The DOI matches its Crossref record; 34 of the 34 references it cites were found in a registry or an index.
Negative Impact and Positive Value in Caregiving: Validation of the COPE Index in a Six-Country Sample of Carers
Abstract
PURPOSE: The present study attempts to further validate the COPE Index on a large sample of carers drawn from six European countries. DESIGN AND METHODS: We used a cross-sectional survey, with approximately 1,000 carers recruited in each of six countries by means of a common standard evaluation protocol. Our saturation recruitment of a designated quota of carers occurred by means of several channels, in identified geographical zones within countries. Interviews were carried out with primary informal carers by use of a common assessment tool. We subjected items of the COPE Index to principal component analysis and we assessed emergent components through the use of Cronbach's alpha reliability procedures. We examined factor components as summative scales for confirmatory correlations with caregiving and psychological variables. RESULTS: Three components emerged, which we identified as the negative impact of caregiving, the positive value of caregiving, and the quality of support for caregiving. Internal consistency was good for negative impact and satisfactory for positive value and quality of support. Negative value was most consistently and strongly correlated with caregiving and psychological variables, although we did find diverse associations between these variables and the COPE Index subscales. IMPLICATIONS: The COPE Index is a brief, first-stage assessment of some sophistication that can enable health and social care professionals to develop appropriately targeted interventions to enhance the positive aspects of the caregiving experience and quality of support, as well as reduce the negative impacts of caregiving.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The COPE Index has a Cronbach α of .87.
“Cronbach α for COPE Index is .87 [27].”
From CareACT - internet-based intervention for enhancing the psychological well-being of elderly caregivers - a study protocol of a controlled trial (2019) · cites this paper as [27]
The Reliability Analyses and Scale Construction section (page unavailable) reports Cronbach’s α for three COPE Index components as .83, .64, and .66, rather than .87. The paper assesses the components separately and does not report .87 as an overall COPE Index alpha. (LLM, conf=0.81)
Checked by a reasoning model — may be wrong.
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
The Hospital Anxiety and Depression Scale
Zigmond, A. S., & Snaith, R. P. (1983) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.1983.tb09716.x · Cited by 47,139
Functional evaluation : Barthel index
Mahonery, F. I. (1965) · Medical Entomology and Zoology · Cited by 12,762
What is coefficient alpha? An examination of theory and applications
Cortina, J. M. (1993) · Journal of Applied Psychology · doi:10.1037/0021-9010.78.1.98 · Cited by 8,810 · cited 1×
“It should also be noted that the computation of the alpha value is related to the number of items a scale contains, with a high number of items inflating this value (Cortina, 1993).”
Background(1988) · NFER-Nelson eBooks · Cited by 5,560
Validating the SF-36 health survey questionnaire: new outcome measure for primary care.
Brazier, J. E., Harper, R., Jones, N. M., O’Cathain, A., Thomas, K. J., Usherwood, T. P., & Westlake, L. (1992) · BMJ · doi:10.1136/bmj.305.6846.160 · Cited by 4,660
The Whoqol Group (1998) · Social Science & Medicine · doi:10.1016/s0277-9536(98)00009-4 · Cited by 3,802
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study
Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340 · cited 1×
“Unfortunately, caregiving can have a significant negative impact on the psychological well-being and health of the carer (Barinaga, 1998; Schulz & Beach, 1999).”
BackgroundField Methods in Cross-Cultural Research
Shelly, R. K., Lonner, W. J., & Berry, J. W. (1988) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2069488 · Cited by 2,113
The handbook of psychological testing, 2nd ed.
Kline, P. (1993) · Cited by 1,248
How Effective Are Interventions With Caregivers? An Updated Meta-Analysis
Sörensen, S., Pinquart, M., & Duberstein, P. R. (2002) · The Gerontologist · doi:10.1093/geront/42.3.356 · Cited by 1,146
Gain in the Caregiving Experience: Where Are We? What Next?
