Validation of the Quality of Life in Childhood Epilepsy Questionnaire in American epilepsy patients
Abstract
The aim of this study was to adapt the Australian Quality of Life in Childhood Epilepsy Questionnaire (QOLCE) and determine its psychometric properties in a North American population. Participants were North American families with children diagnosed with epilepsy. Parents were asked to complete the American QOLCE (USQOLCE) and the Child Health Questionnaire (CHQ). Seventy-one families completed the USQOLCE. The internal consistency reliability of the subscales was good. USQOLCE subscales correlated highly with theoretically similar subscales contained in the CHQ. Theoretically dissimilar subscales on the two instruments did not correlate as well. USQOLCE correlated significantly with a parental rating of seizure severity and an independent measure of degree of postoperative seizure control. This study demonstrated that the USQOLCE is suitable for a North American population with evidence of its reliability and validity including its sensitivity to seizure burden.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Epilepsy-specific HRQoL measures are more salient to specific aspects of epilepsy and its treatments and thus constitute a particularly sensitive and responsive patient-reported outcome for people with epilepsy.
“Epilepsy-specific HRQoL measures are more salient to specific aspects of epilepsy and its treatments and thus constitute a particularly sensitive and responsive patient-reported outcome for PWE. 9,10”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [9]
Six interventions (25%) were delivered through individual sessions.
“6 interventions (25%) were delivered through individual sessions, 9,15,26,27,43,44,48”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [9]
Cites
Guillemin, F., Bombardier, C., & Beaton, D. (1993) · Journal of Clinical Epidemiology · doi:10.1016/0895-4356(93)90142-n · Cited by 6,060 · see citing works
Surgical Treatment of the Epilepsies
Kotagal, P. (1994) · Journal of Clinical Neurophysiology · doi:10.1097/00004691-199407000-00009 · Cited by 2,759 · see citing works
Outcome with respect to epileptic seizures.
Engel, J. (1993) · Medical Entomology and Zoology · Cited by 2,044 · see citing works
Surgical treatment of the epilepsies
Engel, J. (1993) · Raven Press eBooks · Cited by 1,739 · see citing works
Can parents rate their child's health-related quality of life? Results of a systematic review
Eiser, C., & Morse, R. (2001) · Quality of Life Research · doi:10.1023/a:1012253723272 · Cited by 1,179 · see citing works
Development of the Quality of Life in Epilepsy Inventory
Devinsky, O., Vickrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R. D. (1995) · Epilepsia · doi:10.1111/j.1528-1157.1995.tb00467.x · Cited by 634 · see citing works
Jacoby, A., Baker, G. A., Steen, N., Potts, P., & Chadwick, D. W. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00006.x · Cited by 632 · see citing works
Quality of Life Assessment: International Perspectives
(1994) · Springer eBooks · doi:10.1007/978-3-642-79123-9 · Cited by 582 · see citing works
Surgical Treatment of the Epilepsies, 2nd Ed.
Cole, A. J. (1994) · Neurology · doi:10.1212/wnl.44.4.785 · Cited by 335 · see citing works
The Relationship of Neuropsychological Functioning to Quality of Life in Epilepsy
Perrine, K. R., Hermann, B. P., Meador, K. J., Vickrey, B. G., Cramer, J. A., Hays, R. D., & Devinsky, O. (1995) · Archives of Neurology · doi:10.1001/archneur.1995.00540340089017 · Cited by 315 · see citing works
Development of the Quality of Life in Epilepsy Inventory for Adolescents: The QOLIE‐AD‐48
Cramer, J. A., Westbrook, L. E., Devinsky, O., Perrine, K. R., Glassman, M. B., & Camfield, C. (1999) · Epilepsia · doi:10.1111/j.1528-1157.1999.tb00828.x · Cited by 275 · see citing works
Symptoms of Depression in Adolescents With Epilepsy
Dunn, D. W., AUSTIN, J. K., & Huster, G. A. (1999) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/00004583-199909000-00017 · Cited by 249 · see citing works
