The DOI matches its Crossref record.
Advance Directives and Outcomes of Surrogate Decision Making before Death
Open accessAbstract
BACKGROUND: Recent discussions about health care reform have raised questions regarding the value of advance directives. METHODS: We used data from survey proxies in the Health and Retirement Study involving adults 60 years of age or older who had died between 2000 and 2006 to determine the prevalence of the need for decision making and lost decision-making capacity and to test the association between preferences documented in advance directives and outcomes of surrogate decision making. RESULTS: Of 3746 subjects, 42.5% required decision making, of whom 70.3% lacked decision-making capacity and 67.6% of those subjects, in turn, had advance directives. Subjects who had living wills were more likely to want limited care (92.7%) or comfort care (96.2%) than all care possible (1.9%); 83.2% of subjects who requested limited care and 97.1% of subjects who requested comfort care received care consistent with their preferences. Among the 10 subjects who requested all care possible, only 5 received it; however, subjects who requested all care possible were far more likely to receive aggressive care as compared with those who did not request it (adjusted odds ratio, 22.62; 95% confidence interval [CI], 4.45 to 115.00). Subjects with living wills were less likely to receive all care possible (adjusted odds ratio, 0.33; 95% CI, 0.19 to 0.56) than were subjects without living wills. Subjects who had assigned a durable power of attorney for health care were less likely to die in a hospital (adjusted odds ratio, 0.72; 95% CI, 0.55 to 0.93) or receive all care possible (adjusted odds ratio, 0.54; 95% CI, 0.34 to 0.86) than were subjects who had not assigned a durable power of attorney for health care. CONCLUSIONS: Between 2000 and 2006, many elderly Americans needed decision making near the end of life at a time when most lacked the capacity to make decisions. Patients who had prepared advance directives received care that was strongly associated with their preferences. These findings support the continued use of advance directives.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
No references could be resolved yet.
Research works printed but not linked: 17
- Brown BA, 2003, J Gerontol Nurs, 29, 4, 10.3928/0098-9134-20030901-04 · DOI
- 10.1111/j.1532-5415.2007.01045.x · DOI · Paper page
- 10.2307/3527683 · DOI · Paper page
- 10.1056/NEJM199002013220506 · DOI · Paper page
- Schneiderman LJ, 1992, Ann Intern Med, 117, 599, 10.7326/0003-4819-117-7-599 · DOI · Paper page
- Teno JM, 1994, J Clin Ethics, 5, 23, 10.1086/JCE199405106 · DOI
- 10.1001/archinte.145.6.1115 · DOI
- 10.1097/00003246-199804000-00018 · DOI
- 10.1056/NEJM199103283241304 · DOI · Paper page
- Degenholtz HB, 2004, Ann Intern Med, 141, 113, 10.7326/0003-4819-141-2-200407200-00009 · DOI
- 10.2307/146277 · DOI · Paper page
- 10.1093/geronb/52B.Special_Issue.1 · DOI · Paper page
- 10.1001/jama.267.1.59 · DOI
- 10.1001/jama.291.1.88 · DOI · Paper page
- Smucker WD, 1993, J Am Board Fam Pract, 6, 473
- Edinger W, 1992, J Fam Pract, 35, 650
- 10.1016/S0885-3924(01)00334-7 · DOI · Paper page
Cited by
Spruit, M. A., Singh, S. J., Garvey, C., ZuWallack, R., Nici, L., Rochester, C., Hill, K., Holland, A. E., Lareau, S. C., Man, W. D.-C., et al. (2013) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.201309-1634st · Cited by 3,938
Sudore, R. L., Lum, H. D., You, J. J., Hanson, L. C., Meier, D. E., Pantilat, S. Z., Matlock, D. D., Rietjens, J. A. C., Korfage, I. J., Ritchie, C. S., et al. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2016.12.331 · Cited by 1,726
“The panel recognized that many patients retain their decision making capacity at the end of life.(1) Therefore, patient preparation, through self-reflection and communication of values and goals, helps to clarify care preferences both for the patient as they subsequently face important decisions and the surrogate as t…”
BackgroundThe effects of advance care planning on end-of-life care: A systematic review
Brinkman-Stoppelenburg, A., Rietjens, J. A., & van der Heide, A. (2014) · Palliative Medicine · doi:10.1177/0269216314526272 · Cited by 1,480
Communication About Serious Illness Care Goals: A Review and Synthesis of Best Practices
Bernacki, R. E., & Block, S. D. (2014) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2014.5271 · Cited by 1,422
Rietjens, J. A. C., Sudore, R. L., Connolly, M., van Delden, J. J., Drickamer, M. A., Droger, M., van der Heide, A., Heyland, D. K., Houttekier, D., Janssen, D. J. A., et al. (2017) · The Lancet Oncology · doi:10.1016/s1470-2045(17)30582-x · Cited by 1,371
Trajectories of disability in the last year of life
Gill, T. M., Gahbauer, E. A., Han, L., & Allore, H. G. (2010) · New England Journal of Medicine · doi:10.1056/nejmoa0909087 · Cited by 894
Efficacy of advance care planning: a systematic review and meta-analysis.
