Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden

Statistical power analysis for the behavioral sciences

Cohen, J. (1990) · Computers Environment and Urban Systems · doi:10.1016/0198-9715(90)90050-4 · Cited by 65,406 · see citing works

EuroQol: a new facility for the measurement of health-related quality of life

(1990) · Health Policy · doi:10.1016/0168-8510(90)90421-9 · Cited by 15,736 · see citing works

Functional evaluation : Barthel index

Mahonery, F. I. (1965) · Medical Entomology and Zoology · Cited by 12,762 · see citing works

Untitled work

(1997) · doi:10.1097/00005650-199711000-00002 · Cited by 4,544 · see citing works

Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study

Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340 · see citing works

Cerebral Vascular Accidents in Patients over the Age of 60: II. Prognosis

Rankin, J. O. (1957) · Scottish Medical Journal · doi:10.1177/003693305700200504 · Cited by 2,491 · see citing works

Validation of a Caregiver Strain Index

Robinson, B. C. (1983) · Journal of Gerontology · doi:10.1093/geronj/38.3.344 · Cited by 1,426 · see citing works

Nations and households in economic growth : essays in honor of Moses Abramovitz

Abramovitz, M., David, P. A., & Reder, M. W. (1974) · Cited by 918 · see citing works

The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments

Given, C. W., Given, B. A., Stommel, M., Collins, C. E., King, S., & Franklin, S. (1992) · Research in Nursing & Health · doi:10.1002/nur.4770150406 · Cited by 893 · see citing works

Caregiving and the Experience of Subjective and Objective Burden

Montgomery, R. J. V., Gonyea, J. G., & Hooyman, N. R. (1985) · Family Relations · doi:10.2307/583753 · Cited by 733 · see citing works

Understanding self-rated health

Fayers, P. M., & Sprangers, M. A. G. (2002) · The Lancet · doi:10.1016/s0140-6736(02)07466-4 · Cited by 576 · see citing works

A Population-Based Assessment of the Impact and Burden of Caregiving for Long-term Stroke Survivors

Anderson, C. S., Linto, J., & Stewart‐Wynne, E. G. (1995) · Stroke · doi:10.1161/01.str.26.5.843 · Cited by 556 · see citing works

Family Caregiving for Patients With Stroke

Han, B., & Haley, W. E. (1999) · Stroke · doi:10.1161/01.str.30.7.1478 · Cited by 480 · see citing works

UK population norms for EQ-5DPreprint

Kind, P., Hardman, G., & Macran, S. (1999) · RePEc: Research Papers in Economics · Cited by 442 · see citing works

An Empirical Comparison of Four Generic Health Status Measures

Essink‐Bot, M., Krabbe, P. F. M., Bonsel, G. J., & Aaronson, N. K. (1997) · Medical Care · doi:10.1097/00005650-199705000-00008 · Cited by 359 · see citing works

Impact of social support on outcome in first stroke.

Glass, T. A., Matchar, D. B., Belyea, M. J., & Feussner, J. R. (1993) · Stroke · doi:10.1161/01.str.24.1.64 · Cited by 344 · see citing works

Determinants of caregiving experiences and mental health of partners of cancer patients

Nijboer, C., Triemstra, M., Tempelaar, R., Sanderman, R., & van den Bos, G. A. M. (1999) · Cancer · doi:10.1002/(sici)1097-0142(19990815)86:4 · Cited by 334 · see citing works

A Long-term Follow-up of Stroke Patients

Wilkinson, P. R., Wolfe, C. D. A., Warburton, F. G., Rudd, A. G., Howard, R., Russell, R. W. R., & Beech, R. (1997) · Stroke · doi:10.1161/01.str.28.3.507 · Cited by 283 · see citing works

Measuring both negative and positive reactions to giving care to cancer patients: psychometric qualities of the Caregiver Reaction Assessment (CRA)

Nijboer, C., Triemstra, M., Tempelaar, R., Sanderman, R., & van den Bos, G. A. M. (1999) · Social Science & Medicine · doi:10.1016/s0277-9536(98)00426-2 · Cited by 278 · see citing works

The impact of stroke on informal carers: a literature review

Low, J., Payne, S. A., & Roderick, P. J. (1999) · Social Science & Medicine · doi:10.1016/s0277-9536(99)00194-x · Cited by 275 · see citing works

The Burden of Caregiving in Partners of Long-Term Stroke Survivors

Reimer, W. J. M. S. O., de Haan, R. J., Rijnders, P. T., Limburg, M., & van den Bos, G. A. M. (1998) · Stroke · doi:10.1161/01.str.29.8.1605 · Cited by 274 · see citing works

Stroke Patients’ Informal Caregivers

Bugge, C., Alexander, H., & Hagen, S. (1999) · Stroke · doi:10.1161/01.str.30.8.1517 · Cited by 258 · see citing works

Family support for stroke: a randomised controlled trial

Mant, J., Carter, J., Wade, D. T., & Winner, S. (2000) · The Lancet · doi:10.1016/s0140-6736(00)02655-6 · Cited by 251 · see citing works

Home or Hospital for Stroke Rehabilitation? Results of a Randomized Controlled Trial

Anderson, C. S., Rubenach, S., Mhurchú, C. N., Clark, M. S. G., Spencer, C., & Winsor, A. (2000) · Stroke · doi:10.1161/01.str.31.5.1024 · Cited by 247 · see citing works