Kramer, B. J. (1997) · The Gerontologist · doi:10.1093/geront/37.2.218 · Cited by 668
Analysis of the Reliability of the Modified Caregiver Strain Index
Thornton, M., & Travis, S. S. (2003) · The Journals of Gerontology Series B · doi:10.1093/geronb/58.2.s127 · Cited by 406
Cohn, L. H. (2004) · CRC Press eBooks · doi:10.1201/b13552-23 · Cited by 329
Understanding Family Care : A Multidimensional Model of Caring and Coping
Nolan, M., Grant, G. W. B., & Keady, J. D. (1996) · Medical Entomology and Zoology · Cited by 317
Self-citationContemporary Perspectives on the Psychology of Attitudes
Perugini, M., & Bagozzi, R. P. (2004) · Psychology Press eBooks · doi:10.4324/9780203645031 · Cited by 310
Instruments measuring family or caregiver burden in severe mental illness
Schene, A. H., Tessler, R. C., & Gamache, G. (1994) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/bf00796381 · Cited by 202
Factors associated with the positive impact of caring for elderly and dependent relatives
López, J., López‐Arrieta, J., & Crespo, M. (2005) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2004.12.001 · Cited by 183
McKee, K., Philp, I., Lamura, G., Prouskas, C., Öberg, B. E., Krevers, B., Spazzafumo, L., Bień, B., Parker, C., Nolan, M., et al. (2003) · Aging & Mental Health · doi:10.1080/1360786021000006956 · Cited by 151
Self-citationRapp, S. R., & Chao, D. (2000) · Aging & Mental Health · doi:10.1080/13607860050008664 · Cited by 129
Zarit, S. H., & Leitsch, S. A. (2001) · Aging & Mental Health · doi:10.1080/713650006 · Cited by 107
Stresses and Satisfactions of Family Caregivers to Older Stroke Patients
Kinney, J. M., Stephens, M. A. P., Franks, M. M., & Norris, V. K. (1995) · Journal of Applied Gerontology · doi:10.1177/073346489501400101 · Cited by 103
Zarit, S. H., & Leitsch, S. A. (2001) · Aging & Mental Health · doi:10.1080/13607860120044864 · Cited by 93
Yin, T., Zhou, Q. P., & Bashford, C. W. (2002) · Nursing Research · doi:10.1097/00006199-200205000-00009 · Cited by 74
Clinical Assessment of Family Caregivers in Dementia
Rankin, E. D., Haut, M. W., & Keefover, R. W. (1992) · The Gerontologist · doi:10.1093/geront/32.6.813 · Cited by 67
Senile dementia: Factors associated with caregivers' preference for institutional care
Gilhooly, M. (1986) · British Journal of Medical Psychology · doi:10.1111/j.2044-8341.1986.tb02681.x · Cited by 56
Families and formal service usage: Stability and change in patterns of interface
Lyons, K. S., Zarit, S. H., & Townsend, A. L. (2000) · Aging & Mental Health · doi:10.1080/713649930 · Cited by 54
Guberman, N., Nicholas, E., Nolan, M., Rembicki, D., Lundh, U., & Keefe, J. M. (2003) · Health & Social Care in the Community · doi:10.1046/j.1365-2524.2003.00434.x · Cited by 42
Self-citationSome critical issues in caregiver intervention research
Schulz, R. (2001) · Aging & Mental Health · doi:10.1080/13607860120044882 · Cited by 36
Some critical issues in caregiver intervention research
Schulz, R. (2001) · Aging & Mental Health · doi:10.1080/713650014 · Cited by 34
Coping With Late-Life Challenges: Development and Validation of the Care-Receiver Efficacy Scale
Cox, E. O., Green, K. E., Seo, H., Inaba, M., & Quillen, A. A. (2006) · The Gerontologist · doi:10.1093/geront/46.5.640 · Cited by 30
Livingston, G., Mahoney, R., Regan, C., & Katona, C. (2005) · Age and Ageing · doi:10.1093/ageing/afi103 · Cited by 25
Using the COPE assessment tool with informal carers of people with dementia in New Zealand.
