Remotely delivered information, training and support for informal caregivers of people with dementia
Open accessAbstract
Background Many people with dementia are cared for at home by unpaid informal caregivers, usually family members. Caregivers may experience a range of physical, emotional, financial and social harms, which are often described collectively as caregiver burden. The degree of burden experienced is associated with characteristics of the caregiver, such as gender, and characteristics of the person with dementia, such as dementia stage, and the presence of behavioural problems or neuropsychiatric disturbances. It is a strong predictor of admission to residential care for people with dementia. Psychoeducational interventions might prevent or reduce caregiver burden. Overall, they are intended to improve caregivers' knowledge about the disease and its care; to increase caregivers' sense of competence and their ability to cope with difficult situations; to relieve feelings of isolation and allow caregivers to attend to their own emotional and physical needs. These interventions are heterogeneous, varying in their theoretical framework, components, and delivery formats. Interventions that are delivered remotely, using printed materials, telephone or video technologies, may be particularly suitable for caregivers who have difficulty accessing face-to-face services because of their own health problems, poor access to transport, or absence of substitute care. During the COVID-19 pandemic, containment measures in many countries required people to be isolated in their homes, including peopl…
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A Cochrane review of RCTs found that remote delivery of interventions for family carers of information or support (26 studies) is not more effective than usual care.
“A Cochrane review of RCT reported that remote delivery of interventions for family carers of information or support found 26 studies and is not more effective than usual care. (491)”
From Dementia prevention, intervention, and care: 2024 report of the Lancet standing Commission (2024) · cites this paper as [491]
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- Authors
- González-Fraile, E., Ballesteros, J., Rueda, J.-R., Santos-Zorrozúa, B., Solà, I., & McCleery, J.
- Affiliations
- Department of Health; International University of La Rioja; Logroño Spain
- University of the Basque Country (ES)
- Scientific coordination Unit; Biocruces Health Research Institute, Cruces University Hospital; Barakaldo Spain
- Iberoamerican Cochrane Centre, Biomedical Research Institute Sant Pau (IIB Sant Pau); CIBER Epidemiología y Salud Pública (CIBERESP); Barcelona Spain
- Oxford Health NHS Foundation Trust (GB)
- Venue
- Cochrane Database of Systematic Reviews
- Publisher
- Wiley
- Published
- 2021-01-04
- Volume
- 2021
- Issue
- 1
- Pages
- CD006440-CD006440
- ISSN
- 1361-6137 (ISSN-L)
- 1465-1858
- PMC
- PMC8094510
- OpenAlex
- W3120142070
- Cited by
- 100
- References
- 126
- Citations by year
- 2026: 14 · 2025: 22 · 2024: 19 · 2023: 15 · 2022: 24 · 2021: 5 · 2019: 1
- FWCI
- 2.81
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Cochrane Database of Systematic Reviews (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Re-Unir (International University of La Rioja) (submittedVersion, other-oa)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia, informal caregivers, caregiver burden, remote intervention delivery, psychoeducational intervention, caregiver education, caregiver support, caregiver information, caregiver mood, quality of life, COVID-19 pandemic, home care
- MeSH terms
- Caregiver Burden, Affect, Dementia, Family, Health Services Accessibility, Health Services Needs and Demand, Humans, Institutionalization, Nursing Homes, Quality of Life, Bias, Randomized Controlled Trials as Topic, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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