The Psychosocial Burden of Epilepsy
Baker, G. A. (2002) · Epilepsia · doi:10.1046/j.1528-1157.43.s.6.12.x · Cited by 215 · see citing works
Validation of a New Quality of Life Measure for Children with Epilepsy
Sabaz, M., Cairns, D. R., Lawson, J. A., Nheu, N., Bleasel, A. F., & Bye, A. M. E. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb00240.x · Cited by 213 · see citing works
Self-citationRisk Factors for Poor Health‐Related Quality of Life in Adolescents with Epilepsy
Devinsky, O., Westbrook, L. E., Cramer, J. A., Glassman, M. B., Perrine, K. R., & Camfield, C. (1999) · Epilepsia · doi:10.1111/j.1528-1157.1999.tb01588.x · Cited by 212 · see citing works
Adolescents with Active or Inactive Epilepsy or Asthma: A Comparison of Quality of Life
AUSTIN, J. K., Huster, G. A., Dunn, D. W., & Risinger, M. W. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00558.x · Cited by 190 · see citing works
Impact of Pediatric Epilepsy on the Family: A New Scale for Clinical and Research Use
Camfield, C., Breau, L., & Camfield, P. (2001) · Epilepsia · doi:10.1046/j.1528-1157.2001.081420.x · Cited by 184 · see citing works
Sabaz, M., Cairns, D. R., Lawson, J. A., Bleasel, A., & Bye, A. M. E. (2001) · Epilepsia · doi:10.1046/j.1528-1157.2001.25200.x · Cited by 175 · see citing works
Self-citationGilliam, F. G., Wyllie, E., Kashden, J., Faught, E., Kotagal, P., Bebin, M., Wise, M. S., Comair, Y. G., Morawetz, R. B., & Kuzniecky, R. (1997) · Neurology · doi:10.1212/wnl.48.5.1368 · Cited by 150 · see citing works
Quantitative Data Analysis with SPSS Release 8 for Windows
Bryman, A. E., & Cramer, D. (2002) · Routledge eBooks · doi:10.4324/9780203459621 · Cited by 150 · see citing works
Quality of life after epilepsy surgery
Kellett, M., Smith, D. F., Baker, G. A., & Chadwick, D. W. (1997) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.63.1.52 · Cited by 149 · see citing works
Hermann, B. P. (1992) · Journal of Epilepsy · doi:10.1016/s0896-6974(05)80134-3 · Cited by 119 · see citing works
Behavioural disorders in children with epilepsy: early improvement after surgery
Lendt, M. (2000) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.69.6.739 · Cited by 115 · see citing works
COLLINGS, J. A. (1990) · Social Science & Medicine · doi:10.1016/0277-9536(90)90058-z · Cited by 104 · see citing works
Ronen, G. M., Rosenbaum, P., Law, M., & Streiner, D. L. (1999) · Developmental Medicine & Child Neurology · doi:10.1017/s0012162299001176 · Cited by 97 · see citing works
Quantitative Data Analysis with SPSS Release 8 for Windows: For Social Scientists
Bryman, A. E., & Cramer, D. (1999) · Routledge eBooks · Cited by 97 · see citing works
Principles of Health‐related Quality of Life: Assessment in Clinical Trials
Cramer, J. A., & for the ILAE Subcommission on Outcome Measurement in Epilepsy (Carol Camfield, H. C. (2002) · Epilepsia · doi:10.1046/j.1528-1157.2002.47501.x · Cited by 90 · see citing works
Disability due to restrictions in childhood epilepsy
Carpay, H. A., Vermeulen, J., Stroink, H., FBrouwer, O., Peters, A. C. B., & van Donselaar, C. A. (1997) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.1997.tb07480.x · Cited by 88 · see citing works
Behaviour problems in children with new-onset epilepsy
Dunn{xa*, D. W., AUSTIN, J. K., & Huster, G. A. (1997) · Seizure · doi:10.1016/s1059-1311(97)80075-1 · Cited by 86 · see citing works
Quality of life pre and post epilepsy surgery
Selai, C. E., Elstner, K., & Trimble, M. (1999) · Epilepsy Research · doi:10.1016/s0920-1211(99)00075-3 · Cited by 85 · see citing works
Jacoby, A. (1995) · Epilepsy Research · doi:10.1016/0920-1211(95)00013-z · Cited by 78 · see citing works
Assessment of Quality of Life in People with Epilepsy: Some Practical Implications
Baker, G. A. (2001) · Epilepsia · doi:10.1046/j.1528-1157.2001.042suppl.3066.x · Cited by 74 · see citing works
Outcome of temporal lobectomy: expectations and the prediction of perceived success
