Experiences and needs of caregivers of persons with dementia in India during the COVID-19 pandemic—a qualitative study
Open accessAbstract
Objective To describe the experiences and needs of caregivers of persons with dementia during the COVID-19 pandemic and lockdown in a city in India.Design Qualitative study using a telephonic semistructured interview.Setting A specialist geriatric outpatient mental health service based in a nongovernmental organization in Chennai, India.Participants A purposive sampling of family members of persons with dementia registered in the database and seen within the previous 6 months.Results Thirty-one caregivers participated. Thematic analysis of the data showed two sets of issues that the caregivers of persons with dementia faced in their experiences during the pandemic. The first set was unique to the caregivers that directly related to their caregiving role, while the second set did not relate directly to their caregiving role. These two sets also appeared to have a two-way interaction influencing each other. These issues generated needs, some of which required immediate support while others required longer-term support. The caregivers suggested several methods, such as use of video-consultations, telephone-based support and clinic-based in-person visits to meet their needs. They also wanted more services postpandemic.Conclusion Caregivers of persons with dementia had multiple needs during the pandemic. Supporting them during these times require a pragmatic multilayered approach. Systemic changes, policies and frameworks, increased awareness, use of technology, and better access to health are necessary.
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Planning and response to public health emergencies often do not directly address mental health, particularly for vulnerable groups such as older adults and people with dementia.
“However, planning and response to public health emergencies (i.e., COVID-19 outbreak) often do not directly address mental health, in particular for vulnerable groups such as older adults and PwD (Vaitheswaran et al., 2020).”
From Robotic Telemedicine for Mental Health: A Multimodal Approach to Improve Human-Robot Engagement (2021) · cites this paper as Vaitheswaran et al., 2020
A recent study conducted with caregivers in South India highlights a clear need for more services and support of people with dementia and caregivers for the post-pandemic, including stronger adoption of technology.
“A recent study conducted with caregivers in South India (Vaitheswaran et al., 2020) highlights a clear need for more services and support of PwD and caregivers for the post-pandemic, including stronger adoption of technology.”
From Robotic Telemedicine for Mental Health: A Multimodal Approach to Improve Human-Robot Engagement (2021) · cites this paper as Vaitheswaran et al., 2020
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- Authors
- Vaitheswaran, S., Lakshminarayanan, M., Ramanujam, V., Sargunan, S., & Venkatesan, S.
- Affiliations
- Schizophrenia Research Foundation (IN)
- Corresponding author
- Vaitheswaran, Sridhar
- Venue
- The American Journal of Geriatric Psychiatry
- Publisher
- Elsevier BV
- Published
- 2020-11
- Volume
- 28
- Issue
- 11
- Pages
- 1185-1194
- ISSN
- 1064-7481 (ISSN-L)
- PMC
- PMC7340037
- OpenAlex
- W3041577321
- Cited by
- 143
- References
- 19
- Citations by year
- 2026: 3 · 2025: 9 · 2024: 14 · 2023: 19 · 2022: 46 · 2021: 44 · 2020: 8
- FWCI
- 21.30
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- American Journal of Geriatric Psychiatry (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia caregivers, caregiver needs, COVID-19 pandemic, lockdown, caregiver experiences, family caregivers, caregiver support, telemedicine, video consultation, telephone support, geriatric mental health services, India
- MeSH terms
- Psychosocial Support Systems, Betacoronavirus, COVID-19, SARS-CoV-2, Aged, Dementia, Female, Home Care Services, Humans, India, Male, Mental Health, Pneumonia, Viral, Quality of Life, Caregivers, Telemedicine, Coronavirus Infections, Needs Assessment, Videoconferencing, Independent Living, Pandemics
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