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Cited by 288LGBTQ Health, Identity, and PolicyHIV/AIDS Research and InterventionsGender, Sexuality, and Education

Do ask, do tell: high levels of acceptability by patients of routine collection of sexual orientation and gender identity data in four diverse American community health centers.

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Cahill, Sean, Singal, Robbie, Grasso, Chris, King, Dana, Mayer, Kenneth, Baker, Kellan, Makadon, Harvey·2014·PLoS ONE
DOI 10.1371/journal.pone.0107104PMC PMC4157837
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Abstract

BACKGROUND: The Institute of Medicine and The Joint Commission have recommended asking sexual orientation and gender identity (SOGI) questions in clinical settings and including such data in Electronic Health Records (EHRs). This is increasingly viewed as a critical step toward systematically documenting and addressing health disparities affecting lesbian, gay, bisexual, and transgender (LGBT) people. The U.S. government is currently considering whether to include SOGI data collection in the Stage 3 guidelines for the incentive program promoting meaningful use of EHR. However, some have questioned whether acceptable standard measures to collect SOGI data in clinical settings exist. METHODS: In order to better understand how a diverse group of patients would respond if SOGI questions were asked in primary care settings, 301 randomly selected patients receiving primary care at four health centers across the U.S. were asked SOGI questions and then asked follow-up questions. This sample was mainly heterosexual, racially diverse, and geographically and regionally broad. RESULTS: There was a strong consensus among patients surveyed about the importance of asking SOGI questions. Most of the LGBT respondents thought that the questions presented on the survey allowed them to accurately document their SOGI. Most respondents--heterosexual and LGBT--answered the questions, and said that they would answer such questions in the future. While there were some age-related differences, respondents of all ages overwhelmingly expressed support for asking SOGI questions and understood the importance of providers' knowing their patients' SOGI. CONCLUSIONS: Given current deliberations within national health care regulatory bodies and the government's increased attention to LGBT health disparities, the finding that patients can and will answer SOGI questions has important implications for public policy. This study provides evidence that integrating SOGI data collection into the meaningful use requirements is both acceptable to diverse samples of patients, including heterosexuals, and feasible.

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  • Assessment of gender identity and sex assigned at birth has been validated among diverse populations, has been reported to be acceptable, and might result in increased patients identifying as transgender.

    “Assessment of gender identity and sex assigned at birth has been validated among diverse populations, has been reported to be acceptable (335,336), and might result in increased patients identifying as transgender (337).”

    From Sexually Transmitted Infections Treatment Guidelines, 2021 (2021) · cites this paper as [335]

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Research works printed but not linked: 1

  1. [20]Institute of Medicine (2012 12 October) Sexual orientation and gender identity data collection in electronic health records. A workshop. Washington, DC: National Academy of Sciences.

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Authors
Cahill, S., Singal, R., Grasso, C., King, D., Mayer, K., Baker, K., & Makadon, H.
Affiliations
  • Beth Israel Deaconess Medical Center (US)
  • Center for American Progress (US)
  • Harvard University (US)
ORCID
Venue
PLoS ONE
Publisher
Public Library of Science (PLoS)
Published
2014-09-08
Volume
9
Issue
9
Pages
e107104
ISSN
1932-6203 (ISSN-L)
DOI
10.1371/journal.pone.0107104
PMC
PMC4157837
OpenAlex
W1990171754
Cited by
288
References
19
Citations by year
2026: 16 · 2025: 26 · 2024: 27 · 2023: 35 · 2022: 32 · 2021: 26 · 2020: 29 · 2019: 26 · 2018: 21 · 2017: 15 · 2016: 23 · 2015: 11 · 2014: 1
FWCI
24.73
Type
journal article
Language
en
Open access
Licence
Locations
  • PLoS ONE (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Digital Access to Scholarship at Harvard (DASH) (Harvard University) (submittedVersion, cc-by)
  • RePEc: Research Papers in Economics (submittedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
U.S. Public Health Service (UB2HA20233)
Topics
  • Social Sciences › Psychology › Social Psychology › LGBTQ Health, Identity, and Policy
  • Health Sciences › Medicine › Infectious Diseases › HIV/AIDS Research and Interventions
  • Social Sciences › Gender Studies › Gender, Sexuality, and Education
Keywords
patient acceptability, LGBT health disparities, electronic health records, meaningful use, primary care, community health centers, health policy, age differences
MeSH terms
Adolescent, Adult, Aged, Community Health Centers, Data Collection, Female, Gender Identity, Humans, Male, Middle Aged, Patient Acceptance of Health Care, Sexual Behavior, United States, Sexuality, Young Adult, Self Report

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