Wilson, S. J., Saling, M. M., Lawrence, J. A., & Bladin, P. F. (1999) · Epilepsy Research · doi:10.1016/s0920-1211(99)00016-9 · Cited by 68 · see citing works
The health‐related quality of life of childhood epilepsy syndromes
Sabaz, M., Cairns, D., Bleasel, A., Lawson, J. A., Grinton, B. E., Scheffer, I. E., & Bye, A. (2003) · Journal of Paediatrics and Child Health · doi:10.1046/j.1440-1754.2003.00270.x · Cited by 60 · see citing works
Self-citationEpilepsy and associated psychopathology in young people with intellectual disability
LEWIS, J., Tonge, B. J., Mowat, D. R., Einfeld, S., Siddons, H. M., & Rees, V. W. (2000) · Journal of Paediatrics and Child Health · doi:10.1046/j.1440-1754.2000.00487.x · Cited by 48 · see citing works
Determinants of health-related quality of life after temporal lobe epilepsy surgery
Rose, K., Derry, P. A., Wiebe, S., & McLachlan, R. S. (1996) · Quality of Life Research · doi:10.1007/bf00433924 · Cited by 36 · see citing works
French, D. J., Carroll, A., & Christie, M. J. (1998) · Quality of Life Research · doi:10.1023/a:1008805903785 · Cited by 30 · see citing works
Quality of life measures in epilepsy
Birbeck, G. L., Kim, S., Hays, R. D., & Vickrey, B. G. (2000) · Neurology · doi:10.1212/wnl.54.9.1822 · Cited by 6 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Everolimus for Subependymal Giant-Cell Astrocytomas in Tuberous Sclerosis
Krueger, D. A., Caré, M. M., Holland, K. D., Agricola, K. D., Tudor, C., Mangeshkar, P., Wilson, K. A., Byars, A. W., Sahmoud, T., & Franz, D. N. (2010) · New England Journal of Medicine · doi:10.1056/nejmoa1001671 · Cited by 1,003 · see citing works
Everolimus treatment of refractory epilepsy in tuberous sclerosis complex
Krueger, D. A., Wilfong, A. A., Holland‐Bouley, K. D., Anderson, A. E., Agricola, K. D., Tudor, C., Mays, M., Lopez, C., Kim, M., & Franz, D. N. (2013) · Annals of Neurology · doi:10.1002/ana.23960 · Cited by 389 · see citing works
Lagae, L., Sullivan, J., Knupp, K., Laux, L., Polster, T., Nikanorova, M., Devinsky, O., Cross, J. H., Guerrini, R., Talwar, D., et al. (2019) · The Lancet · doi:10.1016/s0140-6736(19)32500-0 · Cited by 384 · see citing works
Nabbout, R., Mistry, A., Zuberi, S., Villeneuve, N., Gil-Nagel, A., Sanchez-Carpintero, R., Stephani, U., Laux, L., Wirrell, E., Knupp, K., et al. (2020) · JAMA Neurology · doi:10.1001/jamaneurol.2019.4113 · Cited by 251 · see citing works
Use of Cannabidiol in the Treatment of Epilepsy: Efficacy and Security in Clinical Trials
Silvestro, S., Mammana, S., Cavalli, E., Bramanti, P., & Mazzon, E. (2019) · Molecules · doi:10.3390/molecules24081459 · Cited by 239 · see citing works
Michaelis, R., Tang, V., Goldstein, L. H., Reuber, M., LaFrance, W. C., Lundgren, T., Modi, A. C., & Wagner, J. L. (2018) · Epilepsia · doi:10.1111/epi.14444 · Cited by 167 · see citing works
Long-term treatment of epilepsy with everolimus in tuberous sclerosis
Krueger, D. A., Wilfong, A. A., Mays, M., Talley, C., Agricola, K. D., Tudor, C., Capal, J. K., Holland‐Bouley, K. D., & Franz, D. N. (2016) · Neurology · doi:10.1212/wnl.0000000000003400 · Cited by 154 · see citing works
Parental anxiety in childhood epilepsy: A systematic review
Jones, C. S., & Reilly, C. J. (2016) · Epilepsia · doi:10.1111/epi.13326 · Cited by 140 · see citing works
Michaelis, R., Tang, V., Wagner, J. L., Modi, A. C., LaFrance, W. C., Goldstein, L. H., Lundgren, T., & Reuber, M. (2018) · Epilepsia · doi:10.1111/epi.13989 · Cited by 122 · see citing works
Executive Dysfunction Is a Significant Predictor of Poor Quality of Life in Children with Epilepsy
Sherman, E. M. S., Slick, D. J., & Eyrl, K. L. (2006) · Epilepsia · doi:10.1111/j.1528-1167.2006.00816.x · Cited by 121 · see citing works
Quality of life in children with new-onset epilepsy
Speechley, K. N., Ferro, M. A., Camfield, C., Huang, W., Levin, S. D., Smith, M. L., Wiebe, S., & Zou, G. (2012) · Neurology · doi:10.1212/wnl.0b013e31826e25aa · Cited by 117 · see citing works
