Delay in the diagnosis of endometriosis: a survey of women from the USA and the UK

Revised American Fertility Society Classification of Endometriosis: 1985

(1985) · Fertility and Sterility · doi:10.1016/s0015-0282(16)48430-x · Cited by 1,803

The lag time between onset of symptoms and diagnosis of rheumatoid arthritis

Chan, K. A., Felson, D. T., Yood, R. A., & Walker, A. M. (1994) · Arthritis & Rheumatism · doi:10.1002/art.1780370606 · Cited by 146

Menstrual symptoms in women with pelvic endometriosis

Mahmood, T. A., Templeton, A., THOMSON, L., & FRASER, C. (1991) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.1991.tb10370.x · Cited by 129

Age of onset of pain symptoms in non-twin sisters concordant for endometriosis

Kennedy, S., Hadfield, R., Mardon, H., & Barlow, D. (1996) · Human Reproduction · doi:10.1093/humrep/11.2.403 · Cited by 63

What is important to the patient with endometriosis?

Kennedy, S. J. (1991) · PubMed · Cited by 25

ROLE OF STROMAL CELL-DERIVED FACTOR-1 IN NEOANGIOGENESIS IN ENDOMETRIOSIS LESIONS

Virani, S. (2011) · QSpace (Queen's University Library) · Cited by 2

The construction and validation of a health-related quality of life measure for women with endometriosis

Roomaney, R. (2017) · SUNScholar (Stellenbosch University) · Cited by 2

Disclosing the invisible : experiences, outcomes and quality of endometriosis healthcare

Grundström, H. (2018) · Linköping University medical dissertations · doi:10.3384/diss.diva-151005 · Cited by 1

Fibroids, Endometriosis, and Ovarian Cysts

Farkas, A. H., Tilstra, S. A., & Gonzaga, A. M. (2020) · Springer eBooks · doi:10.1007/978-3-030-50695-7_10 · Cited by 1

Diagnostic delay and health-related quality of life in Egyptian women with endometriosis

Othman, E. R., Abdelmagied, A. M., Khashbah, M. Y., Lambalk, C. B., & Mijatovic, V. (2024) · Middle East Fertility Society Journal · doi:10.1186/s43043-024-00169-7 · Cited by 1

Approaches to the search for immunological markers of endometriosis and the degree of its prevalence

Krechetova, K. L. V., Korotkova, T. D., Inviyaeva, E. V., & Adamyan, L. V. (2025) · Meditsinskiy sovet = Medical Council · doi:10.21518/ms2025-261 · Cited by 1

Diagnostic value of MiRNAs in endometriosis: a systematic review and meta-analysis

Wei, N., Liu, H., Zhang, Y., Yang, X., Wu, G., Dong, Z., Li, X., Yue, L., & Zhao, R. (2026) · BMC Women s Health · doi:10.1186/s12905-026-04281-w · Cited by 1

Bladder Endometriosis as Part of Complex Pelvic Deep Endometriosis: Surgical Challenges and Outcomes in a Reference Center

Mrugała, M., Fiutowski, M., Dąbrowska, A., Nowak, K., & Milnerowicz-Nabzdyk, E. (2026) · Journal of Clinical Medicine · doi:10.3390/jcm15051995 · Cited by 1

Emerging Pathways to Non-Invasive Diagnosis in Endometriosis: Integrating Machine Learning, Deep Learning and Multi-Omics Biomarkers

Markov, D., Gurung, J., Khalid, U., Bechev, K. I., Aleksiev, V., Markov, G., & Poryazova, E. (2026) · Diagnostics · doi:10.3390/diagnostics16121823 · Cited by 1

Laparoscopic diagnosis of endometriosis—Clinical study

Lahdemaki, H., Santala, M., & Ryynänen, M. (2013) · Open Journal of Obstetrics and Gynecology · doi:10.4236/ojog.2013.39122 · Cited by 1

