Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities

Ward, R. L.; Nichols, A. D.; Freedman, R. I.

doi:10.1093/hsw/35.4.280

Cited by 110Down syndrome and intellectual disability researchDisability Rights and RepresentationInclusion and Disability in Education and Sport

Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities

Ward, R. L., Nichols, A. D., Freedman, R. I.·2010·Health & Social Work

DOI 10.1093/hsw/35.4.280

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Abstract

Even as attention is drawn to the increasing number of individuals who experience health inequalities in the United States, little is known about the health inequalities experienced by individuals with intellectual and developmental disabilities. Current disability research mainly focuses on physical disabilities. This article discusses the health disparities experienced by individuals with intellectual and developmental disabilities.The authors conducted focus groups with parents/guardians, self-advocates, and community support professionals and key informant interviews with health care professionals to assess the needs of this less frequently documented population. Results from this study indicate that individuals with intellectual and developmental disabilities face health care disparities and inequities in four areas: access, knowledge, communication, and quality.

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Long waiting times are a major cause of anxiety and stress.
“Long waiting times are a major cause of anxiety and stress.25,32,45,78,79”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [78]

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Authors: Ward, R. L., Nichols, A. D., & Freedman, R. I.
Affiliations: SUNY Fredonia (US)
Venue: Health & Social Work
Publisher: Oxford University Press (OUP)
Published: 2010-11-01
Volume: 35
Issue: 4
Pages: 280-290
ISSN: 0360-7283 (ISSN-L)
1545-6854
DOI: 10.1093/hsw/35.4.280
OpenAlex: W2098928216
Cited by: 110
References: 0
Citations by year: 2026: 1 · 2025: 6 · 2024: 4 · 2023: 2 · 2022: 8 · 2021: 10 · 2020: 11 · 2019: 9 · 2018: 7 · 2017: 12 · 2016: 10 · 2015: 7 · 2014: 7 · 2013: 10 · 2012: 5
FWCI: 4.75
Type: journal article
Language: en
Open access: closed
Locations: Health & Social Work (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
Social Sciences › Safety Research › Disability Rights and Representation
Social Sciences › Sociology and Political Science › Inclusion and Disability in Education and Sport
Keywords: health care disparities, intellectual and developmental disabilities, health disparities, health care access, health knowledge, health communication, quality of care, self-advocates, parents and guardians, healthcare workers
MeSH terms: Adult, Developmental Disabilities, Chronic Disease, Community Health Services, Female, Health Services Accessibility, Humans, Male, Massachusetts, Intellectual Disability, Parents, Patient Advocacy, Comorbidity, Caregivers, Focus Groups, Needs Assessment, Healthcare Disparities

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Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities

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