Hallett, L. A., Foster, T. S., Liu, Z., Blieden, M. B., & Valentim, J. (2011) · Current Medical Research and Opinion · doi:10.1185/03007995.2011.586687 · Cited by 117 · see citing works
Rosenberg, E. C., Louik, J. B., Conway, E., Devinsky, O., & Friedman, D. (2017) · Epilepsia · doi:10.1111/epi.13815 · Cited by 114 · see citing works
Cianchetti, C., Messina, P., Pupillo, E., Crichiutti, G., Baglietto, M. G., Veggiotti, P., Zamponi, N., Casellato, S., Margari, L., Erba, G., et al. (2014) · Seizure · doi:10.1016/j.seizure.2014.09.003 · Cited by 107 · see citing works
A prospective open‐label trial of a CBD / THC cannabis oil in dravet syndrome
McCoy, B., Wang, L., Zak, M., Al‐Mehmadi, S., Kabir, N., Alhadid, K., McDonald, K. P., Zhang, G., Sharma, R. K., Whitney, R., et al. (2018) · Annals of Clinical and Translational Neurology · doi:10.1002/acn3.621 · Cited by 102 · see citing works
The burden of pediatric status epilepticus: Epidemiology, morbidity, mortality, and costs
Gurcharran, K., & Grinspan, Z. M. (2018) · Seizure · doi:10.1016/j.seizure.2018.08.021 · Cited by 98 · see citing works
Risk factors for health‐related quality of life in children with epilepsy: A meta‐analysis
Ferro, M. A. (2014) · Epilepsia · doi:10.1111/epi.12772 · Cited by 96 · see citing works
The impact of epilepsy surgery on quality of life in children
Sabaz, M., Lawson, J. A., Cairns, D. R., DUCHOWNY, M. S., Resnick, T., Dean, P., Bleasel, A., & Bye, A. (2006) · Neurology · doi:10.1212/01.wnl.0000197788.38783.09 · Cited by 97 · see citing works
Self-citationGoodwin, S. W., Lambrinos, A. I., Ferro, M. A., Sabaz, M., & Speechley, K. N. (2015) · Epilepsia · doi:10.1111/epi.13000 · Cited by 88 · see citing works
Self-citationCoombes, L., Wiseman, T., Lucas, G., Sangha, A., & Murtagh, F. E. (2016) · Palliative Medicine · doi:10.1177/0269216316649155 · Cited by 88 · see citing works
Melatonin improves sleep in children with epilepsy: a randomized, double-blind, crossover study
Jain, S. V., Horn, P. S., Simakajornboon, N., Beebe, D. W., Holland, K. D., Byars, A. W., & Glauser, T. A. (2015) · Sleep Medicine · doi:10.1016/j.sleep.2015.01.005 · Cited by 87 · see citing works
Treatment Factors Affecting Longitudinal Quality of Life in New Onset Pediatric Epilepsy
Modi, A. C., Ingerski, L. M., Rausch, J., & Glauser, T. A. (2011) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsq114 · Cited by 84 · see citing works
Factors associated with quality of life in active childhood epilepsy: A population-based study
Reilly, C. J., Atkinson, P., Das, K. B., Chin, R., Aylett, S., Burch, V., Gillberg, C., Scott, R. C., & Neville, B. G. R. (2015) · European Journal of Paediatric Neurology · doi:10.1016/j.ejpn.2014.12.022 · Cited by 78 · see citing works
Schachter, S. C. (2006) · Expert Review of Neurotherapeutics · doi:10.1586/14737175.6.1.111 · Cited by 78 · see citing works
Factors affecting the quality of life in childhood epilepsy in China
Yong, L., Ji, C.-Y., & Jiong, Q. (2006) · Acta Neurologica Scandinavica · doi:10.1111/j.1600-0404.2005.00567.x · Cited by 76 · see citing works
Chan, C. J., Zou, G., Wiebe, S., & Speechley, K. N. (2015) · Epilepsia · doi:10.1111/epi.13216 · Cited by 76 · see citing works
Modi, A. C., Junger, K. F., Mara, C. A., Kellermann, T., Barrett, L., Wagner, J., Mucci, G. A., Bailey, L., Almane, D., Guilfoyle, S. M., et al. (2017) · Epilepsia · doi:10.1111/epi.13875 · Cited by 71 · see citing works
Ferro, M. A., Avison, W. R., Campbell, M. K., & Speechley, K. N. (2010) · Epilepsia · doi:10.1111/j.1528-1167.2010.02769.x · Cited by 72 · see citing works
Correlates of health‐related quality of life in children with drug resistant epilepsy
Conway, L., Smith, M. L., Ferro, M. A., Speechley, K. N., Connoly, M. B., Snead, O. C., Widjaja, E., & the PEPSQOL Study Team (2016) · Epilepsia · doi:10.1111/epi.13441 · Cited by 71 · see citing works
Quality of Life in Children with Epilepsy
花井, 敏. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb01816.x · Cited by 69 · see citing works
Trajectories of health‐related quality of life in children with epilepsy: A cohort study