Randomised controlled trial to evaluate early discharge scheme for patients with stroke

Rudd, A. G., Wolfe, C. D. A., Tilling, K. M., & Beech, R. (1997) · BMJ · doi:10.1136/bmj.315.7115.1039 · Cited by 229 · see citing works

Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention

van den Heuvel, E. T. P., de Witte, L., Schure, L., Sanderman, R., & Jong, B. M. (2001) · Clinical Rehabilitation · doi:10.1191/0269215501cr446oa · Cited by 223 · see citing works

Assessing Quality of Life After Stroke

Sneeuw, K. C. A., Aaronson, N. K., de Haan, R. J., & Limburg, M. (1997) · Stroke · doi:10.1161/01.str.28.8.1541 · Cited by 222 · see citing works

Measuring both negative and positive reactions to giving care to cancer patients : psychometric qualities of the Caregiver Reaction Assessment (CRA).

Nijboer, Triemstra, M., Tempelaar, & Sanderman (1999) · Social Science & Medicine · Cited by 209 · see citing works

Response Rate to Mailed Epidemiologic Questionnaires: A Population-based Randomized Trial of Variations in Design and Mailing Routines

Eaker, S., m, R. B., m, A. B., Adami, H., & Nyrén, O. (1998) · American Journal of Epidemiology · doi:10.1093/oxfordjournals.aje.a009370 · Cited by 204 · see citing works

A Quantitative Study of the Emotional Outcome of People Caring for Stroke Survivors

Dennis, M. S., O’Rourke, S. J., Lewis, S. C., Sharpe, M., & Warlow, C. P. (1998) · Stroke · doi:10.1161/01.str.29.9.1867 · Cited by 193 · see citing works

Informal Care for Stroke Survivors

Dewey, H. M., Thrift, A. G., Mihalopoulos, C., Carter, R., Macdonell, R. A. L., McNeil, J. J., & Donnan, G. A. (2002) · Stroke · doi:10.1161/01.str.0000013067.24300.b0 · Cited by 181 · see citing works

Predictors of sense of competence in caregivers of demented persons

Vernooij-Dassen, M. J. F. J., Persoon, J., & Felling, A. (1996) · Social Science & Medicine · doi:10.1016/0277-9536(95)00332-0 · Cited by 151 · see citing works

ADVANCES IN UNDERSTANDING HAPPINESS

Veenhoven, R. (2003) · Cited by 139 · see citing works

Economic Consequences of Early Inpatient Discharge to Community-Based Rehabilitation for Stroke in an Inner-London Teaching Hospital

Beech, R., Rudd, A. G., Tilling, K. M., & Wolfe, C. D. A. (1999) · Stroke · doi:10.1161/01.str.30.4.729 · Cited by 131 · see citing works

A randomised comparison of the EuroQol and Short Form-36 after stroke: Table 1

Dorman, P. J., Slattery, J., Farrell, B., Dennis, M. S., & Sandercock, P. A. (1997) · BMJ · doi:10.1136/bmj.315.7106.461 · Cited by 115 · see citing works

Does Length of Questionnaire Matter? A Randomised Trial of Response Rates to a Mailed Questionnaire

Iglesias, C. P., & Torgerson, D. J. (2000) · Journal of Health Services Research & Policy · doi:10.1177/135581960000500406 · Cited by 115 · see citing works

Assessment of Burden in Partners of Stroke Patients With the Sense of Competence Questionnaire

Reimer, W. J. M. S. O., de Haan, R. J., Pijnenborg, J. M. A., Limburg, M., & van den Bos, G. A. M. (1998) · Stroke · doi:10.1161/01.str.29.2.373 · Cited by 112 · see citing works

Stroke: a family dilemma

Evans, R. L., Connis, R. T., Bishop, D. S., Hendricks, R. D., & Haselkorn, J. K. (1994) · Disability and Rehabilitation · doi:10.3109/09638289409166287 · Cited by 87 · see citing works

Transition to home care after stroke: Depression, physical health, and adaptive processes in support persons

King, R. B., Carlson, C. E., Shade‐Zeldow, Y., Bares, K. K., Roth, E. J., & Heinemann, A. W. (2001) · Research in Nursing & Health · doi:10.1002/nur.1032 · Cited by 82 · see citing works

Emotional and physical demands on caregivers in home care to the elderly in Switzerland and their relationship to nursing home admission

Kesselring, A. (2001) · European Journal of Public Health · doi:10.1093/eurpub/11.3.267 · Cited by 63 · see citing works

Acute Phase Predictors of Subsequent Psychosocial Burden in Carers of Elderly Stroke Patients

Thommessen, B., Wyller, T. B., Bautz‐Holter, E., & Laake, K. (2001) · Cerebrovascular Diseases · doi:10.1159/000047639 · Cited by 59 · see citing works

How great a burden does early discharge to hospital-at-home impose on carers? A randomized controlled trial

Gunnell, D. (2000) · Age and Ageing · doi:10.1093/ageing/29.2.137 · Cited by 44 · see citing works

Use of Care by Home-dwelling Stroke Patients during Three Years following Hospital Discharge

Hermans, E., Anten, H. W. M., Diederiks, J. P. M., & Philipsen, H. (1998) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.1998.tb00495.x · Cited by 8 · see citing works

Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis

Pinquart, M., & Sorensen, S. (2006) · The Journals of Gerontology Series B: Psychological Sciences and Social Sciences · doi:10.1093/geronb/61.1.p33 · Cited by 1,213 · see citing works

Comprehensive Overview of Nursing and Interdisciplinary Rehabilitation Care of the Stroke Patient

Miller, E., Murray, L., Richards, L. G., Zorowitz, R. D., Bakas, T., Clark, P. C., & Billinger, S. A. (2010) · Stroke · doi:10.1161/str.0b013e3181e7512b · Cited by 761 · see citing works

The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations

Brouwer, W. B. F., van Exel, N. J. A., van Gorp, B., & Redekop, W. K. (2006) · Quality of Life Research · doi:10.1007/s11136-005-5994-6 · Cited by 452 · see citing works

A Systematic Review of Caregiver Burden following Stroke

Rigby, H., Gubitz, G. J., & Phillips, S. J. (2009) · International Journal of Stroke · doi:10.1111/j.1747-4949.2009.00289.x · Cited by 338 · see citing works

An Overview of Methods and Applications to Value Informal Care in Economic Evaluations of Healthcare

Koopmanschap, M. A., van Exel, J. N. A., van den Berg, B., & Brouwer, W. B. F. (2008) · PharmacoEconomics · doi:10.2165/00019053-200826040-00001 · Cited by 262 · see citing works

Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers

Riffin, C., Van Ness, P. H., Wolff, J. L., & Fried, T. (2019) · Journal of the American Geriatrics Society · doi:10.1111/jgs.15664 · Cited by 238 · see citing works

The Crisis of Stroke: Experiences of Patients and Their Family Caregivers

Lutz, B. J., Young, M. E., Cox, K. J., Martz, C., & Creasy, K. R. (2011) · Topics in Stroke Rehabilitation · doi:10.1310/tsr1806-786 · Cited by 220 · see citing works

Process utility from providing informal care: the benefit of caring

Brouwer, W. B. F., van Exel, J. N. A., van den Berg, B., van den Bos, G. A. M., & Koopmanschap, M. A. (2005) · Health Policy · doi:10.1016/j.healthpol.2004.12.008 · Cited by 213 · see citing works

OUP accepted manuscript

Swinkels, J. C., van Tilburg, T. G., Verbakel, E., & Groenou, M. I. B. V. (2017) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbx036 · Cited by 207 · see citing works

Measures used to assess burden among caregivers of stroke patients: a review

Visser‐Meily, J. M. A., Post, M. W. M., Riphagen, I. I., & Lindeman, E. (2004) · Clinical Rehabilitation · doi:10.1191/0269215504cr776oa · Cited by 182 · see citing works

Unmet Needs of Caregivers of Individuals Referred to a Dementia Care Program

Jennings, L. A., Reuben, D. B., Evertson, L. C., Serrano, K. S., Ercoli, L. M., Grill, J. D., Chodosh, J., Tan, Z. S., & Wenger, N. S. (2015) · Journal of the American Geriatrics Society · doi:10.1111/jgs.13251 · Cited by 178 · see citing works

Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol

Hoefman, R., Payakachat, N., van Exel, J. N. A., Kuhlthau, K. A., Kovacs, E. A., Pyne, J. M., & Tilford, J. M. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2066-1 · Cited by 179 · see citing works

How to Include Informal Care in Economic Evaluations

Hoefman, R., van Exel, J. N. A., & Brouwer, W. B. F. (2013) · PharmacoEconomics · doi:10.1007/s40273-013-0104-z · Cited by 170 · see citing works

Factors Affecting the Burden on Caregivers of Stroke Survivors in South Korea

Choi‐Kwon, S., Kim, H., Kwon, S. U., & Kim, J. S. (2005) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2004.09.013 · Cited by 168 · see citing works

Tools for measuring the impact of informal caregiving of the elderly: a literature review.

Durme, T. V., Macq, J., Jeanmart, C., & Gobert, M. (2012) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2011.10.011 · Cited by 166 · see citing works

Burden of caregiving: Evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis

Brouwer, W. B. F., van Exel, J. N. A., van den Berg, B., Dinant, H. J., Koopmanschap, M. A., & van den Bos, G. A. M. (2004) · Arthritis Care & Research · doi:10.1002/art.20528 · Cited by 168 · see citing works

Burden of Informal Caregiving for Stroke Patients

van Exel, J. N. A., Koopmanschap, M. A., van den Berg, B., Brouwer, W. B. F., & van den Bos, G. A. M. (2004) · Cerebrovascular Diseases · doi:10.1159/000081906 · Cited by 160 · see citing works

Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke: Determinants and prediction

Kruithof, W. J., Post, M. W. M., van Mierlo, M. L., van den Bos, G. A. M., Ginkel, J. M. D. M., & Visser‐Meily, J. M. A. (2016) · Patient Education and Counseling · doi:10.1016/j.pec.2016.04.007 · Cited by 146 · see citing works

Caregiver strain and factors associated with caregiver self-efficacy and quality of life in a community cohort with multiple sclerosis

Khan, F., Pallant, J., & Brand, C. A. (2007) · Disability and Rehabilitation · doi:10.1080/01443610600964141 · Cited by 128 · see citing works

Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy

Pangalila, R. F., van den Bos, G. A. M., Stam, H. J., van Exel, J. N. A., Brouwer, W. B. F., & Roebroeck, M. E. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.628738 · Cited by 126 · see citing works

