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The Health and Recovery Peer (HARP) Program: A peer-led intervention to improve medical self-management for persons with serious mental illness
Open accessAbstract
Objectives Persons with serious mental illnesses (SMI) have elevated rates of comorbid medical conditions, but may also face challenges in effectively managing those conditions.Methods The study team developed and pilot-tested the Health and Recovery Program (HARP), an adaptation of the Chronic Disease Self-Management Program (CDSMP) for mental health consumers. A manualized, six-session intervention, delivered by mental health peer leaders, helps participants become more effective managers of their chronic illnesses. A pilot trial randomized 80 consumers with one or more chronic medical illness to either the HARP program or usual care.Results At six month follow-up, participants in the HARP program had a significantly greater improvement in patient activation than those in usual care (7.7% relative improvement vs. 5.7% decline, p=0.03 for group *time interaction), and in rates of having one or more primary care visit (68.4% vs. 51.9% with one or more visit, p=0.046 for group *time interaction). Intervention advantages were observed for physical health related quality of life (HRQOL), physical activity, medication adherence, and, and though not statistically significant, had similar effect sizes as those seen for the CDSMP in general medical populations. Improvements in HRQOL were largest among medically and socially vulnerable subpopulations.Conclusions This peer-led, medical self-management program was feasible and showed promise for improving a range of health outcomes among mental health consumers with chronic medical comorbidities. The HARP intervention may provide a vehicle for the mental health peer workforce to actively engage in efforts to reduce morbidity and mortality among mental health consumers.
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“One U.S. study had explored the impact of care coordination in patients with severe mental illness, using a composite cardiovascular risk score, finding a significant effect 41 .”
From The CHANGE trial: no superiority of lifestyle coaching plus care coordination plus treatment as usual compared to treatment as usual alone in reducing risk of cardiovascular disease in adults with schizophrenia spectrum disorders and abdominal obesity (2016) · cites this paper as [41]
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Self-citationActivation, Self-management, Engagement, and Retention in Behavioral Health Care
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“Beneficial, holistic, and self-care directed health and wellness programs can and should be incorporated into the integration of mental health and primary health care services (Druss et al., 2010; Van Citters et al., 2009), supported either directly within the ACT structure and managed by nursing or through ancillary…”
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“Seven randomized trials reported on manualized, multisession educational programs emphasizing skill development needed to manage CCCs using a variety of educational components and CDSM goals [23–28,32].”
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“, physical health-related quality of life, medication adherence) and the utilisation of healthcare services by these patients (50, 51).”
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“…health conditions who share their own experiences and coping strategies to support others, is an effective strategy for managing chronic conditions [11-13], and recent research indicates its potential for promoting weight loss in the general population [14-16] Many of the core principles of peer…”
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“…peer health coaches have been shown to be effective in improving diabetes (Moskowitz, Thom, Hessler, Ghorob, & Bodenheimer, 2013; Thom et al., 2013) and other health outcomes (Druss et al., 2010), and could prove useful in this population where peer mentors and support are particularly valued.”
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“A pilot study found that the program was feasible and acceptable to implement; however, that studywas not designed to assess the program’s impact on distal clinical outcomes (23).”
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“A six-session chronic disease selfmanagement program adapted for mental illness, which included participants with schizophrenia, affective disorders, and PTSD, was associated with improvements in overall patient activation 6 months later (Druss et al., 2010).”
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“Further, health and lifestyle intervention studies are limited by small samples sizes and high attrition rates, with participation rates as low as 43%, which are inadequately powered to assess statistical significance [19-21].”
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“Peer specialists can expose clients to positive and credible role models who can tap into their own experiences to provide instrumental, informational, and emotional support; help translate the health intervention into clients’ daily activities on ecological and cultural terms; and become credible “coaches” [48, 49].”
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“Moreover, it may have a positive impact upon coping resources, especially when targeting disadvantaged groups with low health literacy who have the most to gain from efforts to improve their selfmanagement skills [6, 44].”
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The physical health of the seriously mentally ill: an overview of the literature
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Lara‐Cabrera, M. L., Salvesen, Ø. O., Nesset, M. B., Cuevas, C. D. L., Iversen, V. C., & Gråwe, R. W. (2015) · Patient Education and Counseling · doi:10.1016/j.pec.2015.11.028 · Cited by 48
“These three US studies investigated the effect of peer-led education by using two different models: two [13,14] employed the Stanford Chronic Disease Self-Management peer-led group programme, which consisted of peer-led patient education and guided mastery of skills through weekly action planning [9], and one [12] app…”
BackgroundMethodResultInfluentialO’Hara, K., Stefančić, A., & Cabassa, L. J. (2017) · Translational Behavioral Medicine · doi:10.1007/s13142-016-0457-x · Cited by 46
“Healthy lifestyle interventions represent one of the many approaches (including healthcare manager programs, peer navigators, and smoking cessation interventions) that are being used worldwide to improve the physical health of people with SMI [5, 28, 37].”