Ferro, M. A., Camfield, C., Levin, S. D., Smith, M. L., Wiebe, S., Zou, G., & Speechley, K. N. (2013) · Epilepsia · doi:10.1111/epi.12388 · Cited by 66 · see citing works
Even a single seizure negatively impacts pediatric health‐related quality of life
Modi, A. C., King, A. S., Monahan, S. R., Koumoutsos, J. E., Morita, D. A., & Glauser, T. A. (2009) · Epilepsia · doi:10.1111/j.1528-1167.2009.02149.x · Cited by 64 · see citing works
Adherence to antiepileptic drugs in adolescents with epilepsy
Smith, A. W., Mara, C. A., & Modi, A. C. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.12.013 · Cited by 63 · see citing works
Parental Anxiety and Quality of Life of Epileptic Children
Li, Y., Ji, C.-Y., Qin, J., & Zhang, Z. (2008) · Biomedical and Environmental Sciences · doi:10.1016/s0895-3988(08)60034-3 · Cited by 60 · see citing works
Adherence barriers in pediatric epilepsy: From toddlers to young adults
Gutierrez‐Colina, A. M., Smith, A. W., Mara, C. A., & Modi, A. C. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.01.031 · Cited by 54 · see citing works
Sullivan, J. E., Lagae, L. G., Cross, J. H., Devinsky, O., Guerrini, R., Knupp, K. G., Laux, L., Nikanorova, M., Polster, T., Talwar, D., et al. (2023) · Epilepsia · doi:10.1111/epi.17737 · Cited by 52 · see citing works
Haneef, Z., Grant, M., Valencia, I., Hobdell, E. F., Kothare, S. V., Legido, A., & Khurana, D. S. (2010) · Epileptic Disorders · doi:10.1684/epd.2010.0344 · Cited by 52 · see citing works
Crudgington, H., Rogers, M., Morris, H., Gringras, P., Pal, D. K., & Morris, C. (2020) · Epilepsia · doi:10.1111/epi.16430 · Cited by 49 · see citing works
Sociodemographic correlates of health-related quality of life in pediatric epilepsy
Sherman, E. M. S., Griffiths, S. Y., Akdag, S. J., Connolly, M. B., Slick, D. J., & Wiebe, S. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.07.009 · Cited by 49 · see citing works
Ramsey, R. R., Loiselle, K. A., Rausch, J. R., Harrison, J. M., & Modi, A. C. (2016) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.02.002 · Cited by 46 · see citing works
Conway, L., Widjaja, E., Smith, M. L., Speechley, K. N., & Ferro, M. A. (2017) · Epilepsia · doi:10.1111/epi.13697 · Cited by 44 · see citing works
Palliative hemispherotomy in children with bilateral seizure onset
Ciliberto, M. A., Limbrick, D. D., Powers, A. K., Titus, J. B., Munro, R., & Smyth, M. D. (2012) · Journal of Neurosurgery Pediatrics · doi:10.3171/2011.12.peds11334 · Cited by 43 · see citing works
Ferro, M. A., Avison, W. R., Campbell, M. K., & Speechley, K. N. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2010.02899.x · Cited by 43 · see citing works
Care-related quality of life in caregivers of children with drug-resistant epilepsy
The PEPSQOL Study Team, Jain, P., Subendran, J., Smith, M. L., & Widjaja, E. (2018) · Journal of Neurology · doi:10.1007/s00415-018-8979-4 · Cited by 45 · see citing works
Suresh, H., Mithani, K., Warsi, N. M., Ochi, A., Otsubo, H., Drake, J. M., Rutka, J. T., Kerr, E. N., Smith, M. L., Breitbart, S. C., et al. (2024) · Annals of Neurology · doi:10.1002/ana.26956 · Cited by 42 · see citing works
Ferro, M. A., Goodwin, S. W., Sabaz, M., & Speechley, K. N. (2016) · Epilepsia · doi:10.1111/epi.13296 · Cited by 42 · see citing works
Self-citationTitus, J. B., Lee, A., Kasasbeh, A. S., Thio, L. L., Stephenson, J., Steger-May, K., Limbrick, D. D., & Smyth, M. D. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.03.003 · Cited by 40 · see citing works
Reithmeier, D., Tang‐Wai, R., Seifert, B. W., Lyon, A. W., Alcorn, J., Acton, B. V., Corley, S. D., Prosser-Loose, E. J., Mousseau, D. D., Lim, H. J., et al. (2018) · BMC Pediatrics · doi:10.1186/s12887-018-1191-y · Cited by 39 · see citing works
Improving quality of life beyond seizure control
Schachter, S. C. (2005) · Epileptic Disorders · doi:10.1684/j.1950-6945.2005.tb00150.x · Cited by 39 · see citing works
Quality of life in children with epilepsy