CARE FOR CARERS OF STROKE PATIENTS: EVIDENCE-BASED CLINICAL PRACTICE GUIDELINES

Heugten, C. M. V., Visser‐Meily, A., Post, M. W. M., & Lindeman, E. (2006) · Journal of Rehabilitation Medicine · doi:10.1080/16501970500441898 · Cited by 118 · see citing works

Randomised controlled trial of an education and support package for stroke patients and their carers

Eames, S., Hoffmann, T., Worrall, L. E., Read, S. J., & Wong, A. A. (2013) · BMJ Open · doi:10.1136/bmjopen-2012-002538 · Cited by 116 · see citing works

Caregiving for Patients With Heart Failure: Impact on Patients’ Families

Hwang, B., Fleischmann, K. E., Howie‐Esquivel, J., Stotts, N. A., & Dracup, K. (2011) · American Journal of Critical Care · doi:10.4037/ajcc2011472 · Cited by 108 · see citing works

Stroke caregivers' strain: prevalence and determinants in the first six months after stroke

Baert, I., Feys, H., Wit, L. D., Putman, K. D., & Weerdt, W. D. (2008) · Disability and Rehabilitation · doi:10.1080/09638280701355645 · Cited by 110 · see citing works

Measuring the impact of caregiving on informal carers: a construct validation study of the CarerQol instrument

Hoefman, R. J., van Exel, J., & Brouwer, W. B. (2013) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-11-173 · Cited by 101 · see citing works

Give me a break!

van Exel, J. N. A., de Graaf, G., & Brouwer, W. B. F. (2008) · Health Policy · doi:10.1016/j.healthpol.2008.03.001 · Cited by 100 · see citing works

Impact of a Disease Management Program Upon Caregivers of Chronically Critically Ill Patients

Douglas, S. L., Daly, B. J., Kelley, C. G., O’Toole, E. E., & Montenegro, H. D. (2005) · CHEST Journal · doi:10.1378/chest.128.6.3925 · Cited by 96 · see citing works

Quality of life of post-stroke patients and their caregivers.

Opara, J. A., & Jaracz, K. (2010) · PubMed Central · Cited by 98 · see citing works

Health Effects in Significant Others

Bobinac, A., van Exel, J. N. A., Rutten, F., & Brouwer, W. B. F. (2010) · Medical Decision Making · doi:10.1177/0272989x10374212 · Cited by 97 · see citing works

The occurrence and persistence of thoughts of suicide, self-harm and death in family caregivers of people with dementia: a longitudinal data analysis over 2 years

Joling, K. J., O'Dwyer, S. T., Hertogh, C. M. P. M., & van Hout, H. P. J. (2018) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4708 · Cited by 90 · see citing works

Psychological distress in informal caregivers of patients with dementia in primary care: course and determinants

Borsje, P., Hems, M. A. P., Lucassen, P. L. B. J., Bor, H., Koopmans, R. T. C. M., & Pot, A. M. (2016) · Family Practice · doi:10.1093/fampra/cmw009 · Cited by 86 · see citing works

Care for a break? An investigation of informal caregivers’ attitudes toward respite care using Q-methodology

van Exel, J. N. A., de Graaf, G., & Brouwer, W. B. F. (2007) · Health Policy · doi:10.1016/j.healthpol.2007.02.002 · Cited by 92 · see citing works

With a little help from an anchor

van Exel, J. N. A., Brouwer, W. B. F., van den Berg, B., & Koopmanschap, M. A. (2006) · The Journal of Socio-Economics · doi:10.1016/j.socec.2005.11.045 · Cited by 89 · see citing works

The impact of stroke on the well‐being of the patient's spouse: an exploratory study

Draper, P., & Brocklehurst, H. (2007) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2006.01575.x · Cited by 88 · see citing works

A new test of the construct validity of the CarerQol instrument: measuring the impact of informal care giving

Hoefman, R. J., van Exel, N. J. A., Looren de Jong, S., Redekop, W. K., & Brouwer, W. B. F. (2011) · Quality of Life Research · doi:10.1007/s11136-010-9829-8 · Cited by 86 · see citing works

Economic valuation of informal care: The conjoint measurement method applied to informal caregiving

van den Berg, B., Al, M., Brouwer, W. B. F., van Exel, J. N. A., & Koopmanschap, M. A. (2005) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.01.029 · Cited by 86 · see citing works

A Discrete Choice Experiment to Obtain a Tariff for Valuing Informal Care Situations Measured with the CarerQol Instrument

Hoefman, R., van Exel, J. N. A., Rose, J. M., van de Wetering, E. J., & Brouwer, W. B. F. (2013) · Medical Decision Making · doi:10.1177/0272989x13492013 · Cited by 84 · see citing works

Positive and negative outcomes of informal caregiving at home and in institutionalised long-term care: a cross-sectional study

Metzelthin, S., Verbakel, E., Veenstra, M. Y., van Exel, J. N. A., Ambergen, A. W., & Kempen, G. I. J. M. (2017) · BMC Geriatrics · doi:10.1186/s12877-017-0620-3 · Cited by 87 · see citing works

What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden

van Exel, J. N. A., Brouwer, W. B. F., van den Berg, B., Koopmanschap, M., & van den Bos, G. A. M. (2004) · Clinical Rehabilitation · doi:10.1191/0269215504cr743oa · Cited by 83 · see citing works

Shared tourism experience of individuals with disabilities and their caregivers

Lehto, X. Y., Luo, W., Miao, L., & Ghiselli, R. F. (2017) · Journal of Destination Marketing & Management · doi:10.1016/j.jdmm.2017.04.001 · Cited by 81 · see citing works

Caregiver strain and posttraumatic stress symptoms of informal caregivers of intensive care unit survivors.

