CONTINUUM OF CARE FOR ALZHEIMER'S DISEASE: A NURSE EDUCATION AND COUNSELING PROGRAM
Abstract
This study evaluated a one year long course education and counseling program with 93 family caregivers of elders afflicted with Alzheimer's disease. The elders had received treatment for agitation in an inpatient setting and were subsequently discharged to the caregivers' home. Caregivers were randomly assigned to an experimental group (n = 68) and a control group (n = 25). Baseline assessments (Time 0) were conducted while the elder was an inpatient. Postdischarge interventions and assessments were conducted at 2 weeks, 6 weeks, 12 weeks, and 6 and 12 months (Times 1-5 respectively). There were no significant treatment effects for care recipient agitation, caregiver stress, depression, and physical health, and no significant differences between groups in rates of institutionalization for afflicted elders. Longitudinal data, however, revealed several important trends. Afflicted elders' agitation rose steadily for control group subjects at Times 3 through 5 but declined for experimental group subjects. Caregiver depression increased for control group subjects at Time 5, but declined for experimental group subjects. Caregiver physical health declined for control group subjects at Times 4 and 5 but was maintained for experimental group subjects. A significantly higher number of afflicted elders were still at home among experimental group subjects at the end of the one year study. The difficulties in demonstrating efficacy of interventions with family caregivers of Alzheimer's disease are discussed. Finally, the issue of data collection being perceived as support by control group subjects is evaluated.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Training in communication skills and person-centred care without supervision was ineffective.
“Training in communication skills and person-centred care without supervision was ineffective. 49,50”
From Non-pharmacological interventions for agitation in dementia: systematic review of randomised controlled trials (2014) · cites this paper as [49]
Cites
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975) · Journal of Psychiatric Research · doi:10.1016/0022-3956(75)90026-6 · Cited by 88,282 · see citing works
The CES-D Scale: A Self-Report Depression Scale for Research in the General Population
Radloff, L. S. (1977) · Applied Psychological Measurement · doi:10.1177/014662167700100306 · Cited by 53,267 · see citing works
Psychometric theory (2nd ed.).
Sitgreaves, R. (1979) · Contemporary Psychology · doi:10.1037/018882 · Cited by 14,384 · see citing works
Blessed, G., Tomlinson, B. E., & Roth, M. (1968) · British Journal of Psychiatry · doi:10.1192/bjp.114.512.797 · Cited by 4,117 · see citing works
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study
Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340 · see citing works
Statistical methods for health care research
Munro, B. H. (1986) · Medical Entomology and Zoology · Cited by 2,288 · see citing works
A Research and Service Oriented Multilevel Assessment Instrument
Lawton, M. P., Moss, M. S., Fulcomer, M. C., & Kleban, M. H. (1982) · Journal of Gerontology · doi:10.1093/geronj/37.1.91 · Cited by 990 · see citing works
A Family Intervention to Delay Nursing Home Placement of Patients With Alzheimer Disease
Mittelman, M. S. (1996) · JAMA · doi:10.1001/jama.1996.03540210033030 · Cited by 825 · see citing works
The US economic and social costs of Alzheimer's disease revisited.
Ernst, R. L., & Hay, J. W. (1994) · American Journal of Public Health · doi:10.2105/ajph.84.8.1261 · Cited by 593 · see citing works
A Comprehensive Support Program: Effect on Depression in Spouse-Caregivers of AD Patients
Mittelman, M. S., Ferris, S. H., Shulman, E., Steinberg, G., Ambinder, A., Mackell, J. A., & Cohen, J. (1995) · The Gerontologist · doi:10.1093/geront/35.6.792 · Cited by 396 · see citing works
Estimated Prevalence of Alzheimer's Disease in the United States
Evans, D. A. (1990) · Milbank Quarterly · doi:10.2307/3350099 · Cited by 356 · see citing works
A Controlled Study of Respite Service for Caregivers of Alzheimer's Patients
Lawton, M. P., Brody, E., & Saperstein, A. (1989) · The Gerontologist · doi:10.1093/geront/29.1.8 · Cited by 344 · see citing works
Profiles In Caregiving The Unexpected Career
Junker, J. (2016) · Choice Reviews Online · doi:10.5860/choice.33-5748 · Cited by 332 · see citing works
Bourgeois, M. S., Schulz, R., & Burgio, L. D. (1996) · The International Journal of Aging and Human Development · doi:10.2190/an6l-6qbq-76g0-0n9a · Cited by 274 · see citing works
Group Interventions To Support Family Caregivers: A Review and Analysis
Toseland, R. W., & Rossiter, C. M. (1989) · The Gerontologist · doi:10.1093/geront/29.4.438 · Cited by 232 · see citing works
Caregiver Burden and Nursing Home Admission of Frail Elderly Persons
