Cited by 827Social Media in Health EducationHealth Literacy and Information AccessibilityImpact of Technology on Adolescents

Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals

Open access
Smailhodzic, Edin, Hooijsma, Wyanda, Boonstra, Albert, Langley, David J.·2016·BMC Health Services Research

Abstract

BACKGROUND: Since the emergence of social media in 2004, a growing percentage of patients use this technology for health related reasons. To reflect on the alleged beneficial and potentially harmful effects of social media use by patients, the aim of this paper is to provide an overview of the extant literature on the effects of social media use for health related reasons on patients and their relationship with healthcare professionals. METHODS: We conducted a systematic literature review on empirical research regarding the effects of social media use by patients for health related reasons. The papers we included met the following selection criteria: (1) published in a peer-reviewed journal, (2) written in English, (3) full text available to the researcher, (4) contain primary empirical data, (5) the users of social media are patients, (6) the effects of patients using social media are clearly stated, (7) satisfy established quality criteria. RESULTS: Initially, a total of 1,743 articles were identified from which 22 were included in the study. From these articles six categories of patients' use of social media were identified, namely: emotional, information, esteem, network support, social comparison and emotional expression. The types of use were found to lead to seven identified types of effects on patients, namely improved self-management and control, enhanced psychological well-being, and enhanced subjective well-being, diminished subjective well-being, addiction to social media, loss of privacy, and being targeted for promotion. Social media use by patients was found to affect the healthcare professional and patient relationship, by leading to more equal communication between the patient and healthcare professional, increased switching of doctors, harmonious relationships, and suboptimal interaction between the patient and healthcare professional. CONCLUSIONS: Our review provides insights into the emerging utilization of social media in healthcare. In particular, it identifies types of use by patients as well as the effects of such use, which may differ between patients and doctors. Accordingly, our results framework and propositions can serve to guide future research, and they also have practical implications for healthcare providers and policy makers.

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Crossref · 10.1186/s12913-016-1691-0

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  • Health promotion on social media encouraged patients to seek medical attention more willingly.

    “Health promotion on social media also encouraged patients to seek medical attention more willingly [11].”

    From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [11]

    In Results > Analysis of results (page not specified), the review says that using social media to learn and communicate about health may increase patients’ willingness to seek medical attention. It does not specifically attribute that effect to health promotion on social media, and its tentative wording does not establish that promotion encouraged patients to seek care. (LLM, conf=0.86)

    Experimental — accuracy not yet measured
  • Most patients discuss information they have found online with their health care provider.

    “Most patients discuss information they have found online with their health care provider”

    From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [11]

    The Results section (‘Suboptimal interaction between the patient and healthcare professional’; page unavailable) describes patients bringing information found on social media into consultations. It does not report that most patients discuss information found online with their provider, so the prevalence claim is unsupported. (LLM, conf=0.87)

    Experimental — accuracy not yet measured
  • Physicians often react negatively to discussions involving information sourced from social media.

    “however, physicians often react negatively to discussions involving information sourced from social media [11-13].”

    From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [11]

    The Results, under “Suboptimal interaction between the patient and healthcare professional” (page unavailable), report negative reactions to social-media content raised during clinical interactions and say physicians experienced such discussions as threatening. The review identifies this effect in two articles but does not establish that physicians *often* react negatively. (LLM, conf=0.87)

    Experimental — accuracy not yet measured
  • Prior literature has highlighted both benefits and risks of social media in healthcare, but there remains limited understanding of how generational perspectives shape views of professionalism in healthcare social media use.

    “Prior literature has highlighted both benefits and risks of social media in healthcare,4–13 but there remains limited understanding of how generational perspectives shape views of professionalism in healthcare social media use.”
  • Social media use is related to shorter relationships with health care providers.

    “Social media use is also related to shorter relationships with health care providers, as online discussions prompted patients to seek specific providers [11].”

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Authors
Smailhodzic, E., Hooijsma, W., Boonstra, A., & Langley, D. J.
Affiliations
  • University of Groningen (NL)
  • Netherlands Organisation for Applied Scientific Research (NL)
Venue
BMC Health Services Research
Published
2016-08-26
Volume
16
Issue
1
Pages
442-442
ISSN
1472-6963 (ISSN-L)
OpenAlex
W2512433998
Cited by
827
References
55
Citations by year
2026: 75 · 2025: 107 · 2024: 107 · 2023: 99 · 2022: 111 · 2021: 127 · 2020: 96 · 2019: 61 · 2018: 29 · 2017: 14
FWCI
6.51
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • BMC Health Services Research (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Data Archiving and Networked Services (DANS) (acceptedVersion)
  • TNO Repository (submittedVersion)
  • University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, cc-by)
  • Repository hosted by TU Delft Library (TU Delft) (submittedVersion)
Topics
  • Social Sciences › Health › Social Media in Health Education
  • Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
  • Social Sciences › Sociology and Political Science › Impact of Technology on Adolescents
Keywords
social media use, patient self-management, psychological well-being, subjective well-being, social media addiction, privacy loss, social comparison, network support, patient-physician communication
MeSH terms
Female, Health Personnel, Humans, Male, Professional-Patient Relations, Self Care, Consumer Health Information, Social Media

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