BackgroundSelf-management assessment in multiple chronic conditions: A narrative review of literature
Ko, D., Bratzke, L. C., & Roberts, T. J. (2018) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2018.04.009 · Cited by 50
McKibbin, C. L., Andren, K. A. K., Wykes, T. L., & Lee, A. A. (2013) · Community Mental Health Journal · doi:10.1007/s10597-013-9650-2 · Cited by 48
Vally, Z., & Abrahams, L. (2016) · International Journal for the Advancement of Counselling · doi:10.1007/s10447-016-9275-6 · Cited by 47
“concurrence with the present study, has tended to be small (e.g., Chinman et al. 2014; Druss et al. 2010; Kim and Free 2008).”
BackgroundResultInfluentialAschbrenner, K., Naslund, J., Barre, L., Mueser, K., Kinney, A., & Bartels, S. (2015) · Translational Behavioral Medicine · doi:10.1007/s13142-015-0313-4 · Cited by 47
Kern, R. S., Zárate, R., Glynn, S. M., Turner, L. R., Smith, K. M., Mitchell, S., Becker, D. R., Drake, R. E., Kopelowicz, A. J., Tovey, W., et al. (2013) · Psychiatric Rehabilitation Journal · doi:10.1037/h0094987 · Cited by 44
Smith, S. G., Pandit, A. U., Rush, S. R., Wolf, M. S., & Simon, C. (2014) · Health Expectations · doi:10.1111/hex.12316 · Cited by 44
Best, K. L., Miller, W. C., Eng, J. J., & Routhier, F. (2016) · International Journal of Behavioral Medicine · doi:10.1007/s12529-016-9540-4 · Cited by 49
A Narrative Synthesis of the Components of and Evidence for Patient- and Family-Centered Care
Gallo, K. P., Hill, L. C., Hoagwood, K., & Olin, S.-C. S. (2015) · Clinical Pediatrics · doi:10.1177/0009922815591883 · Cited by 44
Training to recognise the early signs of recurrence in schizophrenia
Morriss, R. K., Vinjamuri, I., Faizal, M. A., Bolton, C. A., & McCarthy, J. P. (2013) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd005147.pub2 · Cited by 42
Integration of Peer Specialists Working in Mental Health Service Settings
Kuhn, W., Bellinger, J. M., Manser, S. S., & Kaufman, L. (2015) · Community Mental Health Journal · doi:10.1007/s10597-015-9841-0 · Cited by 42
Cabassa, L. J., Humensky, J. L., Druss, B. G., Lewis‐Fernández, R., Gomes, A. P., Wang, S., & Blanco, C. (2013) · Medical Care · doi:10.1097/mlr.0b013e31828dbb19 · Cited by 45
Self-citationPanagioti, M., Richardson, G. A., Murray, E., Rogers, A. E., Kennedy, A. P., Newman, S. P., Small, N., & Bower, P. (2014) · Health Services and Delivery Research · doi:10.3310/hsdr02540 · Cited by 42
Contextual Factors in the Health of People With Serious Mental Illness
Cabassa, L. J., Siantz, E., Nicasio, A., Guarnaccia, P. J., & Lewis‐Fernández, R. (2014) · Qualitative Health Research · doi:10.1177/1049732314541681 · Cited by 41
Peers as Facilitators of Medication Adherence Interventions
Enriquez, M., & Conn, V. S. (2015) · Journal of Primary Care & Community Health · doi:10.1177/2150131915601794 · Cited by 40
“Other variables of interest included stress,(29) social support,(20,23) self-efficacy,(22,23) depression,(20,23) exercise/physical activity,(25,26) and quality of life.(26,30) Attrition and Attendance at Intervention Sessions Overall attrition (ie, dropout) rates were low and attendance at intervention sessions was hi…”
InfluentialHow well do patient activation scores predict depression outcomes one year later?
Sacks, R. M., Greene, J., Hibbard, J. H., & Overton, V. (2014) · Journal of Affective Disorders · doi:10.1016/j.jad.2014.07.030 · Cited by 43
“While depression and patient activation are correlated, there is evidence that it is possible to increase activation among depressed patients with chronic illnesses (Druss et al., 2010; Ludman et al., 2013).”
BackgroundPeer-delivered wellness recovery services: From evidence to widespread implementation.
Cook, J. Α. (2011) · Psychiatric Rehabilitation Journal · doi:10.2975/35.2.2011.87.89 · Cited by 40
Self-Management and Bipolar Disorder–A Clinician’s Guide to the Literature 2011-2014
Janney, C. A., Bauer, M. S., & Kilbourne, A. M. (2014) · Current Psychiatry Reports · doi:10.1007/s11920-014-0485-5 · Cited by 39
Ostrow, L. (2014) · Cited by 39
Enriquez, M., Cheng, A., Banderas, J., Farnan, R., Chertoff, K., Hayes, D., Ortego, G., Moreno, J., Peterson, J. A., & McKinsey, D. S. (2014) · Journal of the International Association of Providers of AIDS Care (JIAPAC) · doi:10.1177/2325957414558301 · Cited by 39
Kilbourne, A., Barbaresso, M. M., Lai, Z.-S., Nord, K. M., Bramlet, M., Goodrich, D. E., Post, E., Almirall, D., & Bauer, M. (2017) · Journal of Clinical Psychiatry · doi:10.4088/jcp.15m10301 · Cited by 37
Martínez‐Martínez, C., Richart‐Martínez, M., & Ramos‐Pichardo, J. D. (2020) · Journal of the American Psychiatric Nurses Association · doi:10.1177/1078390320902823 · Cited by 36
“In 15 studies, SMI was diagnosed solely on the basis of the diagnosed psychiatric disorder (Table 3), whereas Lehman et al. (1997), Druss et al. (2010), and Druss et al. (2011) used different criteria to diagnose SMI depending on the psychiatric diagnosis (Table 3).”