Zanten, S. A. V. D. B.-V., Dongelmans, D. A., Dettling-Ihnenfeldt, D. S., Vink, R., & van der Schaaf, M. (2016) · Rehabilitation Psychology · doi:10.1037/rep0000081 · Cited by 81 · see citing works

Caregiver burden and depression among informal caregivers of HIV-infected individuals

Pirraglia, P. A., Bishop, D. S., Herman, D. S., Trisvan, E., Lopez, R., Torgersen, C. S., Hof, A. M., Anderson, B. J., Miller, I. W., & Stein, M. D. (2005) · Journal of General Internal Medicine · doi:10.1111/j.1525-1497.2005.0073.x · Cited by 81 · see citing works

Respite care—An explorative study of demand and use in Dutch informal caregivers

van Exel, J. N. A., Morée, M., Koopmanschap, M. A., Goedheijt, T. S., & Brouwer, W. B. F. (2005) · Health Policy · doi:10.1016/j.healthpol.2005.11.002 · Cited by 78 · see citing works

The value of informal care–a further investigation of the feasibility of contingent valuation in informal caregivers

de Meijer, C. A. M., Brouwer, W. B. F., Koopmanschap, M. A., van den Berg, B., & van Exel, J. N. A. (2009) · Health Economics · doi:10.1002/hec.1513 · Cited by 75 · see citing works

A comprehensive assessment of family caregivers of stroke survivors during inpatient rehabilitation

Young, M. E., Lutz, B. J., Creasy, K. R., Cox, K. J., & Martz, C. (2014) · Disability and Rehabilitation · doi:10.3109/09638288.2014.881565 · Cited by 73 · see citing works

Do determinants of burden and emotional distress in dementia caregivers change over time?

van der Lee, J., Bakker, T. J. E. M., Duivenvoorden, H. J., & Dröes, R. (2015) · Aging & Mental Health · doi:10.1080/13607863.2015.1102196 · Cited by 73 · see citing works

The inclusion of positive aspects of caring in the Caregiver Strain Index: Tests of feasibility and validity

Al‐Janabi, H., Frew, E. J., Brouwer, W. B. F., Rappange, D. R., & van Exel, J. N. A. (2010) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2009.12.015 · Cited by 72 · see citing works

Sustained informal care: The feasibility, construct validity and test–retest reliability of the CarerQol-instrument to measure the impact of informal care in long-term care

Hoefman, R., van Exel, J. N. A., Foets, M., & Brouwer, W. B. F. (2011) · Aging & Mental Health · doi:10.1080/13607863.2011.575351 · Cited by 71 · see citing works

Caregiver burden after stroke: changes over time?

van Meijeren-Pont, W., Groeneveld, I. F., Arwert, H. J., Meesters, J. J. L., Mishre, R. R., Vlieland, T. P. M. V., Goossens, P. H., & on behalf of the SCORE-study group (2018) · Disability and Rehabilitation · doi:10.1080/09638288.2018.1499047 · Cited by 67 · see citing works

The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review

Whalen, K. J., & Buchholz, S. W. (2009) · The JBI Database of Systematic Reviews and Implementation Reports · doi:10.11124/01938924-200907320-00001 · Cited by 83 · see citing works

The desire for support and respite care: preferences of Dutch informal caregivers

Koopmanschap, M. A., van Exel, J. N. A., van den Bos, G. A. M., van den Berg, B., & Brouwer, W. B. F. (2004) · Health Policy · doi:10.1016/j.healthpol.2003.10.002 · Cited by 64 · see citing works

A Longitudinal Cohort Study on Quality of Life in Stroke Patients and Their Partners: Restore4Stroke Cohort

van Mierlo, M. L., Heugten, C. M. V., Post, M. W. M., Lindeman, E., de Kort, P. L. M., & Visser‐Meily, J. M. A. (2012) · International Journal of Stroke · doi:10.1111/j.1747-4949.2012.00882.x · Cited by 63 · see citing works

Alzheimer's Disease Costs: What We Know and What We Should Take into Account

Colucci, L., Bosco, M., Fasanaro, A. M., Gaeta, G. L., Ricci, G., & Amenta, F. (2014) · Journal of Alzheimer s Disease · doi:10.3233/jad-131556 · Cited by 61 · see citing works

Reproducibility of the Caregiver Strain Index and the Caregiver Reaction Assessment in partners of stroke patients living in the Dutch community

Post, M. W. M., Festen, H., van de Port, I. G. L., & Visser‐Meily, J. M. A. (2007) · Clinical Rehabilitation · doi:10.1177/0269215507079140 · Cited by 60 · see citing works

Male and Female Partner-Caregivers’ Burden: Does It Get Worse Over Time?