Semi-invasive Diagnosis of Endometriosis Doctoral Thesis

Bokor, A. (2010) · Cited by 1

How to Protect Fertility Potential in Endometriosis

Begum, M. R., Ehsan, M., Ehsan, N., & Rashid, F. (2024) · Journal of South Asian Federation of Obstetrics and Gynaecology · doi:10.5005/jp-journals-10006-2380 · Cited by 1

Die Endometriose eine wenig bekannte, oft unerkannte Frauenkrankheit

Neukomm, C., & Mueller, M. (2008) · Swiss Medical Forum ‒ Schweizerisches Medizin-Forum · doi:10.4414/smf.2008.06545 · Cited by 1

Endometriose: Klinik und Therapie

Sillem, M. (2015) · Springer eBooks · doi:10.1007/978-3-662-43669-1_6 · Cited by 1

Life quality of patients with endometriosis

Мусабиевна, С. М., Логинова, О. Н., Arslanyan, K. N., Laskevich, A. V., & Donskova, N. V. (2015) · Russian Journal of Human Reproduction · doi:10.17116/repro201521689-96 · Cited by 1

Endometriosis of the ovary

Nardo, L. G., Gryparis, I., & Patchava, S. D. (2013) · Cambridge University Press eBooks · doi:10.1017/cbo9781139003254.013 · Cited by 1

The role of oxidation-sensitive nociception and epigenetics in endometriosis-associated pain

Wright, K. R. (2017) · Cited by 1

Narrow band imaging for thoracic endometriosis

Yamamoto, T., Fujikawa, R., Arai, Y., & Nakamura, T. (2020) · Surgical Case Reports · doi:10.1186/s40792-020-01000-x · Cited by 1

Morphokinetics in Embryos from Patients with Endometriosis

Artini, P. G., Pisacreta, E., Cappellini, S., & Carletti, E. (2020) · ISGE series · doi:10.1007/978-3-030-57866-4_12 · Cited by 1

Evaluation of Endometriosis in Infertility: Incidence, Clinical Features, and Laparoscopic Findings

Garg, S., Thakral, V., & Suren, P. (2020) · Journal of Mahatma Gandhi University of Medical Sciences and Technology · doi:10.5005/jp-journals-10057-0133 · Cited by 1

When pain is not the whole story: Presenting symptoms of women with endometriosis

Gordon, H. G., Mooney, S. S., Conroy, I., & Grover, S. R. (2022) · Australian and New Zealand Journal of Obstetrics and Gynaecology · doi:10.1111/ajo.13482 · Cited by 1

Adolesan Endometriozis

Kaplanoğlu, M., Çetin, Ç., Kaplanoğlu, D. K., & ÇETİN, M. T. (2020) · Türk Üreme Tıbbı ve Cerrahisi Dergisi · doi:10.24074/tjrms.2019-72881 · Cited by 1

Endometriosis

Reza, M., Mazloomfard, M. M., & Ansari, A. (2012) · InTech eBooks · doi:10.5772/32760 · Cited by 1

Chapitre 2 : Soulagement de la douleur

Author, N. (2019) · Journal of Obstetrics and Gynaecology Canada · doi:10.1016/j.jogc.2019.02.134 · Cited by 1

Tetramethylpyrazine Stalls Lesional Progression via Inducing Senescence in Mouse with Induced Deep Endometriosis

Luo, M., Cai, X., Liu, X., Yan, D., & Guo, S. (2022) · Medical Research Archives · doi:10.18103/mra.v10i11.3341 · Cited by 1

Cervical endometriosis: preventive and curative options

Качалина, О. В., & Sergeeva, A. A. (2023) · Russian Bulletin of Obstetrician-Gynecologist · doi:10.17116/rosakush20232301186 · Cited by 1

Microaggressions

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0002 · Cited by 1

Pathology of Non-Neoplastic Ovarian Enlargements

Penault-Llorca, F. M., Vaurs‐Barrière, C., Canis, M. J., & Dauplat, J. (2003) · Elsevier eBooks · doi:10.1016/b978-012053642-9/50009-0 · Cited by 1

