Closer caregiver and care‐recipient relationships predict lower informal costs of dementia care: The Cache County Dementia Progression Study
Open accessAbstract
Introduction: Identifying factors associated with lower dementia care costs is essential. We examined whether two caregiver factors were associated with lower costs of informal care. Methods: A total of 271 care dyads of the Cache County Dementia Study were included. Estimates of informal costs were based on caregiver reports of time spent in care‐related activities and inflation‐adjusted 2012 Utah median hourly wages. Caregiver coping and emotional closeness with the care‐recipient were assessed using the Ways of Coping Checklist–Revised and Relationship Closeness Scale, respectively. Results: Higher closeness was associated with 24% lower costs (expβ = 0.763 [95% confidence interval: 0.583–0.999]) in linear mixed models controlling for demographics and baseline dementia severity and duration. Problem‐focused coping was not associated with informal costs (P = .354). Discussion: Caregiver closeness, a potentially modifiable factor, predicted lower dementia informal care costs over time. Future studies examining the care environment in closer dyads may identify specific care‐related behaviors or strategies that are associated with lower costs.
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A longitudinal study found that the overall value of daily family care increased 18% with each additional year of providing care, and increased further as the care recipient's cognitive abilities declined.
“A longitudinal study of the monetary value of family caregiving for people with dementia found that the overall value of daily family care increased 18% with each additional year of providing care, and that the value of this care further increased as the care recipient's cognitive abilities declined.”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [456]
The Results (§3.1; page unavailable) report that daily informal-care costs rose approximately 14% per year in the adjusted model, not 18% per additional year of providing care. They also associate greater dementia severity at baseline with higher costs, while the Introduction (§1; page unavailable) reports a previous study linking longitudinal cost increases to severity measured partly by cognition. This does not establish that costs in this study increased specifically as each recipient’s cognitive abilities declined. (LLM, conf=0.90)
Experimental — accuracy not yet measuredFamily care costs are reduced by up to 24% when caregivers report emotional closeness to the person with dementia.
“In contrast, family care costs are reduced up to 24% in situations where caregivers indicated they were emotionally close to the person with dementia.455,456”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [456]
Family care costs are reduced up to 24% in situations where caregivers indicated they were emotionally close to the person with dementia.
“In contrast, family care costs are reduced up to 24% in situations where caregivers indicated they were emotionally close to the person with dementia. 496”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [496]
Well over half (57%) of family caregivers of people with Alzheimer's or other dementias living in the community had provided care for four or more years.
“According to another study, well over half (57%) of family caregivers of people with Alzheimer's or other dementias living in the community had provided care for four or more years.”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [456]
The Methods describe follow-up of people with dementia and their caregivers in non-institutional settings, but do not report how long caregivers had provided care before or during the study. The Results describe caregiver characteristics without a 57% figure for four or more years of caregiving; searches for that percentage and duration found no supporting passage. (LLM, conf=0.75)
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- Authors
- Rattinger, G. B., Fauth, E. B., Behrens, S., Sanders, C., Schwartz, S., Norton, M. C., Corcoran, C., Mullins, C. D., Lyketsos, C. G., & Tschanz, J. T.
- Affiliations
- Binghamton University (US)
- Utah State University (US)
- University of Maryland, Baltimore (US)
- Johns Hopkins University (US)
- Corresponding author
- Tschanz, JoAnn T.
- ORCID
- Venue
- Alzheimer's & Dementia
- Publisher
- Wiley
- Published
- 2016-04-18
- Volume
- 12
- Issue
- 8
- Pages
- 917-924
- ISSN
- 1552-5260 (ISSN-L)
- 1552-5279
- PMC
- PMC5279952
- OpenAlex
- W2336901567
- Cited by
- 39
- References
- 38
- Citations by year
- 2025: 1 · 2024: 2 · 2023: 7 · 2022: 2 · 2021: 7 · 2020: 5 · 2019: 7 · 2018: 5 · 2017: 3
- FWCI
- 4.44
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Alzheimer s & Dementia (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- NIH (R01AG21136, R01AG11380, P50AG005146)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Keywords
- dementia care costs, informal care
- MeSH terms
- Aged, Aged, 80 and over, Dementia, Female, Humans, Longitudinal Studies, Male, United States, Caregivers, Cost of Illness, Disease Progression
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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