Cited by 333Diabetes Management and EducationHealth Literacy and Information AccessibilityMobile Health and mHealth Applications

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Do Internet‐Based Support Interventions Change Perceptions of Social Support?: An Experimental Trial of Approaches for Supporting Diabetes Self‐Management

Barrera, Manuel, Glasgow, Russell E., McKay, H. Garth, Boles, Shawn M., Feil, Edward G.·2002·American Journal of Community Psychology

DOI 10.1023/a:1016369114780

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Abstract

Internet‐based support groups are a rapidly growing segment of mutual aid programs for individuals with chronic illnesses and other challenges. Previous studies have informed us about the content of online exchanges between support group members, but we know little about the ability of these interventions to change participants' perceptions of support. A randomized trial of 160 adult Type 2 diabetes patients provided novice Internet users with computers and Internet access to 1 of 4 conditions: (a) diabetes information only, (b) a personal self‐management coach, (c) a social support intervention, or (d) a personal self‐management coach and the support intervention. After 3 months, individuals in the 2 support conditions reported significant increases in support on a diabetes‐specific support measure and a general support scale. Participants' age was significantly related to change in social support, but intervention effects were still significant after accounting for this relationship. This report is a critical first step in evaluating the long‐term effects of Internet‐based support for diabetes self‐management. The discussion identifies directions for future research.