Molecular profiling of human endometrium and endometriosis

Huhtinen, K. (2010) · UTUPub (University of Turku) · Cited by 1

Pathophysiological factors and genetic association in endometriosis

Sundqvist, J. (2011) · Figshare · Cited by 1

Surgical Management Options for Patients with Infertility and Endometriosis

Catenacci, M., & Falcone, T. (2010) · Current Women s Health Reviews · doi:10.2174/157340410791321363 · Cited by 1

Focus for the future: tackling the ‘pelvic pain’ problem in gynecologic practice — an interactive session

Walker, J. J. (2001) · International Journal of Gynecology & Obstetrics · doi:10.1016/s0020-7292(01)00462-3 · Cited by 1

"Endometriose do trato gastrointestinal: correlações clínicas e laparoscópicas; papel da corrida dos órgãos peritoneais na endometriose (COPE)"

Sagae, U. E. (2005) · Digital Library of Theses and Dissertations (Universidade de São Paulo) · doi:10.11606/d.5.2005.tde-12012006-100332 · Cited by 1

THE RISK OF MALIGNANCY

Melin, A. (2010) · Cited by 1

Identifying biomarkers for non-invasive diagnosis of endometriosis

Irungu, S. (2016) · UCL Discovery (University College London) · Cited by 1

Comparison of Health Behaviors in Adolescents With and Without Endometriosis

Brandt, K. A. (2004) · The Knowledge Bank (The Ohio State University) · Cited by 1

Physiopathologie de l'endométriose

Dumont, A., Collinet, P., Merlot, B., Abergel, A., Rubod, C., & Robin, G. (2017) · Time to knit · doi:10.1016/s0246-1064(17)65070-9 · Cited by 1

Exploring fatigue among women who live with endometriosis in South Africa

Sibande, Z. N. (2020) · Cited by 1

Exploring the Societal Burden of Endometriosis on Women: a MetaethnographyPreprint

Nwankudu, O. C., Idris, I. O., Ayomoh, F. I., & Onyes, U. (2021) · Preprints.org · doi:10.20944/preprints202109.0345.v1 · Cited by 1

FAQs from the 2012 CMA Annual Conference

(2017) · The Linacre Quarterly · doi:10.1080/00243639.2017.1330614 · Cited by 1

Endometriumo nervų skaidulų reikšmė diagnozuojant endometriozę

Makari, S. D., Švedas, E., Railaitė, D. R., Čižauskas, A., & Makari, J. (2012) · Lithuanian Obstetrics & Gynecology

Pelvic pain in women: common and challenging

Farquhar, C. M. (2008) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2008.tb01941.x

Endometriumo nervinės skaidulos ir endometriozės sąlygotas skausmas = Endometrial nerve fibers and endometriosis associated pain

Makari, S. D., Švedas, E., Railaitė, D. R., & Čižauskas, A. (2012) · Lithuanian Obstetrics & Gynecology

The risk of malignancy in women with endometriosis

Melin, A. (2010) · Figshare

Hidrolaparoscopia transvaginal: optimizando la técnica

Ávila, J. C. M., & Camero, H. R. (2001) · Revista Colombiana de Obstetricia y Ginecología · doi:10.18597/rcog.702

Prognosis of endometriosis after surgical treatment in adolescents below 20 year age

Sung, N., Kim, B. S., Cho, Y. J., Choo, Y. S., Kim, J. M., & Yang, S. H. (2011) · Korean Journal of Obstetrics & Gynecology · doi:10.5468/kjog.2011.54.8.448

Expectativas de las pacientes afectadas de endometriosis moderada-severa ante la cirugía

García, J. C., Rámila, C. J., Caraballo, A. J., & Peña, S. D. L. R. (2014) · Progresos de Obstetricia y Ginecología · doi:10.1016/j.pog.2014.09.004

Diagnostic Challenges in a Young Woman with Endometriosis: The Value of Excision

Donnelly, L., & Yeung, P. (2015) · Journal of Endometriosis and Pelvic Pain Disorders · doi:10.5301/je.5000201

