Cited by 335Autism Spectrum Disorder ResearchFamily and Disability Support ResearchChild Nutrition and Feeding Issues

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Latino parents’ perspectives on barriers to autism diagnosis

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Zuckerman, Katharine E., Sinche, Brianna, Mejia, Angie, Cobian, Martiza, Becker, Thomas, Nicolaidis, Christina·2014·Academic Pediatrics

DOI 10.1016/j.acap.2013.12.004PMC PMC4006363

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Abstract

Objective Latino children are diagnosed with autism spectrum disorders (ASDs) at older ages and at the point of more severe symptoms. We sought to qualitatively describe community, family, and health care system barriers to ASD diagnosis in Latino children.Methods Five focus groups and 4 qualitative interviews were conducted with 33 parents of Latino children previously diagnosed with an ASD. Participants described Latino community perceptions of autism and barriers they experienced during the diagnostic process. Sessions were audiorecorded and transcribed. Transcripts were coded by 2 researchers, and data were analyzed using thematic analysis.Results Parents reported low levels of ASD information and high levels of mental health and disability stigma in the Latino community. Parents had poor access to care as a result of poverty, limited English proficiency, and lack of empowerment to take advantage of services. Providers sometimes dismissed parents' concerns. The ASD diagnostic process itself was slow, inconvenient, confusing, and uncomfortable for the child. These factors led many parents to normalize their child's early behaviors, deny that a problem existed, and lose trust in the medical system.Conclusions Additional educational outreach to Latino families, destigmatization of ASD, streamlining the ASD diagnostic process, and providing additional support to Latino parents of at-risk children may decrease delays in ASD diagnosis among Latino children.

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Authors: Zuckerman, K. E., Sinche, B., Mejia, A., Cobian, M., Becker, T., & Nicolaidis, C.
Affiliations: Oregon Health & Science University (US)
Pacific University Oregon (US)
Portland State University (US)
Corresponding author: Zuckerman, Katharine E.
ORCID: Zuckerman, Katharine E.
Mejia, Angie
Becker, Thomas
Nicolaidis, Christina
Venue: Academic Pediatrics
Publisher: Elsevier BV
Published: 2014-05
Volume: 14
Issue: 3
Pages: 301-308
ISSN: 1876-2859 (ISSN-L)
DOI: 10.1016/j.acap.2013.12.004
PMC: PMC4006363
OpenAlex: W2091608490
Cited by: 335
References: 37
Citations by year: 2026: 93 · 2025: 31 · 2024: 32 · 2023: 33 · 2022: 34 · 2021: 23 · 2020: 29 · 2019: 19 · 2018: 13 · 2017: 15 · 2016: 8 · 2015: 4 · 2014: 1
FWCI: 5.20
Type: journal article
Language: en
Open access: green
www.ncbi.nlm.nih.gov
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Academic Pediatrics (publishedVersion)
PubMed (publishedVersion)
PubMed Central (acceptedVersion)
PDXScholar (Portland State University) (submittedVersion)
Funders: Commonwealth Fund
Oregon Health and Science University
Academic Pediatric Association
Centers for Disease Control and Prevention
National Institute of Mental Health (K23MH095828)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords: autism spectrum disorder, Latino children, autism diagnosis, delayed diagnosis, parental attitudes, barriers to care, stigma, mental health stigma, disability stigma, limited English proficiency, health care access, poverty, trust in healthcare, health disparities
MeSH terms: Adult, Child, Child Development Disorders, Pervasive, Child, Preschool, Female, Health Services Accessibility, Hispanic or Latino, Humans, Income, Health Knowledge, Attitudes, Practice, Male, Parents, Physician-Patient Relations, Qualitative Research, Young Adult, Delayed Diagnosis, Social Stigma

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