Cited by 108Health, Medicine and SocietyMental Health and Patient InvolvementHealthcare, Law, Governance, and Management Studies

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Introduction: Patient organization movements and new metamorphoses in patienthood

Landzelius, Kyra·2006·Social Science & Medicine

DOI 10.1016/j.socscimed.2005.06.023

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Abstract

In this introduction, we examine health activism as one expression of an emergent 'politics of vitality' or flurry of activity around health matters that includes: advances in technoscientific medicine, healthcare restructurings, and a re-thinking of science-society contracts. In querying politicized mobilizations around 'health matters and the mattering of health,' we provocatively entitle our discussion 'patient organization movements'. This marks an invitation to interrogate (in reverse order) each term along the way, pausing in our concluding discussion to turn our attentions to the patient. The figure of the patient is thematized as an historical inscription and a formidable dimension of personhood under modernity/late modernity. Moreover, we argue that conventional categorizations of the patient are undergoing accelerated processes of change at the present time. We characterize three transformational trends: moves to author and authorize patienthood, mutiny from patienthood, and mutations in the category of the patient. Such metamorphoses in patienthood represent both reflections and repercussions--at once consequences and catalysts--of the proposed politics of vitality. We explore the pluralization of the patient's persona via a closer look at the 11 empirical studies of health activism that comprise this collection.

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Authors: Landzelius, K.
Affiliations: University of Gothenburg (SE)
Corresponding author: Landzelius, Kyra
Venue: Social Science & Medicine
Publisher: Elsevier BV
Published: 2006-02
Volume: 62
Issue: 3
Pages: 529-537
ISSN: 0277-9536 (ISSN-L)
DOI: 10.1016/j.socscimed.2005.06.023
OpenAlex: W2038330326
Cited by: 108
References: 41
Citations by year: 2026: 3 · 2025: 2 · 2024: 2 · 2023: 6 · 2022: 7 · 2021: 10 · 2020: 6 · 2018: 5 · 2016: 6 · 2015: 1 · 2014: 7 · 2013: 9 · 2012: 12
FWCI: 11.22
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Social Science & Medicine (publishedVersion)
PubMed (publishedVersion)
RePEc: Research Papers in Economics (submittedVersion)
Funders: Wenner-Gren Foundation
Department of Science and Technology, Ministry of Science and Technology, India
Vetenskapsrådet
Topics: Health Sciences › Health Professions › General Health Professions › Health, Medicine and Society
Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Social Sciences › Business, Management and Accounting › Marketing › Healthcare, Law, Governance, and Management Studies
Keywords: patienthood, health activism, patient mobilization, health care reform, personhood
MeSH terms: Humans, Patient Advocacy, Patient Participation, Politics, Social Change, Sociology, Medical, Voluntary Health Agencies, Health Care Reform, Personal Autonomy, Empirical Research

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Introduction: Patient organization movements and new metamorphoses in patienthood

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