Study on anorectal and colorectal diseases

Meurs‐Szojda, M. M. (2009) · Digital Academic REpository of VU University Amsterdam (Vrije Universiteit Amsterdam)

Endometriose und Infertilität

Manolopoulos, K., Suwandinata, F., & Hr, T. (2005) · Journal für Kardiologie (Krause & Pachernegg GmbH)

Avaliação do tempo decorrido entre o inicio dos sintomas e o diagnostico de endometriose

Arruda, M. D. S. (2002) · doi:10.47749/t/unicamp.2002.253142

This Journal feature begins with a case vignette highlighting a common clinical problem. Evidence supporting various strategies is then presented, followed by a review of formal guidelines, when they exist. The article ends with the author's clinical recommendations. Endometriosis

Giudice, L. C. (2010)

"Avaliação do perfil epidemiológico e clínico de portadoras de endometriose pélvica e identificação dos principais fatores de risco relacionados à doença obtidos através de questionário interativo"

Neme, R. M. (2005) · Digital Library of Theses and Dissertations (Universidade de São Paulo) · doi:10.11606/t.5.2005.tde-12042005-181432

Improving the Preclinical Mouse Efficacy Studies of Adenomyosis

Guo, S., & Habiba, M. A. (2015) · Springer eBooks · doi:10.1007/978-3-319-13012-5_8

Severe endometriosis in a young woman with unexpected end-organ failure

Waters, N., Kent, A., Rockall, T., & Hussain, F. F. (2015) · Oxford University Press eBooks · doi:10.1093/med/9780199654994.003.0002

The Clinical Usefulness of Endometrial Biopsy for the Diagnosis of Endometriosis in the Work up of Women with Infertility = الفائدة السريرية من استخدام خزعة بطانة الرحم لتشخيص بطانة الرحم المهاجرة عند النساء المصابات بالعقم

Al‐Jefout, M. (2016) · Jordan Medical Journal · doi:10.12816/0025981

The importance of systematic ultrasound evaluation for women with potential endometriosis

Heinz‐Partington, S., & Condous, G. S. (2016) · Australasian Journal of Ultrasound in Medicine · doi:10.1002/ajum.12034

ART in Endometriosis

Kohls, G., & García-Velasco, J. A. (2017) · Elsevier eBooks · doi:10.1016/b978-0-12-801238-3.64879-1

Endométriose Une maladie peu connue, souvent méconnue

Neukomm, C., & Mueller, M. (2008) · Forum Médical Suisse ‒ Swiss Medical Forum · doi:10.4414/fms.2008.06545

Psychosomatic Aspects

Leeners, B. (2011) · Wiley eBooks · doi:10.1002/9781444398519.ch53

MicroRNA and Endometriosis

Agrawal, S., & Becker, C. M. (2019) · Springer eBooks · doi:10.1007/978-3-030-28584-5_12

Sonographic Assessment of Pelvic Endometriosis

Holland, T. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108149877.009

Endometriosis

Burney, R. O., & Giudice, L. C. (2015) · Elsevier eBooks · doi:10.1016/b978-0-323-18907-1.00130-x

Biomarkers in endometriosis-associated pain

Margatho, D., & Bahamondes, L. G. (2021) · Elsevier eBooks · doi:10.1016/b978-0-12-818988-7.00036-4

Chronic pelvic pain in children and adolescents

Sager, S. L., & Laufer, M. R. (2013) · Oxford University Press eBooks · doi:10.1093/med/9780199642656.003.0030

Endometriosis Research: From Bench to Bedside

Laganà, A. S., & La Rosa, V. L. (2022) · MDPI eBooks · doi:10.3390/books978-3-0365-2798-7

Relationship between onset of symptoms and diagnostic delay in women with endometriosis

(2021) · Archives of Clinical Obstetrics and Gynecology Research · doi:10.33425/2768-0304.1001