Roud, H., Keeling, S., & Sainsbury, R. (2006) · PubMed · Cited by 24
Keady, J. D., & Nolan, M. (1996) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.1996.tb00083.x · Cited by 24
Self-citationBarinaga, M. (1998) · Science · doi:10.1126/science.282.5391.1031 · Cited by 5
Flagged first, then by citations
Research works printed but not linked: 5
- 1986, The British journal of medical psychology, 56, 165
- Attar, 1965, Maryland state medical journal, 14, 61
- 2001, Gerontology, 47, 159
- 2006, The New Zealand medical journal, 119, 2053
- 2003, The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58B, S127
Cited by
Sorted by citations
Exploring the care needs of patients with advanced COPD: An overview of the literature
Gardiner, C., Gott, M., Payne, S. A., Small, N., Barnes, S., Halpin, D. M. G., Ruse, C. E., & Seamark, D. (2009) · Respiratory Medicine · doi:10.1016/j.rmed.2009.09.007 · Cited by 162
Bidwell, J. T., Vellone, E., Lyons, K. S., D’Agostino, F., Riegel, B. J., Juárez‐Vela, R., Hiatt, S. O., Alvaro, R., & Lee, C. S. (2015) · Research in Nursing & Health · doi:10.1002/nur.21675 · Cited by 147
Groenou, M. I. B. V., de Boer, A., & Iedema, J. (2013) · European Journal of Ageing · doi:10.1007/s10433-013-0276-6 · Cited by 132
Measuring the impact of informal elderly caregiving: a systematic review of tools
Mosquera, I., Vergara, I., Larrañaga, I., Machón, M., del Río, M., & Calderón, C. (2015) · Quality of Life Research · doi:10.1007/s11136-015-1159-4 · Cited by 106
Quinn, C., Nelis, S. M., Martyr, A., Victor, C. R., Morris, R. G., & Clare, L. (2019) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2019.02.005 · Cited by 101
Positive aspects of caregiving (PAC): Scale validation among Chinese dementia caregivers (CG)
LOU, V. W. Q., Lau, B. H. P., & Cheung, S. L. K. (2014) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2014.10.019 · Cited by 90
Burden of informal care giving to patients with psychoses: A descriptive and methodological study
Flyckt, L., Löthman, A., Jørgensen, L., Rylander, A., & Koernig, T. (2011) · International Journal of Social Psychiatry · doi:10.1177/0020764011427239 · Cited by 87
Burden and mental health among caregivers of veterans with traumatic brain injury/polytrauma.
Griffin, J. M., Lee, M. K., Bangerter, L. R., Houtven, C. H. V., Friedemann‐Sánchez, G., Phelan, S. M., Carlson, K. F., & Meis, L. A. (2017) · American Journal of Orthopsychiatry · doi:10.1037/ort0000207 · Cited by 86
Giesbrecht, M., Crooks, V. A., Williams, A., & Hankivsky, O. (2012) · International Journal for Equity in Health · doi:10.1186/1475-9276-11-65 · Cited by 91
Family carers' experience of caring for an older parent with severe and persistent mental illness
McCann, T. V., Bamberg, J. H., & McCann, F. (2015) · International Journal of Mental Health Nursing · doi:10.1111/inm.12135 · Cited by 75
Caregiver influences on ‘living well’ for people with dementia: Findings from the IDEAL study
Quinn, C., Nelis, S. M., Martyr, A., Morris, R. G., Victor, C. R., & Clare, L. (2019) · Aging & Mental Health · doi:10.1080/13607863.2019.1602590 · Cited by 66
A Dyadic Approach to Managing Heart Failure With Confidence
Lyons, K. S., Vellone, E., Lee, C. S., Cocchieri, A., Bidwell, J. T., D’Agostino, F., Hiatt, S. O., Alvaro, R., Juárez‐Vela, R., & Riegel, B. J. (2015) · The Journal of Cardiovascular Nursing · doi:10.1097/jcn.0000000000000234 · Cited by 65
Caregiver determinants of patient clinical event risk in heart failure
Bidwell, J. T., Vellone, E., Lyons, K. S., D’Agostino, F., Riegel, B. J., Paturzo, M., Hiatt, S. O., Alvaro, R., & Lee, C. S. (2017) · European Journal of Cardiovascular Nursing · doi:10.1177/1474515117711305 · Cited by 65
Depressive symptoms in caregivers of patients with dementia: demographic variables and burden
