health insurance programs: An emerging need
Chen, C.-C., Yamada, T., Smith, J. J., & Chiu, I.-M. (2010) · Health Policy · doi:10.1016/j.healthpol.2010.07.012 · Cited by 5 · see citing works
Wiecha, J. (2001) · doi:10.1367/1539-4409(2001)001
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Ammari, T., & Schoenebeck, S. (2015) · Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems · doi:10.1145/2702123.2702324 · Cited by 105 · see citing works
Friedman, A., Howard, J., Shaw, E. K., Cohen, D. J., Shahidi, L. H., & Ferrante, J. M. (2016) · The Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2016.01.150175 · Cited by 80 · see citing works
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Matsuzawa, A., Shiroki, Y., Arai, J., & Hirasawa, A. (2020) · Child Care Health and Development · doi:10.1111/cch.12767 · Cited by 35 · see citing works
Leung, B. M. Y., Wandler, C., Pringsheim, T. M., & Santana, M. (2021) · Journal of Child Health Care · doi:10.1177/13674935211028694 · Cited by 32 · see citing works
Graaf, G., & Snowden, L. R. (2019) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-019-00995-2 · Cited by 28 · see citing works
Graaf, G., & Gigli, K. (2022) · BMJ Open · doi:10.1136/bmjopen-2022-063373 · Cited by 24 · see citing works
A Population Intervention to Improve Outcomes in Children With Medical Complexity
Noritz, G. H., Madden, M., Roldan, D., Wheeler, T. A., Conkol, K. J., Brilli, R. J., Barnard, J., & Gleeson, S. P. (2016) · PEDIATRICS · doi:10.1542/peds.2015-3076 · Cited by 21 · see citing works
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Brown, C. L., Perkins, J., Blust, A., & Kahn, R. S. (2014) · Journal of Community Health · doi:10.1007/s10900-014-9885-z · Cited by 19 · see citing works
Vestal, E., Newman, S. D., & Phillips, S. M. (2024) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2024.05.001 · Cited by 15 · see citing works
Graaf, G., & Snowden, L. (2021) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-020-01061-y · Cited by 14 · see citing works
Morton, B., Damato, E. G., Ciccarelli, M. R., & Currie, J. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2021.02.024 · Cited by 14 · see citing works
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Goyal, N. K., Hall, E. S., Kahn, R. S., Wexelblatt, S. L., Greenberg, J. M., Samaan, Z. M., & Brown, C. L. (2016) · Maternal and Child Health Journal · doi:10.1007/s10995-016-2006-0 · Cited by 14 · see citing works
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- Authors
- Miller, K.
- Affiliations
- The University of Texas at Austin (US)
- Corresponding author
- Miller, Kipyn
- Venue
- Maternal and Child Health Journal
- Published
- 2013-06-23
- Volume
- 18
- Issue
- 4
- Pages
- 864-872
- ISSN
- 1092-7875 (ISSN-L)
- 1573-6628
- OpenAlex
- W2102704361
- Cited by
- 28
- References
- 42
- Citations by year
- 2026: 1 · 2024: 2 · 2023: 2 · 2022: 2 · 2021: 3 · 2020: 4 · 2019: 1 · 2018: 5 · 2017: 1 · 2016: 5 · 2015: 1 · 2014: 1
- FWCI
- 5.36
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Maternal and Child Health Journal (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Healthcare Policy and Management
- Keywords
- care coordination, children with special health care needs, access to mental health care, access to specialist care, Medicaid, State Children's Health Insurance Program, timeliness of care, provider communication, parental attitudes, health care access disparities
- MeSH terms
- Adolescent, Child, Child Health Services, Child, Exceptional, Child, Preschool, Female, Follow-Up Studies, Health Services Accessibility, Humans, Infant, Infant, Newborn, Insurance, Health, Male, Medicaid, Organizational Innovation, United States, Program Evaluation, Databases, Factual, Treatment Outcome, Health Care Surveys, Disabled Children, Children with Disabilities, Interdisciplinary Communication
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