Aggarwal, A., Datta, V., & Thakur, L. C. (2011) · Indian Pediatrics · doi:10.1007/s13312-011-0137-3 · Cited by 38 · see citing works
Quality of Life of Children With Benign Rolandic Epilepsy
Connolly, A. M., Northcott, E., Cairns, D. R., McIntyre, J., Christie, J., Berroya, A., Lawson, J. A., Bleasel, A., & Bye, A. M. E. (2006) · Pediatric Neurology · doi:10.1016/j.pediatrneurol.2006.03.012 · Cited by 37 · see citing works
Self-citationde Vries, P. J., Franz, D. N., Curatolo, P., Nabbout, R., Neary, M. P., Herbst, F., Sully, K., Brohan, E., Bennett, B., & Lawson, J. A. (2018) · Frontiers in Pharmacology · doi:10.3389/fphar.2018.00964 · Cited by 34 · see citing works
Self-citationSeizure freedom improves health‐related quality of life after epilepsy surgery in children
Jain, P., Smith, M. L., Speechley, K. N., Ferro, M. A., Connolly, M. B., RamachandranNair, R., Almubarak, S., Andrade, A., Widjaja, E., & Pepsqol Study Team (2019) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.14390 · Cited by 34 · see citing works
Behavioural comorbidity in Tanzanian children with epilepsy: a community-based case-control study
Burton, K., Rogathe, J., Hunter, E., Burton, M. J., Swai, M. E., Todd, J., Neville, B. G. R., Walker, R. W., & Newton, C. R. J. C. (2011) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.2011.04109.x · Cited by 33 · see citing works
Galán, F., Beier, A. D., & Sheth, R. D. (2021) · Pediatric Neurology · doi:10.1016/j.pediatrneurol.2021.06.004 · Cited by 31 · see citing works
Ferro, M. A., Avison, W. R., Campbell, M. K., & Speechley, K. N. (2010) · Quality of Life Research · doi:10.1007/s11136-010-9660-2 · Cited by 30 · see citing works
Supporting treatment adherence regimens in children with epilepsy: A randomized clinical trial
Modi, A. C., Guilfoyle, S. M., Glauser, T. A., & Mara, C. A. (2021) · Epilepsia · doi:10.1111/epi.16921 · Cited by 29 · see citing works
Development of the PedsQL™ Epilepsy Module: Focus group and cognitive interviews
Follansbee-Junger, K. W., Mann, K. A., Guilfoyle, S. M., Morita, D. A., Varni, J. W., & Modi, A. C. (2016) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.06.011 · Cited by 29 · see citing works
Buelow, J. M. (2007) · Journal of the American Psychiatric Nurses Association · doi:10.1177/1078390307303747 · Cited by 28 · see citing works
Puka, K., Goodwin, S. W., Ferro, M. A., Smith, M. L., Widjaja, E., Anderson, K. K., & Speechley, K. N. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.106904 · Cited by 28 · see citing works
Convulsive status epilepticus and health-related quality of life in children with epilepsy
Ferro, M. A., Chin, R., Camfield, C., Wiebe, S., Levin, S. D., & Speechley, K. N. (2014) · Neurology · doi:10.1212/wnl.0000000000000710 · Cited by 28 · see citing works
The Impact of Epilepsy on Quality of Life
Vaurio, L., Karantzoulis, S., & Barr, W. (2016) · Springer eBooks · doi:10.1007/978-0-387-98188-8_8 · Cited by 27 · see citing works
Soria, C., Callu, D., Viguier, D., Sabbagh, S., Bulteau, C., Laroussinie, F., & Dellatolas, G. (2008) · Developmental Neurorehabilitation · doi:10.1080/17518420802551498 · Cited by 26 · see citing works
Ferro, M. A., & Speechley, K. N. (2011) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-011-0447-8 · Cited by 26 · see citing works
Powell, K., Walker, R. W., Rogathe, J., Gray, W. K., Hunter, E., Newton, C. R. J. C., & Burton, K. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.06.034 · Cited by 26 · see citing works
Shegog, R., & Begley, C. E. (2017) · Frontiers in Public Health · doi:10.3389/fpubh.2017.00256 · Cited by 25 · see citing works
Conway, L., Widjaja, E., & Smith, M. L. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.03.036 · Cited by 25 · see citing works
Quality of life of children and families
Puka, K., Conway, L., & Smith, M. L. (2020) · Handbook of clinical neurology · doi:10.1016/b978-0-444-64148-9.00028-4 · Cited by 25 · see citing works
Validation of the Neuro-QoL measurement system in children with epilepsy
