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Cited by 75Nursing care and researchIntergenerational Family Dynamics and CaregivingAging, Elder Care, and Social Issues

Challenges and needs of informal caregivers in elderly care: Qualitative research in four European countries, the TRACE project

Akgun-Citak, Ebru, Attepe-Ozden, Seda, Vaskelyte, Alina, van Bruchem-Visser, Rozemarijn L., Pompili, Saverio, Kav, Sultan, Acar, Sema, Aksoydan, Emine +7 more·2020·Archives of Gerontology and Geriatrics
DOI 10.1016/j.archger.2019.103971
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Abstract

Background Providing informal care may affects caregivers' life in different ways. Determining the needs of caregivers and supporting them can improve both the quality of life of the caregivers, as well as the elderly they take care of.Objective To explore the experiences and needs of the informal caregivers in four countries.Design Qualitative research method was used in the study.Methods The qualitative data was collected through focus groups and individual interviews between December 2016-May 2017. In all countries interviews were conducted in the mother language of the informants. Informants of the qualitative research were adult people who take primary care of an individual with chronic diseases, aged 65 years or older. Data were collected from 72 informal caregivers from four European countries. Inductive content analysis was performed.Results Informal caregivers identified 2 themes, 5 subthemes, 19 categories and 7 subtcategories. The themes highlighted two major issues: informal caregiver's challenges and needs related to the management of care of elderly and caregivers' personal needs.Conclusion The important and charming results of the present study are, difficulties of managing caregiver's own life, and coping with emotions are common in four countries. Identifying challenges and needs of informal caregivers enable healthcare professionals to develop care strategies and plan interventions focused to support and help to reduce the burden of care for elderly with chronic diseases.

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  • Very limited leisure time, loss of personal freedom and changes in the lifestyle in general are some of the challenges faced by informal caregivers.

    “Very limited leisure time, loss of personal freedom and changes in the lifestyle in general are some of the challenges faced by informal caregivers (Akgun-Citak et al., 2020).”

    From ICBT program for improving informal caregiver well-being: A qualitative study (2021) · cites this paper as Akgun-Citak et al., 2020

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Authors
Akgun-Citak, E., Attepe-Ozden, S., Vaskelyte, A., van Bruchem-Visser, R. L., Pompili, S., Kav, S., Acar, S., Aksoydan, E., Altintas, A., Aytar, A., Baskici, C., Blazeviciene, A., Scarpa, A. R., Kiziltan, G., & Mattace-Raso, F. U. S.
Affiliations
  • Sapienza University of Rome (IT)
  • Başkent University (TR)
  • Erasmus MC (NL)
ORCID
Venue
Archives of Gerontology and Geriatrics
Publisher
Elsevier BV
Published
2020-03
Volume
87
Pages
103971
ISSN
0167-4943 (ISSN-L)
DOI
10.1016/j.archger.2019.103971
OpenAlex
W2989217968
Cited by
71
References
31
Citations by year
2026: 11 · 2025: 13 · 2024: 14 · 2023: 9 · 2022: 8 · 2021: 10 · 2020: 6
FWCI
11.11
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Archives of Gerontology and Geriatrics (publishedVersion)
  • PubMed (publishedVersion)
  • EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
  • EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
  • Lithuanian University of Health Sciences (submittedVersion)
Funders
European Union (2016-1-TR01-KA204-035090)
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
  • Health Sciences › Health Professions › General Health Professions › Aging, Elder Care, and Social Issues
Keywords
informal caregivers, elderly care, caregiver needs, caregiver burden, chronic diseases in older adults, caregiver coping, emotional challenges, caregiver support, TRACE project
MeSH terms
Adult, Aged, Aged, 80 and over, Europe, Female, Patient Care, Health Services for the Aged, Health Services Needs and Demand, Humans, Male, Middle Aged, Caregivers, Qualitative Research

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