The DOI matches its Crossref record; 5 of the 5 references it cites were found in a registry or an index.
Delay in the diagnosis of endometriosis: a survey of women from the USA and the UK
Abstract
We investigated the length of time between the onset of pain symptoms and the surgical diagnosis of endometriosis in women from the UK and the USA. A total of 218 women with surgically confirmed disease, recruited through endometriosis self-help groups, completed a postal questionnaire. The mean +/- SD delay in diagnosis for women from the USA was 11.73 +/- 9.05 years, significantly higher than the equivalent delay of 7.96 +/- 7.92 years for women from the UK (P < 0.01). The stage of disease did not effect the length of time between the onset of symptoms and diagnosis. Therefore there is considerable delay in the diagnosis of endometriosis for women from both the UK and the USA. Efforts to reduce this delay are required to minimize the suffering of women with this disease.
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In the citing paper
“This study thus confirms a worrisome trend and worldwide public health problem: patients with endometriosis endure symptoms for years without being diagnosed (8-12, 27-29).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [27]
In the citing paper
“others indicate that it can last up to 10 to 12 years in the United States (6, 7)”
From Diagnostic experience among 4,334 women reporting surgically diagnosed endometriosis (2009) · cites this paper as [7]
Citations
Cites
Revised American Fertility Society Classification of Endometriosis: 1985
(1985) · Fertility and Sterility · doi:10.1016/s0015-0282(16)48430-x · Cited by 1,803
The lag time between onset of symptoms and diagnosis of rheumatoid arthritis
Chan, K. A., Felson, D. T., Yood, R. A., & Walker, A. M. (1994) · Arthritis & Rheumatism · doi:10.1002/art.1780370606 · Cited by 146
Menstrual symptoms in women with pelvic endometriosis
Mahmood, T. A., Templeton, A., THOMSON, L., & FRASER, C. (1991) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.1991.tb10370.x · Cited by 129
Age of onset of pain symptoms in non-twin sisters concordant for endometriosis
Kennedy, S., Hadfield, R., Mardon, H., & Barlow, D. (1996) · Human Reproduction · doi:10.1093/humrep/11.2.403 · Cited by 63
Self-citationWhat is important to the patient with endometriosis?
Kennedy, S. J. (1991) · PubMed · Cited by 25
Self-citation
Cited by
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Items 501–518 of 518
Omtvedt, M., Bean, E., Hald, K., Larby, E. R., Majak, G. B., & Tellum, T. (2022) · Figshare · doi:10.6084/m9.figshare.20056111
Jimenez, N. R., Norton, T., Diadala, G., Bell, E., Valenti, M., Farland, L. V., Mahnert, N. D., & Herbst‐Kralovetz, M. M. (2024) · Figshare · doi:10.6084/m9.figshare.26745185
Wang, Y., Shaw, P. A., Boufford, C. K., Davis, A. C., Lewis, E., Vallon, A., Naief, L. T., Ednie, M., Ritzert, L., Amrit, F. R. G., et al. (2025) · Molecular Human Reproduction · doi:10.1093/molehr/gaaf061
Endométriose, douleur et sexualité
Marcaillou, F. (2026) · Douleurs Évaluation - Diagnostic - Traitement · doi:10.1016/j.douler.2025.11.005
Nerve fibers in endometriosis: pain pathogenesis and new approaches to diagnosis
Adamyan, L. V., Мусабиевна, С. М., Paklina, O. V., Karapetyan, E. A., & Arslanyan, K. N. (2026) · Russian Journal of Human Reproduction · doi:10.17116/repro20263202154
Allen, S. E., Kenkre, T. S., Su, S., Lee, T. T. M., & Donnellan, N. M. (2026) · Journal of Gynecologic Surgery · doi:10.1177/10424067261451104
Miklós, D., Bokor, A., Beretzky, Z., Brodszky, V., Lakat, T., Hudelist, G., Balpataki, L., & Balogh, D. B. (2026) · Preventive Medicine Reports · doi:10.1016/j.pmedr.2026.103501
Endometriosis-related Google search interest in the United States, 2004–2024
Özkaya, E. B., Özkaya, B., Cote, S., & Nezhat, F. R. (2026) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2026.115206
Ellis, K. B., Meador, A., Wood, R., & Donoghue, J. F. (2026) · Reproductive Medicine · doi:10.3390/reprodmed7030038
Maulida, W., Suryawan, A. Z., Ritonga, M. A., & Tjahyadi, D. (2026) · International Journal of Women s Health · doi:10.2147/ijwh.s626110
Transcriptome differences in lesions by color, and cancer mutations in endometriosis
Huang, J. Y., Relovská, S., Madnani, R. S., Li, L., Liu, S., Milne, A., Waldman, I. N., Seshan, M. L., Lindholm, A. E., Disler, E. R., et al. (2026) · Reproduction and Fertility · doi:10.1530/raf-26-0057
Gendered Illnesses and Embodied Knowledge: A Phenomenological Body-Mapping Study of Endometriosis
Bisig, K. A., Idrees, S., & Hannes, K. (2026) · International Journal of Social Determinants of Health and Health Services · doi:10.1177/27551938261473770
Artificial Intelligence in Endometriosis Management: A Guideline-Concordance Study
Darıcı, E., Kemahli, M. N. C., Karabük, E., & Köse, M. F. (2026) · Cerasus journal of medicine. · doi:10.70058/cjm.1973205
International Trends in Endometriosis Delay to Diagnosis Data
Ellis, K. B., & Wood, R. (2026) · Health & Social Care in the Community · doi:10.1155/hsc/7911605
Shortening the Endometriosis Diagnostic Pathway: A Narrative Review and Research Agenda
Muhtaroğlu, F., Muhtaroğlu, A., Camuzcuoğlu, A., & Camuzcuoğlu, H. (2026) · International Journal of Women s Health · doi:10.2147/ijwh.s645871
Global inequities and fragmentation in guidelines for endometriosis: a scoping review
Gete, D. G., Evans, D. L., Abbott, J., Ribeiro, L. W., Zondervan, K. T., Giudice, L. C., Rombauts, L. J. F., Leonardi, M., Senanayake, H. M., Adamson, G. D., et al. (2026) · Communications Medicine · doi:10.1038/s43856-026-01907-w
Metadata
- Authors
- Hadfield, R., Mardon, H., Barlow, D., & Kennedy, S.
- Affiliations
- John Radcliffe Hospital (GB)
- Corresponding author
- Kennedy, S.
- Venue
- Human Reproduction
- Publisher
- Oxford University Press (OUP)
- Published
- 1996-04-01
- Volume
- 11
- Issue
- 4
- Pages
- 878-880
- ISSN
- 0268-1161 (ISSN-L)
- 1460-2350
- OpenAlex
- W2161529162
- Cited by
- 517
- References
- 5
- Citations by year
- 2026: 17 · 2025: 20 · 2024: 37 · 2023: 16 · 2022: 32 · 2021: 21 · 2020: 36 · 2019: 29 · 2018: 24 · 2017: 22 · 2016: 19 · 2015: 20 · 2014: 19 · 2013: 22 · 2012: 29
- FWCI
- 2.83
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Human Reproduction (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Age UK
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Health Sciences › Medicine › Obstetrics and Gynecology › Gynecological conditions and treatments
- Health Sciences › Medicine › Obstetrics and Gynecology › Ectopic Pregnancy Diagnosis and Management
- Keywords
- endometriosis, delayed diagnosis, pain symptoms, disease stage, cross-national comparison, women's health, self-help groups
- MeSH terms
- Adult, Endometriosis, England, Female, Humans, Time Factors, United States
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