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Cited by 87Dementia and Cognitive Impairment ResearchNursing care and researchIntergenerational Family Dynamics and Caregiving

The onset of dementia caregiving and its longitudinal implications.

Gaugler, Joseph E., Zarit, Steven H., Pearlin, Leonard I.·2003·Psychology and Aging
DOI 10.1037/0882-7974.18.2.171
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Abstract

This study examined patterns of entry into the caregiving role and how onset influences outcomes pertinent to the caregiving process. Using 3-year longitudinal data, the present analysis classified dementia caregivers into 1 of 4 onset sequences: those whose entry into caregiving was defined by diagnosis, those who first recognized symptoms and then obtained a diagnosis, those caregivers who first recognized symptoms and then provided care, and those who provided care prior to diagnosis or recognition. Analyses revealed that respondents who experienced a less abrupt entry into caregiving were less likely to institutionalize their relatives and reported greater decreases in well-being. The findings point to the dynamic process that defines entry into caregiving and emphasize that how individuals assume caregiving roles have implications long after onset.

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Crossref · 10.1037/0882-7974.18.2.171

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  • People with dementia required 151 hours of caregiving per month at the outset of dementia, increasing to 283 hours per month eight years later.

    “one study showed that people with dementia required 151 hours of caregiving per month at the outset of dementia and this increased to 283 hours per month eight years later.”

    From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [500]

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Authors
Gaugler, J. E., Zarit, S. H., & Pearlin, L. I.
Affiliations
  • University of Kentucky (US)
  • Pennsylvania State University (US)
  • University of Maryland, Baltimore (US)
ORCID
Venue
Psychology and Aging
Publisher
American Psychological Association (APA)
Published
2003-06
Volume
18
Issue
2
Pages
171-180
ISSN
  • 0882-7974 (ISSN-L)
  • 1939-1498
DOI
10.1037/0882-7974.18.2.171
OpenAlex
W1998803029
Cited by
87
References
48
Citations by year
2026: 3 · 2025: 3 · 2024: 2 · 2023: 1 · 2021: 2 · 2020: 2 · 2019: 2 · 2018: 2 · 2017: 4 · 2016: 7 · 2015: 1 · 2014: 9 · 2013: 4 · 2012: 3
FWCI
2.65
Type
journal article
Language
en
Open access
closed
Locations
  • Psychology and Aging (publishedVersion)
  • PubMed (publishedVersion)
Funders
National Institute of Mental Health (MH-42122)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Keywords
dementia caregiving, symptom recognition, diagnosis timing, caregiver well-being, family caregivers
MeSH terms
Adaptation, Psychological, Aged, Alzheimer Disease, Female, Follow-Up Studies, Humans, Institutionalization, Male, Middle Aged, Stress, Psychological, Time Factors, Caregivers

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