The DOI matches its Crossref record; 122 of the 128 references it cites were found in a registry or an index.
Towards an ontology for data quality in integrated chronic disease management: A realist review of the literature
Abstract
Purpose Effective use of routine data to support integrated chronic disease management (CDM) and population health is dependent on underlying data quality (DQ) and, for cross system use of data, semantic interoperability. An ontological approach to DQ is a potential solution but research in this area is limited and fragmented. Objective Identify mechanisms, including ontologies, to manage DQ in integrated CDM and whether improved DQ will better measure health outcomes. Methods A realist review of English language studies (January 2001-March 2011) which addressed data quality, used ontology-based approaches and is relevant to CDM. Results We screened 245 papers, excluded 26 duplicates, 135 on abstract review and 31 on full-text review; leaving 61 papers for critical appraisal. Of the 33 papers that examined ontologies in chronic disease management, 13 defined data quality and 15 used ontologies for DQ. Most saw DQ as a multidimensional construct, the most used dimensions being completeness, accuracy, correctness, consistency and timeliness. The majority of studies reported tool design and development (80%), implementation (23%), and descriptive evaluations (15%). Ontological approaches were used to address semantic interoperability, decision support, flexibility of information management and integration/linkage, and complexity of information models. Conclusion DQ lacks a consensus conceptual framework and definition. DQ and ontological research is relatively immature with litt…
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“The current DQ literature is inconsistent in the use of terms that describe the complex multidimensional aspects of DQ.42–51”
From A harmonized data quality assessment terminology and framework for the secondary use of electronic health record data (2016) · cites this paper as [46]
Citations
Cites
Toward principles for the design of ontologies used for knowledge sharing?
Gruber, T. R. (1995) · International Journal of Human-Computer Studies · doi:10.1006/ijhc.1995.1081 · Cited by 7,753
Lecture Notes in Artificial Intelligence
Brézillon, P., & Bouquet, P. (1999) · Cited by 7,436
Beyond Accuracy: What Data Quality Means to Data Consumers
Wang, R. Y., & Strong, D. M. (1996) · Journal of Management Information Systems · doi:10.1080/07421222.1996.11518099 · Cited by 4,672
Realist review - a new method of systematic review designed for complex policy interventions
Pawson, R., Greenhalgh, T., Harvey, G., & Walshe, K. (2005) · Journal of Health Services Research & Policy · doi:10.1258/1355819054308530 · Cited by 3,190
Improving Primary Care for Patients With Chronic Illness
Bodenheimer, T. (2002) · JAMA · doi:10.1001/jama.288.14.1775 · Cited by 2,961
Improving Primary Care for Patients With Chronic Illness: The Chronic Care Model, Part 2
Bodenheimer, T., Wagner, E. H., & Grumbach, K. (2002) · JAMA · doi:10.1001/jama.288.15.1909 · Cited by 2,413
Adverse events in British hospitals: preliminary retrospective record review
Vincent, C. A., Neale, G., & Woloshynowych, M. (2001) · BMJ · doi:10.1136/bmj.322.7285.517 · Cited by 2,075
Improving Safety with Information Technology
Bates, D. W., & Gawande, A. A. (2003) · New England Journal of Medicine · doi:10.1056/nejmsa020847 · Cited by 1,544
Anchoring Data Quality Dimensions in Ontological Foundations
Wand, Y., & Wang, R. Y. (1996) · Communications of the ACM · doi:10.1145/240455.240479 · Cited by 1,479
Integrated care: meaning, logic, applications, and implications – a discussion paper
Kodner, D. L., & Spreeuwenberg, C. (2002) · International Journal of Integrated Care · doi:10.5334/ijic.67 · Cited by 1,155
