The DOI matches its Crossref record; 43 of the 43 references it cites were found in a registry or an index.
Surviving critical illness: Acute respiratory distress syndrome as experienced by patients and their caregivers
Open accessAbstract
OBJECTIVE: To characterize the effects of critical illness in the daily lives and functioning of acute respiratory distress syndrome survivors. Survivors of acute respiratory distress syndrome, a systemic critical illness, often report poor quality of life based on responses to standardized questionnaires. However, the experiences of acute respiratory distress syndrome survivors have not been reported. DESIGN: We conducted semistructured interviews with 23 acute respiratory distress syndrome survivors and 24 caregivers 3 to 9 mos after intensive care unit admission, stopping enrollment after thematic saturation was reached. Transcripts were analyzed, using Colaizzi's qualitative methodology, to identify significant ways in which survivors' critical illness experience impacted their lives. SETTING: Medical and surgical intensive care units of an academic medical center and a community hospital. PATIENTS: We recruited consecutively 31 acute respiratory distress syndrome survivors and their informal caregivers. Eight patients died before completing interviews. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: Participants related five key elements of experience as survivors of acute respiratory distress syndrome: 1) pervasive memories of critical care; 2) day-to-day impact of new disability; 3) critical illness defining the sense of self; 4) relationship strain and change; and 5) ability to cope with disability. Survivors described remarkable disability that persisted for months. Caregivers' interviews revealed substantial strain from caregiving responsibilities as well as frequent symptom minimization by patients. CONCLUSIONS: The diverse and unique experiences of acute respiratory distress syndrome survivors reflect the global impact of severe critical illness. We have identified symptom domains important to acute respiratory distress syndrome patients who are not well represented in existing health outcomes measures. These insights may aid the development of targeted interventions to enhance recovery and return of function after acute respiratory distress syndrome.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Patients who are sick enough to be admitted to an intensive care unit (ICU) commonly experience symptoms of psychological distress after discharge”
From Effects of mindfulness training programmes delivered by a self-directed mobile app and by telephone compared with an education programme for survivors of critical illness: A pilot randomised clinical trial (2019) · cites this paper as [1]
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Knaus, W. A., Draper, E. A., Wagner, D. P., & Zimmerman, J. E. (1985) · Critical Care Medicine · doi:10.1097/00003246-198510000-00009 · Cited by 15,518
APACHE II-A Severity of Disease Classification System
Knaus, W. A., Draper, E. A., Wagner, D. P., & Zimmerman, J. E. (1986) · Critical Care Medicine · doi:10.1097/00003246-198608000-00028 · Cited by 13,379
Vincent, J. L., Moreno, R., Takala, J., Willatts, S., De Mendonça, A., Bruining, H., Reinhart, C. K., Suter, P. M., & Thijs, L. G. (1996) · Intensive Care Medicine · doi:10.1007/bf01709751 · Cited by 11,674
Bernard, G. R., Artigas, A., Brigham, K. L., Carlet, J., Falke, K., Hudson, L., Lamy, M., Legall, J. R., Morris, A., & Spragg, R. (1994) · American journal of respiratory and critical care medicine · doi:10.1164/ajrccm.149.3.7509706 · Cited by 6,746
APACHE II: a severity of disease classification system.
Knaus, W. A., Draper, E. S., Wagner, D. P., & Zimmerman, J. E. (1985) · PubMed · Cited by 6,034
Incidence and Outcomes of Acute Lung Injury
Rubenfeld, G. D., Caldwell, E., Peabody, E., Weaver, J., Martin, D. P., Neff, M., Stern, E. J., & Hudson, L. D. (2005) · New England Journal of Medicine · doi:10.1056/nejmoa050333 · Cited by 3,684
Clinical Epidemiology: A Basic Science for Clinical Medicine.
