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Cited by 15Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

One call makes a difference: An evaluation of the Alzheimer’s Association National Helpline on dementia caregiver outcomes

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Hodgson, Nancy A., Petrovsky, Darina V., Finegan, Kerry, Kallmyer, Beth A., Pike, Joanne, Fazio, Sam·2021·Patient Education and Counseling
DOI 10.1016/j.pec.2020.09.026PMC PMC10001241
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Abstract

Objective The study evaluated the effects of care consultation delivered through the Alzheimer's Association National Helpline - a free resource in which master's-level clinicians offer confidential support. The study compared the effectiveness of Helpline "Care Consultation" and "Care Consultation Plus" conditions on caller outcomes.Methods Four hundred and forty-five non-crisis callers were randomly assigned to the traditional Helpline "Care Consultation" or a "Care Consultation Plus" condition that included one additional booster call.Results While no differences were found between the two conditions, the study found that callers reported significantly improved caregiver mental health scores (27 % net improvement over baseline) and ability to manage emotions (29 % net improvement) at one week (p = .006). By one week, 70 % of callers had put action steps in place and by 1 month 80 % of callers had put action steps into place. Over 80 % of callers reported action steps were "helpful".Conclusion A single call provided a measurable benefit to caregivers'mental health, ability to manage emotions and ability to engage in action planning and accessing resources.Practice implications This pilot study demonstrated that the support provided via the Helpline can be effective at improving caregiver mental health and improving the ability of callers to "take action".

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  • When dementia caregiver interventions are implemented, they are generally successful at improving how caregiver services are delivered and have the potential to reach many families while helping caregivers cope with their responsibilities.

    “When interventions are implemented, they are generally successful at improving how caregiver services are delivered and have the potential to reach a large number of families while also helping caregivers cope with their responsibilities (this includes the Alzheimer's Association 24/7 Helpline).[560][561][562]”

    From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [561]

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Research works printed but not linked: 1

  1. [1]Schulz R, & Eden J (Eds.). (2016). Families caring for an aging America Washington, DC: National Academies Press. 27905704

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Authors
Hodgson, N. A., Petrovsky, D. V., Finegan, K., Kallmyer, B. A., Pike, J., & Fazio, S.
Affiliations
  • University of Pennsylvania (US)
  • Alzheimer's Association (US)
Corresponding author
Hodgson, Nancy A.
ORCID
Venue
Patient Education and Counseling
Publisher
Elsevier BV
Published
2021-04
Volume
104
Issue
4
Pages
896-902
ISSN
0738-3991 (ISSN-L)
DOI
10.1016/j.pec.2020.09.026
PMC
PMC10001241
OpenAlex
W3088362761
Cited by
15
References
10
Citations by year
2026: 4 · 2025: 3 · 2024: 4 · 2023: 3 · 2022: 1
FWCI
0.73
Type
journal article
Language
en
Open access
Licence
Locations
  • Patient Education and Counseling (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
Funders
Alzheimer’s Association and National Institutes of Health (F32AG060630)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
dementia caregiving, caregiver mental health, emotional management, action planning, caregiver support services, access to resources
MeSH terms
Alzheimer Disease, Humans, Pilot Projects, Referral and Consultation, Hotlines, Caregivers

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