Research works printed but not linked: 3
- Liaw, 2011, Health reform: is current electronic information fit for purpose?, Emerg. Med. Australasia, September
- Wand, 1996, Anchoring data quality dimensions in ontological foundations, CACM, 36, 10
- Han, 2008, An overview of data quality research, Comput. Sci., 35
Cited by
Sorted by citations
Items 101–170 of 170
Nagae, H., Tanigaki, S., Okada, M., Katayama, Y., Norikoshi, C., Nishina, Y., & Sakai, M. (2013) · International Journal of Nursing Practice · doi:10.1111/ijn.12044 · Cited by 6
The Role of Information Quality in Healthcare Organizations: A Multi-Disciplinary Literature Review
Hausvik, G. I. (2017) · Hawaii International Conference on System Sciences (HICSS) · doi:10.24251/hicss.2017.328 · Cited by 6
Towards a Semantic Outlier Detection Framework in Wireless Sensor Networks
Esnaola-Gonzalez, I., Bermúdez, J., Fernández, I., Fernández, S., & Arnáiz, A. (2017) · International Conference on Semantic Systems · doi:10.1145/3132218.3132226 · Cited by 6
Guidelines for Health IT Addressing the Quality of Data in EHR Information Systems
Badr, N. G. (2019) · International Joint Conference on Biomedical Engineering Systems and Technologies (BIOSTEC) · doi:10.5220/0006941001690181 · Cited by 6
The efficacy of confrontational naming treatments for aphasia: a meta-analysis
Yousefzade, F., Memarian, A., Rahimi, A., & Ghasisin, L. (2024) · Aphasiology · doi:10.1080/02687038.2024.2393448 · Cited by 5
Self-citationBerman, L., Ostchega, Y., Giannini, J. P., Anandan, L. P., Clark, E., Spotnitz, M. E., Sulieman, L., Volynski, M., & Ramirez, A. H. (2024) · JCO Clinical Cancer Informatics · doi:10.1200/cci.24.00052 · Cited by 6
Human-Data Interaction in Healthcare
Cabitza, F., & Locoro, A. (2019) · IGI Global eBooks · doi:10.4018/978-1-7998-1204-3.ch058 · Cited by 5
Quality Assessment of Healthcare Databases
Carle, F., Minco, L. D., Skrami, E., Gesuita, R., Palmieri, L., Giampaoli, S., & Corrao, G. (2022) · Epidemiology Biostatistics and Public Health · doi:10.2427/12901 · Cited by 6
Morales‐Asencio, J. M., Kaknani‐Uttumchandani, S., Fernández‐Gallego, M. C., Gómez, L. P., Gutiérrez-Sequera, J. L., Arranz, A. S., Batres-Sicilia, J. P., Delgado‐Romero, A., Cejudo-Lopez, A., Trabado‐Herrera, M., et al. (2015) · Journal of Evaluation in Clinical Practice · doi:10.1111/jep.12392 · Cited by 4
Handling data imperfection—False data inputs in applications for Alzheimer’s patients
Ghorbel, F., Hamdi, F., Achich, N., & Métais, E. (2020) · Data & Knowledge Engineering · doi:10.1016/j.datak.2020.101864 · Cited by 5
Anand, V., Rosenman, M. B., & Downs, S. M. (2013) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2013.05.003 · Cited by 3
Liaw, S., Taggart, J., Yu, H., & Rahimi, A. (2014) · PubMed Central · Cited by 4
Self-citationOntology in Medicine as a Database Management System
Shobowale, K. O. (2020) · doi:10.1002/9781119641391.ch4 · Cited by 4
Al-Hgaish, A. M., Atan, R. B., Yaakob, R., & Osman, M. H. (2025) · IEEE Access · doi:10.1109/access.2025.3601031 · Cited by 6
Supporting Physicians in the Detection of the Interactions between Treatments of Co-Morbid Patients
Piovesan, L., Molino, G., & Terenziani, P. (2018) · Intelligent Systems · doi:10.4018/978-1-5225-5643-5.ch021 · Cited by 3
Digital Health Data Imperfection Patterns and Their Manifestations in an Australian Digital Hospital
Goel, K., Sadeghianasl, S., Andrews, R., ter Hofstede, A. H. M., Wynn, M., Geeganage, D. K., Leemans, S., McGree, J. M., Eden, R., Staib, A. N., et al. (2023) · Hawaii International Conference on System Sciences (HICSS) · doi:10.24251/hicss.2023.398 · Cited by 3
Towards ODRAH: An ontology-based data reliability assessment in mobile health