McFall, S., & Miller, B. H. (1992) · Journal of Gerontology · doi:10.1093/geronj/47.2.s73 · Cited by 184 · see citing works
Functional reach: J.A new clinical measure of balance
Duncan, P. (1990) · The Journals of Gerontology Series A · Cited by 183 · see citing works
Caregiving Hassles Scale: Assessing the Daily Hassles of Caring for a Family Member With Dementia
Kinney, J. M., & Stephens, M. A. P. (1989) · The Gerontologist · doi:10.1093/geront/29.3.328 · Cited by 180 · see citing works
Mental and Physical Health of Caregiving Spouses Development of a Causal Model
Pruchno, R. A., Kleban, M. H., Michaels, J. E., & Dempsey, N. P. (1990) · Journal of Gerontology · doi:10.1093/geronj/45.5.p192 · Cited by 163 · see citing works
A nursing intervention to decrease depression in family caregivers of persons with dementia
Buckwalter, K. C., Gerdner, L. A., Kohout, F. J., Hall, G. R., Kelly, A. W., Richards, B. S., & Sime, M. (1999) · Archives of Psychiatric Nursing · doi:10.1016/s0883-9417(99)80024-7 · Cited by 123 · see citing works
The Natural History of Alzheimer's Disease: A Brain Bank Study
Jost, B. C., & Grossberg, G. T. (1995) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1995.tb07401.x · Cited by 123 · see citing works
Management of Behavior Disturbance in Alzheimer Disease
Teri, L. L., Rabins, P. V., Whitehouse, P. J., Berg, L., Reisberg, ., Sunderland, T., Eichelman, B. S., & Phelps, C. H. (1992) · Alzheimer Disease & Associated Disorders · doi:10.1097/00002093-199206020-00003 · Cited by 121 · see citing works
Racial Differences in Family Burden
Morycz, R. K., Malloy, J., Bozich, M., & Martz, P. (1987) · Journal of Gerontological Social Work · doi:10.1300/j083v10n01_10 · Cited by 110 · see citing works
Institutionalization of Alzheimer's Disease Patients
Ferris, S. H., Steinberg, G., Shulman, E., Kahn, R. L., & Reisberg, . (1987) · Home Health Care Services Quarterly · doi:10.1300/j027v08n01_03 · Cited by 53 · see citing works
Weinberger, M. M., Darnell, J. C., Martz, B. L., et al. (1986) · Journal of Gerontology · doi:10.1093/geronj/41.1.114 · Cited by 34 · see citing works
Mintzer, J. E., Lewis, L., Pennypaker, L., et al. (1993) · The Gerontologist · doi:10.1093/geront/33.6.801 · Cited by 30 · see citing works
Telecommunication Interventions for Caregivers of Elders with Dementia
Wright, L. K., Bennet, G., & Gramling, L. F. (1998) · Advances in Nursing Science · doi:10.1097/00012272-199803000-00009 · Cited by 25 · see citing works
Self-citationCaregiving and dementia: The impact of telephone helpline services
Coyne, A. C., Potenza, M., & Nose, M. A. B. (1995) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/153331759501000407 · Cited by 12 · see citing works
Family Caregiving: Telling It Like It Is
Miller, B. H. (1998) · The Gerontologist · doi:10.1093/geront/38.4.510 · Cited by 10 · see citing works
The Physical and Mental Health of Women Caregivers of Older Adults
Wykle, M. L. (1994) · Journal of Gerontological Nursing · doi:10.3928/0098-9134-19940301-11 · Cited by 8 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Livingston, G., Kelly, L., Lewis-Holmes, E., Baio, G., Morris, S., Patel, N., Omar, R. Z., Katona, C., & Cooper, C. (2014) · British Journal of Psychiatry · doi:10.1192/bjp.bp.113.141119 · Cited by 426 · see citing works
Selwood, A., Johnston, K., Katona, C., Lyketsos, C., & Livingston, G. (2007) · Journal of Affective Disorders · doi:10.1016/j.jad.2006.10.025 · Cited by 342 · see citing works
Griffin, J. M., Meis, L. A., Greer, N., MacDonald, R., Jensen, A., Rutks, I., Carlyle, M., & Wilt, T. J. (2015) · Gerontology and Geriatric Medicine · doi:10.1177/2333721415595789 · Cited by 21 · see citing works
Hirschman, K. B., McHugh, M., & Morgan, B. (2023) · Alzheimer's & Dementia: Translational Research & Clinical Interventions · doi:10.1002/trc2.12391 · Cited by 11 · see citing works
- Authors
- Wright, L. K., Litaker, M., Laraia, M. T., & DeAndrade, S.
- Affiliations
- Augusta University (US)
- ORCID
- Litaker, Mark
- Venue
- Issues in Mental Health Nursing
- Publisher
- Informa UK Limited
- Published
- 2001-04-01
- Volume
- 22
- Issue
- 3
- Pages
- 231-252
- ISSN
- 0161-2840 (ISSN-L)
- 1096-4673
- OpenAlex
- W2161208729
- Cited by
- 40
- References
- 30
- Citations by year
- 2025: 1 · 2023: 2 · 2022: 1 · 2020: 2 · 2018: 1 · 2016: 1 · 2015: 2 · 2014: 8 · 2013: 1 · 2012: 2
- FWCI
- 8.91
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Issues in Mental Health Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Keywords
- Alzheimer's disease, family caregivers, caregiver education, caregiver counseling, agitation, caregiver stress, caregiver depression, caregiver physical health, institutionalization, home care, hospital discharge, intervention efficacy
- MeSH terms
- Adult, Aged, Aged, 80 and over, Alzheimer Disease, Continuity of Patient Care, Counseling, Female, Humans, Male, Middle Aged, Nursing Assessment, Patient Discharge, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review