Quality assessment of online information on the use of the ketogenic diet in Epilepsy: A comparative analysis of English and Polish sources
Open accessAbstract
BACKGROUND: The Internet serves as an extensive database with easy access to diverse content, positioning it as an important source of medical information today. The aim of this study was to evaluate the quality and credibility of information available online regarding the use of the ketogenic diet in the treatment of epilepsy. METHODOLOGY: The Chrome browser and Google search engine were used to search for "ketogenic diet epilepsy" (for English texts) and "dieta ketogenna padaczka" (for Polish texts). The initial database contained 200 articles; however, after applying the exclusion criteria, a total of 151 texts were considered eligible for analysis (81 in Polish and 70 in English). The articles were evaluated using the DISCERN scale and a set of questions developed by the researchers, focusing on critical information related to the topic. RESULTS: The analysis showed that most of the texts were of medium (38.27% of the Polish articles and 31.43% of the English texts) or poor (20.99% of the Polish texts and 30.00% of the English articles) reliability. The average DISCERN score across all texts was 45.72 points, with an average score per question of 2.86. Furthermore, the analysis of the answers to the researcher's questions revealed a lack of essential information in both language groups. The most frequently mentioned topic in both Polish and English articles was the complete cessation of epileptic seizures following the ketogenic diet. At the same time, the highest percentage of correct answers (100%) was recorded for eight questions in the English texts and five questions in the Polish texts. The study also compared the quality of the content based on language, although there were no statistically significant differences between the groups. CONCLUSION: The internet provides moderate quality information about the ketogenic diet in epilepsy treatment, significant improvements are still needed, especially on medical information portals.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Comparative assessments of online sources noted that consumer-facing content frequently lacked guidance on medical supervision and monitoring requirements for the ketogenic diet, potentially encouraging unsupervised dietary interventions; in our sample, videos discussing the ketogenic diet similarly tended to present it as a simple dietary change rather than a medically supervised therapeutic干预.
“For the ketogenic diet, comparative assessments of online sources37 noted that consumer-facing content frequently lacked guidance on medical supervision and monitoring requirements, potentially encouraging unsupervised dietary interventions; in our sample, videos discussing the ketogenic diet similarly tended to present it as a simple dietary change rather than a medically supervised therapeutic”
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Scheffer, I. E., Berkovic, S., Capovilla, G., Connolly, M. B., French, J., Guilhoto, L., Hirsch, E., Jain, S., Mathern, G. W., Moshé, S. L., et al. (2017) · Epilepsia · doi:10.1111/epi.13709 · Cited by 5,054 · see citing works
Internet Health Information Seeking and the Patient-Physician Relationship: A Systematic Review
Tan, S. S.-L., & Goonawardene, N. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.5729 · Cited by 1,101 · see citing works
Smailhodzic, E., Hooijsma, W., Boonstra, A., & Langley, D. J. (2016) · BMC Health Services Research · doi:10.1186/s12913-016-1691-0 · Cited by 827 · see citing works
Kossoff, E. H., Zupec‐Kania, B. A., Auvin, S., Ballaban‐Gil, K. R., Christina Bergqvist, A. G., Blackford, R., Buchhalter, J. R., Caraballo, R. H., Cross, J. H., Dahlin, M. G., et al. (2018) · Epilepsia Open · doi:10.1002/epi4.12225 · Cited by 768 · see citing works
Consumer health information seeking in social media: a literature review
Zhao, Y., & Zhang, J. (2017) · Health Information & Libraries Journal · doi:10.1111/hir.12192 · Cited by 608 · see citing works
Kossoff, E. H., Zupec‐Kania, B., Åmark, P. E., Ballaban‐Gil, K. R., Bergqvist, A. G. C., Blackford, R., Buchhalter, J., Caraballo, R. H., Cross, J. H., Dahlin, M. G., et al. (2008) · Epilepsia · doi:10.1111/j.1528-1167.2008.01765.x · Cited by 605 · see citing works
Is YouTube a reliable source of health-related information? A systematic review
Osman, W., Mohamed, F., Elhassan, M., & Shoufan, A. (2022) · BMC Medical Education · doi:10.1186/s12909-022-03446-z · Cited by 437 · see citing works
Finney Rutten, L. J., Blake, K. D., Greenberg-Worisek, A. J., Allen, S. V., Moser, R. P., & Hesse, B. W. (2019) · Public Health Reports® · doi:10.1177/0033354919874074 · Cited by 426 · see citing works
The Potential Health Benefits of the Ketogenic Diet: A Narrative Review
Dowis, K., & Banga, S. (2021) · Nutrients · doi:10.3390/nu13051654 · Cited by 243 · see citing works
Scientific evidence underlying contraindications to the ketogenic diet: An update
Watanabe, M., Tuccinardi, D., Ernesti, I., Basciani, S., Mariani, S., Genco, A., Manfrini, S., Lubrano, C., & Gnessi, L. (2020) · Obesity Reviews · doi:10.1111/obr.13053 · Cited by 108 · see citing works
The reliability of YouTube videos in patients education for Glioblastoma Treatment
ReFaey, K., Tripathi, S., Yoon, J. W., Justice, J., Kerezoudis, P., Parney, I. F., Bendok, B. R., Chaichana, K. L., & Quiñones-Hinojosa, A. (2018) · Journal of Clinical Neuroscience · doi:10.1016/j.jocn.2018.07.001 · Cited by 99 · see citing works
Szmuda, T., Alkhater, A., Albrahim, M., Alquraya, E., Ali, S., Dunquwah, R. A., & Słoniewski, P. (2020) · Journal of Stroke and Cerebrovascular Diseases · doi:10.1016/j.jstrokecerebrovasdis.2020.105065 · Cited by 63 · see citing works
A Review of Ketogenic Diet and Lifestyle.
