“I just don’t focus on my needs.” The unmet health needs of partner and offspring caregivers of people with dementia: A qualitative study
Abstract
Background Family caregivers of people with dementia have significant unmet health needs. There is a lack of research that differentiates between the needs that are specifically relevant to partner and offspring caregivers. Objective The aim of this study was to examine the health needs of partner and offspring caregivers of older people with dementia, including the barriers they experience in meeting their needs. Method Semi-structured interviews were conducted with 24 family caregivers of community-dwelling people with dementia. Of these, 12 were partner caregivers (4 men, 8 women) and 12 were offspring caregivers (2 men, 10 women). The interviews were transcribed and analysed using thematic analysis. Results Five themes were identified within the data. The first theme represents caregivers' overall assessment and perception of their health needs. The remaining four themes represent the most important aspects of caregivers' health needs; mental health, emotional support and social relationships, healthy diet and exercise, and personal time. While these themes were similar for offspring and partner caregivers, the specific needs and barriers within these areas were different. A prominent barrier for partner caregivers was that they had difficulty in acknowledging their needs. Despite this, partner caregivers demonstrated unmet emotional support needs, as they no longer had emotional support from their partner with dementia. They also had an unmet need for time away from the…
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Caregivers also may feel sad when thinking about the lost abilities of their relatives and have excessive worries or fears about the uncertain future with the progression of dementia.
“Caregivers also may feel sad when thinking about the lost abilities of their relatives and have excessive worries or fears about the uncertain future with the progression of dementia”
From The feasibility and preliminary effects of a pilot randomized controlled trial: Videoconferencing acceptance and commitment therapy in distressed family caregivers of people with dementia. (2023) · cites this paper as Tatangelo et al., 2018
Family caregivers of PLWD may feel they lack time and energy to participate in other valued activities while focusing on caregiving roles.
“In addition, family caregivers of PLWD may feel they lack time and energy to participate in other valued activities while focusing on caregiving roles”
From The feasibility and preliminary effects of a pilot randomized controlled trial: Videoconferencing acceptance and commitment therapy in distressed family caregivers of people with dementia. (2023) · cites this paper as Tatangelo et al., 2018
Clarification of individually meaningful life goals and values may assist family caregivers in devoting more time for themselves instead of focusing only on their caregiving role.
“Clarification of individually meaningful life goals and values may assist family caregivers in devoting more time for themselves instead of focusing only on their caregiving role (Tatangelo, McCabe, Macleod, & You, 2018).”
From Supported Web-Based Acceptance and Commitment Therapy for Older Family Caregivers (CareACT) Compared to Usual Care. (2022) · cites this paper as Tatangelo, McCabe, Macleod, & You, 2018
A more mindful stance regarding thoughts and feelings may help caregivers to focus more on the present moment instead of excessively worrying about the future.
“Moreover, a more mindful stance regarding thoughts and feelings may help caregivers to focus more on the present moment instead of excessively worrying about the future (Tatangelo et al., 2018).”
From Supported Web-Based Acceptance and Commitment Therapy for Older Family Caregivers (CareACT) Compared to Usual Care. (2022) · cites this paper as Tatangelo et al., 2018
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- Authors
- Tatangelo, G., McCabe, M., Macleod, A., & You, E.
- Affiliations
- Australian Catholic University (AU)
- The University of Melbourne (AU)
- Corresponding author
- Tatangelo, Gemma
- Venue
- International Journal of Nursing Studies
- Publisher
- Elsevier BV
- Published
- 2018-01
- Volume
- 77
- Pages
- 8-14
- ISSN
- 0020-7489 (ISSN-L)
- OpenAlex
- W2754770958
- Cited by
- 177
- References
- 43
- Citations by year
- 2026: 20 · 2025: 26 · 2024: 26 · 2023: 20 · 2022: 27 · 2021: 25 · 2020: 18 · 2019: 13 · 2018: 2
- FWCI
- 7.41
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Nursing Studies (publishedVersion)
- PubMed (publishedVersion)
- Research Bank (Australian Catholic University) (submittedVersion)
- Swinburne figshare (Swinburne University of Technology) (submittedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Keywords
- dementia, family caregivers, unmet health needs, partner caregivers, caregiver mental health, emotional support, social isolation, interpersonal relationships, personal time, community-dwelling older adults
- MeSH terms
- Adult, Aged, Aged, 80 and over, Dementia, Diet, Emotions, Family, Female, Health Services Needs and Demand, Humans, Interpersonal Relations, Male, Mental Health, Middle Aged, Social Support, Exercise, Caregivers, Spouses, Adult Children, Qualitative Research
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