The DOI matches its Crossref record.
Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities
Abstract
Even as attention is drawn to the increasing number of individuals who experience health inequalities in the United States, little is known about the health inequalities experienced by individuals with intellectual and developmental disabilities. Current disability research mainly focuses on physical disabilities. This article discusses the health disparities experienced by individuals with intellectual and developmental disabilities.The authors conducted focus groups with parents/guardians, self-advocates, and community support professionals and key informant interviews with health care professionals to assess the needs of this less frequently documented population. Results from this study indicate that individuals with intellectual and developmental disabilities face health care disparities and inequities in four areas: access, knowledge, communication, and quality.
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“Long waiting times are a major cause of anxiety and stress.25,32,45,78,79”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [78]
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Items 101–110 of 110
Living With Intellectual Disability
Jadeja, M., & Firdaus, J. (2021) · IGI Global eBooks · doi:10.4018/978-1-6684-3542-7.ch003
Acute ischemic strokes in patients with developmental disabilities: A cross-sectional analysis
Lui, A., Feldstein, E., Clare, K. M., Dicpinigaitis, A. J., Reddy, M., Khan, F., Semaan, R., Galluzzo, D., Shapiro, S., Kamal, H., et al. (2022) · Interventional Neuroradiology · doi:10.1177/15910199221110327
“Patients with DD and their caretakers have historically felt neglected and report suboptimal treatment from healthcare professionals.(2) These patients often experience barriers to (1)School of Medicine, New York Medical College, Valhalla, NY, USA (2)Department of Neurosurgery, Westchester Medical Center, New York”
BackgroundSmith, A., Adler, S. R., Prelock, P., Sibold, J., Westervelt, K., & Wolever, R. Q. (2024) · Journal of Integrative and Complementary Medicine · doi:10.1089/jicm.2024.0859
Dudley, A., Baker, T., Hardesty, C., et al. (2025) · Frontiers in Pediatrics · doi:10.3389/fped.2025.1478000
Lee, C. E., & Goscicki, B. L. (2025) · International review of research in developmental disabilities · doi:10.1016/bs.irrdd.2025.09.001
Gallagher, A., Meehan, E., Kerr, C., Manikandan, M., O’Sullivan, R., Whiston, A., Galvin, R., & Robinson, K. (2025) · Disability and Rehabilitation · doi:10.1080/09638288.2025.2587014 · Cited by 1
“…unmet physical and psychological needs in over sixty percent in their sample of autistic adults [41] and in a further two studies, around a third of autistic adults reported unmet physical and psychological needs [29,34] compared with around a quarter of adults with intellectual disability [32,37].”
Mengoni, S. E., Williams, C. H., Batchelor, R., et al. (2025) · British Journal of Learning Disabilities · doi:10.1111/bld.70024
“People with intellectual disabilities experience health inequalities and often do not receive accessible health services and information (Ali et al. 2013; Mastebroek et al. 2014; Newman, Fisher, et al. 2023; Oosterveld ‐ Vlug et al. 2020; Ward et al. 2010).”
Bhandari, C., Douglas, S. N., Jensen, E. J., et al. (2025) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-025-00534-w
Social Workers’ Perceptions on Quality Hospital Care for Individuals with Intellectual Disabilities
Clark, M. S. (2015) · UST Research Online (University of St. Thomas - Minnesota)
Metadata
- Authors
- Ward, R. L., Nichols, A. D., & Freedman, R. I.
- Affiliations
- SUNY Fredonia (US)
- Venue
- Health & Social Work
- Publisher
- Oxford University Press (OUP)
- Published
- 2010-11-01
- Volume
- 35
- Issue
- 4
- Pages
- 280-290
- ISSN
- 0360-7283 (ISSN-L)
- 1545-6854
- OpenAlex
- W2098928216
- Cited by
- 110
- References
- 0
- Citations by year
- 2026: 1 · 2025: 6 · 2024: 4 · 2023: 2 · 2022: 8 · 2021: 10 · 2020: 11 · 2019: 9 · 2018: 7 · 2017: 12 · 2016: 10 · 2015: 7 · 2014: 7 · 2013: 10 · 2012: 5
- FWCI
- 4.75
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Health & Social Work (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Sociology and Political Science › Disability Rights and Representation
- Social Sciences › Education › Inclusion and Disability in Education and Sport
- Keywords
- health care disparities, intellectual and developmental disabilities, health disparities, health care access, health knowledge, health communication, quality of care, self-advocates, parents and guardians, healthcare workers
- MeSH terms
- Adult, Developmental Disabilities, Chronic Disease, Community Health Services, Female, Health Services Accessibility, Humans, Male, Massachusetts, Intellectual Disability, Parents, Patient Advocacy, Comorbidity, Caregivers, Focus Groups, Needs Assessment, Healthcare Disparities
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