Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation
Abstract
With the increasing prevalence of adults with autism spectrum disorder (ASD), research examining the service experiences of this population is greatly needed. The current study investigated service use, unmet needs, and obstacles to service access for a large sample of adults with ASD. After accounting for various demographic factors known to impact service usage and needs, living situation was a significant predictor of service use, needs, and obstacles to services. Adults with ASD living with family reported less service use, higher unmet need, and more obstacles to accessing services. With more than half of this adult sample living with family, results have clear public policy implications to support the increasing population of adults with ASD living with aging caregivers.
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Families without access to care in their community are less likely to seek care due to additional cost, time commitment, and disruption to daily obligations associated with long-distance travel.
“Families that do not have access to care in their community are less likely to seek care due to the additional cost, time commitment and disruption to daily obligations (e.g., work) associated with longdistance travel.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [16]
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Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309 · see citing works
- Authors
- Dudley, K. M., Klinger, M. R., Meyer, A., Powell, P., & Klinger, L. G.
- Affiliations
- University of North Carolina at Chapel Hill (US)
- University of Colorado Anschutz (US)
- Georgia Institute of Technology (US)
- Corresponding author
- Dudley, Katerina M.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2018-08-25
- Volume
- 49
- Issue
- 2
- Pages
- 556-568
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2888130497
- Cited by
- 92
- References
- 45
- Citations by year
- 2026: 5 · 2025: 17 · 2024: 12 · 2023: 8 · 2022: 16 · 2021: 17 · 2020: 10 · 2019: 6 · 2018: 1
- FWCI
- 5.05
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Autism Speaks (8316)
- Foundation of Hope
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Safety Research › Disability Education and Employment
- Keywords
- autism spectrum disorder, autistic adults, service utilization, unmet needs, access barriers, living arrangements, family life, elderly caregivers, caregiver burden, public policy
- MeSH terms
- Autism Spectrum Disorder, Facilities and Services Utilization, Adult, Child, Family, Female, Health Services Needs and Demand, Humans, Male, Residence Characteristics, Social Conditions
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