Lai, J., Nowinski, C. J., Zelko, F. A. J., Wortman, K., Burns, J. L., Nordli, D. R., & Cella, D. F. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.02.038 · Cited by 25 · see citing works
Ebus, S. C. M., IJff, D. M., den Boer, J. T., van Hall, M. J. H., Klinkenberg, S., van der Does, A., Boon, P., Arends, J. B. A. M., & Aldenkamp, A. P. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.11.027 · Cited by 24 · see citing works
Quality of life in children with epilepsy and cognitive impairment: A review and a pilot study
Soria, C., Sabbagh, S., Escolano, S., Bobet, R., Bulteau, C., & Dellatolas, G. (2007) · Developmental Neurorehabilitation · doi:10.1080/13638490601111129 · Cited by 24 · see citing works
Risk Factors on Health-Related Quality of Life in Children With Epilepsy
Liu, X., & Han, Q. (2015) · Clinical Pediatrics · doi:10.1177/0009922815580405 · Cited by 23 · see citing works
Phillips, N. L., Widjaja, E., & Smith, M. L. (2020) · Epilepsia · doi:10.1111/epi.16602 · Cited by 22 · see citing works
Ferro, M. A., & Speechley, K. N. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.10.004 · Cited by 22 · see citing works
Iqbal, M., Amirsalari, S., Radfar, S., & Haidari, M. R. (2016) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.04.037 · Cited by 22 · see citing works
Sajobi, T. T., Wang, M., Ferro, M. A., Brobbey, A., Goodwin, S. W., Speechley, K. N., & Wiebe, S. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.07.037 · Cited by 21 · see citing works
Single‐item measure for assessing quality of life in children with drug‐resistant epilepsy
Conway, L., Widjaja, E., & Smith, M. L. (2017) · Epilepsia Open · doi:10.1002/epi4.12088 · Cited by 21 · see citing works
QUALITY OF LIFE IN CHILDHOOD EPILEPSY: VALIDATING THE QOLCE
Connolly, A., Sabaz, M., Lawson, J. A., Bye, A., & Cairns, D. (2005) · Journal of Paediatrics and Child Health · doi:10.1111/j.1440-1754.2005.570_2.x · Cited by 20 · see citing works
Self-citationPediatric Palliative Care: Insights into Assessment Tools and Review Instruments
Papa, S., Mercante, A., Giacomelli, L., & Benini, F. (2023) · Children · doi:10.3390/children10081406 · Cited by 19 · see citing works
Holbein, C. E., Smith, A. W., Peugh, J., & Modi, A. C. (2018) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsy006 · Cited by 19 · see citing works
Sajobi, T. T., Speechley, K. N., Liang, Z., Goodwin, S. W., Ferro, M. A., & Wiebe, S. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.07.015 · Cited by 18 · see citing works
Quality of life and epilepsy surgery in childhood and adolescence
Gagliardi, I. D. C., Guimarães, C. A., de Souza, E. A. P., Schmutzler, K. M. R., & Guerreiro, M. M. (2011) · Arquivos de Neuro-Psiquiatria · doi:10.1590/s0004-282x2011000100006 · Cited by 18 · see citing works
Crudgington, H., Collingwood, A., Bray, L., Lyle, S., Martin, R., Gringras, P., Pal, D. K., & Morris, C. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.107372 · Cited by 18 · see citing works
Soria, C., Escolano, S., Sabbagh, S., Chmura, S., Bulteau, C., Chiron, C., & Dellatolas, G. (2011) · Child Neuropsychology · doi:10.1080/09297049.2011.602012 · Cited by 18 · see citing works
Siegel, L., Yan, H., Warsi, N. M., Wong, S. M., Suresh, H., Weil, A. G., Ragheb, J. R., Wang, S., Rozzelle, C. J., Albert, G. W., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-055886 · Cited by 16 · see citing works
Quality of life in childhood epilepsy with lateralized epileptogenic foci
Mathiak, K. A., Łuba, M., Mathiak, K., Karzel, K., Wolańczyk, T., Szczepanik, E., & Ostaszewski, P. (2010) · BMC Neurology · doi:10.1186/1471-2377-10-69 · Cited by 14 · see citing works
Compassionate use of everolimus for refractory epilepsy in a patient with MTOR mosaic mutation
Hadouiri, N., Darmency, V., Guibaud, L., Arzimanoglou, A. A., Sorlin, A., Carmignac, V., Rivière, J., Huet, F., Luu, M., Bardou, M., et al. (2020) · European Journal of Medical Genetics · doi:10.1016/j.ejmg.2020.104036 · Cited by 13 · see citing works
