The DOI matches its Crossref record; 40 of the 41 references it cites were found in a registry or an index.
Introduction: Patient organization movements and new metamorphoses in patienthood
Abstract
In this introduction, we examine health activism as one expression of an emergent 'politics of vitality' or flurry of activity around health matters that includes: advances in technoscientific medicine, healthcare restructurings, and a re-thinking of science-society contracts. In querying politicized mobilizations around 'health matters and the mattering of health,' we provocatively entitle our discussion 'patient organization movements'. This marks an invitation to interrogate (in reverse order) each term along the way, pausing in our concluding discussion to turn our attentions to the patient. The figure of the patient is thematized as an historical inscription and a formidable dimension of personhood under modernity/late modernity. Moreover, we argue that conventional categorizations of the patient are undergoing accelerated processes of change at the present time. We characterize three transformational trends: moves to author and authorize patienthood, mutiny from patienthood, and mutations in the category of the patient. Such metamorphoses in patienthood represent both reflections and repercussions--at once consequences and catalysts--of the proposed politics of vitality. We explore the pluralization of the patient's persona via a closer look at the 11 empirical studies of health activism that comprise this collection.
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“Activism has been portrayed as a collective action (Landzelius, 2006), which can be orientated towards challenging the status-quo, and putting pressures on world leaders, corporations, communities, groups and individuals to make much needed changes.”
From Climate change and COP26: Are digital technologies and information management part of the problem or the solution? An editorial reflection and call to action (2022) · cites this paper as Landzelius, 2006
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Cites
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Illnesses you have to fight to get: Facts as forces in uncertain, emergent illnesses
Dumit, J. (2005) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.06.018 · Cited by 662
Embodied health movements: new approaches to social movements in health
Brown, P., Zavestoski, S., McCormick, S., Mayer, B., Morello‐Frosch, R., & Gasior Altman, R. (2004) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2004.00378.x · Cited by 631
Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine
Clarke, A. E., Shim, J. K., Mamo, L., Fosket, J. R., & Fishman, J. R. (2003) · American Sociological Review · doi:10.1177/000312240306800201 · Cited by 560
Community participation in health: perpetual allure, persistent challenge
Morgan, L. M. (2001) · Health Policy and Planning · doi:10.1093/heapol/16.3.221 · Cited by 370
Anti-vaccination movements and their interpretations
Blume, S. S. (2005) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.06.020 · Cited by 363
Social movements in health: an introduction
Brown, P., & Zavestoski, S. M. (2004) · Sociology of Health & Illness · doi:10.1111/j.0141-9889.2004.00413.x · Cited by 338
‘To me, it's my life’: medical communication, trust, and activism in cyberspace
Radin, P. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.06.022 · Cited by 235
Research works printed but not linked: 2
- Clarke, 2003, Biomedicalization: Theorizing technoscientific transformation of health, illness, and US biomedicine, American Sociological Review, 68, 161, 10.2307/1519765 · DOI · Paper page
- Klawiter, M. (2003). Transforming the field of mammographic screening: Community mobilization, cultural diversification, and domain expansion in an ‘interpenetrated’ social movement. Paper presented at the Patient Organization Movement Workshop. University of Gothenburg, Sweden, June 12–16, Landzelius, K. (Organizer).
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Items 101–107 of 107
Kerr, A., Chekar, C. K., Ross, E., Swallow, J., & Cunningham‐Burley, S. (2021) · Manchester University Press eBooks · doi:10.7765/9781526141019.00013
Online Expert Mediators: Expanding Interactional Expertise
Egher, C. (2022) · Health, technology and society · doi:10.1007/978-981-16-9178-2_5
РАЗВИТИЕ ОБЩЕСТВА И НАУКИ В СОВРЕМЕННЫХ УСЛОВИЯХ
народов», Ф. В. «. У. Д., Ivanov, V. G., Васильевич, С. В., университет», Ф. «. Г. П., Лисичкин, В. А., РАН), Ф. Н.-И. С. Ц. (., Бектурсынова, А. М., университет, К. Г., Чурюканова, Е. О., университет», Г. В. М. «. Г.-Т., et al. (2022) · ICSP «NEW SCIENCE» eBooks · doi:10.46916/23122022-1-978-5-00174-805-2
Pearce, R. (2018) · Policy Press eBooks · doi:10.51952/9781447342342.bm003
Exploring Patient Organization Involvement in Stem Cell Research: Insights from the Lifeworld
Lopes, E., Ankeny, R. A., Santos, D., Hu, M., Whitton, T., Ivanov, M., Leach, J., Nicol, D., & Wells, C. A. (2026) · Journal of Bioethical Inquiry · doi:10.1007/s11673-025-10516-6
Stem cell treatments in a global marketplace
Harvey, O. (2012) · Elsevier eBooks · doi:10.1533/9781908818140.19
Metadata
- Authors
- Landzelius, K.
- Affiliations
- University of Gothenburg (SE)
- Corresponding author
- Landzelius, Kyra
- Venue
- Social Science & Medicine
- Publisher
- Elsevier BV
- Published
- 2006-02
- Volume
- 62
- Issue
- 3
- Pages
- 529-537
- ISSN
- 0277-9536 (ISSN-L)
- OpenAlex
- W2038330326
- Cited by
- 108
- References
- 41
- Citations by year
- 2026: 3 · 2025: 2 · 2024: 2 · 2023: 6 · 2022: 7 · 2021: 10 · 2020: 6 · 2018: 5 · 2016: 6 · 2015: 1 · 2014: 7 · 2013: 9 · 2012: 12
- FWCI
- 11.22
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Social Science & Medicine (publishedVersion)
- PubMed (publishedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- Funders
- Wenner-Gren Foundation
- Department of Science and Technology, Ministry of Science and Technology, India
- Vetenskapsrådet
- Topics
- Health Sciences › Health Professions › General Health Professions › Health, Medicine and Society
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Business, Management and Accounting › Marketing › Healthcare, Law, Governance, and Management Studies
- Keywords
- patienthood, health activism, patient mobilization, health care reform, personhood
- MeSH terms
- Humans, Patient Advocacy, Patient Participation, Politics, Social Change, Sociology, Medical, Voluntary Health Agencies, Health Care Reform, Personal Autonomy, Empirical Research
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