Cited by 452Health Systems, Economic Evaluations, Quality of LifeNursing care and researchFamily Caregiving in Mental Illness

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The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations

Brouwer, W. B. F., van Exel, N. J. A., van Gorp, B., Redekop, W. K.·2006·Quality of Life Research

DOI 10.1007/s11136-005-5994-6

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Abstract

The societal perspective in economic evaluations dictates that costs and effects of informal care are included in the analyses. However, this incorporation depends on practically applicable, reliable and valid methods to register the impact of informal care. This paper presents the conceptualisation and a first test of the CarerQol instrument, aimed at measuring care-related quality of life in informal caregivers. The instrument combines the information density of a burden instrument (encompassing seven important burden dimensions) with a valuation component (a VAS scale for happiness). The instrument was tested in a Dutch sample of heterogeneous caregivers (n=175) approached through regional caregiver support centres. This first test describes the feasibility as well as convergent and clinical validity of the CarerQol instrument. The seven burden dimensions related well with differences in VAS scores. In all instances, the average CarerQol-VAS scores decreased as the severity of problems increased. Multivariate analyses showed that the seven burden dimensions explained 37-43% of the variation in CarerQol-VAS scores, depending on the model used. The CarerQol seems a promising new instrument to register the impact of informal caregivers in economic evaluations.

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EuroQol: a new facility for the measurement of health-related quality of life
(1990) · Health Policy · doi:10.1016/0168-8510(90)90421-9 · Cited by 15,736
Relatives of the Impaired Elderly: Correlates of Feelings of Burden
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980) · The Gerontologist · doi:10.1093/geront/20.6.649 · Cited by 5,810
Untitled work
(1997) · doi:10.1097/00005650-199711000-00002 · Cited by 4,544
Does Economic Growth Improve the Human Lot? Some Empirical Evidence
EASTERLIN, R. A. (1974) · Nations and Households in Economic Growth · doi:10.1016/b978-0-12-205050-3.50008-7 · Cited by 4,474
What Can Economists Learn from Happiness Research?
Frey, B. S., & Stutzer, A. (2002) · Journal of Economic Literature · doi:10.1257/002205102320161320 · Cited by 3,783
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study
Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340
Will raising the incomes of all increase the happiness of all
Easterlin, R. (1995) · Journal of Economic Behavior & Organization · doi:10.1016/0167-2681(95)00003-b · Cited by 3,202
What Can Economists Learn from Happiness Research?
Frey, B. S., & Stutzer, A. (2002) · Journal of Economic Literature · doi:10.1257/jel.40.2.402 · Cited by 2,228
Validation of a Caregiver Strain Index
Robinson, B. C. (1983) · Journal of Gerontology · doi:10.1093/geronj/38.3.344 · Cited by 1,426 · cited 3×
“Perceived burden was assessed using the Caregiver Strain Index (CSI; [18]), the Self-Rated Burden scale (SRB; [20]) and Process Utility (PU; [32]).”
Method
Application of a multidimensional caregiver burden inventory
Novak, M., & Guest, C. (1989) · The Gerontologist · doi:10.1093/geront/29.6.798 · Cited by 1,205

Show all 44 references

Research works printed but not linked: 5

1996, Cost-Effectiveness in Health and Medicine
GW Torrance, 2001, Med Dec Making, 21, 329, 10.1177/02729890122062622 · DOI
Ferrer-i-Carbonell MA, Frijters P. How important is methodology for the estimates of the determinants of happiness? Econ J, 2004; 114(july):641–659. · DOI
C Brugge, 1999, Stroke, 20, 1517
Van den Berg B, Brouwer WBF, van Exel NJA, Koopmanschap MA, van den Bos GAM, Rutten FFH. The opportunity cost method and the proxy good method applied in informal caregivers. Soc Sci & Med, in press.

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Authors: Brouwer, W. B. F., van Exel, N. J. A., van Gorp, B., & Redekop, W. K.
Affiliations: Erasmus MC (NL)
Corresponding author: Brouwer, W. B. F.
ORCID: Brouwer, W. B. F.
Venue: Quality of Life Research
Publisher: Springer Science and Business Media LLC
Published: 2006-08
Volume: 15
Issue: 6
Pages: 1005-1021
ISSN: 0962-9343 (ISSN-L)
1573-2649
DOI: 10.1007/s11136-005-5994-6
OpenAlex: W2000091611
Cited by: 452
References: 44
Citations by year: 2026: 38 · 2025: 37 · 2024: 48 · 2023: 31 · 2022: 44 · 2021: 25 · 2020: 30 · 2019: 31 · 2018: 25 · 2017: 21 · 2016: 23 · 2015: 11 · 2014: 20 · 2013: 11 · 2012: 17
FWCI: 17.53
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (tdm)
Locations: Quality of Life Research (publishedVersion)
PubMed (publishedVersion)
EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
Topics: Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: informal caregivers, care-related quality of life, caregiver burden, economic evaluation, societal perspective, assessment validity
MeSH terms: Aged, Feasibility Studies, Female, Health Status Indicators, Home Nursing, Humans, Male, Mental Health, Middle Aged, Psychometrics, Quality of Life, Surveys and Questionnaires, Caregivers, Cost of Illness

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The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations

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