Supporting parents of children with chronic conditions: a randomized controlled trial of web-based and self-help ACT interventions
Open accessAbstract
Many parents of children with chronic conditions and developmental disabilities experience high rates of burnout and psychological distress. The aim of the current study was to examine the effects of two differently delivered interventions based on acceptance and commitment therapy (ACT) on symptoms of burnout, depression, quality of life, psychological flexibility, and mindfulness skills. A total of 110 parents of children aged 0.8 to 17 years with chronic conditions and developmental disabilities participated in a randomized controlled trial lasting 13 weeks with two intervention groups: (1) an iACT intervention, including three psychologist-led video conferencing sessions, and (2) a self-help ACT, which received self-help material: an ACT-based booklet with the possibility of using ACT-based online exercises. For the main outcome measure burnout, a similar decrease was found in both groups. The supported iACT intervention produced significantly larger improvements in depressive symptoms (d = 0.49), psychological flexibility (d = 0.64), and mindfulness (d = 0.55) compared to the self-help ACT intervention. For health-related quality of life, only the dimension of role limitations caused by emotional problems showed a significant difference in favor of the supported iACT (d = 0.58). The results suggest that the iACT intervention including three video conferencing sessions with a psychologist produced broader improvements in parents' psychological well-being than the self-help ACT. Overall, Internet-delivered interventions and video conferencing technology may offer a feasible alternative to psychological support and self-care for parents of children with chronic conditions. Further research is needed to investigate the long-term effects of the current delivery models.
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Compared to conventional psychotherapy, guided self-help ACT approaches were cheaper and easily accessible and offered a feasible alternative to resource-constrained psychotherapeutic interventions.
“Compared to conventional psychotherapy, the guided self-help ACT approaches were cheaper and easily accessible and offered a feasible alternative to resource-constrained psychotherapeutic interventions (19, 20).”
From Translation, adaptation, and initial evaluation of a guided self-help intervention to reduce psychological distress among nurses during COVID-19 in China (2023) · cites this paper as [20]
The Conclusions and future directions section (page not provided) describes self-help ACT as a feasible option that uses fewer resources than the psychologist-supported intervention, and says digital interventions may be readily accessible. It does not establish that guided self-help ACT is cheaper than conventional psychotherapy; its resource comparison is between the study’s unsupported self-help and supported ACT interventions. (LLM, conf=0.86)
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Lebensqualität und Resilienz bei Eltern von Kindern mit angeborenen Behinderungen stärken
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- Authors
- Lappalainen, P., Pakkala, I., Strömmer, J., Sairanen, E., Kaipainen, K., & Lappalainen, R.
- Affiliations
- University of Jyväskylä (FI)
- Karlstad University (SE)
- Tampere University (FI)
- Corresponding author
- Lappalainen, Päivi
- Venue
- Internet Interventions
- Publisher
- Elsevier BV
- Published
- 2021-04
- Volume
- 24
- Pages
- 100382
- ISSN
- 2214-7829 (ISSN-L)
- PMC
- PMC8010620
- OpenAlex
- W3137804491
- Cited by
- 51
- References
- 65
- Citations by year
- 2026: 11 · 2025: 14 · 2024: 11 · 2023: 11 · 2022: 4
- FWCI
- 4.43
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Internet Interventions (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Jyväskylä University Digital Archive (University of Jyväskylä) (submittedVersion, cc-by-nc-nd)
- Diva portal (Dalarna University Library) (submittedVersion, other-oa)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Tampere University Institutional Repository (Tampere University) (submittedVersion, cc-by-nc-nd)
- Funders
- The Social Insurance Institution of Finland
- Topics
- Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- acceptance and commitment therapy, parental burnout, developmental disabilities, online intervention, videoconferencing, self-help intervention, depression, psychological flexibility, mindfulness, health-related quality of life, psychological distress
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