Fazio, P. D., Ciambrone, P., Cerminara, G., Barbuto, E., Bruni, A., Gentile, P., Segura‐Garcìa, C., Talarico, A., Lacava, R., & Gareri, P. (2015) · Clinical Interventions in Aging · doi:10.2147/cia.s74439 · Cited by 62
Durante, Á., Greco, A., Annoni, A. M., Steca, P., Alvaro, R., & Vellone, E. (2019) · European Journal of Cardiovascular Nursing · doi:10.1177/1474515119863173 · Cited by 62
Bień, B., McKee, K., Dohner, H., Triantafillou, J., Lamura, G., Doroszkiewicz, H., Krevers, B., & Kofahl, C. (2013) · European Journal of Public Health · doi:10.1093/eurpub/cks190 · Cited by 61
Self-citationFlyckt, L., Fatouros‐Bergman, H., & Koernig, T. (2015) · International Journal of Social Psychiatry · doi:10.1177/0020764015573088 · Cited by 57
Bongelli, R., Busilacchi, G., Pacifico, A., Fabiani, M., Guarascio, C., Sofritti, F., Lamura, G., & Santini, S. (2024) · Frontiers in Public Health · doi:10.3389/fpubh.2024.1474967 · Cited by 55
Self-citationClare, L., Wu, Y., Quinn, C., Jones, I. R., Victor, C. R., Nelis, S. M., Martyr, A., Litherland, R., Pickett, J., Hindle, J. V., et al. (2018) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0000000000000285 · Cited by 55
Perceived burden among spouse, adult child, and parent caregivers
Juntunen, K., Salminen, A., Törmäkangas, T., Tillman, P., Leinonen, K., & Nikander, R. (2018) · Journal of Advanced Nursing · doi:10.1111/jan.13733 · Cited by 53
Moholt, J.-M., Friborg, O., Blix, B. H., & Henriksen, N. O. (2018) · Dementia · doi:10.1177/1471301218804981 · Cited by 49
Impact of caregiving on Finnish family caregivers
Toljamo, M., Perälä, M., & Laukkala, H. (2011) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2011.00919.x · Cited by 47
Barbabella, F., Poli, A., Andréasson, F., Salzmann, B., Papa, R., Hanson, E. J., Efthymiou, A. C., Döhner, H., Lancioni, C., Civerchia, P., et al. (2016) · JMIR Research Protocols · doi:10.2196/resprot.5847 · Cited by 45
Self-citationAman, Z. F. A., Liew, S. M., Ramdzan, S. N., Philp, I., & Khoo, E. M. (2019) · Singapore Medical Journal · doi:10.11622/smedj.2019100 · Cited by 44
The Individual Budgets Pilot Projects: Impact and Outcomes for Carers
Glendinning, C., Arksey, H., Jones, K., Moran, N. E., Netten, A., & Rabiee, P. (2009) · Kent Academic Repository (University of Kent) · Cited by 42
Rural dementia carers: formal and informal sources of support
ORPIN, P., Stirling, C., Hetherington, S. A., & ROBINSON, A. (2012) · Ageing and Society · doi:10.1017/s0144686x12000827 · Cited by 40
Positive emotions in caring for a spouse: a literature review
Autio, T., & Rissanen, S. (2017) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12452 · Cited by 40
McKee, K., Spazzafumo, L., Nolan, M., Wojszel, Z. B., Lamura, G., & Bień, B. (2009) · Aging & Mental Health · doi:10.1080/13607860802342219 · Cited by 35
Self-citationAlwin, J., Öberg, B. E., & Krevers, B. (2009) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2328 · Cited by 35
Self-citationDow, J., Robinson, J., Robalino, S., Finch, T. L., McColl, E., & Robinson, L. A. (2018) · PLoS ONE · doi:10.1371/journal.pone.0193398 · Cited by 34
Jönsson, P. D., Wijk, H., Danielson, E., & Skärsäter, I. (2010) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2010.01671.x · Cited by 32
Wellbeing among people with dementia and their next of kin over a period of 3 years
Holst, G., & Edberg, A. (2011) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2010.00863.x · Cited by 30
The instrument ‘Sense of Security in Care - Patients' Evaluation’: its development and presentation
Krevers, B., & Milberg, A. (2014) · Psycho-Oncology · doi:10.1002/pon.3502 · Cited by 29
Self-citationPositive and negative impact of caregiving to older adults: a structural equation model.
