Barriers to Treatment Adherence for Children with Cystic Fibrosis and Asthma: What Gets in the Way?
Abstract
OBJECTIVES: The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. METHODS: Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males. RESULTS: Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence. CONCLUSION: Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.
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Adherence has a significant effect on treatment outcomes and a major impact in managing chronic conditions such as hypertension, cardiovascular disease, and diabetes.
“Adherence has been shown to have a significant effect on treatment outcomes [3,4] and has a major impact in managing chronic conditions such as hypertension, cardiovascular disease, and diabetes.”
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- Authors
- Modi, A. C., & Quittner, A. L.
- Affiliations
- Cincinnati Children's Hospital Medical Center (US)
- Corresponding author
- Modi, Avani C.
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 2006-01-09
- Volume
- 31
- Issue
- 8
- Pages
- 846-858
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- OpenAlex
- W2107189796
- Cited by
- 301
- References
- 41
- Citations by year
- 2026: 2 · 2025: 9 · 2024: 7 · 2023: 11 · 2022: 13 · 2021: 7 · 2020: 19 · 2019: 21 · 2018: 13 · 2017: 15 · 2016: 14 · 2015: 16 · 2014: 22 · 2013: 19 · 2012: 21
- FWCI
- 9.67
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health
- Agency for Healthcare Research and Quality (F31 HS011768)
- U.S. Public Health Service (F31-H511768-01)
- National Heart, Lung, and Blood Institute (R01HL069736, HL69736)
- Topics
- Health Sciences › Medicine › Family Practice › Medication Adherence and Compliance
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Keywords
- medication adherence, barriers to medication adherence, cystic fibrosis, asthma, children, parental attitudes, children's perspectives, forgetting medication, oppositional behavior, time management
- MeSH terms
- Adolescent, Asthma, Child, Communication, Cystic Fibrosis, Female, Humans, Male, Surveys and Questionnaires, Health Behavior, Treatment Refusal
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