Effectiveness of educational interventions for informal caregivers of individuals with dementia residing in the community: systematic review and meta-analysis of randomised controlled trials: Dementia caregiver education: systematic review and meta-analysis
Abstract
OBJECTIVE: This study aims to assess whether educational programmes for caregivers of individuals with dementia living in the community are effective on caregiver burden, quality of life (QoL), depression and transitions to long stay care compared with usual care. METHOD: MEDLINE, EMBASE, PsycINFO, CINAHL, AgeLine, CENTRAL and ERIC were searched with no restrictions on language or publication status in February 2013. Randomised controlled trials (RCTs) were eligible. Participants were informal caregivers undertaking day to day care of an individual with dementia living in the community. Interventions were educational programmes aimed at teaching skills relevant to dementia caring. Two authors independently assessed studies for eligibility, assessed risk of bias and extracted data. RESULTS: We screened 1390 citations and included seven RCTs with 764 participants. Meta-analysis of five trials showed a moderate effect on carer burden (Standardised Mean Difference (SMD) = -0.52; 95% confidence interval (CI) -0.79 to -0.26; I(2) = 40%). Meta-analysis of two trials showed a small effect on depression (SMD = -0.37; 95% CI -0.65 to -0.09; I(2) = 0%). There was no effect on number of transitions to long stay care (relative risk 1.29; 95% CI 0.80 to 2.08). Effect on QoL was not estimable as studies varied in reporting of sub-domains and constructs within scales. CONCLUSION: Educational programmes have a moderate effect on caregiver burden and a small effect on depression. Evidence of an effect on QoL and transitions to long stay care remains unclear.
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Most existing meta-analyses of carer interventions target one specific approach, such as CBT, educational interventions, support groups, technology-based CBT, or telephone counselling.
“However, most of these reviews target one specific approach such as Cognitive Behaviour Therapy (CBT) (Vernooij-Dassen et al. , 2011), , educational interventions (Jensen et al. , 2015), support groups (Chien et al. , 2011), technology-based CBT (Scott et al. , 2016), and telephone counselling (Lins et al. , 2014).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Jensen et al. , 2015
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- Authors
- Jensen, M., Agbata, I. N., Canavan, M., & McCarthy, G.
- Affiliations
- Sligo University Hospital (IE)
- University Hospital Galway (IE)
- Ollscoil na Gaillimhe – University of Galway (IE)
- Corresponding author
- Jensen, Mette
- Venue
- International Journal of Geriatric Psychiatry
- Publisher
- Wiley
- Published
- 2014-10-29
- Volume
- 30
- Issue
- 2
- Pages
- 130-143
- ISSN
- 0885-6230 (ISSN-L)
- OpenAlex
- W2129224205
- Cited by
- 144
- References
- 26
- Citations by year
- 2026: 6 · 2025: 15 · 2024: 5 · 2023: 6 · 2022: 17 · 2021: 16 · 2020: 15 · 2019: 14 · 2018: 18 · 2017: 16 · 2016: 13 · 2015: 3
- FWCI
- 1.48
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Geriatric Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia, informal caregivers, caregiver education, caregiver burden, caregiver depression, quality of life, community-dwelling people with dementia
- MeSH terms
- Adaptation, Psychological, Dementia, Depressive Disorder, Humans, Long-Term Care, Quality of Life, Randomized Controlled Trials as Topic, Caregivers, Cost of Illness
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