“A gift wrapped in barbed wire” Positive and negative life changes after being diagnosed with inflammatory bowel disease
Abstract
Purpose A growing interest in posttraumatic growth among individuals who have experienced a traumatic event has given rise to measures such as the Posttraumatic Growth Inventory (PTGI; Tedeschi and Calhoun, 1996). However, such measures may not fully represent all dimensions of change among individuals diagnosed with a chronic disease and fail to highlight the negative changes that may also occur. This study explores the positive and negative changes patients with inflammatory bowel disease (IBD) have experienced since diagnosis.Methods Three hundred and seventy-eight IBD patients provided answers to the qualitative question "Could you please describe the (positive/negative) effect(s) IBD has had on your life?" A grounded theory approach using NVivo was performed on participants' responses.Results Nearly 73 % of participants reported their disease positively affected their life in some way, and five themes related to positive changes emerged from the analysis: Interpersonal Relations, Personal Growth, Valuing Life, New Life Paths, and Spiritual Growth. However, almost 80 % of participants also reported their disease negatively affected their lives, with three themes emerging from the analysis: Freedom Restrictions, Psychological Side Effects, and Social Isolation.Conclusions Our results support previous findings but also reveal that some dimensions related to the positive changes following adversity are not adequately assessed by the PTGI (e.g., appraising existing friendships, openness to try different forms of treatment or therapies, and psychological preparedness). The implications of these findings for future measurement and research of posttraumatic growth with IBD patients are discussed.
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A multi-dimensional perspective has been supported, as individuals frequently report the simultaneous occurrence of both positive and negative cognitive changes.
“In light of empirical findings, a multi-dimensional perspective has been supported, as individuals frequently report the simultaneous occurrence of both positive and negative cognitive changes [14–17].”
From The coexistence and trajectories of posttraumatic growth and depreciation: a 36-month longitudinal qualitative narrative analysis (2026) · cites this paper as [17]
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- Authors
- Purc-Stephenson, R., Bowlby, D., & Qaqish, S. T.
- Affiliations
- Government of Alberta (CA)
- Covenant Health (CA)
- Venue
- Quality of Life Research
- Published
- 2014-10-31
- Volume
- 24
- Issue
- 5
- Pages
- 1197-1205
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2022780746
- Cited by
- 50
- References
- 40
- Citations by year
- 2026: 1 · 2025: 7 · 2024: 5 · 2023: 5 · 2022: 4 · 2021: 8 · 2020: 8 · 2019: 6 · 2018: 3 · 2017: 3
- FWCI
- 0.48
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Social Sciences › Psychology › Clinical Psychology › Resilience and Mental Health
- Keywords
- inflammatory bowel disease, posttraumatic growth, chronic disease, Posttraumatic Growth Inventory, interpersonal relationships, personal growth, spiritual development, social isolation, psychological side effects, restriction of liberty, patient experience
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Chronic Disease, Female, Humans, Interpersonal Relations, Life Change Events, Male, Middle Aged, Personality Inventory, Quality of Life, Inflammatory Bowel Diseases
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