Swinkels, J. C., Groenou, M. I. B. V., de Boer, A., & van Tilburg, T. G. (2018) · The Gerontologist · doi:10.1093/geront/gny132 · Cited by 57 · see citing works

The invisible hands made visible: recognizing the value of informal care in healthcare decision-making

van Exel, J. N. A., Bobinac, A., Koopmanschap, M. A., & Brouwer, W. B. F. (2008) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1586/14737167.8.6.557 · Cited by 54 · see citing works

Perceived wellbeing of patients one year post stroke in general practice - recommendations for quality aftercare

de Weerd, L., Rutgers, W., Groenier, K., & Meer, K. V. D. (2011) · BMC Neurology · doi:10.1186/1471-2377-11-42 · Cited by 61 · see citing works

Empowered or overpowered? Service use, needs, wants and demands in elderly patients with cognitive impairments

Wolfs, C. A. G., de Vugt, M. E., Verkaaik, M., Verkade, P.-J., & Verhey, F. R. J. (2010) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2451 · Cited by 52 · see citing works

Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS)

Lutomski, J. E., van Exel, J. N. A., Kempen, G. I. J. M., van Charante, E. P. M., den Elzen, W. P. J., Jansen, A. P. D., Krabbe, P. F. M., Steunenberg, B., Steyerberg, E. W., Rikkert, M. G. M. O., et al. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0841-2 · Cited by 51 · see citing works

Integrative Psychotherapeutic Nursing Home Program to Reduce Multiple Psychiatric Symptoms of Cognitively Impaired Patients and Caregiver Burden: Randomized Controlled Trial

Bakker, T. J. E. M., Duivenvoorden, H. J., van der Lee, J., Rikkert, M. G. M. O., Beekman, A. T. F., & Ribbe, M. W. (2010) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3181eafdc6 · Cited by 49 · see citing works

Return to Work 2–5 Years After Stroke: A Cross Sectional Study in a Hospital-Based Population

Arwert, H. J., Schults, M.-L., Meesters, J. J. L., Wolterbeek, R., Boiten, J., & Vlieland, T. P. M. V. (2016) · Journal of Occupational Rehabilitation · doi:10.1007/s10926-016-9651-4 · Cited by 49 · see citing works

An investigation into the construct validity of the Carer Experience Scale (CES)

Goranitis, I., Coast, J., & Al‐Janabi, H. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0616-1 · Cited by 47 · see citing works

Assessing informal caregivers' experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale

PERSSON, C., Wennman‐Larsen, A., Sundin, K., & Gustavsson, P. J. (2007) · European Journal of Cancer Care · doi:10.1111/j.1365-2354.2007.00833.x · Cited by 47 · see citing works

Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial

Smaling, H. J. A., Joling, K. J., van de Ven, P. M., Bosmans, J. E., Simard, J., Volicer, L., Achterberg, W. P., Francke, A. L., & van der Steen, J. T. (2018) · BMJ Open · doi:10.1136/bmjopen-2018-025411 · Cited by 46 · see citing works

Measuring caregiver outcomes in palliative care: a construct validation study of two instruments for use in economic evaluations

Hoefman, R., Al‐Janabi, H., McCaffrey, N., Currow, D. C., & Ratcliffe, J. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0848-8 · Cited by 45 · see citing works

Economic Valuation of Informal Care: Conjoint Analysis Applied in a Heterogeneous Population of Informal Caregivers

van den Berg, B., Al, M., van Exel, J. N. A., Koopmanschap, M. A., & Brouwer, W. B. F. (2008) · Value in Health · doi:10.1111/j.1524-4733.2008.00357.x · Cited by 45 · see citing works

The effectiveness of an integrated care pathway in geriatric rehabilitation among older patients with complex health problems and their informal caregivers: a prospective cohort study

Everink, I. H. J., van Haastregt, J. C. M., Tan, F. E. S., Schols, J. M. G. A., & Kempen, G. I. J. M. (2018) · BMC Geriatrics · doi:10.1186/s12877-018-0971-4 · Cited by 42 · see citing works

Poststroke Depression

Arwert, H. J., Meesters, J. J. L., Boiten, J., Balk, F. J., Wolterbeek, R., & Vlieland, T. P. M. V. (2018) · American Journal of Physical Medicine & Rehabilitation · doi:10.1097/phm.0000000000000918 · Cited by 43 · see citing works

Increased Residual Disability Among Poststroke Survivors and the Repercussions for the Lives of Informal Caregivers

Baumann, M., Puerto, K. L. I., Alzahouri, K., & Aı̈ach, P. (2011) · Topics in Stroke Rehabilitation · doi:10.1310/tsr1802-162 · Cited by 43 · see citing works

The perseverance time of informal carers of dementia patients: validation of a new measure to initiate transition of care at home to nursing home care

Kraijo, H., Brouwer, W., de Leeuw, R., Schrijvers, G., & van Exel, J. (2014) · Journal of Alzheimer s Disease · doi:10.3233/jad-132420 · Cited by 42 · see citing works

Measuring health and well-being effects in family caregivers of children with craniofacial malformations

Payakachat, N., Tilford, J. M., Brouwer, W. B. F., van Exel, J. N. A., & Grosse, S. D. (2011) · Quality of Life Research · doi:10.1007/s11136-011-9870-2 · Cited by 41 · see citing works

The effects of an integrated care intervention for the frail elderly on informal caregivers: a quasi-experimental study

Janse, B., Huijsman, R., de Kuyper, R. D. M., & Fabbricotti, I. N. (2014) · BMC Geriatrics · doi:10.1186/1471-2318-14-58 · Cited by 41 · see citing works

