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Towards an ontology for data quality in integrated chronic disease management: A realist review of the literature
Abstract
Purpose Effective use of routine data to support integrated chronic disease management (CDM) and population health is dependent on underlying data quality (DQ) and, for cross system use of data, semantic interoperability. An ontological approach to DQ is a potential solution but research in this area is limited and fragmented. Objective Identify mechanisms, including ontologies, to manage DQ in integrated CDM and whether improved DQ will better measure health outcomes. Methods A realist review of English language studies (January 2001-March 2011) which addressed data quality, used ontology-based approaches and is relevant to CDM. Results We screened 245 papers, excluded 26 duplicates, 135 on abstract review and 31 on full-text review; leaving 61 papers for critical appraisal. Of the 33 papers that examined ontologies in chronic disease management, 13 defined data quality and 15 used ontologies for DQ. Most saw DQ as a multidimensional construct, the most used dimensions being completeness, accuracy, correctness, consistency and timeliness. The majority of studies reported tool design and development (80%), implementation (23%), and descriptive evaluations (15%). Ontological approaches were used to address semantic interoperability, decision support, flexibility of information management and integration/linkage, and complexity of information models. Conclusion DQ lacks a consensus conceptual framework and definition. DQ and ontological research is relatively immature with litt…
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“The current DQ literature is inconsistent in the use of terms that describe the complex multidimensional aspects of DQ.42–51”
From A harmonized data quality assessment terminology and framework for the secondary use of electronic health record data (2016) · cites this paper as [46]
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Kahn, M. G., Callahan, T. J., Barnard, J., Bauck, A. E., Brown, J., Davidson, B. N., Estiri, H., Goerg, C., Holve, E., Johnson, S. G., et al. (2016) · eGEMs (Generating Evidence & Methods to improve patient outcomes) · doi:10.13063/2327-9214.1244 · Cited by 697
Self-citationSemantic Web in data mining and knowledge discovery: A comprehensive survey
Ristoski, P., & Paulheim, H. (2016) · Journal of Web Semantics · doi:10.1016/j.websem.2016.01.001 · Cited by 314
A Survey on Data Quality: Classifying Poor Data
Laranjeiro, N., Soydemir, S. N., & Bernardino, J. (2015) · IEEE Pacific Rim International Symposium on Dependable Computing (PRDC) · doi:10.1109/prdc.2015.41 · Cited by 179
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Feder, S. L. (2017) · Western Journal of Nursing Research · doi:10.1177/0193945916689084 · Cited by 154
Transparent Reporting of Data Quality in Distributed Data Networks
Kahn, M. G., Brown, J. S., Chun, A. T., Davidson, B. N., Meeker, D., Ryan, P. B., Schilling, L. M., Weiskopf, N. G., Williams, A. E., & Zozus, M. N. (2015) · eGEMs (Generating Evidence & Methods to improve patient outcomes) · doi:10.13063/2327-9214.1052 · Cited by 140
Metadata
- Authors
- Liaw, S. T., Rahimi, A., Ray, P., Taggart, J., Dennis, S., de Lusignan, S., Jalaludin, B., Yeo, A. E. T., & Talaei-Khoei, A.
- Affiliations
- UNSW Sydney (AU)
- Isfahan University of Medical Sciences (IR)
- University of Surrey (GB)
- Ingham Institute (AU)
- Corresponding author
- Liaw, S.T.
- Venue
- International Journal of Medical Informatics
- Publisher
- Elsevier BV
- Published
- 2013-01
- Volume
- 82
- Issue
- 1
- Pages
- 10-24
- ISSN
- 1386-5056 (ISSN-L)
- OpenAlex
- W2031500001
- Cited by
- 170
- References
- 128
- Citations by year
- 2026: 4 · 2025: 11 · 2024: 17 · 2023: 15 · 2022: 8 · 2021: 9 · 2020: 12 · 2019: 17 · 2018: 11 · 2017: 16 · 2016: 14 · 2015: 16 · 2014: 13 · 2013: 7
- FWCI
- 1.94
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Medical Informatics (publishedVersion)
- PubMed (publishedVersion)
- Surrey Research Insight Open Access (The University of Surrey) (submittedVersion)
- UTS ePRESS (University of Technology Sydney) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Physical Sciences › Computer Science › Information Systems › Data Quality and Management
- Keywords
- data quality, ontology (information science), chronic disease management, semantic interoperability, administrative data, population health, health information systems, data quality dimensions, decision support, health outcome measurement
- MeSH terms
- Chronic Disease, Data Collection, Humans, Medical Record Linkage, Research Design, Information Management, Disease Management
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
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