The psychological impact of MND on patients and carers
Abstract
Nineteen patients with Motor Neurone Disease (MND) who had been living with their partners for at least two years prior to the onset of their illness, together with their partners, completed self-report questionnaires to investigate the impact of MND on both patients and carers. Physical disability and impact of the illness on aspects of everyday functioning were related to levels of anxiety and depression in the patients; psychological coping strategies adopted depended to some extent on symptom duration. Carers also demonstrated signs of anxiety and depression, with the latter correlating with aspects of the patients' functional impairment. Perceived strain in carers over caring for the patient correlated with a loss in intimacy in their relationship, which in turn was predicted by patients' cognitive/behavioural and communication changes. Changes in patients' social performance also correlated with the extent to which carers felt that the illness was affecting other areas of their life, the extent to which their partner dominated their thoughts and the extent to which they could control their reactions when thinking about the patient. Satisfaction with formal services and the number of social groups to which carers belonged correlated with carers' self-predicted future ability to cope.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
There is a possibility and danger of a loss of intimacy in relationships as MND progresses, due to role changes and dependency.
“However, the current review supports previous literature which has identified the possibility and danger of a loss of intimacy in relationships as the disease progresses, due to role changes and dependency (Goldstein et al., 1998).”
From Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis (2015) · cites this paper as Goldstein et al., 1998
Cites
The Hospital Anxiety and Depression Scale
Zigmond, A. S., & Snaith, R. P. (1983) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.1983.tb09716.x · Cited by 47,139 · see citing works
Society and the Adolescent Self-Image
Rosenberg, M. (1965) · doi:10.1515/9781400876136 · Cited by 30,126 · see citing works
The Cognitive Failures Questionnaire (CFQ) and its correlates.
Broadbent, D., Cooper, P. F., Fitzgerald, P. H., & Parkes, K. (1982) · British Journal of Clinical Psychology · doi:10.1111/j.2044-8260.1982.tb01421.x · Cited by 2,967 · see citing works
Brooks, B. R. (1994) · Journal of the Neurological Sciences · doi:10.1016/0022-510x(94)90191-0 · Cited by 2,126 · see citing works
Development and validation of the Health Locus of Control (HLC) Scale.
Wallston, B. S., Wallston, K. A., Kaplan, G. D., & Maides, S. A. (1976) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.44.4.580 · Cited by 1,251 · see citing works
Development and validation of the Health Locus of Control (HLC) Scale.
Wallston, B. S., Wallston, K. A., Kaplan, G. D., et al. (1976) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.44.4.580 · Cited by 887 · see citing works
Felton, B. J., & Revenson, T. A. (1984) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.52.3.343 · Cited by 695 · see citing works
Felton, B. J., & Revenson, T. A. (1984) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.52.3.343 · Cited by 464 · see citing works
Behavioural assessment of the dysexecutive syndrome (BADS)
Spikman, J. M., & Saan, R. (2012) · University of Groningen research database (University of Groningen / Centre for Information Technology) · Cited by 392 · see citing works
Relation between cognitive dysfunction and pseudobulbar palsy in amyotrophic lateral sclerosis.
Abrahams, S., Goldstein, L. H., Al‐Chalabi, A., Pickering, A. D., Morris, R. G., Passingham, R. E., Brooks, D. J., & Leigh, P. N. (1997) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.62.5.464 · Cited by 251 · see citing works
Self-citationAmyotrophic Lateral Sclerosis Severity Scale
Hıllel, A. D., Miller, R. M., Yorkston, K. M., McDonald, E., Norris, F. H., & Konikow, N. S. (1989) · Neuroepidemiology · doi:10.1159/000110176 · Cited by 211 · see citing works
Schiffer, R. B. (1984) · Archives of Neurology · doi:10.1001/archneur.1984.04050210065016 · Cited by 187 · see citing works
Morris, L. W., Morris, R. G., & Britton, P. G. (1988) · British Journal of Medical Psychology · doi:10.1111/j.2044-8341.1988.tb02784.x · Cited by 138 · see citing works
Psychosocial factors in Parkinson's disease
MacCarthy, B., & Brown, R. G. (1989) · British Journal of Clinical Psychology · doi:10.1111/j.2044-8260.1989.tb00810.x · Cited by 126 · see citing works
A cross-cultural comparison of health status values.