Surgical Management of Endometriosis

Decesare, J. Z., & Williams, B. A. (2018) · Cambridge University Press eBooks · doi:10.1017/9781108178594.020

Endometriosis

Onyiuke, I. Y., Scoutt, L. M., & MCCARTHY, S. M. (2011) · Elsevier eBooks · doi:10.1016/b978-1-4377-1575-0.10009-x

Pelvic pain

Mazza, D. (2011) · Elsevier eBooks · doi:10.1016/b978-0-7295-3871-8.10005-0

Pain Management

(2010) · Journal of Obstetrics and Gynaecology Canada · doi:10.1016/s1701-2163(16)34591-1

Adolescent gynaecology

Mazza, D. (2011) · Elsevier eBooks · doi:10.1016/b978-0-7295-3871-8.10001-3

Diagnosis

Nardi, P. D., & Ferrari, S. M. (2011) · Springer eBooks · doi:10.1007/978-88-470-1866-2_2

Endométriose : traitement des lésions non infiltrantes

(2013) · Elsevier eBooks · doi:10.1016/b978-2-294-72681-1.00012-5

Endometriosis in Reproductive Years: ART and Endometriosis

Kohls, G., & García-Velasco, J. A. (2022) · Springer eBooks · doi:10.1007/978-3-030-97236-3_14

Association between neonatal uterine bleeding and endometriosis-related symptoms later in lifePreprint

Ogawa, K., Khan, K. N., Kuroboshi, H., Koshiba, A., Horiguchi, G., Teramukai, S., Fujishita, A., Itoh, K., Kitawaki, J., & Mori, T. (2022) · Research Square · doi:10.21203/rs.3.rs-1951340/v1

Association between neonatal uterine bleeding and endometriosis-related symptoms later in lifePreprint

Ogawa, K., Khan, K. N., Kuroboshi, H., Koshiba, A., Horiguchi, G., Teramukai, S., Fujishita, A., Itoh, K., Guo, S., Kitawaki, J., et al. (2022) · Research Square · doi:10.21203/rs.3.rs-1951340/v2

Suffering in Silence. Population-Level Detection and Risk-Prediction of Women’s Reproductive Disease from Claims DataPreprint

Rudinac, M., Moirogiannis, D., Baker, K., Makridakis, T., & Atsonios, I. (2023) · Research Square · doi:10.21203/rs.3.rs-2670098/v1

Pre-clinical Models of Endometriosis: A Focus on Chronic Pain

Maddern, J., Brierley, S. M., & Castro, J. (2023) · Springer eBooks · doi:10.1007/978-3-031-25702-5_16

Copyright Page

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.002.0004

Microaggressions Reconsidered

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0003

Epistemic Microaggressions

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0005

Introduction

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0001

Microaggressions Reconsidered

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0004

Conclusion

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0009

Emotional Microaggressions

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0006

How to Avoid Committing Microaggressions

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0008

Self-Identity Microaggressions

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.003.0007

Series Foreword

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.002.0007

Dedication

Freeman, L., & Stewart, H. (2024) · Oxford University Press eBooks · doi:10.1093/oso/9780197652480.002.0005

Directive clinique no 449 : Directive canadienne sur le diagnostic et les impacts de l’endométriose

Singh, S. S., Allaire, C., Al‐Nourhji, O., Bougie, O., Bridge-Cook, P., Duigenan, S., Kroft, J., Lemyre, M., Leonardi, M., Leyland, N. A., et al. (2024) · Journal of Obstetrics and Gynaecology Canada · doi:10.1016/j.jogc.2024.102451

Mendelian randomization Identifies RSPO3 in Serum as a Potential Target for EndometriosisPreprint

Guo, W., Zhong, Z., Yang, X., Ou, T., Zhang, D., Liu, Y., Zhang, Y., & Xiong, Y. (2024) · Research Square · doi:10.21203/rs.3.rs-4265646/v1

Clinical and anamnestic features of patients with recurrence of deep infiltrative endometriosis