Houben, C. H. M., Spruit, M. A., Groenen, M. T. J., Wouters, E. F. M., & Janssen, D. J. A. (2014) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2014.01.008 · Cited by 765
Systematic Review: The Effect on Surrogates of Making Treatment Decisions for Others
Wendler, D., & Rid, A. (2011) · Annals of Internal Medicine · doi:10.7326/0003-4819-154-5-201103010-00008 · Cited by 691
McMahan, R. D., Tellez, I., & Sudore, R. L. (2021) · Journal of the American Geriatrics Society · doi:10.1111/jgs.16801 · Cited by 506
A randomized trial of a family-support intervention in intensive care units
White, D. B., Angus, D. C., Shields, A.-M., Buddadhumaruk, P., Pidro, C., Paner, C., Chaitin, E., Chang, C.-C. H., Pike, F., Weissfeld, L., et al. (2018) · New England Journal of Medicine · doi:10.1056/nejmoa1802637 · Cited by 524
Failure to engage hospitalized elderly patients and their families in advance care planning
Heyland, D. K. (2013) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.180 · Cited by 496
Enzinger, A. C., Zhang, B., Schrag, D., & Prigerson, H. G. (2015) · Journal of Clinical Oncology · doi:10.1200/jco.2015.61.9239 · Cited by 379
Sinuff, T., Dodek, P., You, J. J., Barwich, D., Tayler, C., Downar, J., Hartwick, M., Frank, C., Stelfox, H. T., & Heyland, D. K. (2015) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2014.12.007 · Cited by 241
White, D. B., Ernecoff, N., Buddadhumaruk, P., Hong, S., Weissfeld, L., Curtis, J. R., Luce, J. M., & Lo, B. (2016) · JAMA · doi:10.1001/jama.2016.5351 · Cited by 232
Weathers, E., O’Caoimh, R., Cornally, N., Fitzgerald, C., Kearns, T., Coffey, A., Daly, E., O’Sullivan, R., McGlade, C., & Molloy, D. W. (2016) · Maturitas · doi:10.1016/j.maturitas.2016.06.016 · Cited by 212
Klingler, C., in der Schmitten, J., & Marckmann, G. (2016) · Palliative Medicine · doi:10.1177/0269216315601346 · Cited by 201
Allen, L. A., Hernandez, A. F., Peterson, E. D., Curtis, L. H., Dai, D., Masoudi, F. A., Bhatt, D. L., Heidenreich, P. A., & Fonarow, G. C. (2011) · Circulation: Heart Failure · doi:10.1161/circheartfailure.110.959171 · Cited by 198
Physicians’ Views on Advance Care Planning and End-of-Life Care Conversations.
Fulmer, T., Escobedo, M., Berman, A., Koren, M. J., Hernández, S., & Hult, A. (2018) · Journal of the American Geriatrics Society · doi:10.1111/jgs.15374 · Cited by 173
Scarborough (2012) · doi:10.1097/sla.0b013e31826578fb · Cited by 98
Depression and end-of-life care for patients with cancer
Rosenstein, D. L. (2011) · Dialogues in Clinical Neuroscience · doi:10.31887/dcns.2011.13.1/drosenstein · Cited by 92
El-Jawahri, A., Mitchell, S. L., Paasche-Orlow, M. K., Temel, J. S., Jackson, V. A., Rutledge, R. R., Parikh, M., Davis, A. D., Gillick, M. R., Barry, M. J., et al. (2015) · Journal of General Internal Medicine · doi:10.1007/s11606-015-3200-2 · Cited by 95
Curtis, J. R., Lee, R. Y., Brumback, L. C., Kross, E. K., Downey, L., Torrence, J., LeDuc, N., Mallon Andrews, K., Im, J., Heywood, J., et al. (2023) · JAMA · doi:10.1001/jama.2023.8812 · Cited by 91
Su, Y., Yuki, M., & Hirayama, K. (2020) · Patient Education and Counseling · doi:10.1016/j.pec.2019.12.011 · Cited by 88
Wilson, C. J., Newman, J., Tapper, S., Lai, S., Cheng, P. H., Wu, F. M., & Tai-Seale, M. (2013) · Journal of Palliative Medicine · doi:10.1089/jpm.2012.0472 · Cited by 86
Ethical challenges in resuscitation
Mentzelopoulos, S. D., Slowther, A.-M., Fritz, Z., Sandroni, C., Xanthos, T., Callaway, C., Perkins, G. D., Newgard, C., Ischaki, E., Greif, R., et al. (2018) · Intensive Care Medicine · doi:10.1007/s00134-018-5202-0 · Cited by 71
Advance care planning in patients with primary malignant brain tumors: a systematic review
Song, K., Amatya, B., Voutier, C., & Khan, F. (2016) · Frontiers in Oncology · doi:10.3389/fonc.2016.00223 · Cited by 60
Shared decision-making in acute surgical illness: the surgeon’s perspective.
