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Analysis of dementia in the US population using Medicare claims: Insights from linked survey and administrative claims data
Open accessAbstract
Introduction: Medicare claims data may be a rich data source for tracking population dementia rates. Insufficient understanding of completeness of diagnosis, and for whom, limits their use. Methods: We analyzed agreement in prevalent and incident dementia based on cognitive assessment from the Health and Retirement Study for persons with linked Medicare claims from 2000 to 2008 (N = 10,450 persons). Multinomial logistic regression identified sociodemographic factors associated with disagreement. Results: Survey‐based cognitive tests and claims‐based dementia diagnosis yielded equal prevalence estimates, yet only half were identified by both measures. Race and education were associated with disagreement. Eighty‐five percent of respondents with incident dementia measured by cognitive decline received a diagnosis or died within the study period, with lower odds among blacks and Hispanics than among whites. Discussions: Claims data are valuable for tracking dementia in the US population and improve over time. Delayed diagnosis may underestimate rates within black and Hispanic populations.
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Metadata
- Authors
- Chen, Y., Tysinger, B., Crimmins, E., & Zissimopoulos, J. M.
- Affiliations
- University of Southern California (US)
- Corresponding author
- Zissimopoulos, Julie M.
- Venue
- Alzheimer's & Dementia: Translational Research & Clinical Interventions
- Publisher
- Wiley
- Published
- 2019-01
- Volume
- 5
- Issue
- 1
- Pages
- 197-207
- ISSN
- 2352-8737 (ISSN-L)
- PMC
- PMC6556828
- OpenAlex
- W2954918532
- Cited by
- 129
- References
- 49
- Citations by year
- 2026: 19 · 2025: 22 · 2024: 17 · 2023: 19 · 2022: 24 · 2021: 20 · 2020: 7 · 2019: 1
- FWCI
- 10.36
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Alzheimer s & Dementia Translational Research & Clinical Interventions (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- National Institutes of Health
- National Institute on Aging (1R01AG055401)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- dementia, Medicare claims data, prevalence estimates, incident dementia, cognitive assessment, Health and Retirement Study, racial disparities, Hispanic population, Black population, delayed diagnosis, sociodemographic factors
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