Perceptions of barriers and facilitators: Self-management decisions by older adolescents and adults with CF
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Background Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF.Methods Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes.Results Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%).Conclusions Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.
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Although forgetting is often understood to be 'unintentional' non-adherence, it may be given as a reason to justify 'intentional' non-adherence (Arden 2019; Drabble 2019; George 2010), in a more socially acceptable way (Drabble 2019).
“Although forgetting is o en understood to be 'unintentional' non-adherence, it may be given as a reason to justify 'intentional' non-adherence (Arden 2019;Drabble 2019;George 2010), in a more socially acceptable way (Drabble 2019).”
From Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis (2023) · cites this paper as George 2010
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Experimental — accuracy not yet measuredPrevious studies have commonly reported reasons for non-adherence including being too busy, forgetting, and treatment burden.
“Previous studies have attempted to understand the factors influencing adherence to treatments in people with CF, and commonly reported reasons include being too busy or not having the time to take treatments, forgetting to take a treatment, and the level of treatment burden (Bregnballe 2011;Dziuban 2010;George 2010;Modi 2006a;Sawicki 2015).”
From Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis (2023) · cites this paper as George 2010
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- Authors
- George, M., Rand-Giovannetti, D., Eakin, M. N., Borrelli, B., Zettler, M., & Riekert, K. A.
- Affiliations
- University of Pennsylvania (US)
- Johns Hopkins University (US)
- Brown University (US)
- Kennedy Krieger Institute (US)
- Corresponding author
- Riekert, Kristin A.
- Venue
- Journal of Cystic Fibrosis
- Publisher
- Elsevier BV
- Published
- 2010-12
- Volume
- 9
- Issue
- 6
- Pages
- 425-432
- ISSN
- 1569-1993 (ISSN-L)
- PMC
- PMC3049301
- OpenAlex
- W2148919233
- Cited by
- 118
- References
- 18
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 5 · 2023: 8 · 2022: 3 · 2021: 4 · 2020: 11 · 2019: 14 · 2018: 7 · 2017: 17 · 2016: 7 · 2015: 7 · 2014: 18 · 2013: 5 · 2012: 5
- FWCI
- 3.50
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Cystic Fibrosis (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Research Explorer (The University of Manchester) (submittedVersion)
- Funders
- National Heart Lung Blood Institute (HL87997)
- Topics
- Health Sciences › Medicine › Family Practice › Medication Adherence and Compliance
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Keywords
- self-management, medication adherence, barriers and facilitators, older adolescents, adults, treatment burden, social support
- MeSH terms
- Adolescent, Psychology, Adolescent, Adult, Attitude to Health, Cystic Fibrosis, Feedback, Female, Humans, Interviews as Topic, Male, Patient Compliance, Perception, Quality of Life, Self Care, Social Support, Cost of Illness, Young Adult
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