Care coordination between medical and early intervention services: family and provider perspectives

O'Neil, Margaret E.; Ideishi, Roger I.; Nixon-Cave, Kim; Kohrt, Alan

doi:10.1037/1091-7527.26.2.119

Cited by 22Interprofessional Education and CollaborationAdolescent and Pediatric HealthcareFamily and Disability Support Research

Care coordination between medical and early intervention services: family and provider perspectives

O'Neil, Margaret E., Ideishi, Roger I., Nixon-Cave, Kim, Kohrt, Alan·2008·Families, Systems, & Health

DOI 10.1037/1091-7527.26.2.119

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Abstract

The purpose of this exploratory study is to identify facilitators and barriers to care coordination between medical and early intervention (EI) providers for children with special health care needs and their families. Fifty adults participated in one of six focus groups. Participants included parents/caregivers, pediatricians, hospital therapy providers, and EI providers. Guiding questions were designed to obtain participants perceptions. All focus groups were audiotaped and transcribed. Transcript analysis included identification of open codes, grouping into axial codes and using constant comparative methods in data analysis. The two primary researchers established interrater reliability (κ = 0.85) before data analysis. The six themes that emerged from data analysis are as follows: (1) information exchange; (2) approaches toward child and family care; (3) supporting family social and emotional needs; (4) perceptions of service provider roles; (5) communication among parents and providers; and (6) understanding service delivery systems. Focus group participants suggested that provider roles should be defined and family and child strengths and needs should be addressed. Recommendations for improved care coordination were provided and include communication training and skill building and using technology to enhance communication and collaboration.

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Authors: O'Neil, M. E., Ideishi, R. I., Nixon-Cave, K., & Kohrt, A.
Affiliations: University of the Sciences (US)
Children's Healthcare of Atlanta (US)
ORCID: Ideishi, Roger I.
Venue: Families, Systems, & Health
Publisher: American Psychological Association (APA)
Published: 2008-06
Volume: 26
Issue: 2
Pages: 119-134
ISSN: 1091-7527 (ISSN-L)
1939-0602
DOI: 10.1037/1091-7527.26.2.119
OpenAlex: W2010181948
Cited by: 22
References: 41
Citations by year: 2025: 3 · 2024: 4 · 2022: 2 · 2020: 2 · 2018: 1 · 2017: 1 · 2016: 1 · 2015: 1 · 2014: 2 · 2013: 1
FWCI: 2.58
Type: journal article
Language: en
Open access: closed
Locations: Families Systems & Health (publishedVersion)
Funders: City of Philadelphia
Division of Maternal, Child and Family Health
Children with Special Health Care
Topics: Health Sciences › Health Professions › General Health Professions › Interprofessional Education and Collaboration
Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords: care coordination, early intervention, healthcare workers, children with special health care needs, family perspectives, provider perspectives, information sharing, parent-provider communication, provider role, service delivery systems, communication training

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Care coordination between medical and early intervention services: family and provider perspectives

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