(1991) · Annals of Internal Medicine · doi:10.7326/0003-4819-114-9-825_9 · Cited by 3,497
(1978) · Medical Entomology and Zoology · Cited by 3,025
One-Year Outcomes in Survivors of the Acute Respiratory Distress Syndrome
Herridge, M. S., Cheung, A. M., Tansey, C. M., Matte-Martyn, A., Diaz-Granados, N., Al-Saidi, F., Cooper, A. B., Guest, C. B., Mazer, C. D., Mehta, S., et al. (2003) · New England Journal of Medicine · doi:10.1056/nejmoa022450 · Cited by 2,334 · cited 3×
“To include a range of the experiences an ARDS survivor might encounter during the year after critical care while focusing on the early dynamic stages of recovery, we randomly assigned participants to be interviewed at 1 to 3 mos (9 37% ), 4 to 6 mos (5 21% ), 7 to 9 mos (5 21% ), and 10 to 12 mos (5 21% ) after discha…”
BackgroundResultRisk of post-traumatic stress symptoms in family members of intensive care unit patients
Azoulay, E., Pochard, F., Kentish-Barnes, N., Chevret, S., Aboab, J., Adrie, C., Annane, D., Bleichner, G., Bollaert, P. E., Darmon, M., et al. (2005) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200409-1295oc · Cited by 1,332
Flagged first, then by citations
Research works printed but not linked: 1
- Larson, 2007, J Int Neuropsychol Soc, 13, 595
Cited by
Sorted by citations
Items 101–133 of 133
Creutzfeldt, C. J., Brumback, L. C., Im, J., Pollak, K. I., Vasconcelos, A. G., Song, Y., Sibley, J., Ungar, A., Garzio, G., Treece, P. D., et al. (2026) · Critical Care Medicine · doi:10.1097/ccm.0000000000007268 · Cited by 1
Anderson, B. J., & Mikkelsen, M. E. (2016) · Journal of Thoracic Disease · doi:10.21037/jtd.2016.10.38 · Cited by 1
Laurent, H., Aubreton, S., Vallat, A., Pereira, B., Souweine, B., Constantin, J., & Coudeyre, E. (2021) · European Journal of Physical and Rehabilitation Medicine · doi:10.23736/s1973-9087.20.06274-7 · Cited by 1
Clark, J. D., Kraft, S. A., Dervan, L. A., Gennaro, J. L. D., Hurson, J., Watson, R. S., Zimmerman, J. J., Meert, K. L., & for the Life After Pediatric Sepsis Evaluation (LAPSE) Investigators (2021) · Journal of Pediatric Intensive Care · doi:10.1055/s-0041-1736547 · Cited by 1
Chuck the Old Compass for a New One: Navigating Palliative Care in the ICU*
Aslakson, R. A. (2022) · Critical Care Medicine · doi:10.1097/ccm.0000000000005722 · Cited by 1
From Risk to Recovery: Predicting Quality of Life After Critical Illness
Honarmand, K. (2025) · Critical Care Medicine · doi:10.1097/ccm.0000000000006776 · Cited by 1
Hackner, D., Cox, C. E., Hassenpflug, M. S., Balfe, D. L., Zapata, A., Killu, C., & Carson, S. S. (2010) · ICU Director · doi:10.1177/1944451610365493 · Cited by 1
Self-citationPalliative Care in the Intensive Care Unit (ICU)
Aslakson, R. A., & Curtis, J. R. (2019) · Springer eBooks · doi:10.1007/978-3-319-77740-5_51 · Cited by 1
Amakali, K. (2013) · UNAM Scholarly Repository (University of Namibia) · Cited by 1
da Silva, C. Z. (2018) · doi:10.47749/t/unicamp.2018.1092711 · Cited by 1
Stevens, R. D., Sharshar, T., & Ely, E. W. (2013) · Cambridge University Press eBooks · doi:10.1017/cbo9781139248822.004
Psychiatric disorders following critical illnesses
Davydow, D. S. (2013) · Cambridge University Press eBooks · doi:10.1017/cbo9781139248822.006
McGinnis, J. E., & Rajput, V. (2011) · Yearbook of Critical Care Medicine · doi:10.1016/j.yccm.2011.01.022
Dellinger, R. P. (2010) · Yearbook of Critical Care Medicine · doi:10.1016/s0734-3299(10)79382-5
What Is Chronic Critical Illness and What Outcomes Can Be Expected?