Integrated care for frail elderly compared to usual care: a study protocol of a quasi-experiment on the effects on the frail elderly, their caregivers, health professionals and health care costs

Fabbricotti, I. N., Janse, B., Looman, W. M., de Kuijper, R., van Wijngaarden, J. D. H., & Reiffers, A. (2013) · BMC Geriatrics · doi:10.1186/1471-2318-13-31 · Cited by 38 · see citing works

Measuring negative and positive caregiving experiences: a psychometric analysis of the Caregiver Strain Index Expanded

Kruithof, W. J., Post, M. W. M., & Visser‐Meily, J. M. A. (2015) · Clinical Rehabilitation · doi:10.1177/0269215515570378 · Cited by 37 · see citing works

Outcomes of ambulatory rehabilitation programmes following botulinum toxin for spasticity in adults with stroke

Demetrios, M., Gorelik, A., Louie, J., Brand, C. A., Baguley, I. J., & Khan, F. (2014) · Journal of Rehabilitation Medicine · doi:10.2340/16501977-1842 · Cited by 36 · see citing works

(Cost)-effectiveness of family meetings on indicated prevention of anxiety and depressive symptoms and disorders of primary family caregivers of patients with dementia: design of a randomized controlled trial

Joling, K. J., van Hout, H. P. J., Scheltens, P., Vernooij-Dassen, M. J. F. J., van den Berg, B., Bosmans, J. E., Gillissen, F., Mittelman, M. S., & van Marwijk, H. (2008) · BMC Geriatrics · doi:10.1186/1471-2318-8-2 · Cited by 36 · see citing works

Survey nonresponse among informal caregivers: effects on the presence and magnitude of associations with caregiver burden and satisfaction

Oldenkamp, M., Wittek, R. P. M., Hagedoorn, M., Stolk, R. P., & Smidt, N. (2016) · BMC Public Health · doi:10.1186/s12889-016-2948-6 · Cited by 37 · see citing works

Determinants of caregiver burden of persons with disabilities in a rural district in Egypt

Ghazawy, E. R., Mohammed, E. S., Mahfouz, E. M., & Abdelrehim, M. (2020) · BMC Public Health · doi:10.1186/s12889-020-09266-4 · Cited by 40 · see citing works

Effect of a stroke-specific follow-up care model on the quality of life of stroke patients and caregivers: A controlled trial

Fens, M., Heugten, C. M. V., Beusmans, G. H. M. I., Metsemakers, J. F. M., Kester, A. D. M., & Limburg, M. (2014) · Journal of Rehabilitation Medicine · doi:10.2340/16501977-1239 · Cited by 34 · see citing works

The relationships of job and family demands and job and family resources with family caregivers’ strain

Boumans, N. P. G., & Dorant, E. (2020) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12873 · Cited by 38 · see citing works

Surviving a stroke in South Africa: outcomes of home-based care in a low-resource rural setting

Scheffler, E., & Mash, R. J. (2019) · Topics in Stroke Rehabilitation · doi:10.1080/10749357.2019.1623473 · Cited by 33 · see citing works

Prospective cohort study of patients with advanced cancer and their relatives on the experienced quality of care and life (eQuiPe study): a study protocol

van Roij, J., Zijlstra, M., Ham, L., Brom, L., Fransen, H. P., Vreugdenhil, A., Raijmakers, N. J. H., van de Poll-Franse, L. V., eQuiPe study group, Vreugdenhil, A., et al. (2020) · BMC Palliative Care · doi:10.1186/s12904-020-00642-w · Cited by 33 · see citing works

Coping with caring: Profiles of caregiving by informal carers living with a loved one who has dementia

Kraijo, H., Brouwer, W. B. F., de Leeuw, R., Schrijvers, G., & van Exel, J. N. A. (2011) · Dementia · doi:10.1177/1471301211421261 · Cited by 32 · see citing works

Hospital at Home care for older patients with cognitive impairment: a protocol for a randomised controlled feasibility trial

Pouw, M. A., Calf, A. H., Munster, B. C. V., ter Maaten, J. C., Smidt, N., & de Rooij, S. E. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-020332 · Cited by 31 · see citing works

Family-Mediated Exercises (FAME): An Exploration of Participant’s Involvement in a Novel Form of Exercise Delivery After Stroke

Galvin, R., Stokes, E., & Cusack, T. (2014) · Topics in Stroke Rehabilitation · doi:10.1310/tsr2101-63 · Cited by 30 · see citing works

Measuring Outcomes in People Who Have Had a Stroke and Their Carers: Can the Telephone Be Used?

Hoffmann, T., Worrall, L. E., Eames, S., & Ryan, A. K. (2010) · Topics in Stroke Rehabilitation · doi:10.1310/tsr1702-119 · Cited by 30 · see citing works

Evaluating an integrated neighbourhood approach to improve well-being of frail elderly in a Dutch community: a study protocol

Cramm, J. M., van Dijk, H., Lötters, F. J. B., van Exel, J. N. A., & Nieboer, A. P. (2011) · BMC Research Notes · doi:10.1186/1756-0500-4-532 · Cited by 29 · see citing works

Evaluation of quality of life and caregiver burden in home parenteral nutrition patients: A cross sectional study

Beurskens, J., Waal, G. H., & Wanten, G. J. A. (2020) · Clinical Nutrition ESPEN · doi:10.1016/j.clnesp.2020.03.023 · Cited by 29 · see citing works