Patrick, D. L., Sittampalam, Y., Somerville, S. M., Carter, W. B., & Bergner, M. (1985) · American Journal of Public Health · doi:10.2105/ajph.75.12.1402 · Cited by 118 · see citing works
The psychological impact of motor neurone disease
Hogg, K. E., Goldstein, L. H., & Leigh, P. N. (1994) · Psychological Medicine · doi:10.1017/s003329170002777x · Cited by 116 · see citing works
Self-citationFronto-temporal Dementia: Nosology, Neuropsychology, and Neuropathology
Neary, D., & Snowden, J. S. (1996) · Brain and Cognition · doi:10.1006/brcg.1996.0041 · Cited by 114 · see citing works
Psychological Characteristics of Patients with Amyotrophic Lateral Sclerosis (ALS)
Houpt, J. L., Gould, B. S., & Norris, F. H. (1977) · Psychosomatic Medicine · doi:10.1097/00006842-197709000-00003 · Cited by 64 · see citing works
Neuropsychological Perspectives in Amyotrophic Lateral Sclerosis
Montgomery, G. K., & Erickson, L. M. (1987) · Neurologic Clinics · doi:10.1016/s0733-8619(18)30935-6 · Cited by 62 · see citing works
Short terminal admissions to a hospice
Boyd, K. J. (1993) · Palliative Medicine · doi:10.1177/026921639300700405 · Cited by 55 · see citing works
What do we really know about amyotrophic lateral sclerosis?
Swash, M., & Schwartz, M. S. (1992) · Journal of the Neurological Sciences · doi:10.1016/0022-510x(92)90258-m · Cited by 50 · see citing works
Criteria for Diagnosis of Familial Amyotrophic Lateral Sclerosis
Swash, M., & Leigh, N. (1992) · Neuromuscular Disorders · doi:10.1016/0960-8966(92)90020-7 · Cited by 47 · see citing works
Coping with motor neurone disease — an analysis using self-regulation theory
Earll, L., Johnston, M., & Mitchell, E. (1993) · Palliative Medicine · doi:10.1177/0269216393007004s05 · Cited by 42 · see citing works
Hunter, M. D., Robinson, I., & Neilson, S. (1993) · Disability and Rehabilitation · doi:10.3109/09638289309166002 · Cited by 36 · see citing works
Goonetilleke, A., de Belleroche, J., & Rj, G. (1994) · PubMed · Cited by 35 · see citing works
Böcker, F. M., Seibold, I., & Neundörfer, B. (1990) · Fortschritte der Neurologie · Psychiatrie · doi:10.1055/s-2007-1001186 · Cited by 29 · see citing works
Illness experience in a chronic disease - ALS
Cobb, A. K., & Hamera, E. (1986) · Social Science & Medicine · doi:10.1016/0277-9536(86)90111-5 · Cited by 26 · see citing works
Perspectives of motor neurone disease
Cox, D. L. (1992) · Clinical Rehabilitation · doi:10.1177/026921559200600409 · Cited by 10 · see citing works
Amyotrophic Lateral Sclerosis: Psychosocial Interventions for Patients and their Families
Sebring, D. L., & Moglia, P. (1987) · Health & Social Work · doi:10.1093/hsw/12.2.113 · Cited by 10 · see citing works
Living with amyotrophic lateral sclerosis
Esnault, M., & Tabuenca, C. (2017) · PubMed · Cited by 1 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Goldstein, L. H., & Abrahams, S. (2013) · The Lancet Neurology · doi:10.1016/s1474-4422(13)70026-7 · Cited by 421 · see citing works
Self-citationAbrahams, S., Leigh, P. N., & Goldstein, L. H. (2005) · Neurology · doi:10.1212/01.wnl.0000156519.41681.27 · Cited by 196 · see citing works
Self-citationPalliative care in amyotrophic lateral sclerosis
Borasio, G. D., Voltz, R., & Miller, R. G. (2001) · Neurologic Clinics · doi:10.1016/s0733-8619(05)70049-9 · Cited by 193 · see citing works