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Background
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Background
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Im, E., Lee, S. H., & Chee, W. (2011) · Journal of Transcultural Nursing · doi:10.1177/1043659611404429 · Cited by 22
Exploring Health-related Quality of Life and Social Functioning in Adolescents with Inflammatory Bowel Diseases After Attending Camp Oasis and Participating in a Facebook Group
Plevinsky, J. M., & Greenley, R. N. (2014) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000120 · Cited by 21
“For example, in a randomized trial of 160 adults with type 2 diabetes, participants in the social support only condition experienced the greatest increase in social support in comparison with the other conditions (information only, self-management coaching only, and self-management coaching, and social support).(13) T…”
Background
Black Women in Menopausal Transition
Im, E., Lee, S. H., & Chee, W. (2010) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1111/j.1552-6909.2010.01148.x · Cited by 21
Menopausal Symptom Experience of Hispanic Midlife Women in the United States
Im, E., Lim, H., Lee, S. H., Dormire, S. L., Chee, W., & Kresta, K. (2009) · Health Care For Women International · doi:10.1080/07399330902887582 · Cited by 21
“In recent studies, the popularity of Internet communities/groups was indicated; the importance of these Internet communities/groups as a resource for researchers who are investigating middle-aged women who reside in different geographical areas was found ( Baehring, Schulze, Bornstein, & Scherbaum, 1997 ; Barrera, Gla…”
Background
Using Computers to Improve the Psychosocial Care of Implantable Cardioverter Defibrillator Recipients
Kuhl, E. A., Sears, S. F., & CONTI, J. B. (2006) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2006.00558.x · Cited by 21
“69 Further, online support networks appear to have good applicability to a wide array of medical diagnoses 70–72 and illnesses with very few risks to participants.”
Background
Helping High-Risk Youth Move through High-Risk Periods: Personally Controlled Health Records for Improving Social and Health Care Transitions
Weitzman, E. R., Kaci, L., Quinn, M., & Mandl, K. D. (2011) · Journal of Diabetes Science and Technology · doi:10.1177/193229681100500107 · Cited by 21
The use of computer mediated communication in providing patient support: A review of the research literature
Wagg, A. J., Callanan, M. M., & Hassett, A. (2018) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2018.03.010 · Cited by 20
My Activity Coach– Using video-coaching to assist a web-based computer-tailored physical activity intervention: a randomised controlled trial protocol
Alley, S., Jennings, C. A., Plotnikoff, R. C., & Vandelanotte, C. (2014) · BMC Public Health · doi:10.1186/1471-2458-14-738 · Cited by 22
“Neither method has been found to be successful at improving behavioural outcomes of the intervention, as few participants have shown to use these features [28].”
Method
Social Support and User Characteristics in Online Diabetes Communities: An In-Depth Survey of a Large-Scale Chinese Population
Liang, D., & Fan, G. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17082806 · Cited by 18
“Thus, the people with diabetes are likely to have inadequate knowledge of diabetes, and daily blood glucose monitoring is likely to be discontinuous, non-compliant, and not standardized, thus introducing many high-risk potential threats in the daily self-management and prevention of complications among patients with d…”
Background
Using Peer Support to Prevent Diabetes: Results of a Pragmatic RCT
Heisler, M., Dyer, W. T., Finertie, H., STOLL, S. C., Wiley, D. M., Turner, C. D., Sedgwick, T., Kullgren, J. T., Richardson, C. R., Hedderson, M. M., et al. (2023) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2023.02.015 · Cited by 21
Apoyo social y salud cardiovascular: adaptación de una escala de apoyo social en pacientes hipertensos y diabéticos en la atención primaria chilena
Poblete, F., Glasinovic, A., Sapag, J. C., Barticevic, N. A., Arenas, A., & Padilla, O. (2015) · Atención Primaria · doi:10.1016/j.aprim.2014.10.010 · Cited by 21
Advances in Patient Adherence to Medical Treatment Regimens: The Emerging Role of Technology in Adherence Monitoring and Management
Howren, M. B., Liew, J. R., & Christensen, A. J. (2013) · Social and Personality Psychology Compass · doi:10.1111/spc3.12033 · Cited by 19
Identifying Self-Management Support Needs for Pregnant Women With Opioid Misuse in Online Health Communities: Mixed Methods Analysis of Web Posts
Liang, O. S., Chen, Y., Bennett, D. S., & Yang, C. C. (2020) · Journal of Medical Internet Research · doi:10.2196/18296 · Cited by 20
“Multiple studies point to the utility of web-based interventions in the negotiation of self-management work [27,29,33-35].”
Background
Computer-Mediated Patient Education: Opportunities and Challenges for Supporting Women with Ovarian Cancer
Dumrongpakapakorn, P., Hopkins, K., Sherwood, P. R., Zorn, K. K., & Donovan, H. S. (2009) · Nursing Clinics of North America · doi:10.1016/j.cnur.2009.06.008 · Cited by 18
The effect of group prenatal care for women with diabetes on social support and depressive symptoms: a pilot randomized trial
Mazzoni, S., Hill, P. K., Briggs, A., Barbier, K., Cahill, A. G., Macones, G. A., Colditz, G. A., Tuuli, M. G., & Carter, E. B. (2018) · The Journal of Maternal-Fetal & Neonatal Medicine · doi:10.1080/14767058.2018.1520832 · Cited by 17
Leveraging copresence to increase the effectiveness of gamified personalized normative feedback
LaBrie, J. W., de Rutte, J. L., Boyle, S. C., Tan, C. N., & Earle, A. M. (2019) · Addictive Behaviors · doi:10.1016/j.addbeh.2019.106085 · Cited by 17
“For instance, interventions featuring peer forums (Barrera, Glasgow, McKay, Boles, & Feil, 2002), Facebook support groups (Ramo, Thrul, Chavez, Delucchi, & Prochaska, 2015) and virtual communities (Eysenbach, Powell, Englesakis, Rizo, & Stern, 2004) include copresence features which allow…”