Vellone, E., Fida, R., Cocchieri, A., Sili, A., Piras, G., & Alvaro, R. (2011) · PubMed · Cited by 29
Assistive technologies at home for people with a memory disorder
Nauha, L., Keränen, N., Kangas, M., Jämsä, T. J., & Reponen, J. (2016) · Dementia · doi:10.1177/1471301216674816 · Cited by 29
The right to public space during the COVID-19 pandemic
Apostolopoulou, E., & Liodaki, D. (2021) · City · doi:10.1080/13604813.2021.1989157 · Cited by 28
Can individual budgets have an impact on carers and the caring role?
Jones, K., Netten, A., Rabiee, P., Glendinning, C., Arksey, H., & Moran, N. E. (2012) · Ageing and Society · doi:10.1017/s0144686x12000748 · Cited by 25
Diviani, N., Zanini, C., Jaks, R., Brach, M., Gemperli, A., & Rubinelli, S. (2020) · Patient Education and Counseling · doi:10.1016/j.pec.2020.02.024 · Cited by 25
Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
Johansson, M. F., McKee, K., Dahlberg, L., Meranius, M. S., Williams, C. L., & Hammar, L. M. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19031788 · Cited by 32
Self-citationGagliardi, C., Piccinini, F., Lamura, G., Casanova, G., Fabbietti, P., & Socci, M. (2022) · Sustainability · doi:10.3390/su14063375 · Cited by 27
Self-citationRosa, M. D., Kofahl, C., McKee, K., Bień, B., Lamura, G., Prouskas, C., Döhner, H., & Mnich, E. E. (2011) · GeroPsych · doi:10.1024/1662-9647/a000031 · Cited by 25
Self-citationTele.TAnDem Increases the Psychosocial Resource Utilization of Dementia Caregivers
Töpfer, N. F., & Wilz, G. (2018) · GeroPsych · doi:10.1024/1662-9647/a000197 · Cited by 25
Chiatti, C., Rosa, M. D., Melchiorre, M. G., Manzoli, L., Rimland, J. M., & Lamura, G. (2013) · Aging & Mental Health · doi:10.1080/13607863.2013.765830 · Cited by 25
Self-citationSchneider, U., & Kleindienst, J. (2015) · Health & Social Care in the Community · doi:10.1111/hsc.12250 · Cited by 23
Krevers, B., & Öberg, B. E. (2011) · Journal of Rehabilitation Medicine · doi:10.2340/16501977-0649 · Cited by 22
Self-citationThe Family Meeting in Palliative Care: Role of the Oncology Nurse
Glajchen, M., & Goehring, A. (2017) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2017.09.007 · Cited by 21
Positive Aspects of Caregiving Questionnaire
Abdollahpour, I., Nedjat, S., Noroozıan, M., Salimi, Y., & Majdzadeh, R. (2017) · Journal of Geriatric Psychiatry and Neurology · doi:10.1177/0891988716686831 · Cited by 20
Ferraris, G., Fisher, O. M., Lamura, G., Fabbietti, P., Gagliardi, C., & Hagedoorn, M. (2022) · Journal of Family Psychology · doi:10.1037/fam0001009 · Cited by 20
Self-citationResilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort
Martyr, A., Rusted, J. M., Quinn, C., Gamble, L. D., Collins, R., Morris, R. G., & Clare, L. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-04549-y · Cited by 19
Self-Assessment Instruments for Supporting Family Caregivers: An Integrative Review
Benedetti, F. D., Hechinger, M., & Fringer, A. (2024) · Healthcare · doi:10.3390/healthcare12101016 · Cited by 23
Clare, L., Gamble, L. D., Martyr, A., Sabatini, S., Nelis, S. M., Quinn, C., Pentecost, C., Victor, C. R., Jones, R. W., Jones, I. R., et al. (2022) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbac090 · Cited by 18
Predictors of institutionalization in people with dementia: a survey linked with administrative data