Amor, L. B., Lahyani, I., & Jmaïel, M. (2016) · IEEE/ACS International Conference on Computer Systems and Applications (AICCSA) · doi:10.1109/aiccsa.2016.7945782 · Cited by 3
Human-Data Interaction in Healthcare
Cabitza, F., & Locoro, A. (2017) · Advances in business information systems and analytics book series · doi:10.4018/978-1-5225-2492-2.ch009 · Cited by 3
Toner, T. M., Pancholi, R., Miller, P., Forster, T., Coleman, H. G., & Overton, I. M. (2022) · GigaScience · doi:10.1093/gigascience/giad030 · Cited by 3
Role of entrepreneurship in Universal Health Coverage (UHC) using mHealth
RAY, P. K., & Zhang, C. (2017) · IEEE Technology & Engineering Management Conference (TEMSCON) · doi:10.1109/temscon.2017.7998365 · Cited by 3
Self-citationKosman, K. A., Talaei‐Khoei, A., Ghapanchi, A. H., & RAY, P. K. (2013) · USC Research Bank (University of the Sunshine Coast) · Cited by 3
Self-citationLegal and technological aspects for the creation of a European Health Data Space
Machado, A. C., & Polónia, D. F. (2022) · Iberian Conference on Information Systems and Technologies (CISTI) · doi:10.23919/cisti54924.2022.9820577 · Cited by 4
Awuklu, Y. K., Mougin, F., Griffier, R., Bienvenu, M., & Jouhet, V. (2025) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2025.104808 · Cited by 1
Cai, M., Huang, X., Cao, Y., Shao, X., & Xu, X. (2026) · Digital Health · doi:10.1177/20552076261427506 · Cited by 2
do Prado, L. S., Allemann, S. S., Viprey, M., Schott, A., Dediu, D., & Dima, A. L. (2023) · Journal of Medical Internet Research · doi:10.2196/49996 · Cited by 2
Wiley, K., Blackburn, J. L., Mendonça, E. A., Menachemi, N., de Groot, M., & Vest, J. R. (2024) · Journal of Diabetes & Metabolic Disorders · doi:10.1007/s40200-024-01468-6 · Cited by 2
Building a Foundation for High-Quality Health Data: Multihospital Case Study in Belgium
Declerck, J., Vandenberk, B., Deschepper, M., Colpaert, K. E., Cool, L., Goemaere, J., Bové, M., Staelens, F., Meester, K. D., Verbeke, E., et al. (2024) · JMIR Medical Informatics · doi:10.2196/60244 · Cited by 2
Frondelius, A., Kinnunen, U., & Jormanainen, V. J. (2024) · Methods of Information in Medicine · doi:10.1055/a-2511-7866 · Cited by 5
Hinton, W., Liyanage, H., McGovern, A. P., Liaw, S., Kuziemsky, C., Munro, N. M., & de Lusignan, S. (2017) · Yearbook of Medical Informatics · doi:10.1055/s-0037-1606533 · Cited by 2
Self-citationLewis, J., & Siaw-Liaw, T. (2017) · IEEE International Symposium on Technology and Society (ISTAS) · doi:10.1109/istas.2017.8319083 · Cited by 2
Profiling Clinical Datasets for Data Quality Assessment and Improvement
Bonney, W., Scobbie, D., Nind, T., Donaldson-Buist, S., Hall, C., & Jefferson, E. (2014) · Electronic workshops in computing · doi:10.14236/ewic/his2014.1 · Cited by 1
do Prado, L. S., Allemann, S. S., Viprey, M., Schott, A., Dediu, D., & Dima, A. L. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-033573 · Cited by 2
Data Quality Assessment Model for Improving Decision Making Process
Al-Mughni, N. A. H., ALGhamdi, A. S. A.-M., & Saleem, F. (2020) · IJARCCE · doi:10.17148/ijarcce.2020.9814 · Cited by 1
Infection Transmission Ontology: Standardization of Infection Transmission Data
Slavco, E., de Vos, M. G., Hostens, M., Top, J. L., & Fischer, E. A. J. (2022) · IEEE International Conference on eScience · doi:10.1109/escience55777.2022.00021 · Cited by 1
Badreddine, B., Blount, Y., & Amrollahi, A. (2023) · AJIS. Australasian journal of information systems/AJIS. Australian journal of information systems/Australian journal of information systems · doi:10.3127/ajis.v27i0.4435 · Cited by 1
Shah, W. F. (2023) · International Journal of Science and Research (IJSR) · doi:10.21275/sr23522054732 · Cited by 1
Real‐World Evidence BRIDGE : A Tool to Connect Protocol With Code Programming
