The psychological impact of motor neurone disease
Abstract
Self-report measures were completed by 59 individuals with motor neurone disease (MND) in order to assess whether: (a) MND affects patients' psychological well-being and quality of life; (b) if greater affective disorder is associated with greater physical disability; (c) whether accepting the illness and ways of coping have an impact on psychological distress, and (d) if beliefs over control of their health shift as the disease progresses. Results indicated that the effects of MND on everyday functioning accounted for incidence of depression and low self-esteem. Acceptance of illness was related to severity of symptoms and was a significant factor irrespective of level of physical symptomatology. Ways of coping with the illness did not relate in any significant way to severity of symptoms. Mild physical impairments were associated with an 'internal' view of control over health.
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In patients with MND, acceptance is regarded as the most common coping strategy used by patients.
“in patients with MND, acceptance is regarded as the most common coping strategy used by patients”
From Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis (2015) · cites this paper as Hogg et al., 1994
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Affective Disorders in Motor Neuron Disease: A Population-Based Study
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Patients and carers experience of living with a complex neurological and palliative diagnosis
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Economic Studies in Motor Neurone Disease: A Systematic Methodological Review
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A Comparative Study of Variables That Have an Impact on Noncancer End-of-Life Diagnoses
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Resilience, anxiety, and depression in amyotrophic lateral sclerosis patients
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LA PRAXIS DE LA INVESTIGACIÓN CUALITATIVA
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Personality and Emotional Maturity of Depressive and Obsessive Compulsive Disorders
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Évaluation psychologique et psychopathologique dans la SLA
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“ A rough and swirling sea ”: Voicing Amyotrophic Lateral Sclerosis through discourse analysis
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- Authors
- Hogg, K. E., Goldstein, L. H., & Leigh, P. N.
- Corresponding author
- Goldstein, L. H.
- Venue
- Psychological Medicine
- Publisher
- Cambridge University Press (CUP)
- Published
- 1994-08
- Volume
- 24
- Issue
- 3
- Pages
- 625-632
- ISSN
- 0033-2917 (ISSN-L)
- 1469-8978
- OpenAlex
- W1987364828
- Cited by
- 116
- References
- 33
- Citations by year
- 2026: 3 · 2024: 2 · 2023: 6 · 2022: 2 · 2021: 2 · 2020: 4 · 2019: 5 · 2018: 3 · 2017: 2 · 2016: 3 · 2015: 5 · 2014: 5 · 2013: 6 · 2012: 5
- FWCI
- 2.16
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Psychological Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Neurology › Amyotrophic Lateral Sclerosis Research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
- Keywords
- motor neuron disease, psychological well-being, quality of life, depression, self-esteem, acceptance of illness, coping, perceived control over health, physical disability, symptom severity, disease progression
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adult, Aged, Depression, Female, Persons with Disabilities, Humans, Internal-External Control, Male, Middle Aged, Neurologic Examination, Personality Inventory, Quality of Life, Self Concept, Sick Role, Social Environment, Motor Neuron Disease
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