Runte, R. (2017) · Aging Clinical and Experimental Research · doi:10.1007/s40520-017-0737-4 · Cited by 17
Moholt, J.-M., Friborg, O., Skaalvik, M. W., & Henriksen, N. O. (2018) · SAGE Open Medicine · doi:10.1177/2050312118792812 · Cited by 17
Stojak, Z., Jamiołkowski, J., Chlabicz, S., & Marcinowicz, L. (2019) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph16071189 · Cited by 17
The Sense of Security in Care—Relatives' Evaluation Instrument: Its Development and Presentation
Krevers, B., & Milberg, A. (2014) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2014.06.019 · Cited by 17
Self-citationLOU, V. W. Q., Kwan, C. W., Leung, A. Y. M., & Chi, I. (2011) · Home Health Care Services Quarterly · doi:10.1080/01621424.2011.592424 · Cited by 16
Wennerberg, M. M. T., Lundgren, S. M., & Danielson, E. (2012) · Aging & Mental Health · doi:10.1080/13607863.2011.628974 · Cited by 16
Barnhart, W. R., Ellsworth, D., Robinson, A. C., Myers, J. V., Andridge, R., & Havercamp, S. M. (2019) · Disability and health journal · doi:10.1016/j.dhjo.2019.100837 · Cited by 16
Bremmers, L. G. M., Fabbricotti, I. N., Gräler, E. S., Groot, C. A. U., & Roijen, L. H. (2022) · PLoS ONE · doi:10.1371/journal.pone.0270278 · Cited by 16
Bień‐Barkowska, K., Doroszkiewicz, H., & Bień, B. (2017) · Clinical Interventions in Aging · doi:10.2147/cia.s125664 · Cited by 16
Moholt, J.-M., Friborg, O., Henriksen, N. O., Hamran, T., & Blix, B. H. (2020) · Ageing and Society · doi:10.1017/s0144686x2000015x · Cited by 15
Barbabella, F., Poli, A., Hanson, E. J., Andréasson, F., Salzmann, B., Döhner, H., Papa, R., Efthymiou, A. C., Valenza, S., Pelliccioni, G., et al. (2018) · CIN Computers Informatics Nursing · doi:10.1097/cin.0000000000000422 · Cited by 14
Self-citationWomen Caring for Husbands Living with Parkinson’s Disease: A Phenomenological Study Protocol
White, D. R., & Palmieri, P. A. (2022) · Journal of Personalized Medicine · doi:10.3390/jpm12050659 · Cited by 15
Integrating Perspectives on Family Caregiving After Critical Illness: A Qualitative Content Analysis
Moale, A. C., Motter, E. M., Eisenhauer, P., Gandhi, N., Kim, S. P., Girard, T. D., Reynolds, C. F., Leland, N. E., Chang, J. C., & Scheunemann, L. P. (2024) · American Journal of Critical Care · doi:10.4037/ajcc2024309 · Cited by 13
Alwin, J., Persson, J., & Krevers, B. (2013) · Disability and Rehabilitation · doi:10.3109/09638288.2012.743603 · Cited by 13
Self-citationHyun, K. T., & 박수현 (2016) · Korean Journal of Health Psychology · doi:10.17315/kjhp.2016.21.1.004 · Cited by 13
Kristof, L., Fortinsky, R. H., Kellett, K., Porter, M., & Robison, J. T. (2016) · Journal of Aging & Social Policy · doi:10.1080/08959420.2016.1187034 · Cited by 14
Caregivers’ beliefs about dementia: findings from the IDEAL study
Quinn, C., Jones, I. R., Martyr, A., Nelis, S. M., Morris, R. G., & Clare, L. (2019) · Psychology and Health · doi:10.1080/08870446.2019.1597098 · Cited by 13
Ali, L., Krevers, B., & Skärsäter, I. (2015) · Issues in Mental Health Nursing · doi:10.3109/01612840.2014.1002644 · Cited by 12
Self-citationClarke, R., Farina, N., Chen, H. L., & Rusted, J. M. (2020) · Journal of Applied Gerontology · doi:10.1177/0733464820917861 · Cited by 12
Lappalainen, P., Pakkala, I., & Nikander, R. (2019) · BMC Geriatrics · doi:10.1186/s12877-019-1071-9 · Cited by 11
