Sexual Orientation Demographic Data in a Clinical Cohort of Transgender Patients
Open accessAbstract
Background There are specific issues regarding sexual orientation (SO) collection and analysis among transgender and nonbinary patients. A limitation to meaningful SO and gender identity (GI) data collection is their consideration as a fixed trait or demographic data point. Methods A de-identified patient database from a single electronic health record (EHR) that allows for searching any discrete data point in the EHR was used to query demographic data (sex assigned at birth and current GI) for transgender individuals from January 2011 to March 2020 at a large urban tertiary care academic health center. Results A cohort of transgender individuals were identified by using EHR data from a two-step demographic question. Almost half of male identified (46.70%, n = 85) and female identified (47.51%, n = 86) individuals had “heterosexual/straight” input for SO. Overall, male and female identified (i.e., binary) GI aggregate categories had similar SO responses. Assigned male at birth (AMAB) nonbinary individuals (n = 6) had “homosexual/gay” SO data input. Assigned female at birth (AFAB) nonbinary individuals (n = 56) had almost half “something else” SO data input (41.67%, n = 15). Individuals with “choose not to disclose” for GI (n = 249) almost all had “choose not to disclose” SO data (96.27%, n = 232). Conclusion Current SO categories do not fully capture transgender individuals' identities and experiences, and limit the clinical and epidemiological utility of collecting this data in the current form. Anatomical assumptions based on SO should be seen as a potential shortcoming in over-reliance on SO as an indicator of screening needs and risk factors.
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Studies have shown that transgender people endorse diverse sexual identities, including selecting 'something else' when this is offered as a response option.
“Further, studies have shown that transgender people endorse diverse sexual identities, including selecting “something else” when this is offered as a response option [10, 11].”
From Sexual orientation in transgender adults in the United States (2023) · cites this paper as [11]
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- Authors
- Dubin, S., Cook, T. E., Radix, A., & Greene, R. E.
- Affiliations
- NYU Langone Health (US)
- New York University (US)
- Corresponding author
- Dubin, Samuel
- Venue
- Applied Clinical Informatics
- Publisher
- Georg Thieme Verlag KG
- Published
- 2021-03
- Volume
- 12
- Issue
- 02
- Pages
- 222-228
- ISSN
- 1869-0327 (ISSN-L)
- PMC
- PMC7968987
- OpenAlex
- W3138009360
- Cited by
- 8
- References
- 18
- Citations by year
- 2026: 2 · 2025: 2 · 2023: 3 · 2022: 1
- FWCI
- 0.98
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Applied Clinical Informatics (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Social Psychology › LGBTQ Health, Identity, and Policy
- Social Sciences › Gender Studies › Gender, Sexuality, and Education
- Social Sciences › Gender Studies › Gender and Feminist Studies
- Keywords
- sexual orientation, transgender patients, non-binary people, gender identity, sex assigned at birth, electronic health record data, demographic data collection, data quality, clinical cohort, coming out
- MeSH terms
- Sexual and Gender Minorities, Demography, Female, Gender Identity, Humans, Male, Sexual Behavior, Transgender Persons
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