Difficulty eating and significant weight loss in joint hypermobility syndrome/Ehlers–Danlos syndrome, hypermobility type
Abstract
Joint Hypermobility Syndrome, also known as Ehlers-Danlos Syndrome Hypermobility Type (JHS/EDS-HT), is a heritable disorder of connective tissue, common but poorly known by the medical community. Although generalized joint hypermobility and fragility of tissues have been described as core features, recent research highlights the multisystemic nature of JHS/EDS-HT, which presents with a wide range of articular and extra-articular symptoms. Among these, gastrointestinal problems, temporomandibular disorders, and smell and taste abnormalities are common among those affected, having significant implications for eating. The present work reviews the literature linking JHS/EDS-HT and eating problems. Two illustrative case reports, in which JHS/EDS-HT manifestations contribute to developing and maintaining disturbed eating behaviors and significant weight loss, are presented.
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A weak association of eating disorders with EDS, based upon theory and case reports, is noted but formal studies are limited.
“A weak association of eating disorders with EDS, based upon theory and case reports, is noted but formal studies are limited. 79”
From Hypermobile Ehlers–Danlos syndrome and disorders of the gastrointestinal tract: What the gastroenterologist needs to know (2022) · cites this paper as [79]
Patients with hEDS may experience enhanced interoception, somatosensory amplification and underlying chemosensory disorders, influencing oral intake and the development of food aversions.
“Patients with hEDS may also experience enhanced interoception (heightened awareness of bodily information and stimuli), somatosensory amplification and have underlying chemosensory disorders (involving smell and taste changes), influencing oral intake and the development of food aversions. 79”
From Hypermobile Ehlers–Danlos syndrome and disorders of the gastrointestinal tract: What the gastroenterologist needs to know (2022) · cites this paper as [79]
The consequences of weight loss and poor nutrition may worsen the natural history of hEDS by contributing to physical deconditioning, reduced bone mass, fatigue, and poor quality of life.
“The consequences of weight loss and poor nutrition should also not been overlooked as these may worsen the natural history of hEDS by contributing to physical deconditioning, reduced bone mass, fatigue, and poor quality of life. 79 , 82”
From Hypermobile Ehlers–Danlos syndrome and disorders of the gastrointestinal tract: What the gastroenterologist needs to know (2022) · cites this paper as [79]
Undernutrition is common and multifactorial in HSD/hEDS.
“Assess nutritional status as undernutrition is common and multifactorial 79”
From Hypermobile Ehlers–Danlos syndrome and disorders of the gastrointestinal tract: What the gastroenterologist needs to know (2022) · cites this paper as [79]
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- Authors
- Baeza-Velasco, C., Van den Bossche, T., Grossin, D., & Hamonet, C.
- Affiliations
- Hôtel-Dieu de Paris (FR)
- Université Paris-Est Créteil (FR)
- ORCID
- Hamonet, Claude
- Venue
- Eating and Weight Disorders - Studies on Anorexia, Bulimia and Obesity
- Published
- 2015-10-27
- Volume
- 21
- Issue
- 2
- Pages
- 175-183
- ISSN
- 1124-4909 (ISSN-L)
- 1590-1262
- OpenAlex
- W1824349062
- Cited by
- 39
- References
- 53
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 3 · 2023: 5 · 2022: 9 · 2021: 6 · 2020: 1 · 2019: 4 · 2018: 1 · 2017: 3 · 2016: 2 · 2015: 1
- FWCI
- 0.33
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Eating and Weight Disorders - Studies on Anorexia Bulimia and Obesity (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Eating Disorders and Behaviors
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Connective tissue disorders research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- joint hypermobility syndrome, Ehlers-Danlos syndrome hypermobility type, connective tissue diseases, eating difficulties, weight loss, gastrointestinal symptoms, temporomandibular disorders
- MeSH terms
- Feeding and Eating Disorders, Ehlers-Danlos Syndrome, Humans, Weight Loss
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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