Caregiver burden in amyotrophic lateral sclerosis: A systematic review
de Wit, J., Bakker, L. A., van Groenestijn, A. V., van den Berg, L. H., Schröder, C., Visser-Meily, J. A., & Beelen, A. (2017) · Palliative Medicine · doi:10.1177/0269216317709965 · Cited by 153 · see citing works
Neurobehavioral symptoms in ALS are negatively related to caregivers’ burden and quality of life
Chiò, A., Vignola, A., Mastro, E., Giudici, A. D., Iazzolino, B., Calvo, A., Moglia, C., & Montuschi, A. (2010) · European Journal of Neurology · doi:10.1111/j.1468-1331.2010.03016.x · Cited by 157 · see citing works
Lillo, P., Mioshi, E., & Hodges, J. R. (2012) · BMC Neurology · doi:10.1186/1471-2377-12-156 · Cited by 157 · see citing works
The effect of noninvasive ventilation on ALS patients and their caregivers
Mustfa, N., Walsh, E., Bryant, V., Lyall, R. A., Addington-Hall, J. M., Goldstein, L. H., Donaldson, N., Polkey, M. I., Moxham, J., & Leigh, P. N. (2006) · Neurology · doi:10.1212/01.wnl.0000208957.88534.11 · Cited by 130 · see citing works
Self-citationMultidimensional apathy in ALS: validation of the Dimensional Apathy Scale
Radaković, R., Stephenson, L. J., Colville, S., Swingler, R. J., Chandran, S., & Abrahams, S. (2015) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp-2015-310772 · Cited by 127 · see citing works
Correlates of Quality of Life in people with motor neuron disease (MND)
Goldstein, L. H., Atkins, L., & Leigh, P. N. (2002) · Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders · doi:10.1080/146608202760834120 · Cited by 126 · see citing works
Self-citationGOLDSTEIN, L. H., ATKINS, L., LANDAU, S., BROWN, R., & LEIGH, P. N. (2006) · Psychological Medicine · doi:10.1017/s0033291706007124 · Cited by 123 · see citing works
Self-citationPsychological wellbeing and quality of life in amyotrophic lateral sclerosis: A review
Pagnini, F. (2012) · International Journal of Psychology · doi:10.1080/00207594.2012.691977 · Cited by 121 · see citing works
Prevalence of depression in a 12‐month consecutive sample of patients with ALS
Wicks, P. J., Abrahams, S., Masi, D., Hejda-Forde, S., Leigh, P. N., & Goldstein, L. H. (2007) · European Journal of Neurology · doi:10.1111/j.1468-1331.2007.01843.x · Cited by 117 · see citing works
Self-citationA review of psychosocial aspects of motor neurone disease
McLeod, J. E., & Clarke, D. M. (2007) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2007.03.001 · Cited by 117 · see citing works
Psychological health in patients with amyotrophic lateral sclerosis
Averill, A. J., Kasarskis, E. J., & Segerstrom, S. C. (2007) · Amyotrophic Lateral Sclerosis · doi:10.1080/17482960701374643 · Cited by 110 · see citing works
Living with motor neurone disease: lives, experiences of services and suggestions for change
Hughes, R. A., Sinha, A., Higginson, I., Down, K., & Leigh, P. N. (2005) · Health and Social Care in the Community · doi:10.1111/j.1365-2524.2005.00530.x · Cited by 105 · see citing works
Self-citationHwang, C., Weng, H.-H., Wang, L.-F., Tsai, C., & Chang, H. (2014) · Journal of Motor Behavior · doi:10.1080/00222895.2014.891970 · Cited by 103 · see citing works
Harding, R., Higginson, I. J., Leam, C., Donaldson, N., Pearce, A., George, R., Robinson, V., & Taylor, L. (2004) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2003.09.012 · Cited by 99 · see citing works