Royo, A. C., Roel Elbers, J. H. J., Weibel, D. M., Hoxhaj, V., Kurkcuoglu, Z., Sturkenboom, M., Vaz, T. A., & Navarro, C. L. A. (2024) · Pharmacoepidemiology and Drug Safety · doi:10.1002/pds.70062 · Cited by 1
Digital Twin Models for Enhanced Predictive Analysis and Treatment Optimization in Breast Cancer
Kotnala, A., Baraily, S., & Lathwal, A. (2025) · IEEE International Conference on Interdisciplinary Approaches in Technology and Management for Social Innovation (IATMSI) · doi:10.1109/iatmsi64286.2025.10984551 · Cited by 1
Torkanfar, N., Azar, E. R., & McCabe, B. Y. (2025) · Journal of Information Technology in Construction · doi:10.36680/j.itcon.2025.046 · Cited by 1
Lee, S. G., Lee, B., & Jeong, H. (2015) · Indian Journal of Science and Technology · doi:10.17485/ijst/2015/v8i23/79229 · Cited by 1
Hoang, U., Liyanage, H., Coyle, R. M., Godden, C., Jones, S., Blair, M. E., Rigby, M., & de Lusignan, S. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-024372 · Cited by 1
Development of a Methodological Approach for Data Quality Ontology in Diabetes Management
Rahimi, A., Parameswaran, N., RAY, P. K., Taggart, J., Yu, H., & Liaw, S. (2015) · IGI Global eBooks · doi:10.4018/978-1-4666-8756-1.ch023 · Cited by 1
Self-citationMind the Gap: Addressing Incompleteness Challenge in Case-Based Reasoning Applications
Boulmaiz, F., Reignier, P., & Ploix, S. (2023) · IFIP advances in information and communication technology · doi:10.1007/978-3-031-34111-3_20 · Cited by 1
Assessing the Importance of Data Factors of Data Quality Model in the Business Intelligence Area
Hejazi, A., Abdolvand, N., & Harandi, S. R. (2017) · International Journal of Trade Economics and Finance · doi:10.18178/ijtef.2017.8.2.547 · Cited by 1
A Predictive Method to Determine Incomplete Electronic Medical Records
Talaei-Khoei, A., Motiwalla, L., & Kazemi, S. (2018) · SIGMIS-CPR · doi:10.1145/3209626.3209706 · Cited by 1
Self-citationRolle der Dokumentations-IT in der Rheumatologie
Pallua, J. D., & Schirmer, M. (2021) · rheuma plus · doi:10.1007/s12688-021-00396-0 · Cited by 1
Ontology for Data Quality and Chronic Disease Management
Rahimi, A., Liaw, S., RAY, P. K., Taggart, J., & Yu, H. (2014) · Advances in healthcare information systems and administration book series · doi:10.4018/978-1-4666-6316-9.ch016
Self-citationAnalysis of community chronic disease health management mode under the background of big data
Yao, Z., & Cao, S. (2021) · E3S Web of Conferences · doi:10.1051/e3sconf/202127502026
Design and Evaluation of a Spanish Language Therapy Support System
Arce-Ruelas, K. I., Álvarez-Xochihua, O., Gonzalez-Fraga, J. A., Martinez-Martinez, E., & Manjarrez, P. P. (2021) · Journal of Language Teaching and Research · doi:10.17507/jltr.1206.01
EFMI Working and Project Groups - Overview and Current Activities
Hörbst, A., Moen, A., & Weber, P. (2014) · Yearbook of Medical Informatics · doi:10.1055/s-0038-1639012
Kilintzis, V., & Beredimas, N. (2022) · Elsevier eBooks · doi:10.1016/b978-0-12-823447-1.00009-9
Yu, Y., Guo, W., Chen, Y., Zhang, Y., Zhuo, L., Meng, R., Chen, Y., Shi, H., Lin, Z., Zhan, S., et al. (2022) · doi:10.2196/preprints.41181
Wiley, K., Blackburn, J. L., Mendonça, E. A., Menachemi, N., de Groot, M., & Vest, J. R. (2023) · Journal of Diabetes & Metabolic Disorders · doi:10.1007/s40200-023-01250-0
Explore Data Quality Challenges Based on Data Structure of Electronic Health Records
Liu, C., Peng, G., Lan, C., & Kong, S. (2023) · Lecture notes in computer science · doi:10.1007/978-3-031-35132-7_17
Exploring Incompleteness in Case-Based Reasoning: A Strategy for Overcoming Challenge
Boulmaiz, F., Reignier, P., & Ploix, S. (2023) · Lecture notes in computer science · doi:10.1007/978-981-99-5834-4_2
Farhadi, N., Yousefzade, F., Rahimi, A., & Ghasisin, L. (2024) · Archives of Neuroscience · doi:10.5812/ans-144421