Milberg, A., Liljeroos, M., & Krevers, B. (2019) · BMC Palliative Care · doi:10.1186/s12904-019-0446-1 · Cited by 11
Self-citationCaregiver resilience in palliative care: a research protocol
Limardi, S., Stievano, A., Rocco, G., Vellone, E., & Alvaro, R. (2015) · Journal of Advanced Nursing · doi:10.1111/jan.12829 · Cited by 11
Akpan-Idio, P. A., & Anarado, A. N. (2014) · International Journal of Cancer Research · doi:10.3923/ijcr.2014.54.64 · Cited by 10
Lövenmark, A., Meranius, M. S., & Hammar, L. M. (2018) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.1080/17482631.2018.1554025 · Cited by 10
Krevers, B., Ekdahl, A., Jaarsma, T., Eckerblad, J., & Milberg, A. (2020) · BMC Geriatrics · doi:10.1186/s12877-020-01604-w · Cited by 10
Self-citationReliability and validity of the COPE Index among caregivers of disabled people
Juntunen, K., Nikander, R., Törmäkangas, T., Tillman, P., & Salminen, A. (2016) · Applied Nursing Research · doi:10.1016/j.apnr.2016.11.002 · Cited by 9
A New Stage of the Caregiving Career: Informal Caregiving After Long-term Institutionalization
Robison, J. T., Shugrue, N. A., Fortinsky, R. H., Fabius, C. D., Baker, K. K., Porter, M., & Grady, J. J. (2020) · The Gerontologist · doi:10.1093/geront/gnaa185 · Cited by 8
Cès, S., Mello, J. D. A., Macq, J., Durme, T. V., Declercq, A., & Schmitz, O. (2017) · International Journal of Care and Caring · doi:10.1332/239788217x14937990731730 · Cited by 8
Dying within dyads: Stress, sense of security and support during palliative home care
Liljeroos, M., Milberg, P., Krevers, B., & Milberg, A. (2021) · PLoS ONE · doi:10.1371/journal.pone.0257274 · Cited by 8
Self-citationCorchón, S., Sánchez‐Martínez, V., & Cauli, O. (2022) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2022.07.015 · Cited by 8
Anderson, K. A., Fields, N. L., & Dobb, L. A. (2013) · Family Relations · doi:10.1111/fare.12000 · Cited by 8
Amell, R. C., Cobo, J., Castanyer, M. M., & Giménez, N. (2018) · International Journal of Culture and Mental Health · doi:10.1080/17542863.2018.1479764 · Cited by 8
Santini, S., Fabbietti, P., & Lamura, G. (2019) · BMC Geriatrics · doi:10.1186/s12877-019-1254-4 · Cited by 8
Self-citationAndersson, S. K., McKee, K., Magnusson, L., Erlingsson, C. L., & Hanson, E. J. (2019) · Technology and Disability · doi:10.3233/tad-180223 · Cited by 7
Self-citationLüdecke, D., Mnich, E. E., & Kofahl, C. (2013) · Springer eBooks · doi:10.1007/978-1-4614-9191-0_10 · Cited by 7
Self-citationSugiyama, I., Shoji, H., Igarashi, N., Sato, K., Takahashi, M., & Miyashita, M. (2017) · Palliative Care Research · doi:10.2512/jspm.12.259 · Cited by 7
Lua, P. L., Mustapha, N., Ramle, A., & kashfi, A. R. A. (2014) · ASEAN Journal of Psychiatry · Cited by 7
Nahm, E., Orwig, D., Resnick, B. M., Magaziner, J. S., Bellantoni, M. F., & Sterling, R. S. (2011) · Ageing International · doi:10.1007/s12126-011-9128-x · Cited by 6
Blüher, S., Dräger, D., Budnick, A., Seither, C., & Kummer, K. (2011) · HeilberufeScience · doi:10.1007/s16024-011-0048-1 · Cited by 6
Ohayagha, C., Perrin, P. B., Cariello, A. N., & Arango‐Lasprilla, J. C. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18031247 · Cited by 6
Liljeroos, M., Krevers, B., & Milberg, A. (2022) · Palliative & Supportive Care · doi:10.1017/s1478951522001687 · Cited by 7
Self-citation«In guten wie in schlechten Zeiten ...»