Benbrika, S., Desgranges, B., Eustache, F., & Viader, F. (2019) · Frontiers in Neuroscience · doi:10.3389/fnins.2019.00951 · Cited by 95 · see citing works
Anxiety undermines quality of life in ALS patients and caregivers
Vignola, A., Guzzo, A., Calvo, A., Moglia, C., Pessia, A., Cavallo, E., Cammarosano, S., Giacone, S., Ghiglione, P., & Chiò, A. (2008) · European Journal of Neurology · doi:10.1111/j.1468-1331.2008.02303.x · Cited by 89 · see citing works
Management of motor neurone disease
Howard, R., & Orrell, R. W. (2002) · Postgraduate Medical Journal · doi:10.1136/pmj.78.926.736 · Cited by 88 · see citing works
Comparison of instruments addressing quality of life in patients with ALS and their caregivers
Bromberg, M. B., & Forshew, D. A. (2002) · Neurology · doi:10.1212/wnl.58.2.320 · Cited by 86 · see citing works
Linse, K., Aust, E., Joos, M., & Hermann, A. (2018) · Frontiers in Neurology · doi:10.3389/fneur.2018.00603 · Cited by 74 · see citing works
Promoting excellence in end‐of‐life care in ALS
Mitsumoto, H., Bromberg, M. B., Johnston, W. S. W., Tandan, R., Byock, I. R., Lyon, M., Miller, R. G., Appel, S. H., Benditt, J., Bernat, J. L., et al. (2005) · Amyotrophic Lateral Sclerosis · doi:10.1080/14660820510028647 · Cited by 85 · see citing works
The Dynamics of Quality of Life in ALS Patients and Caregivers
Roach, A. R., Averill, A. J., Segerstrom, S. C., & Kasarskis, E. J. (2009) · Annals of Behavioral Medicine · doi:10.1007/s12160-009-9092-9 · Cited by 81 · see citing works
O'Brien, M. R., Whitehead, B. A., Jack, B., & Mitchell, J. D. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.605511 · Cited by 81 · see citing works
A Review: Carers, MND and service provision
Mockford, C., Jenkinson, C., & Fitzpatrick, R. M. (2006) · Amyotrophic Lateral Sclerosis · doi:10.1080/14660820600601028 · Cited by 79 · see citing works
Longitudinal predictors of psychological distress and self-esteem in people with ALS
Goldstein, L. H., Atkins, L., Landau, S., Brown, R. G., & Leigh, P. N. (2006) · Neurology · doi:10.1212/01.wnl.0000242886.91786.47 · Cited by 75 · see citing works
Self-citationFACTORS RELATING TO CARER BURDEN FOR FAMILIES OF PERSONS WITH MUSCULAR DYSTROPHY
Boyer, F. C., Dramé, M., Morrone, I., & Novella, J. (2006) · Journal of Rehabilitation Medicine · doi:10.1080/16501970600731578 · Cited by 73 · see citing works
Dawson, S., & Kristjanson, L. J. (2003) · Journal of Palliative Care · doi:10.1177/082585970301900107 · Cited by 71 · see citing works
Peters, M., Jenkinson, C., Doll, H., Playford, E. D., & Fitzpatrick, R. M. (2013) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-11-103 · Cited by 60 · see citing works
Stavroulakis, T., Baird, W. O., Baxter, S. K., Walsh, T., Shaw, P. J., & McDermott, C. J. (2013) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2013-000497 · Cited by 60 · see citing works
How common is depression among ALS caregivers? A longitudinal study
Rabkin, J. G., Albert, S. M., Rowland, L. P., & Mitsumoto, H. (2009) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482960802459889 · Cited by 60 · see citing works
How common is depression among ALS caregivers? A longitudinal study
Rabkin, J. G., Albert, S. M., Rowland, L. P., & Mitsumoto, H. (2008) · Amyotrophic Lateral Sclerosis · doi:10.1080/17482960802459889 · Cited by 53 · see citing works