Self-citationData Collection Module for a Centralized Electronic Health Records System
Adoghe, O. B., Ikharo, B. A., Amhenrior, H. E., Abiodun, J., & B. Chukwu, E. (2024) · Journal Of Engineering Research Innovation And Scientific Development · doi:10.61448/jerisd21242
Building a Foundation for High-Quality Health Data: A Multi-Hospital Study in Belgium (Preprint)Preprint
Declerck, J., Vandenberk, B., Deschepper, M., Colpaert, K. E., Cool, L., Goemaere, J., Bové, M., Staelens, F., Meester, K. D., Verbeke, E., et al. (2024) · doi:10.2196/preprints.60244
Improving the quality of newborn feeding documentation in an EHR using a mixed methods approach
Sheehan, O. M., Greene, R. A., Corcoran, P. E., McKernan, J., & Murphy, B. (2024) · Journal of Neonatal Nursing · doi:10.1016/j.jnn.2024.07.025
Feedback-Driven Report Optimization in Investment Platforms
Durgam, S. (2025) · International journal of IoT · doi:10.55640/ijiot-05-01-09
Combined Quality Management and Preventive Care in Cesarean Sections: Effects on Maternal Infection
Zhu, H., & Ma, X. (2025) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s537570
Methodologies for quality measurement, monitoring, and evaluation
Liaw, S. (2025) · Elsevier eBooks · doi:10.1016/b978-0-323-95260-6.00006-x
Self-citationLiaw, S. (2025) · Elsevier eBooks · doi:10.1016/b978-0-323-95260-6.09999-8
Self-citationScientometric review of health data quality (focusing on disease management)
Shirshahi, S., Rahimi, A., Beigi-Harchegani, H., Jangi, M., & Rezayatmand, R. (2025) · Digital Health · doi:10.1177/20552076251377953 · Cited by 1
Self-citationOntology Driven Model for an Engineered Agile Healthcare System
Ramadoss, B. (2014) · Digital Commons - University of South Florida (University of South Florida)
Personalized Interventions Through Machine Learning in the Healthcare Industry
Bhatia, S., Gautam, D., Goel, A. K., & Kumar, S. (2026) · Advanced technologies and societal change · doi:10.1007/978-981-95-0800-6_7
Declerck, J., Deschepper, M., Colpaert, K., Kalra, D., & Coorevits, P. L. (2026) · Journal of Medical Internet Research · doi:10.2196/90246
Safavi‐Abbasi, S., Venezia, E., Tasker, R., Reyes, P. M., & Dibaj, P. (2026) · Research Square · doi:10.21203/rs.3.rs-10585613/v1
Metadata
- Authors
- Liaw, S. T., Rahimi, A., Ray, P., Taggart, J., Dennis, S., de Lusignan, S., Jalaludin, B., Yeo, A. E. T., & Talaei-Khoei, A.
- Affiliations
- UNSW Sydney (AU)
- Isfahan University of Medical Sciences (IR)
- University of Surrey (GB)
- Ingham Institute (AU)
- Corresponding author
- Liaw, S.T.
- Venue
- International Journal of Medical Informatics
- Publisher
- Elsevier BV
- Published
- 2013-01
- Volume
- 82
- Issue
- 1
- Pages
- 10-24
- ISSN
- 1386-5056 (ISSN-L)
- OpenAlex
- W2031500001
- Cited by
- 170
- References
- 128
- Citations by year
- 2026: 4 · 2025: 11 · 2024: 17 · 2023: 15 · 2022: 8 · 2021: 9 · 2020: 12 · 2019: 17 · 2018: 11 · 2017: 16 · 2016: 14 · 2015: 16 · 2014: 13 · 2013: 7
- FWCI
- 1.94
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Medical Informatics (publishedVersion)
- PubMed (publishedVersion)
- Surrey Research Insight Open Access (The University of Surrey) (submittedVersion)
- UTS ePRESS (University of Technology Sydney) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Physical Sciences › Computer Science › Information Systems › Data Quality and Management
- Keywords
- data quality, ontology (information science), chronic disease management, semantic interoperability, administrative data, population health, health information systems, data quality dimensions, decision support, health outcome measurement
- MeSH terms
- Chronic Disease, Data Collection, Humans, Medical Record Linkage, Research Design, Information Management, Disease Management
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review