Background
Web-based self-management with and without coaching for type 2 diabetes patients in primary care: design of a randomized controlled trial
van Vugt, M., de Wit, M., Hendriks, S. H., Roelofsen, Y., Bilo, H. J. G., & Snoek, F. J. (2013) · BMC Endocrine Disorders · doi:10.1186/1472-6823-13-53 · Cited by 19
“Moreover it can enhance satisfaction with the intervention [17-23].”
Background
The Effects of Loss of Loved Ones on Life Satisfaction Among Residents in a Southwest Retirement Community
Sun, F., Waldron, V. R., Gitelson, R. J., & Ho, C.-H. (2011) · Research on Aging · doi:10.1177/0164027511417594 · Cited by 17
Learning in a Virtual Environment to Improve Type 2 Diabetes Outcomes: Randomized Controlled Trial
Johnson, C., Melkus, G. D., Reagan, L., Pan, W., Amarasekara, S., Pereira, K. C., Hassell, N., Nowlin, S. Y., & Vorderstrasse, A. A. (2023) · JMIR Formative Research · doi:10.2196/40359 · Cited by 22
“93, sensitivity to intervention effects, and construct validity [29].”
Background
Using computerized text analysis to assess communication within an Italian type 1 diabetes Facebook group
Troncone, A., Cascella, C., Chianese, A., & Iafusco, D. (2015) · Health Psychology Open · doi:10.1177/2055102915615338 · Cited by 16
“As emphasized by Barrera et al. (2002), with additional outcome research, online groups could become validated resources to help the patients with type 1 diabetes better manage their health and cope with chronic disease by promoting and supporting daily self-management.”
Background
Novel Digital Architecture of a “Low Carb Program” for Initiating and Maintaining Long-Term Sustainable Health-Promoting Behavior Change in Patients with Type 2 Diabetes
Summers, C., & Curtis, K. (2020) · JMIR Diabetes · doi:10.2196/15030 · Cited by 16
“Researchers have examined the impact of group-based training [53,54]; peer group support that included telephone calls [55,56]; organized internet peer group forums with and without the addition of personal coach support [57,58]; and support from peers, spouse, family, and friends [59].”
Background
Diabetes self-management in online health communities: an information exchange perspective
Min, J., Chen, Y., Wang, L., He, T., & Tang, S. (2021) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-021-01561-3 · Cited by 16
“Prior studies have proved that social support can help decrease symptoms [26], our study provides further evidence on the whole health status and finds support on the role of social supports in improving the self-reported health status of diabetic patients.”
BackgroundResult
Gender-Specific Factors Influencing Diabetes Self-Care Behaviors and Health-Related Quality of Life Among Older Adults With Type 2 Diabetes in South Korea
Choi, J. S., Kim, B. H., & Chang, S. J. (2015) · Research in Gerontological Nursing · doi:10.3928/19404921-20150331-01 · Cited by 16
Design Considerations for Social Fitness Applications
Chen, Y., Chen, Y., Randriambelonoro, M., Geissbühler, A., & Pu, P. (2017) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/2998181.2998350 · Cited by 16
Support Groups in Scleroderma
Rice, D. B., & Thombs, B. D. (2019) · Current Rheumatology Reports · doi:10.1007/s11926-019-0808-y · Cited by 16
Support Exchange on the Internet: A Content Analysis of an Online Support Group for People Living with Depression
Sugimoto, S. (2013) · TSpace (University of Toronto) · Cited by 16
Social Support
de Grey, R. G. K., Uchino, B. N., Trettevik, R., Cronan, S. B., & Hogan, J. N. (2018) · Oxford University Press eBooks · doi:10.1093/obo/9780199828340-0204 · Cited by 25
Forecasting the specific providers that recipients will perceive as unusually supportive
Veenstra, A. L., Lakey, B., Cohen, J. L., Neely, L. C., Orehek, E., Barry, R. A., & Abeare, C. A. (2011) · Personal Relationships · doi:10.1111/j.1475-6811.2010.01340.x · Cited by 19
The influence of participant's self-perceived role on metabolic outcomes in a diabetes group education program
Sarkadi, A., Vég, A., & Rosenqvist, U. (2004) · Patient Education and Counseling · doi:10.1016/j.pec.2004.08.002 · Cited by 15
Meeting the Unmet Needs of Individuals With Mental Disorders: Scoping Review on Peer-to-Peer Web-Based Interactions
Storman, D., Jemioło, P., Świerz, M. J., Sawiec, Z., Antonowicz, E., Prokop‐Dorner, A., Gotfryd-Burzyńska, M., & Bała, M. M. (2022) · JMIR Mental Health · doi:10.2196/36056 · Cited by 15
“Most studies reporting evidence that websites can provide meaningful help focused on people with physical disorders such as cancer [10], diabetes mellitus [11], and Alzheimer disease [12].”
Background
The relationship between social support and health-related quality of life in patients with antiphospholipid (hughes) syndrome
Georgopoulou, S., Efraimidou, S., MacLennan, S. J., Ibrahim, F., & Cox, T. (2017) · Modern Rheumatology · doi:10.1080/14397595.2017.1317319 · Cited by 14
“Support from others, computer-based support and educational interventions combined with self-management [16,17] and internet support”
Background
Effects of Social Support Source and Effectiveness on Stress Buffering After Stem Cell Transplant
Margolis, M. A., Austin, J., Wu, L. M., Valdimarsdottir, H. B., Stanton, A. L., Rowley, S. D., Munshi, P. M., & Rini, C. K. (2019) · International Journal of Behavioral Medicine · doi:10.1007/s12529-019-09787-2 · Cited by 14
“Moreover, interventions designed to increase enacted support often demonstrate little benefit [19].”
Background
Evaluation of a Short-Term Digital Group Intervention to Relieve Mental Distress and Promote Well-Being Among Community-Dwelling Older Individuals During the COVID-19 Outbreak: A Study Protocol
Shapira, S., Yeshua‐Katz, D., Goren, G., Aharonson‐Daniel, L., Clarfield, A. M., & Sarid, O. (2021) · Frontiers in Public Health · doi:10.3389/fpubh.2021.577079 · Cited by 17
“Previous studies have usually referred to the utilization of a single digital platform such as email (26), forums and blogs (27, 28), and more recently, instant messaging (23) and videoconferencing (29).”
Background

