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Cited by 130Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

Dementia as a predictor of care-related quality of life in informal caregivers: a cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers

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Karg, Nina, Graessel, Elmar, Randzio, Ottilie, Pendergrass, Anna·2018·BMC Geriatrics
DOI 10.1186/s12877-018-0885-1PMC PMC6108112
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Abstract

BACKGROUND: The objectives of this study with a large sample of informal caregivers (CG) were a) to compare health-related outcomes of CGs caring for a patient with dementia and those caring for a relative with another chronic disease and b) to check whether dementia is a predictor of CG's care-related quality of life (QoL) in CarerQoL-7D. METHODS: This cross-sectional study involved self-reported data from 386 informal CGs who applied for an initial grade or upgrade of the care level of the care recipient at the Medical Service of Compulsory Health Insurance Funds of Bavaria (Germany). By obtaining data this way, systematic biases often associated with the acquisition of CGs were prevented. Bivariate and multiple analyses were conducted using a univariate covariance model (ANCOVA). RESULTS: Bivariate analyses showed significantly higher levels of subjective burden and lower QoL in the dementia group. No significant differences were found in terms of physical health and depressiveness, though there was a tendency suggesting higher levels of depressiveness in dementia CGs. Multiple analysis explaining QoL by dementia status after controlling for CG's sex, age and employment status revealed a significant effect of dementia, suggesting caregiving for a dementia patient was associated with lower QoL. CONCLUSIONS: Results of the study suggest that caring for a relative with dementia is associated with poorer health, i.e. greater levels of subjective burden and depressiveness, and predicts lower QoL in CGs. These findings emphasize the importance of specific interventions aiming to support informal CGs of dementia patients.

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  • Dementia caregivers are inclined to sacrifice their well-being, leaving them susceptible to increased risk of anxiety, low quality of life, and depression.

    “Studies have shown that dementia caregivers are inclined to sacrifice their well-being leaving them susceptible to an increased risk of anxiety, low quality of life, and depression.”

    From The Difference in Burden Experienced by Male and Female Caregivers of Dementia Patients in Lebanon: A Cross-Sectional Study (2022) · cites this paper as [6]

    The Results and Discussion report lower care-related quality of life and a tendency toward higher depressiveness among dementia caregivers, although the depressiveness difference was not statistically significant. The Background mentions anxiety as a factor related to caregiver quality of life, but the paper does not establish an increased risk of anxiety or say that dementia caregivers are inclined to sacrifice their well-being. No page numbers are available in our copy. (LLM, conf=0.86)

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  • Family caregivers of PLWD report caregiving is stressful with challenges that arise from caregiving situations while often delaying or preventing caregivers from taking care of themselves, which contribute to poorer health and well-being outcomes, such as psychological distress and decreased participation in personally valued activities.

    “Family caregivers of PLWD report caregiving is stressful with challenges that arise from caregiving situations while often delaying or preventing caregivers from taking care of themselves, which contribute to poorer health and well-being outcomes, such as psychological distress (i.e. symptoms of depression, anxiety, and stress) and decreased participation in personally valued activities”

    From The feasibility and preliminary effects of a pilot randomized controlled trial: Videoconferencing acceptance and commitment therapy in distressed family caregivers of people with dementia. (2023) · cites this paper as Karg et al., 2018

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Research works printed but not linked: 1

  1. [23]World Health Organization. Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19–22 June, 1946. New York: World Health Organization. p. 1948.

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Authors
Karg, N., Graessel, E., Randzio, O., & Pendergrass, A.
Affiliations
Friedrich-Alexander-Universität Erlangen-Nürnberg (DE)
ORCID
Venue
BMC Geriatrics
Publisher
Springer Science and Business Media LLC
Published
2018-08-23
Volume
18
Issue
1
Pages
189-189
ISSN
1471-2318 (ISSN-L)
DOI
10.1186/s12877-018-0885-1
PMC
PMC6108112
OpenAlex
W2888606649
Cited by
130
References
36
Citations by year
2026: 3 · 2025: 17 · 2024: 25 · 2023: 18 · 2022: 15 · 2021: 28 · 2020: 17 · 2019: 7
FWCI
10.23
Type
journal article
Language
en
Open access
Licence
Locations
  • BMC Geriatrics (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, other-oa)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • OPUS Repository (Kooperativer Bibliotheksverbund Berlin-Brandenburg) (submittedVersion, cc-by)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
dementia, informal caregivers, care-related quality of life, caregiver burden, depression, chronic disease, caregiver health, caregiver support interventions
MeSH terms
Aged, Cross-Sectional Studies, Dementia, Depression, Employment, Female, Germany, Humans, Male, Middle Aged, Quality of Life, Caregivers

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