McGaugh, E., & Barthel, B. (2022) · PubMed Central · Cited by 55 · see citing works
Assessment of the quality of patient-oriented information over internet on testicular cancer
Prasanth, A. S., Jayarajah, U., Mohanappirian, R., & Seneviratne, S. A. (2018) · BMC Cancer · doi:10.1186/s12885-018-4436-0 · Cited by 25 · see citing works
Gras, M., Bearden, D. R., West, J., & Nabbout, R. (2024) · Epilepsia Open · doi:10.1002/epi4.12975 · Cited by 24 · see citing works
Ketogenic Diet: Parental Experiences and Expectations
Orr, E., Whitney, R., Nandeesha, N., Kossoff, E. H., & RamachandranNair, R. (2024) · Journal of Child Neurology · doi:10.1177/08830738241227066 · Cited by 19 · see citing works
Manral, M., Tripathi, S., Rawat, D., & Tripathi, M. (2024) · Journal of Epilepsy Research · doi:10.14581/jer.24001 · Cited by 10 · see citing works
Lee, R. J., O'Neill, D. C., Brassil, M., Alderson, J., & Lee, M. J. (2020) · CVIR Endovascular · doi:10.1186/s42155-020-00143-0 · Cited by 9 · see citing works
Altunışık, E., & Fırat, Y. E. (2022) · Tremor and Other Hyperkinetic Movements · doi:10.5334/tohm.727 · Cited by 6 · see citing works
Social Media as a Source of Knowledge about Gene Therapy for Spinal Muscular Atrophy
Tkaczuk, M., Zakrzewski, D. M., Król, M., Zawadzka, M., Waszak, P. M., & Mazurkiewicz‐Bełdzińska, M. (2022) · Healthcare · doi:10.3390/healthcare10122445 · Cited by 5 · see citing works
Self-citationRana, A., & Arora, M. (2023) · Nutrition and Health · doi:10.1177/02601060231193789 · Cited by 4 · see citing works
Zakrzewski, D. M., Podlejska, P., Kubziakowska, W., Dzwilewski, K., Waszak, P. M., Zawadzka, M., & Mazurkiewicz-Bełdzińska, M. (2024) · Healthcare · doi:10.3390/healthcare12080830 · Cited by 3 · see citing works
Self-citation
Flagged first, then by citations
Research works printed but not linked: 1
- E. Commission Eurostat. Key figures on Europe 2024 edition 2024 Publications Office of the European Union Luxembourg 10.2785/318624. · DOI
Cited by
Sorted by citations
Zhang, Y.-J., Guo, Y.-Y., & Wang, Y. (2026) · Scientific Reports · doi:10.1038/s41598-026-52532-5 · Cited by 3 · see citing works
“For the ketogenic diet, comparative assessments of online sources 37 noted that consumer-facing content frequently lacked guidance on medical supervision and monitoring requirements, potentially encouraging unsupervised dietary interventions; in our sample, videos discussing the ketogenic diet…”
- Authors
- Zakrzewski, D., Woźniak, J. S., Orłowska, J., Łukasiński, K., Renachowska, K., Kitewska, W., Kubziakowska, W., Sawicka, A., Zawadzka, M., & Mazurkiewicz-Bełdzińska, M.
- Affiliations
- Gdańsk Medical University (PL)
- Corresponding author
- Zakrzewski, Dawid
- Woźniak, Jan S.
- Orłowska, Justyna
- Łukasiński, Kacper
- Renachowska, Kornelia
- Kitewska, Wioleta
- Kubziakowska, Wiktoria
- Sawicka, Agnieszka
- Zawadzka, Marta
- ORCID
- Venue
- Epilepsy & Behavior
- Publisher
- Elsevier BV
- Published
- 2025-10
- Volume
- 171
- Pages
- 110622
- ISSN
- 1525-5050 (ISSN-L)
- OpenAlex
- W4412707634
- Cited by
- 0
- References
- 21
- FWCI
- 0.00
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Epilepsy & Behavior (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Medicine › Physiology › Diet and metabolism studies
- Social Sciences › Health › Social Media in Health Education
- Keywords
- ketogenic diet, epilepsy, online health information, information quality, DISCERN scale, seizure remission
- MeSH terms
- Epilepsy, Humans, Language, Poland, Internet, Diet, Ketogenic
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review