Consonni, M., Iannaccone, S., Cerami, C., Frasson, P., Lacerenza, M. R., Lunetta, C., Corbo, M., & Cappa, S. F. (2013) · Behavioural Neurology · doi:10.1155/2013/126010 · Cited by 53 · see citing works
Quality of life, anxiety and depression in ALS patients and their next of kin
Ozanne, A., Strang, S., & Persson, L. (2010) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2010.03509.x · Cited by 52 · see citing works
Quality of life of patients with amyotrophic lateral sclerosis
Tramonti, F., Bongioanni, P., Di Bernardo, C., Davitti, S., & Rossi, B. (2012) · Psychology, Health & Medicine · doi:10.1080/13548506.2011.651149 · Cited by 47 · see citing works
Lee, J. N., Rigby, S., Burchardt, F., Thornton, E. W., Dougan, C. F., & Young, C. A. (2001) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(01)00619-0 · Cited by 46 · see citing works
Watermeyer, T., Brown, R. G., Sidle, K. C. L., Oliver, D., Allen, C., Karlsson, J., Ellis, C., Shaw, C. E., Al‐Chalabi, A., & Goldstein, L. H. (2015) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.3109/21678421.2015.1051990 · Cited by 45 · see citing works
Self-citationA two-year longitudinal study on strain and needs in caregivers of advanced ALS patients
Bruletti, G., Comini, L., Scalvini, S., Morini, R., Luisa, A., Paneroni, M., & Vitacca, M. (2014) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.3109/21678421.2014.974616 · Cited by 44 · see citing works
Caregiver bodywork: family members’ experiences of caring for a person with motor neurone disease
Ray, R., & Street, A. F. (2006) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2006.03977.x · Cited by 43 · see citing works
Bock, M., Duong, Y.-N., Kim, A., Allen, I. E., Murphy, J. M., & Lomen, C. E. (2016) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.3109/21678421.2016.1165257 · Cited by 42 · see citing works
Emotional Lability in MND: Relationship to cognition and psychopathology and impact on caregivers
Palmieri, A., Abrahams, S., Sorarú, G., Mattiuzzi, L., D’Ascenzo, C., Pegoraro, E., & Angelini, C. I. (2008) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2008.10.025 · Cited by 42 · see citing works
Pinto, C., Geraghty, A. W. A., Yardley, L., & Dennison, L. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-044724 · Cited by 40 · see citing works
Pagnini, F., Manzoni, G. M., Tagliaferri, A., & Sidey-Gibbons, C. J. (2014) · Journal of Health Psychology · doi:10.1177/1359105314530453 · Cited by 39 · see citing works
Opportunistic Annexing for Handheld Devices: Opportunities and Challenges
Pierce, J. S., Mahaney, H. E., & Abowd, G. D. (2003) · Cited by 38 · see citing works
Soundy, A., & Condon, N. (2015) · Frontiers in Psychology · doi:10.3389/fpsyg.2015.00606 · Cited by 35 · see citing works
Coping with amyotrophic lateral sclerosis; from diagnosis and during disease progression
Larsson, B. J., Nordin, K., & Nygren, I. (2015) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2015.12.042 · Cited by 34 · see citing works
Peters, M., Fitzpatrick, R. M., Doll, H., Playford, E. D., & Jenkinson, C. (2012) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482968.2011.649759 · Cited by 31 · see citing works
Marital relationships in amyotrophic lateral sclerosis
Atkins, L., Brown, R. G., Leigh, P. N., & Goldstein, L. H. (2009) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482960903307797 · Cited by 30 · see citing works