Anxiety and low life satisfaction associate with high caregiver strain early after stroke

Oosterveer, D. M., Mishre, R. R., van Oort, A., Bodde, K., & Aerden, L. A. M. (2014) · Journal of Rehabilitation Medicine · doi:10.2340/16501977-1250 · Cited by 29 · see citing works

Patient reported outcomes of hand function three years after stroke

Arwert, H. J., Schut, S., Boiten, J., Vlieland, T. P. M. V., & Meesters, J. J. L. (2017) · Topics in Stroke Rehabilitation · doi:10.1080/10749357.2017.1385232 · Cited by 28 · see citing works

Ervaren belasting door mantelzorg; constructie van de EDIZ-plus

de Boer, A. H., Oudijk, D., Timmermans, J., & Pot, A. M. (2012) · Tijdschrift voor Gerontologie en Geriatrie · doi:10.1007/s12439-012-0010-4 · Cited by 28 · see citing works

Validity, reliability, and feasibility of the German version of the Caregiver Reaction Assessment scale (G-CRA): a validation study

Stephan, A., Mayer, H., Guiteras, A. R., & Meyer, G. (2013) · International Psychogeriatrics · doi:10.1017/s1041610213001178 · Cited by 28 · see citing works

Kinect-based individualized upper extremity rehabilitation is effective and feasible for individuals with stroke using a transition from clinic to home protocol

Liao, W.-W., Waller, S. M., & Whitall, J. (2018) · Cogent Medicine · doi:10.1080/2331205x.2018.1428038 · Cited by 28 · see citing works

Evaluation design of a reactivation care program to prevent functional loss in hospitalised elderly: A cohort study including a randomised controlled trial

Asmus-Szepesi, K. J., de Vreede, P. L., Nieboer, A. P., van Wijngaarden, J. D. H., Bakker, T. J. E. M., Steyerberg, E. W., & Mackenbach, J. P. (2011) · BMC Geriatrics · doi:10.1186/1471-2318-11-36 · Cited by 27 · see citing works

Determinants of caregiver burden of patients with haemorrhagic stroke in China

Zhu, W., & Jiang, Y. (2018) · International Journal of Nursing Practice · doi:10.1111/ijn.12719 · Cited by 27 · see citing works

A process evaluation of a stroke-specific follow-up care model for stroke patients and caregivers; a longitudinal study

Fens, M., Beusmans, G. H. M. I., Limburg, M., van Hoef, L., van Haastregt, J. C. M., Metsemakers, J. F. M., & Heugten, C. M. V. (2015) · BMC Nursing · doi:10.1186/s12912-014-0052-8 · Cited by 27 · see citing works

Economic Analysis of the Intangible Impacts of Informal Care for People with Alzheimer’s Disease and Other Mental Disorders

Gervès‐Pinquié, C., Bellanger, M. M., & Ankri, J. (2013) · Value in Health · doi:10.1016/j.jval.2013.03.1629 · Cited by 27 · see citing works

Prevalence and predictive factors of strain among caregivers of people with disability: results from R-Care community survey, Kerala, India

Devassy, S. M., Grills, N., Scaria, L., Benny, A. M., & Joubert, L. (2021) · Disability and Rehabilitation · doi:10.1080/09638288.2021.1965231 · Cited by 26 · see citing works

The impact of informal care for patients with Pompe disease: An application of the CarerQol instrument

Kanters, T. A., van der Ploeg, A. T., Brouwer, W. B. F., & Roijen, L. H. (2013) · Molecular Genetics and Metabolism · doi:10.1016/j.ymgme.2013.07.020 · Cited by 26 · see citing works

Informal care in times of a public health crisis: Objective burden, subjective burden and quality of life of caregivers in the Netherlands during the COVID‐19 pandemic

Gräler, L., Bremmers, L. G. M., Bakx, P., van Exel, J. N. A., & van Bochove, M. E. (2022) · Health & Social Care in the Community · doi:10.1111/hsc.13975 · Cited by 25 · see citing works

Assessment of Burden in Partners of Stroke Patients With the Sense of Competence Questionnaire

Reimer, W. J. M. S. O., de Haan, R. J., Pijnenborg, J. M. A., Limburg, M., & van den Bos, G. A. M. (1998) · Stroke · doi:10.1161/01.str.29.2.373 · Cited by 112 · see citing works

Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale

Elmståhl, S., Malmberg, B., & Annerstedt, L. (1996) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/s0003-9993(96)90164-1 · Cited by 364 · see citing works

An abbreviated German version of the Sense of Competence Questionnaire among informal caregivers of relatives who had a stroke: development and validation

Pendergrass, A., Beische, D., Becker, C., Hautzinger, M., & Pfeiffer, K. (2015) · European Journal of Ageing · doi:10.1007/s10433-015-0342-3 · Cited by 23 · see citing works

Measures used to assess burden among caregivers of stroke patients: a review

Visser‐Meily, J. M. A., Post, M. W. M., Riphagen, I. I., & Lindeman, E. (2004) · Clinical Rehabilitation · doi:10.1191/0269215504cr776oa · Cited by 182 · see citing works

A Validation Study of the Revised Caregiving Burden Instrument in Korean Family Caregivers of Stroke Survivors

Kim, S. S., & Roh, Y. S. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18062960 · Cited by 6 · see citing works