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Cited by 9Geriatric Care and Nursing HomesDementia and Cognitive Impairment ResearchPalliative Care and End-of-Life Issues

Re-imagining care transitions for people with dementia and complex support needs in residential aged care: Using co-designed sensory objects and a focused ethnography to recognise micro transitions

Open access
Smith, Louisa, Phillipson, Lyn, Knight, Pat·2023·Ageing and Society
DOI 10.1017/s0144686x2100043x
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Abstract

Abstract The concept of transition is often used in health and lifecourse research to understand a significant movement from one state or place to another. While people with dementia experience more major transitions than their peers, they are often excluded from transitional care research. This study set out to develop meaningful transitional supports for people with dementia and complex support needs who were undertaking a significant planned geographical transition from their current residential aged care facility to a new purpose-built facility. Using the language of complex support needs acknowledges that participants in this study have a breadth and depth of need, including cognitive, physical, psycho-social and communication impairmentsandsocial and cultural disadvantage associated with ageing, institutionalisation and social isolation. To support their move, Participatory Action Research was used to support the co-creation of transitional objects (personalised scarves and blankets) with 15 people with dementia, their families and care staff. Whilst these objects were useful in supporting transition, it was not in the way we imagined. Whilst our initial focus had been on supporting a significant geographical transition, rather it was four types of micro transitions in which the transitional objects were used: small physical transitions (from one place to another); social transitions (entering or exiting personal interactions); activity transitions (moving between activities); and time travel (moving between different times). Reimagining transitions from the perspective of people with dementia and complex support needs involves the recognition of the need for supports for micro as well as macro transitions. Personalised objects to support these everyday micro transitions have the potential to make the lives of people with dementia and complex support needs more manageable, meaningful and comprehensible. Reimagining transitions in dementia in this way helps us reimagine dementia itself, as a constantly fluid, dynamic and responsive series of moments which also has implications for the re-imagination of dementia care.

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Authors
Smith, L., Phillipson, L., & Knight, P.
Affiliations
University of Wollongong (AU)
Corresponding author
Smith, Louisa
ORCID
Venue
Ageing and Society
Publisher
Cambridge University Press (CUP)
Published
2021-04-14
Volume
43
Issue
1
Pages
1-23
ISSN
  • 0144-686X (ISSN-L)
  • 1469-1779
DOI
10.1017/s0144686x2100043x
OpenAlex
W3152583101
Cited by
9
References
54
Citations by year
2026: 1 · 2025: 3 · 2024: 1 · 2023: 2 · 2022: 2
FWCI
1.41
Type
journal article
Language
en
Open access
Licence
Locations
  • Ageing and Society (publishedVersion)
  • Deakin Research Online (Deakin University) (submittedVersion)
  • Research Online (University of Wollongong) (submittedVersion)
  • Figshare (submittedVersion, cc-by)
Topics
  • Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Keywords
dementia, care transitions, nursing homes, complex support needs, transitional objects, co-design, social transition, activity transitions, time travel, dementia care, institutionalization, social isolation, family involvement, care workers

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