Self-citationSiciliano, M., Trojano, L., Trojsi, F., Monsurrò, M. R., Tedeschi, G., & Santangelo, G. (2019) · Muscle & Nerve · doi:10.1002/mus.26475 · Cited by 32 · see citing works
Pousada, T., Groba, B., Nieto-Riveiro, L., Pazos, A., Villoria, E. D., & Pereira, J. (2018) · Medicine · doi:10.1097/md.0000000000011039 · Cited by 27 · see citing works
Sexuality and intimacy in ALS: systematic literature review and future perspectives
Poletti, B., Carelli, L., Solca, F., Pezzati, R., Faini, A., Ticozzi, N., Mitsumoto, H., & Silani, V. (2018) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp-2018-319684 · Cited by 27 · see citing works
Tramonti, F., Bongioanni, P., Fanciullacci, C., & Rossi, B. (2012) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2012.07.006 · Cited by 27 · see citing works
Psychopathological features and suicidal ideation in amyotrophic lateral sclerosis patients
Palmieri, A., Sorarú, G., Albertini, E., Semenza, C., Vottero-Ris, F., D’Ascenzo, C., Querin, G., Zennaro, A., Pegoraro, E., & Angelini, C. I. (2010) · Neurological Sciences · doi:10.1007/s10072-010-0332-3 · Cited by 24 · see citing works
Chapter 20 Symptomatic therapy and palliative aspects of clinical care
Gordon, P. H., & Mitsumoto, H. (2007) · Handbook of clinical neurology · doi:10.1016/s0072-9752(07)80023-6 · Cited by 19 · see citing works
Rehabilitation of motor neuron disease
Simmons, Z. (2013) · Handbook of clinical neurology · doi:10.1016/b978-0-444-52901-5.00041-1 · Cited by 19 · see citing works
Managing family centered palliative care in aged and acute settings
Street, A. F., Love, A. W., & Blackford, J. (2005) · Nursing and Health Sciences · doi:10.1111/j.1442-2018.2005.00214.x · Cited by 18 · see citing works
Wang, J., Xu, S., Dai, Y., & Gao, S. (2022) · IEEE Sensors Journal · doi:10.1109/jsen.2022.3223878 · Cited by 17 · see citing works
Attributions, strain and depression in carers of partners with MND: a preliminary investigation
Goldstein, L. H., Adamson, M., Barby, T., Down, K., & Leigh, P. N. (2000) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(00)00416-0 · Cited by 17 · see citing works
Self-citationBurke, T., O’Raghallaigh, J. W., Maguire, S., Galvin, M., Heverin, M., Hardiman, O. M., & Pender, N. P. (2019) · BMJ Open · doi:10.1136/bmjopen-2019-030684 · Cited by 18 · see citing works
Paguinto, S.-G., Kasparian, N. A., Bray, P., & Farrar, M. A. (2019) · Disability and Rehabilitation · doi:10.1080/09638288.2019.1595749 · Cited by 14 · see citing works
Erbguth, F. J. (2003) · Intensivmedizin und Notfallmedizin · doi:10.1007/s00390-003-0439-3 · Cited by 13 · see citing works
Maksymowicz-Śliwińska, A., Lulé, D. E., Nieporęcki, K., Ciećwierska, K., Ludolph, A. C., & Kuźma‐Kozakiewicz, M. (2022) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.1080/21678421.2022.2126322 · Cited by 13 · see citing works
Coping in people with amyotrophic lateral sclerosis and motor neuron disease: Systematic review
Oh, J., An, J., & Park, K. (2021) · Journal of Clinical Nursing · doi:10.1111/jocn.15692 · Cited by 12 · see citing works
de Wit, J., Beelen, A., van den Heerik, M. S., van den Berg, L. H., Visser‐Meily, J. M. A., & Schröder, C. D. (2019) · Psychology Health & Medicine · doi:10.1080/13548506.2019.1686646 · Cited by 11 · see citing works