Authors: Barrera, M., Glasgow, R. E., McKay, H. G., Boles, S. M., & Feil, E. G.
Affiliations: Oregon Research Institute (US)
AMC Cancer Research Center USA
Corresponding author: McKay, H. Garth
ORCID: Barrera, Manuel
Glasgow, Russell E.
Feil, Edward G.
Venue: American Journal of Community Psychology
Publisher: Wiley
Published: 2002-10
Volume: 30
Issue: 5
Pages: 637-654
ISSN: 0091-0562 (ISSN-L)
1573-2770
DOI: 10.1023/a:1016369114780
OpenAlex: W1593274393
Cited by: 333
References: 37
Citations by year: 2026: 3 · 2025: 3 · 2024: 5 · 2023: 10 · 2022: 8 · 2021: 13 · 2020: 16 · 2019: 12 · 2018: 12 · 2017: 24 · 2016: 14 · 2015: 18 · 2014: 19 · 2013: 22 · 2012: 16
FWCI: 5.89
Type: journal article
Language: en
Open access: closed
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: American Journal of Community Psychology (publishedVersion)
PubMed (publishedVersion)
Funders: National Institutes of Health (5r01dk051581-04)
National Institute of Diabetes and Digestive and Kidney Diseases (DK-51581)
Topics: Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
Keywords: social support, type 2 diabetes, diabetes self-management, chronic disease, age differences
MeSH terms: Adult, Aged, Analysis of Variance, Communication, Diabetes Mellitus, Type 2, Female, Humans, Male, Middle Aged, Patient Acceptance of Health Care, Patient Education as Topic, Self Care, Self-Help Groups, Social Support, Outcome Assessment, Health Care, Internet, Directive Counseling

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Do Internet‐Based Support Interventions Change Perceptions of Social Support?: An Experimental Trial of Approaches for Supporting Diabetes Self‐Management

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