The DOI matches its Crossref record; 43 of the 43 references it cites were found in a registry or an index.
Surviving critical illness: Acute respiratory distress syndrome as experienced by patients and their caregivers
Open accessAbstract
OBJECTIVE: To characterize the effects of critical illness in the daily lives and functioning of acute respiratory distress syndrome survivors. Survivors of acute respiratory distress syndrome, a systemic critical illness, often report poor quality of life based on responses to standardized questionnaires. However, the experiences of acute respiratory distress syndrome survivors have not been reported. DESIGN: We conducted semistructured interviews with 23 acute respiratory distress syndrome survivors and 24 caregivers 3 to 9 mos after intensive care unit admission, stopping enrollment after thematic saturation was reached. Transcripts were analyzed, using Colaizzi's qualitative methodology, to identify significant ways in which survivors' critical illness experience impacted their lives. SETTING: Medical and surgical intensive care units of an academic medical center and a community hospital. PATIENTS: We recruited consecutively 31 acute respiratory distress syndrome survivors and their informal caregivers. Eight patients died before completing interviews. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: Participants related five key elements of experience as survivors of acute respiratory distress syndrome: 1) pervasive memories of critical care; 2) day-to-day impact of new disability; 3) critical illness defining the sense of self; 4) relationship strain and change; and 5) ability to cope with disability. Survivors described remarkable disability that persisted for months. Caregivers' interviews revealed substantial strain from caregiving responsibilities as well as frequent symptom minimization by patients. CONCLUSIONS: The diverse and unique experiences of acute respiratory distress syndrome survivors reflect the global impact of severe critical illness. We have identified symptom domains important to acute respiratory distress syndrome patients who are not well represented in existing health outcomes measures. These insights may aid the development of targeted interventions to enhance recovery and return of function after acute respiratory distress syndrome.
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“Patients who are sick enough to be admitted to an intensive care unit (ICU) commonly experience symptoms of psychological distress after discharge”
From Effects of mindfulness training programmes delivered by a self-directed mobile app and by telephone compared with an education programme for survivors of critical illness: A pilot randomised clinical trial (2019) · cites this paper as [1]
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Herridge, M. S., Cheung, A. M., Tansey, C. M., Matte-Martyn, A., Diaz-Granados, N., Al-Saidi, F., Cooper, A. B., Guest, C. B., Mazer, C. D., Mehta, S., et al. (2003) · New England Journal of Medicine · doi:10.1056/nejmoa022450 · Cited by 2,334 · cited 3×
“To include a range of the experiences an ARDS survivor might encounter during the year after critical care while focusing on the early dynamic stages of recovery, we randomly assigned participants to be interviewed at 1 to 3 mos (9 37% ), 4 to 6 mos (5 21% ), 7 to 9 mos (5 21% ), and 10 to 12 mos (5 21% ) after discha…”
BackgroundResultRisk of post-traumatic stress symptoms in family members of intensive care unit patients
Azoulay, E., Pochard, F., Kentish-Barnes, N., Chevret, S., Aboab, J., Adrie, C., Annane, D., Bleichner, G., Bollaert, P. E., Darmon, M., et al. (2005) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200409-1295oc · Cited by 1,332
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Needham, D. M., Davidson, J., Cohen, H., Hopkins, R. O., Weinert, C., Wunsch, H., Zawistowski, C., Bemis-Dougherty, A., Berney, S. C., Bienvenu, O. J., et al. (2012) · Critical Care Medicine · doi:10.1097/ccm.0b013e318232da75 · Cited by 2,639
Herridge, M. S., Moss, M., Hough, C. L., Hopkins, R. O., Rice, T. W., Bienvenu, O. J., & Azoulay, E. (2016) · Intensive Care Medicine · doi:10.1007/s00134-016-4321-8 · Cited by 442
Self-citationThe Changing Role of Palliative Care in the ICU
Aslakson, R. A., Curtis, J. R., & Nelson, J. E. (2014) · Critical Care Medicine · doi:10.1097/ccm.0000000000000573 · Cited by 358
Rehabilitation After Critical Illness in People With COVID-19 Infection
Simpson, R., & Robinson, L. (2020) · American Journal of Physical Medicine & Rehabilitation · doi:10.1097/phm.0000000000001443 · Cited by 323
Reported burden on informal caregivers of ICU survivors: a literature review
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Metadata
- Authors
- Cox, C. E., Docherty, S. L., Brandon, D. H., Whaley, C., Attix, D. K., Clay, A. S., Dore, D. V., Hough, C. L., White, D. B., & Tulsky, J. A.
- Affiliations
- Duke University (US)
- University of Washington (US)
- University of Pittsburgh (US)
- ORCID
- Venue
- Critical Care Medicine
- Published
- 2009-10
- Volume
- 37
- Issue
- 10
- Pages
- 2702-2708
- ISSN
- 0090-3493 (ISSN-L)
- PMC
- PMC2771584
- OpenAlex
- W2080634338
- Cited by
- 136
- References
- 43
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 7 · 2023: 5 · 2022: 14 · 2021: 11 · 2020: 9 · 2019: 11 · 2018: 12 · 2017: 7 · 2016: 11 · 2015: 9 · 2014: 6 · 2013: 8 · 2012: 8
- FWCI
- 4.77
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Critical Care Medicine (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Heart, Lung, and Blood Institute (K23HL081048, K23HL074294)
- National Center for Research Resources (KL2RR024130)
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Respiratory Support and Mechanisms
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Intensive Care Unit Cognitive Disorders
- Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Family and Patient Care in Intensive Care Units
- Keywords
- acute respiratory distress syndrome, critical illness survivors, patient experience, caregiver experiences, disability, quality of life, coping, relationship strain, selfhood, intensive care unit survivors, post-intensive care recovery
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adult, Aged, Body Image, Critical Care, Culture, Disability Evaluation, Empathy, Female, Follow-Up Studies, Humans, Male, Middle Aged, Patient Care Team, Quality of Life, Mental Recall, Respiratory Distress Syndrome, Self Concept, Sick Role, Social Support, Stress Disorders, Post-Traumatic, Caregivers, Outcome Assessment, Health Care, Cost of Illness, Survivors
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