MethodBlueprint for development of the advanced practice psychiatric nurse workforce
Hanrahan, N. P., Delaney, K. R., & Stuart, G. W. (2011) · Nursing Outlook · doi:10.1016/j.outlook.2011.04.007 · Cited by 36
“Domain 1: Broadening the Concept of Workforce Goal 1 is to significantly expand the role of individuals in recovery and their families when appropriate; to participate in, ultimately direct, or accept responsibility for their own care; provide care and support to others; and educate the workforce Inclusiveness has lon…”
BackgroundInfluentialHibbard, J. H., Greene, J., Sacks, R. M., Overton, V., & Parrotta, C. (2016) · Health Affairs · doi:10.1377/hlthaff.2015.1031 · Cited by 35
Implementation of Peer Providers in Integrated Mental Health and Primary Care Settings
Siantz, E., Henwood, B. F., & Gilmer, T. (2016) · Journal of the Society for Social Work and Research · doi:10.1086/686644 · Cited by 35
Boardman, G., McCann, T., & Kerr, D. (2014) · Journal of Advanced Nursing · doi:10.1111/jan.12382 · Cited by 33
Shim, R. S., Druss, B. G., Zhang, S., Kim, G., Oderinde, A., Shoyinka, S. O., & Rust, G. S. (2014) · Schizophrenia Research · doi:10.1016/j.schres.2013.12.002 · Cited by 34
“Medical care management programs have been shown to improve overall health outcomes among individuals with schizophrenia and other serious mental illness (Ohlsen et al., 2005; Druss et al., 2010a).”
BackgroundSelf-citationTraining to Recognize the Early Signs of Recurrence in Schizophrenia
Morriss, R. K., Vinjamuri, I., Faizal, M. A., Bolton, C. A., & McCarthy, J. P. (2013) · Schizophrenia Bulletin · doi:10.1093/schbul/sbs191 · Cited by 35
Fortuna, K. L., Aschbrenner, K. A., Lohman, M. C., Brooks, J., Salzer, M. S., Walker, R., George, L. S., & Bartels, S. J. (2018) · Psychiatric Quarterly · doi:10.1007/s11126-018-9592-5 · Cited by 34
Clinical management of comorbid diabetes and psychotic disorders
Chwastiak, L., Freudenreich, O., Tek, C., McKibbin, C. L., Han, J., McCarron, R. M., & Wisse, B. E. (2015) · The Lancet Psychiatry · doi:10.1016/s2215-0366(15)00105-4 · Cited by 36
Mental health self-management questionnaire: Development and psychometric properties
Coulombe, S., Radziszewski, S., Trépanier, S., Provencher, H. L., Roberge, P., Hudon, C., Meunier, S., Provencher, M. D., & Houle, J. (2015) · Journal of Affective Disorders · doi:10.1016/j.jad.2015.04.007 · Cited by 35
Metadata
- Authors
- Druss, B. G., Zhao, L., von Esenwein, S. A., Bona, J. R., Fricks, L., Jenkins-Tucker, S., Sterling, E., DiClemente, R., & Lorig, K.
- Affiliations
- Emory University (US)
- Stanford University (US)
- Venue
- Schizophrenia Research
- Publisher
- Elsevier BV
- Published
- 2010-05
- Volume
- 118
- Issue
- 1-3
- Pages
- 264-270
- ISSN
- 0920-9964 (ISSN-L)
- PMC
- PMC2856811
- OpenAlex
- W2020969377
- Cited by
- 363
- References
- 49
- Citations by year
- 2026: 6 · 2025: 13 · 2024: 14 · 2023: 21 · 2022: 22 · 2021: 25 · 2020: 25 · 2019: 27 · 2018: 22 · 2017: 23 · 2016: 31 · 2015: 35 · 2014: 39 · 2013: 35 · 2012: 11
- FWCI
- 34.17
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Schizophrenia Research (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Mental Health (K24MH075867, R34MH078583)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
- Keywords
- peer-led intervention
- MeSH terms
- Adolescent, Adult, Mental Disorders, Chronic Disease, Female, Follow-Up Studies, Home Care Services, Humans, Male, Middle Aged, Outcome and Process Assessment, Health Care, Self Care, Self-Help Groups, Severity of Illness Index, Disease Management, Young Adult
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