Morris, R. S., Ruck, J. M., Conca-Cheng, A. M., Smith, T. J., Carver, T. W., & Johnston, F. M. (2018) · Journal of the American College of Surgeons · doi:10.1016/j.jamcollsurg.2018.01.008 · Cited by 56
Levoy, K., Salani, D. A., & Buck, H. (2019) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2018.10.502 · Cited by 51
Zheng, R.-J., Fu, Y., Xiang, Q.-F., Yang, M., Chen, L., Shi, Y.-K., Yu, C.-H., & Li, J.-Y. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-016-3223-1 · Cited by 48
How do clinicians prepare family members for the role of surrogate decision-maker?
Cunningham, T. V., Scheunemann, L. P., Arnold, R. M., & White, D. (2018) · Journal of Medical Ethics · doi:10.1136/medethics-2016-103808 · Cited by 45
Code status and resuscitation options in the electronic health record
Bhatia, H. L., Patel, N. R., Choma, N. N., Grande, J., Giuse, D. A., & Lehmann, C. U. (2015) · Resuscitation · doi:10.1016/j.resuscitation.2014.10.022 · Cited by 35
Lum, H. D., Dukes, J., Church, S., Abbott, J., & Youngwerth, J. M. (2018) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909117696245 · Cited by 35
Lambert South, A., & Elton, J. (2017) · Behavioral Sciences · doi:10.3390/bs7020024 · Cited by 34
Frequency and clinical relevance of inconsistent code status documentation
Weinerman, A. S., Dhalla, I. A., Kiss, A., Etchells, E. E., Wu, R. C., & Wong, B. M. (2015) · Journal of Hospital Medicine · doi:10.1002/jhm.2348 · Cited by 27
Randomized Controlled Trial of Advance Care Planning Video Decision Aid for the General Population
Kang, E., Lee, J., Choo, J., Min, J., & Yun, Y. H. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2019.12.353 · Cited by 26
Cottingham, A. H., Beck-Coon, K., Bernat, J. K., Helft, P. R., Schmidt, K., Shields, C. G., Torke, A. M., & Johns, S. A. (2019) · Palliative and Supportive Care · doi:10.1017/s1478951518000354 · Cited by 24
Surrogate Decision Making: Do We Have to Trade Off Accuracy and Procedural Satisfaction?
Frey, R., Hertwig, R., & Herzog, S. M. (2014) · Medical Decision Making · doi:10.1177/0272989x12471729 · Cited by 24
Seaman, J. B., Arnold, R. M., Buddadhumaruk, P., Shields, A.-M., Gustafson, R. M., Felman, K., Newdick, W., SanPedro, R., Mackenzie, S., Morse, J. Q., et al. (2018) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201803-157sd · Cited by 22
Abe, A., Kobayashi, M., Kohno, T., Takeuchi, M., Hashiguchi, S., Mimura, M., & Fujisawa, D. (2021) · BMC Palliative Care · doi:10.1186/s12904-020-00698-8 · Cited by 18
Wendler, D., Wesley, R., Pavlick, M., & Rid, A. (2016) · AJOB Empirical Bioethics · doi:10.1080/23294515.2016.1182235 · Cited by 15
Surrogate end-of-life care decision makers' postbereavement grief and guilt responses
Lovell, G. P., Smith, T., & Kannis-Dymand, L. (2015) · Death Studies · doi:10.1080/07481187.2015.1047062 · Cited by 13
Curtis, J. R., Lee, R. Y., Brumback, L. C., Kross, E. K., Downey, L., Torrence, J., Heywood, J., LeDuc, N., Mallon Andrews, K., Im, J., et al. (2022) · Contemporary Clinical Trials · doi:10.1016/j.cct.2022.106879 · Cited by 12
Dupanovic, M. (2015) · Encyclopedia of Trauma Care · doi:10.1007/978-3-642-29613-0_456
Metadata
- Authors
- Silveira, M. J., Kim, S. Y. H., & Langa, K. M.
- Venue
- New England Journal of Medicine
- Publisher
- Massachusetts Medical Society
- Published
- 2010-04
- Volume
- 362
- Issue
- 13
- Pages
- 1211-1218
- ISSN
- 0028-4793 (ISSN-L)
- 1533-4406
- OpenAlex
- W2153738735
- Cited by
- 1,292
- References
- 0
- FWCI
- 73.95
- Type
- journal article
- Language
- en
- Open access
- bronze
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
Data sources
Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.