Cited by 198Down syndrome and intellectual disability researchFamily and Disability Support ResearchAutism Spectrum Disorder Research

Evaluation of An Activities of Daily Living Scale for Adolescents and Adults with Developmental Disabilities

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Maenner, Matthew J., Smith, Leann E., Hong, Jinkuk, Makuch, Renee, Greenberg, Jan S., Mailick, Marsha R.·2013·Disability and Health Journal

Abstract

Background Activity limitations are an important and useful dimension of disability, but there are few validated measures of activity limitations for adolescents and adults with developmental disabilities.Objective/hypothesis To describe the development of the Waisman Activities of Daily Living (W-ADL) Scale for adolescents and adults with developmental disabilities, and systematically evaluate its measurement properties according to an established set of criteria.Methods The W-ADL was administered among four longitudinally studied groups of adolescents and adults with developmental disabilities: 406 with autism; 147 with fragile-X syndrome; 169 with Down syndrome; and 292 with intellectual disability of other or unknown origin. The W-ADL contains 17 activities and each is rated on a 3-point scale (0 = "does not do at all", 1 = "does with help", 2 = "independent"), and a standard set of criteria were used to evaluate its measurement properties.Results Across the disability groups, Cronbach's alphas ranged from 0.88 to 0.94, and a single-factor structure was most parsimonious. The W-ADL was reliable over time, with weighted kappas between 0.92 and 0.93. Criterion and construct validity were supported through substantial associations with the Vineland Screener, need for respite services, caregiving burden, and competitive employment. No floor or ceiling effects were present. There were significant group differences in W-ADL scores by maternally reported level of intellectual disability (mild, moderate, severe, profound).Conclusions The W-ADL exceeded the recommended threshold for each quality criterion the authors evaluated. This freely available tool is an efficient measure of activities of daily living for surveys and epidemiological research concerning adolescents and adults with developmental disabilities.

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Crossref · 10.1016/j.dhjo.2012.08.005

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  • W-ADL has good internal consistency in different clinical populations, with Cronbach's alpha between 0.77 and 0.94.

    “W-ADL has good internal consistency in different clinical populations, with a Cronbach’s alpha value between 0.77 and 0.94 [16].”

    From Enhancing Ecological Validity: Virtual Reality Assessment of Executive Functioning in Children and Adolescents with ADHD (2024) · cites this paper as [16]

    The Results report good internal consistency across four clinical groups, but the reported Cronbach’s alpha values range from 0.88 to 0.94, not 0.77 to 0.94. The cited paper therefore supports the claim about internal consistency, but not its lower bound. (LLM, conf=0.90)

    Experimental — accuracy not yet measured
  • The ADHD group had a lower score on the W-ADL Scale, indicating a greater need for support to perform ADL independently.

    “On the other hand, the ADHD group had a lower score on the W-ADL Scale [16] (U = 520, p = 0.037), indicating a greater need for support to perform ADL independently.”
  • Formal gait laboratory kinematic assessments are more accurate than other assessments but are expensive and their availability is limited to a small number of specialist centres.

    “Formal gait laboratory kinematic assessments are more accurate, but expensive, and availability is limited to a small number of specialist centres [88].”

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Authors
Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Mailick, M. R.
Affiliations
University of Wisconsin–Madison (US)
Corresponding author
Maenner, Matthew J.
Venue
Disability and Health Journal
Publisher
Elsevier BV
Published
2013-01
Volume
6
Issue
1
Pages
8-17
ISSN
  • 1876-7583 (ISSN-L)
  • 1936-6574
OpenAlex
W2137821998
Cited by
198
References
43
Citations by year
2026: 16 · 2025: 16 · 2024: 22 · 2023: 11 · 2022: 16 · 2021: 25 · 2020: 17 · 2019: 12 · 2018: 16 · 2017: 14 · 2016: 11 · 2015: 13 · 2014: 2 · 2013: 6 · 2012: 1
FWCI
6.79
Type
journal article
Language
en
Open access
Locations
  • Disability and health journal (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
Funders
  • National Institute on Aging (R01AG008768)
  • Eunice Kennedy Shriver National Institute of Child Health and Human Development (P30HD003110, P30HD003352)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Keywords
activities of daily living, developmental disabilities, adolescents and adults, autism spectrum disorder, fragile X syndrome, Down syndrome, intellectual disability, measurement properties, reliability statistics, validity, floor and ceiling effects, respite care, caregiver burden, competitive employment, severity of intellectual disability
MeSH terms
Activities of Daily Living, Adolescent, Adult, Autistic Disorder, Child, Developmental Disabilities, Disability Evaluation, Down Syndrome, Employment, Female, Fragile X Syndrome, Persons with Disabilities, Humans, Male, Intellectual Disability, Middle Aged, Reproducibility of Results, Caregivers, Young Adult

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