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Cited by 15Childhood Cancer Survivors' Quality of LifePatient-Provider Communication in HealthcareFamily Support in Illness

Helping adolescents and young adults (AYA) with cancer manage identity distress: Enhancing clinician-AYA patient communication to promote identity development

Bagautdinova, Diliara, Bylund, Carma L., Forthun, Larry F., Miller, Carrie A., Hamel, Lauren M., Fisher, Carla L.·2024·Patient Education and Counseling
DOI 10.1016/j.pec.2024.108372
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Abstract

Objective A cancer diagnosis during adolescence and young adulthood (AYA) disrupts AYAs' identity formation, a critical task for healthy development, and contributes to psychological distress called identity distress. Clinical communication is central to promoting AYAs' healthy identity development. We sought to identify aspects of clinician-diagnosed AYA communication that can promote AYAs' identity development and potentially buffer them from distress. Methods In-depth, semi-structured interviews were conducted with two groups (AYA oncology clinicians and diagnosed AYAs). Transcripts were thematically analyzed to capture communication that clinicians and AYAs perceive promotes AYAs' identity development and buffers related distress. Results Fourteen diagnosed AYAs and 7 clinicians identified three clinician- or AYA-led communication approaches and associated strategies that they perceive can buffer identity distress and promote identity development: 1) clinicians' using person-centered communication (e.g., empathic communication); 2) promoting AYAs' control/self-management of care (e.g., not dictating AYAs' behavior); and 3) prioritizing/seeing the person behind the patient (e.g., knowing the AYA as a person). Conclusion/practice implications Both AYA oncology clinicians and diagnosed AYAs can communicate in ways that protect AYAs' identity development and related psychological well-being. Findings can be implemented into targeted communication skills interventions to teach…

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Authors
Bagautdinova, D., Bylund, C. L., Forthun, L. F., Miller, C. A., Hamel, L. M., & Fisher, C. L.
Affiliations
  • University of Florida (US)
  • University of Florida Health (US)
  • Wayne State University (US)
Corresponding author
Bagautdinova, Diliara
ORCID
Venue
Patient Education and Counseling
Publisher
Elsevier BV
Published
2024-11
Volume
128
Pages
108372
ISSN
0738-3991 (ISSN-L)
DOI
10.1016/j.pec.2024.108372
OpenAlex
W4400402177
Cited by
14
References
68
Citations by year
2026: 9 · 2025: 2 · 2024: 3
FWCI
9.50
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Patient Education and Counseling (publishedVersion)
  • PubMed (publishedVersion)
Funders
  • National Institutes of Health
  • National Cancer Institute
  • Cancer Center, University of Florida Health
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
  • Social Sciences › Sociology and Political Science › Family Support in Illness
Keywords
adolescent and young adult cancer, identity distress, identity construction, clinician-patient communication, person-centred communication, empathic communication, psychological well-being, psycho-oncology, communication skills intervention
MeSH terms
Psychological Distress, Adolescent, Adult, Communication, Female, Humans, Interviews as Topic, Male, Neoplasms, Physician-Patient Relations, Self Concept, Stress, Psychological, Qualitative Research, Young Adult

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