Results of a research study evaluating WebEase, an online epilepsy self-management program
Abstract
WebEase (Epilepsy Awareness, Support, and Education) is an online epilepsy self-management program to assist people with taking medication, managing stress, and improving sleep quality. The primary study aims were to determine if those who participated in WebEase demonstrated improvements in medication adherence, perceived stress, and sleep quality. Participants were randomized to a treatment (T) or waitlist control (WCL) group (n=148). At follow-up, participants in the T group reported higher levels of medication adherence than those in the WLC group. Analyses were also conducted comparing those who had completed WebEase modules with those who had not. Those who had completed at least some modules within the WebEase program reported higher levels of self-efficacy and a trend toward significance was observed for the group×time interactions for medication adherence, perceived stress, self-management, and knowledge. The results highlight the usefulness of online tools to support self-management among people with epilepsy.
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Almost half of all study designs included a wait list control (WLC) group (n = 11, 46%).
“Almost half of all study designs included a wait list control (WLC) group (n = 11, 46%). 28,31 -33,37,38,40,42,43,45,46”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
Two studies (8%) used an Internet-based delivery method.
“Two studies (8%) used an Internetbased delivery method, 32,45”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
There were no personnel involved to be blinded in 2 studies (8%) investigating a Web-based intervention.
“There were no personnel involved to be blinded in 2 studies (8%) investigating a Web-based intervention. 32,45”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
Reasons for a rating as high ROB included quasi-randomized trial designs such as a matched design (n = 1, 4%), alternating assignment (n = 1, 4%), and allocation based on participants' application to 1 of 2 available courses and availability of spaces in offered courses in a WLC design (n = 2, 8%).
“Reasons for a rating as high ROB included quasirandomized trial designs such as a matched design (n = 1, 4%), 33 alternating assignment (n = 1, 4%), 45 and allocation based on participants ' application to 1 of 2 available courses and availability of spaces in offered courses in a WLC design (n = 2, 8%). 38,42”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
The risk of infidelity to the intervention protocol was considered very low when the delivery of the intervention was Internet-based only (n = 2, 8%).
“and very low when the delivery of the intervention was Internet-based only (n = 2, 8%). 32,45”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
Two studies (8%) reimbursed their participants for participation in the study, but these studies had a high attrition rate nonetheless.
“There were 2 studies (8%) that reimbursed their participants for participation in the study, but these studies had a high attrition rate nonetheless. 41,45”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
A rating of low ROB was confirmed based on document review of registered protocols provided by the authors for 9 studies (37%).
“A rating of low ROB was confirmed based on document review of registered protocols provided by the authors for 9 studies (37%). 32,36,40,42,44 -46,49,50”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
In the QOLIE-10 study DiIorio 45, the intervention group had a mean postintervention score of 33.8 (SD 8.0) versus control 33.3 (SD 7.5), P=.7310.
“QOLIE-10 | 33.8 | 8.0 | 33.3 | 7.5 | .7310”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [45]
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- Authors
- DiIorio, C., Bamps, Y., Walker, E. R., & Escoffery, C.
- Affiliations
- Emory University (US)
- Corresponding author
- DiIorio, Colleen
- Venue
- Epilepsy & Behavior
- Publisher
- Elsevier BV
- Published
- 2011-11
- Volume
- 22
- Issue
- 3
- Pages
- 469-474
- ISSN
- 1525-5050 (ISSN-L)
- OpenAlex
- W2080579615
- Cited by
- 124
- References
- 27
- Citations by year
- 2026: 6 · 2025: 5 · 2024: 7 · 2023: 5 · 2022: 4 · 2021: 9 · 2020: 14 · 2019: 13 · 2018: 8 · 2017: 15 · 2016: 8 · 2015: 10 · 2014: 7 · 2013: 7 · 2012: 5
- FWCI
- 8.13
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsy & Behavior (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Centers for Disease Control and Prevention
- National Center for Chronic Disease Prevention and Health Promotion (1U48-DP001909-01)
- Topics
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Medicine › Psychiatry and Mental health › Epilepsy research and treatment
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Keywords
- epilepsy, online self-management program, medication adherence, perceived stress, sleep quality, self-efficacy, patient education, digital health interventions
- MeSH terms
- Adolescent, Adult, Aged, Analysis of Variance, Epilepsy, Female, Follow-Up Studies, Humans, Male, Middle Aged, Online Systems, Patient Education as Topic, Surveys and Questionnaires, Self Care, Time Factors, Treatment Outcome, Biomedical Research, Medication Adherence, Young Adult
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