Kofahl, C., Arlt, S., & Mnich, E. E. (2007) · Zeitschrift für Gerontopsychologie & -psychiatrie · doi:10.1024/1011-6877.20.4.211 · Cited by 6
Self-citationCaregivers in Palliative Care: Roles and Responsibilities
Glajchen, M. (2011) · Oxford University Press eBooks · doi:10.1093/med/9780199739110.003.0021 · Cited by 6
Çapacı, S., Aşiret, G. D., & Kapucu, S. (2022) · European Journal of Integrative Medicine · doi:10.1016/j.eujim.2022.102114 · Cited by 6
Using Nussbaum’s central capabilities to understand caring for older people in New Zealand
Horrell, B., Breheny, M., & Stephens, C. V. (2020) · International Journal of Care and Caring · doi:10.1332/239788220x15936247038641 · Cited by 6
Guo, X., Xiao, L. D., Wang, Y., Wang, J., Wang, H., Chang, C., Kwok, T. C. Y., Zhu, M., Ullah, S., Ratcliffe, J., et al. (2025) · International Psychogeriatrics · doi:10.1016/j.inpsyc.2025.100158 · Cited by 5
Johansson, M. F., McKee, K., Dahlberg, L., Williams, C. L., & Hammar, L. M. (2024) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph21101348 · Cited by 10
Self-citationDowson, B., Schneider, J. M., Guo, B., Bath, P. M., McDermott, O., Haywood, L. J., & Orrell, M. W. (2021) · Pilot and Feasibility Studies · doi:10.1186/s40814-020-00759-y · Cited by 5
Metadata
- Authors
- Balducci, C., Mnich, E., McKee, K. J., Lamura, G., Beckmann, A., Krevers, B., Wojszel, Z. B., Nolan, M., Prouskas, C., Bien, B., & Oberg, B.
- Affiliations
- University of Trento (IT)
- Universität Hamburg (DE)
- University of Sheffield (GB)
- Istituto Nazionale di Riposo e Cura per Anziani (IT)
- Linköping University (SE)
- Medical University of Białystok (PL)
- National School of Public Health (GR)
- Corresponding author
- Balducci, C.
- Venue
- The Gerontologist
- Publisher
- Oxford University Press (OUP)
- Published
- 2008-06-01
- Volume
- 48
- Issue
- 3
- Pages
- 276-286
- ISSN
- 0016-9013 (ISSN-L)
- 1758-5341
- OpenAlex
- W2104136464
- Cited by
- 140
- References
- 32
- Citations by year
- 2026: 6 · 2025: 4 · 2024: 7 · 2023: 4 · 2022: 12 · 2021: 5 · 2020: 7 · 2019: 15 · 2018: 12 · 2017: 9 · 2016: 7 · 2015: 9 · 2014: 6 · 2013: 10 · 2012: 8
- FWCI
- 16.54
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Gerontologist (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- informal caregivers, caregiver burden, psychometric validation, factor structure, cross-cultural validation, caregiver psychological well-being
- MeSH terms
- Affect, Aged, Cross-Sectional Studies, Depression, Female, Humans, Male, Quality of Health Care, Quality of Life, Surveys and Questionnaires, Role, Severity of Illness Index, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review