Ferro, M. A., & Speechley, K. N. (2012) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-012-0622-6 · Cited by 13 · see citing works
Wo, S. W., Lai, P. S. M., Ong, L. C., Low, W. Y., Lim, K. S., Tay, C. G., Wong, C. P., & Sivanesom, R. S. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.02.037 · Cited by 12 · see citing works
Rebellious Behaviors in Adolescents With Epilepsy
Smith, A. W., Mara, C. A., Ollier, S., Combs, A., & Modi, A. C. (2017) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsx089 · Cited by 12 · see citing works
Weinstock, A., Agarwal, N., Farooq, O., Cheema, Z., Hamilton, D., & Parrish, J. B. (2019) · Journal of Child Neurology · doi:10.1177/0883073819836534 · Cited by 12 · see citing works
Villeneuve, N. (2004) · Revue Neurologique · doi:10.1016/s0035-3787(04)71219-9 · Cited by 11 · see citing works
Efficacy and safety of fenfluramine in patients with Dravet syndrome: A meta‐analysis
Zhang, L., Li, W., & Wang, C. (2020) · Acta Neurologica Scandinavica · doi:10.1111/ane.13387 · Cited by 10 · see citing works
Pascoal, C., Ferreira, I. G., Teixeira, C., Almeida, E., Slade, A. L., Brasil, S., Francisco, R., Ligezka, A. N., Morava, É., Plotkin, H., et al. (2022) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-022-02551-y · Cited by 10 · see citing works
Ferro, M. A., Landgraf, J. M., & Speechley, K. N. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0351-7 · Cited by 10 · see citing works
Sousa, A. V. M., Pinho, M. F., Alonso, N. B., Yacubian, E. M. T., & Guilhoto, L. M. D. F. F. (2021) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2021.107969 · Cited by 8 · see citing works
Khalil, M., Almestkawy, S., Omar, T., Ferro, M. A., & Speechley, K. N. (2022) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2022.108637 · Cited by 8 · see citing works
Quantifying and reporting outcome measures in pediatric epilepsy surgery: A systematic review
Chisolm, P. F., Warner, J., Hale, A. T., Estévez-Ordoñez, D., Murdaugh, D. L., Rozzelle, C. J., & Blount, J. P. (2022) · Epilepsia · doi:10.1111/epi.17369 · Cited by 8 · see citing works
Modi, A. C., Glauser, T. A., & Guilfoyle, S. M. (2020) · Contemporary Clinical Trials · doi:10.1016/j.cct.2020.105959 · Cited by 8 · see citing works
Moriguchi, E., Ito, M., & Nagai, T. (2015) · Brain and Development · doi:10.1016/j.braindev.2015.04.005 · Cited by 7 · see citing works
- Authors
- Sabaz, M., Lawson, J. A., Cairns, D. R., Duchowny, M. S., Resnick, T. J., Dean, P. M., & Bye, A. M. E.
- Affiliations
- UNSW Sydney (AU)
- Macquarie University (AU)
- Miami Children's Hospital (US)
- Corresponding author
- Bye, Ann M.E
- Venue
- Epilepsy & Behavior
- Publisher
- Elsevier BV
- Published
- 2003-12
- Volume
- 4
- Issue
- 6
- Pages
- 680-691
- ISSN
- 1525-5050 (ISSN-L)
- OpenAlex
- W2155356702
- Cited by
- 136
- References
- 38
- Citations by year
- 2026: 1 · 2025: 5 · 2024: 5 · 2023: 2 · 2022: 7 · 2021: 4 · 2020: 10 · 2019: 7 · 2018: 15 · 2017: 9 · 2016: 11 · 2015: 10 · 2014: 5 · 2013: 5 · 2012: 6
- FWCI
- 1.84
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsy & Behavior (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Health and Medical Research Council
- National Medical Research Council
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Epilepsy research and treatment
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Education › Health Education and Validation
- Keywords
- pediatric epilepsy, psychometric validation, cross-cultural adaptation, parent-reported quality of life, Child Health Questionnaire, internal consistency, seizure burden, postoperative seizure control, North American patients
- MeSH terms
- Activities of Daily Living, Adolescent, Analysis of Variance, Child, Child, Preschool, Demography, Disability Evaluation, Epilepsy, Female, Health Status Indicators, Humans, Inpatients, Male, Outpatients, Quality of Life, Surveys and Questionnaires, Seizures, Sensitivity and Specificity, United States, Reproducibility of Results, Statistics, Nonparametric
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