Boyer, F. C., Novella, J., Coulon, J.-M., Delmer, F., Morrone, I., Lemoussu, N., Bombart, V., Calmus, A., Cornu, J.-Y., Dulieu, V., et al. (2005) · Annales de Réadaptation et de Médecine Physique · doi:10.1016/j.annrmp.2005.08.001 · Cited by 10 · see citing works
Processing and memory for emotional and neutral material in amyotrophic lateral sclerosis
Cuddy, M., Papps, B., Thambisetty, M., Leigh, P. N., & Goldstein, L. H. (2012) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482968.2012.708936 · Cited by 10 · see citing works
Self-citationPalmer, E., Kavanagh, E., Visram, S., Bourke, A.-M., Forrest, I., & Exley, C. (2022) · Palliative Medicine · doi:10.1177/02692163221101753 · Cited by 8 · see citing works
Patients and carers experience of living with a complex neurological and palliative diagnosis
Draper, A., Day, E., Garrood, E., & Smith, P. C. (2013) · Mortality · doi:10.1080/13576275.2013.820177 · Cited by 8 · see citing works
Patient/carer perceptions of disability in motor neurone disease and carer coping
Ng, L., Kee, K., Amatya, B., & Khan, F. (2011) · International Journal of Therapy and Rehabilitation · doi:10.12968/ijtr.2011.18.10.568 · Cited by 7 · see citing works
Bereavement support and prolonged grief disorder among carers of people with motor neurone disease
O'Brien, M. R., Kirkcaldy, A., Knighting, K., Roe, B. H., & Jack, B. (2016) · British Journal of Neuroscience Nursing · doi:10.12968/bjnn.2016.12.6.268 · Cited by 7 · see citing works
Radaković, R., Carroll, A., Altiero, A., Reichwein, C., Walsh, S. M., Niven, E., Abrahams, S., & Simmons, Z. (2024) · Journal of Neurology · doi:10.1007/s00415-024-12639-z · Cited by 6 · see citing works
Economic Studies in Motor Neurone Disease: A Systematic Methodological Review
Moore, A. J., Young, C. A., & Hughes, D. A. (2016) · PharmacoEconomics · doi:10.1007/s40273-016-0478-9 · Cited by 6 · see citing works
Resilienz bei Patienten mit amyotropher Lateralsklerose (ALS) und ihren Angehörigen
Wasner, M. (2008) · Schweizer Archiv für Neurologie und Psychiatrie · doi:10.4414/sanp.2008.02003 · Cited by 5 · see citing works
Dickson, A., Karatzias, T., Gullone, A., Grandison, G., Allan, D., Park, J., & Flowers, P. (2018) · Health Psychology and Behavioral Medicine · doi:10.1080/21642850.2018.1462708 · Cited by 3 · see citing works
Gaillard, A., Tan, E. J., Carruthers, S. P., Gurvich, C., Hughes, M. E., Neill, E., Sumner, P. J., Rheenen, T. E. V., & Rossell, S. L. (2022) · Journal of Psychiatric Research · doi:10.1016/j.jpsychires.2022.02.015 · Cited by 3 · see citing works
Bongioanni, P., Borasio, G. D., Oliver, D., Romagnoli, A. D., Kapitza, K. P., Sidle, K. C. L., & Tramonti, F. (2023) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007593.pub2 · Cited by 3 · see citing works
Hill, J., & Wilson, E. (2011) · Journal of Care Services Management · doi:10.1179/175016811x13020827976843 · Cited by 2 · see citing works
Prise en charge psychologique du patient et de son entourage y compris à long terme
Roy-Bellina, S., & Camu, W. (2006) · Revue Neurologique · doi:10.1016/s0035-3787(06)75204-3 · Cited by 2 · see citing works
Le cure palliative nella Sclerosi Laterale Amiotrofica
Borasio, G. D., Voltz, R., & Miller, R. G. (2005) · Cited by 2 · see citing works
Goldstein, L. H. (2001) · Cambridge University Press eBooks · doi:10.1017/cbo9780511543579.202 · Cited by 2 · see citing works