Cox, C. E., & Curtis, J. R. (2012) · Elsevier eBooks · doi:10.1016/b978-1-4377-3796-7.00058-6
Self-citationPalliative Care for the Anesthesia Provider
Gustin, A. N. (2017) · Springer eBooks · doi:10.1007/978-3-319-66878-9_31
Palliative Care in the Intensive Care Unit: A Universal Need
Gustin, A. N. (2019) · Difficult decisions in surgery: an evidence-based approach · doi:10.1007/978-3-030-04146-5_4
da Silva, C. Z., Campos, C. J. G., Jamarim, M. F. M., & Lima, G. M. P. D. A. (2020) · Revista CUIDARTE · doi:10.15649/cuidarte.1018
Toward Personalizing Family Support in the ICU
Hope, A. A. (2020) · CHEST Journal · doi:10.1016/j.chest.2020.06.054
The Role of Palliative Care in the Intensive Care Unit
Goss, A., & Creutzfeldt, C. J. (2021) · Cambridge University Press eBooks · doi:10.1017/9781108633246.019
Cognitive Dysfunction in ARDS Survivors
Andrews, S. R., & Bienvenu, O. J. (2019) · Elsevier eBooks · doi:10.1016/b978-0-12-801238-3.11481-3
Faramarzi, A., Shorofi, S. A., Yazdi, K., Tatari, M., & Esmaeili, R. (2023) · Tabari Biomedical Student Research Journal · doi:10.32598/tbsrj.v5i2.10536
What Is Chronic Critical Illness and What Outcomes Can Be Expected
Wendlandt, B., Cox, C. E., & Curtis, J. R. (2023) · Elsevier eBooks · doi:10.1016/b978-0-323-84702-5.00048-8
Self-citationPalliative Care in the Intensive Care Unit (ICU)
Aslakson, R. A., & Curtis, J. R. (2024) · Springer eBooks · doi:10.1007/978-3-319-31738-0_51-2
Palliative Care in the Intensive Care Unit (ICU)
Aslakson, R. A., & Curtis, J. R. (2024) · Springer eBooks · doi:10.1007/978-3-031-48991-4_51
Sleep and Sleep Deprivation Among Families in the ICU
Jaiswal, S. J., Bellinghausen, A. L., & Owens, R. L. (2025) · Springer eBooks · doi:10.1007/978-3-031-83786-9_10
Goodman, J. R., Bankar, D., Rao, V. K., & Vogelsong, M. A. (2025) · ASAIO Journal · doi:10.1097/mat.0000000000002596
McPeake, J., Henderson, P., MacTavish, P., Devine, H., Daniel, M., Lucie, P., Bollan, L., Hogg, L., MacMahon, M., Mulhern, S., et al. (2022) · Figshare · doi:10.6084/m9.figshare.19862555
Yeo, H. J., Kim, Y. S., Kim, D., & Cho, W. H. (2020) · Figshare · doi:10.6084/m9.figshare.12838476
McPeake, J., Henderson, P., MacTavish, P., Devine, H., Daniel, M., Lucie, P., Bollan, L., Hogg, L., MacMahon, M., Mulhern, S., et al. (2022) · Figshare · doi:10.6084/m9.figshare.19862558
McPeake, J., Henderson, P., MacTavish, P., Devine, H., Daniel, M., Lucie, P., Bollan, L., Hogg, L., MacMahon, M., Mulhern, S., et al. (2022) · Figshare · doi:10.6084/m9.figshare.19862552
What Matters Most to Patients and Families
Andersen, S. K., & Fiest, K. M. (2026) · Cambridge University Press eBooks · doi:10.1017/9781009501477.027
Baudier, R. L., Mosack, K. E., Lapidus, J., Porter, L. S., Anderson, A., Hope, A. A., johnson, A., Johnson, K. S., Lesowski, K., Mantelli, R. A., et al. (2026) · Contemporary Clinical Trials · doi:10.1016/j.cct.2026.108359
Self-citation
Metadata
- Authors
- Cox, C. E., Docherty, S. L., Brandon, D. H., Whaley, C., Attix, D. K., Clay, A. S., Dore, D. V., Hough, C. L., White, D. B., & Tulsky, J. A.
- Affiliations
- Duke University (US)
- University of Washington (US)
- University of Pittsburgh (US)
- ORCID
- Venue
- Critical Care Medicine
- Published
- 2009-10
- Volume
- 37
- Issue
- 10
- Pages
- 2702-2708
- ISSN
- 0090-3493 (ISSN-L)
- PMC
- PMC2771584
- OpenAlex
- W2080634338
- Cited by
- 136
- References
- 43
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 7 · 2023: 5 · 2022: 14 · 2021: 11 · 2020: 9 · 2019: 11 · 2018: 12 · 2017: 7 · 2016: 11 · 2015: 9 · 2014: 6 · 2013: 8 · 2012: 8
- FWCI
- 4.77
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Critical Care Medicine (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Heart, Lung, and Blood Institute (K23HL081048, K23HL074294)
- National Center for Research Resources (KL2RR024130)
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Respiratory Support and Mechanisms
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Intensive Care Unit Cognitive Disorders
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Family and Patient Care in Intensive Care Units
- Keywords
- acute respiratory distress syndrome, critical illness survivors, patient experience, caregiver experiences, disability, quality of life, coping, relationship strain, selfhood, intensive care unit survivors, post-intensive care recovery
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adult, Aged, Body Image, Critical Care, Culture, Disability Evaluation, Empathy, Female, Follow-Up Studies, Humans, Male, Middle Aged, Patient Care Team, Quality of Life, Mental Recall, Respiratory Distress Syndrome, Self Concept, Sick Role, Social Support, Stress Disorders, Post-Traumatic, Caregivers, Outcome Assessment, Health Care, Cost of Illness, Survivors
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
