Recommendations for palliative and bereavement care in the NICU: a family-centered integrative approach
Open accessAbstract
Technological advances have increased our ability to detect a life-threatening, life-limiting or lethal problem early in pregnancy, leaving parents months to anticipate a death or a prematurely born infant. Babies can also be born with unanticipated problems that could lead to death. In either scenario, perinatal palliative care should be offered as a strategy for family support. Since the preponderance of professional training focuses on saving lives, many health professionals are uncomfortable with palliative care. This article's purpose is to define best practices for the provision of family-centered perinatal and neonatal palliative care and provision of support to bereaved families experiencing anticipated and unanticipated life-limiting conditions or death of their infant. An overview of core concepts and values is presented, followed by intervention strategies to promote an integrated family-centered approach to palliative and bereavement care. The concluding section presents evidence-based recommendations.
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Included sources indicate that parents need emotional and decision-making support to face perinatal loss in multiple gestation, either following the death or when facing imminent perinatal death.
“Included sources indicate that parents need emotional and decision-making support to face this, either following the death or when facing imminent perinatal death.54,188”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [188]
One way that parents desire acknowledgment of this unique situation is to have a picture of all their children together and separately of the baby who died.
“One way that parents desire acknowledgment of this unique situation is to have a picture of all their children together and separately of the baby who died.53,188,223”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [188]
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- Authors
- Kenner, C., Press, J., & Ryan, D.
- Affiliations
- The College of New Jersey (US)
- Crouse Hospital (US)
- Elmira College (US)
- Corresponding author
- Kenner, C
- ORCID
- Kenner, C
- Venue
- Journal of Perinatology
- Published
- 2015-11-24
- Volume
- 35
- Issue
- S1
- Pages
- S19-S23
- ISSN
- 0743-8346 (ISSN-L)
- 1476-5543
- PMC
- PMC4660047
- OpenAlex
- W2200790891
- Cited by
- 161
- References
- 52
- Citations by year
- 2026: 6 · 2025: 10 · 2024: 18 · 2023: 16 · 2022: 18 · 2021: 20 · 2020: 28 · 2019: 14 · 2018: 11 · 2017: 9 · 2016: 10 · 2014: 1
- FWCI
- 1.45
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Journal of Perinatology (publishedVersion, cc-by-nc-nd)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Funders
- Loma Linda University
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Ethics and Legal Issues in Pediatric Healthcare
- Keywords
- perinatal palliative care, neonatal palliative care, bereavement support, family-centered care, neonatal intensive care unit, life-limiting illness, family support
- MeSH terms
- Adult, Attitude of Health Personnel, Bereavement, Female, Humans, Infant, Newborn, Intensive Care Units, Neonatal, Male, Palliative Care, Parents, Pregnancy, Professional-Family Relations, Social Support, Perinatal Care, Emotional Intelligence
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