Braslavskaya, E. P., Melkozerova, O. A., Semenov, Y. A., Mikhelson, A. A., Avseenko, M. A., Вараксин, А. Н., & Даниловна, К. Е. (2024) · Russian Journal of Human Reproduction · doi:10.17116/repro20243005189

Comparison of clinical practice guidelines methods to reach diagnostic test recommendations regarding diagnostic laparoscopy for endometriosis: A scoping review

Zela‐Coila, F., Quispe‐Vicuña, C., Nuñez-Lupaca, J. N., Aparicio-Curazi, M. M., & Goicochea-Lugo, S. (2024) · PLoS ONE · doi:10.1371/journal.pone.0310593

Validation of a smartphone app to shorten the diagnostic delay in endometriosis: a prospective observational pilot study

Schoep, M. E., Nap, A. W., Esam, L., Kesseler, C., Braat, D. D. M., & Nieboer, T. E. (2025) · Journal of Endometriosis and Uterine Disorders · doi:10.1016/j.jeud.2025.100138

Etude phénotypique des cellules endométriosiques profondes

Leconte, M. (2012) · theses.fr (ABES) · doi:10.70675/6c60e34az6799z41eaz8bacz16682a3d37ea

Additional file 1 of Vaginal and rectal microbiome contribute to genital inflammation in chronic pelvic pain

Jimenez, N. R., Norton, T., Diadala, G., Bell, E., Valenti, M., Farland, L. V., Mahnert, N. D., & Herbst‐Kralovetz, M. M. (2024) · Figshare · doi:10.6084/m9.figshare.26745167

Additional file 2 of Patients’ and relatives’ perspectives on best possible care in the context of developing a multidisciplinary center for endometriosis and adenomyosis: findings from a national survey

Omtvedt, M., Bean, E., Hald, K., Larby, E. R., Majak, G. B., & Tellum, T. (2022) · Figshare · doi:10.6084/m9.figshare.20056114

Additional file 4 of Vaginal and rectal microbiome contribute to genital inflammation in chronic pelvic pain

Jimenez, N. R., Norton, T., Diadala, G., Bell, E., Valenti, M., Farland, L. V., Mahnert, N. D., & Herbst‐Kralovetz, M. M. (2024) · Figshare · doi:10.6084/m9.figshare.26745197

Additional file 2 of Vaginal and rectal microbiome contribute to genital inflammation in chronic pelvic pain

Jimenez, N. R., Norton, T., Diadala, G., Bell, E., Valenti, M., Farland, L. V., Mahnert, N. D., & Herbst‐Kralovetz, M. M. (2024) · Figshare · doi:10.6084/m9.figshare.26745176

Factors Associated with Time to Endometriosis Diagnosis in the United States

Soliman, A. M., Fuldeore, M. J., & Snabes, M. C. (2017) · Journal of Women s Health · doi:10.1089/jwh.2016.6003 · Cited by 150

Time elapsed from onset of symptoms to diagnosis of endometriosis in a cohort study of Brazilian women

Arruda, M. S. (2003) · Human Reproduction · doi:10.1093/humrep/deg136 · Cited by 373

Diagnostic delay in women with pain and endometriosis

Husby, G. K., Haugen, R. S., & Moen, M. H. (2003) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1034/j.1600-0412.2003.00168.x · Cited by 307

Diagnostic delay for superficial and deep endometriosis in the United Kingdom

Ghai, V., Jan, H., Shakir, F., Haines, P., & Kent, A. S. H. (2019) · Journal of Obstetrics and Gynaecology · doi:10.1080/01443615.2019.1603217 · Cited by 198

Diagnostic delay in endometriosis: is there any progress?

de Kok, L., Boersen, Z., Coppus, S. F. P. J., van Haaps, A. P., van Hanegem, N., Klinkert, E. R., Maas, J. W. M., Mijatovic, V., Smeets, M. J. G. H., Steensma, A. B., et al. (2025) · Reproductive BioMedicine Online · doi:10.1016/j.rbmo.2025.105405 · Cited by 8