Self-citationGelinas, D. F., & Miller, R. G. (2003) · Blue books of practical neurology · doi:10.1016/s1877-3419(09)70120-5 · Cited by 1 · see citing works
User experiences of health and social care services
Harris, J. (2003) · Cited by 1 · see citing works
Motor neurone disease: insight into experience of family carers
Freer, S. (2010) · End of Life Journal · doi:10.1136/eolc-04-01.9 · Cited by 1 · see citing works
Maybery, D. J., Reupert, A., Jaffe, I. C., Cuff, R., Duncan, Z., Dunkley‐Smith, A. J., Grant, A., Kennelly, M., Skogøy, B. E., Weimand, B. M., et al. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph192316279 · Cited by 1 · see citing works
Weller, A. B. (2009) · Digital Commons - PCOM (Philadelphia College of Osteopathic Medicine) · Cited by 1 · see citing works
Chiò, A. (2009) · Springer eBooks · doi:10.1007/978-0-387-78665-0_204 · Cited by 1 · see citing works
Supporting caregivers of people with Amyotrophic Lateral Sclerosis
de Wit, J. (2019) · Utrecht University Repository (Utrecht University) · Cited by 1 · see citing works
Ng, L. (2011) · Minerva Access (University of Melbourne)
Speech intelligibility and marital communication in Motor Neuron Disease
Joubert, K. (2010) · UpSpace Institutional Repository (University of Pretoria)
Priest, A. (2015) · Canadian Medical Association Journal · doi:10.1503/cmaj.141517
Day, E., Garrood, L., Draper, A., & Smith, P. (2013) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2013-000453b.6
Living with ALS Perspectives of patients and next of kin
Olsson, A. G. (2010) · Gothenburg University Publications Electronic Archive (Gothenburg University)
LIFE CHOICES: LIVING WITH MOTOR NEURONE DISEASE
King, S. J. (2005)
Boyer, F. C., Delmer, F., Morrone, I., Lemoussu, N., Bombart, V., Calmus, A., & Dulieu, V. (2006)
A Reference Manual for Caregivers of Individuals with ALS
Pastir, J., & Woodard, B. (2013) · UND Scholarly Commons (University of North Dakota)
Loss and transcendence in couples living with MND: An Interpretative Phenomenological Analysis
Hanley, B. (2012) · Edge Hill University
- Authors
- Goldstein, L. H., Adamson, M., Jeffrey, L., Down, K., Barby, T., Wilson, C., & Leigh, P. N.
- Affiliations
- King's College London (GB)
- Corresponding author
- Goldstein, Laura H
- Venue
- Journal of the Neurological Sciences
- Publisher
- Elsevier BV
- Published
- 1998-10
- Volume
- 160
- Pages
- S114-S121
- ISSN
- 0022-510X (ISSN-L)
- OpenAlex
- W2011280948
- Cited by
- 98
- References
- 29
- Citations by year
- 2024: 1 · 2023: 1 · 2022: 5 · 2021: 2 · 2020: 1 · 2019: 6 · 2018: 4 · 2017: 1 · 2016: 3 · 2015: 5 · 2014: 3 · 2013: 8 · 2012: 7
- FWCI
- 5.00
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of the Neurological Sciences (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Neurology › Amyotrophic Lateral Sclerosis Research
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- motor neuron disease, psychological impact, caregivers, anxiety, depression, coping strategies, relationship strain, functional disability, social performance, communication change, symptom duration
- MeSH terms
- Disability Evaluation, Female, Humans, Male, Middle Aged, Patients, Psychological Tests, Stress, Psychological, Motor Neuron Disease, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
